Covid Lungs week 8 plus plus

[AndsLee]

Hope this has worked... Welcome all.

@JackJackIncredible, good to hear your news!

Great @JackJackIncredible! Thanks so much for posting!! Can I ask how long it took you to recover?

Watching my DD (16) and I have both had the motion sickness and nausea with screens. I have sort of resolved it by increasing the font size and screen view to 150% of normal. But I would contact a GP about the pain when she moves her head - one of my colleagues had something similar that he felt dizzy when he moved his head and he did get some medication to help (this was not covid-related). So there might be two different issues there. With us, the motion sickness and screens has gradually improved but my DD is doing quite a bit the old-fashioned way by writing things out on paper. She is using a yellow legal pad, rather than white, which is easier on the eyes. I still cannot do more than a couple of hours but it is definitely improving.

Tiddletaddle regarding chest pain, my GP thinks it is the chest wall - but I guess I want them to rule out cardiac involvement properly not just with questions and an oximeter, because at times the pain really did feel like that. It has settled now but like you say, the fear is setting it off again.

@Egghead68 Sounds like your doing amazing well and your body is really getting back to normal!

@katysun Thanks for the info, that’s really interesting and It makes so much sense because my screen is currently set to a high resolution and theres a lot on screen. I’ll try making everything bigger. Sorry about your daughters, hope they’re better now.

@Watchingtv44 I have only seen it mentioned a couple of times but I only hang out here and don’t see the Slack and FB posts. I think it is a thing because It takes a lot of mental concentration to use a screen. The advice for PVFS is to minimise screens.

@JackJackIncredible Awesome

@Lightsabre Hey, hope you’re okay. It’s great that you have been referred to a respiratory team I hope they get a CT scan organised for you. Do you have an appointment date yet?

Anyone else who has lost their smell and or taste for 3 months here? My hubby and I both lost it at the same time around mid March but mine came back gradually after about 2/3 weeks while my husband still cannot smell a thing. He can taste every so slightly but nowhere near normal.

Morning all and hope you have some sunny weather where you are.

I too struggle with screens for long periods and zoom in and work at a higher resolution . I also take more breaks from the computer. I should use my phone less too.

Although I had the return of SOB and chest pain quite unexpectedly a couple of days ago, yesterday I began to feel a little bit of normal. It's strange, like glimpses of the old me peeking through. Yesterday I spent most of the day feeling more normal. The fatigue felt it had lifted. I realised that until now I haven't felt normal at all at any stage and it was great to feel that bounce of wellness coming back.

Still, I know I need to be very careful and continue to rest etc, but feeling hopeful.

@MillStone, thanks. No date yet and expecting a long wait here sadly. Can I ask if you had a clear chest X-ray prior to the cat scan please? PM me if you'd rather not say on here ( sorry I can't Pm you as I'm using the app on my phone!).

@Millstone thank you! I have had 14 OK days in a row which is my longest stretch yet.

Wishing everyone well.

@TiddleTaddleTat, hopefully this is the start of a recovery for you - fingers crossed! I find any bit of progress heartening - it makes me feel like there is light at the end of the tunnel.

HI all,

I have had a tight chest, with a small amount of pain for the last few days, only had similar ages ago and very briefly. No cough and oxygen okay, anyone else? Is it anything to worry about? Feels quite uncomfortable.

I’ve got this ongoing scratchy throat, windpipe irritation, breathing through dust thing. One improves, the other returns.

@Lightsabre sure, my chest X-ray was completely clear and no bloods indicated any issues. That X-ray was 5 weeks.

Even though a clot has now been found, because it’s low down and has been there for nearly 3 months, they don’t seem that worried and they’re not sure if anticoagulants are a good or bad idea at this stage.

Maybe after the next scan it will confirm the problem and they might decide. I might be wrong but I think our bodies eliminate clots naturally (please).

Expect others might be in this position too, But I was assured by the consultant and my GP that it’s not really a big worry. I kind of disagree...

I think our SOB as well as all of the other ailments are all a result of PVFS/CFS. Our lungs might be a bit sore but I’m of the firm belief that as our strength returns so will our breathing and heart issues. Realistically I’m bracing myself for a year of rest though.

Oh and the sore, stingy eyes..these were things I had months ago, how bizarre that they just return 🤷‍♀️ I’m starting to think I’ve had this longer than I thought, possibly 13 odd weeks..surely there should be progress now and things like stingy eyes and diarreah shouldn’t be still returning

@MillStone sorry to hear that you have joined the embolism club. As you know I am currently in the thick of it with an acute embolism, and one of my colleagues has also recently had his first pulmonary embolism after “mild” (i.e. managed-at-home) Covid.

I am astounded that they are not looking into your clotting propensity with a view to starting anticoagulant therapy if need be, to stop it happening again. Anticoagulants don’t dissolve clots; they prevent them from getting bigger or new ones forming, giving our bodies a chance to heal. So while it may not be as urgent when your only clot is a resolving one, it is still important for your future health that you aren’t left at undue risk of recurrence - especially if you are on the contraceptive pill or HRT in the meantime (which is none of my business, but would be relevant).

@Moodgie totally, it comes and goes, I think it’s reflux? The acid can get in your lungs and cause SOB and it burns the windpipe. Are you taking any PPI medication?

@whatnext2018 sorry you’re seeing those ongoing symptoms.

@LarkDescending thanks for the info. I didn’t realise that and no one mentioned it. I’m going to raise it with someone. Thanks

@Millstone Not sure about the reflux, I haven’t really got any reflux issues. Although I’d rather it was that. But then if chest x ray is clear it doesn’t sound like it is your airways. I’m thinking some kind of spasms or sensitivity? Like anything that heals would have some sensitivity afterwards? Not sure if that makes sense.

Hi all
got a message from the GP re my blood tests. My vit D and iron, thyroid, kidneys all good. Liver slightly raised (expected that- isolation diet) and the GF and inflammatory samples....have gone missing and need to be re-tested. Sigh. Just going to call and make another appointment. No mention of antibody.

@LetsBeSensible That’s good news 👏 but not about the lost ones...! Ffs

@MillStone Thank you, it’s quite bizarre because at points I feel pretty good, but no appetite last few days, some chest tightness and tummy troubles, so am assuming its come back as that doesn’t seem post viral 🤷‍♀️

Anyone have the loss of appetite? Was that when v ill? Has been a few days now

No loss of appetite here sadly (have gained 5-6kg). Spoke to my GP. She is chasing my cardiology referral and says no exercise beyond gentle stretching till I’ve got the all clear on my heart :(

@Whatnext2018 I initially had loss of appetite, then when I relapsed I had it again.

@Kitcat122 At what point did you relapse? I’m
not sure if I have actual relapses as I tend to have a variety of different symptoms on and off all the time. Any idea why a relapse occurs?

Week 6 for me and slowly improving still. I know I have to strictly pace myself.
So myself and DH both had negative tests and were considering getting antibody tests. However DH just spoke to his consultant who said not to bother as they were still far too unreliable. Would have liked a confirmation.