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Covid

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Anyone else still getting a racing heart months after Covid?

78 replies

Christoncrutches · 02/02/2021 12:17

Started just after moderately serious covid infection in March/April 2020 - first time got ambulance out n’ everything but as my heart rate was even, albeit high, I was referred to GP who eventually, after repeated bouts of tachycardia, prescribed beta blockers to be taken as needed.

Seems episodic, normally comes on for a fortnight or so, then fades away for a while. At first it came back every few weeks and now, almost 10 months later, there have been gaps of months. Back this morning with a vengeance though - as usual coming on after a shower. Night times and morning are worst and it often wakes me up from sleeping.

I’ve been referred to the cardiac clinic at the hospital for further testing but the appointment took ages to come through then was cancelled because of covid, so I still don’t know for sure if I have any actual damage to my heart, or if it’s just a post viral reaction which will take time to go away. That lack of clarity always adds to the stress when I get an episode as I worry it could be more serious. Hard to calm down when your heart is going bananas!

I also have chronic pain since covid, in my ribs, back and shoulder, but the doctor hasn’t connected it to the infection - I personally think its all long covid and is caused my inflammation-related. Hard to prove or disprove that without a referral though. Generally feeling fucked off and mightily frustrated that there’s no follow up care. Anyone else having similar experience?

OP posts:
BonnesVacances · 16/11/2021 07:29

@KatyMac

I'm hypermobile, with cfs & fm

Mast cell has been a query for a while! As has POTS

Plus I have low blood pressure 93/64 was a recent one which is top of my range I can get the bottom number down to 55 quite often & the GP refuses to accept when it's 100/70 that's pretty high for me

With that list, you might find this paper interesting. It's about how MCAS is often misdiagnosed as Fibromyalgia as there's pain in both.
https://www.researchgate.net/publication/326426655IssItReallyyFibromyalgiaRecognizinggMastCelllActivationOrthostaticcTachycardiaanddHypermobility

BonnesVacances · 16/11/2021 07:38

@Christoncrutches

Am the OP - 9 months on the high heart rate symptoms have mostly subsided…. Very occasionally notice it but its rare now that I need to take a beta-blocker. Was diagnosed with super ventricular tachycardia most likely caused by covid. Heart scan was fine and very reassuring. Seems its an electrical issue imo, caused by virus. Still have foul chronic pain issues which have become quite disabling and yet to receive specific care for this that makes any positive difference. I think i have covid-related muscle/nerve damage.
Sorry to hear that OP. I don't know much about SVT but I'm glad you've found someone who does. Re the pain, have you ruled out MCAS? I read so many posts from people who seem to suffer from it as Covid has really upset their mast cells. Do you get anything that feels like hayfever, asthma, a cold or any other allergic reaction like rash or spots? Anything that responds to food or stress or heat?
Lifebegins21 · 16/11/2021 19:43

'You can't rule out PoTS with a blood test and ECG.Best thing to do is Google the NASA standing test and measure your HR and BP for 10 mins and see what that shows you. Then find a dysautonomia specialist via the POTS UK website and get your purse out as unfortunately the NHS do not treat PoTS very well and unless you're very lucky, they don't give you medication either.'

Sorry, that was wrong what I wrote. My GP did mention POT's when I spoke to him over the phone, but It was something to do with my thyroid I got tested for and was ruled out.

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