Covid Lungs week 8 plus plus

[AndsLee]

Hope this has worked... Welcome all.

alittleprivacy I am sorry to hear your sad news about your dog, particularly with everything else going on. And your poor nan. Such a shame for her, and I hope she is okay.

fedupofbed thank you for your kind words yesterday. The chest pain is finally abating now...
I did speak to my doctor today as she was calling about my blood tests which all came back clear. I was not really expecting anything else. She has referred me for an x-Ray for my chest, but I am not really hopefully anything will show up.

I guess I just cannot see how you can be in so much pain and there be nothing actually wrong

coleopetra I am sorry I did not see your post as was on the previous page. Chest pain and upper back pain which sometimes radiates out to my shoulders and diaphragm is basically what I have. It comes and goes in intensity. I was clinically diagnosed with covid 19 so my doctor is going on the basis that it is a result of that. Despite my concerns, she does not think it is heart related but from my lungs or chest wall.

@AndsLee my GP said, post viral thing on the feeling sunburnt and was completely disinterested!
She’s a really good GP though if she doesn’t think it important, it probably isn’t. She was more interested in the ongoing tachycardia.
I’m being referred for an echo, a loop tape and a blood test to make sure my heart is OK due to the chest pain and racing episodes. It’s probably going to be fine but best to be safe.

@Coleoptera it is probably Covid-19 (negative test results are not reliable) but diseases with similar symptoms include Adenovirus 14 and another coronavirus OC43.

@Coleoptera, I have exactly the same - I think it's inflammation. It is also affecting my voice (pharynx/larynx?) - my chest/oesophagus/upper back really hurts after any kind of conversation lasting more than 5 minutes. I'm awaiting the results of my recent X-ray which will probably be clear as my last one was. If it doesn't get better I'm going to have a private respiratory consultation.

@Crayfishforyou
I hope all goes well! I figured it's a post viral rash. Thank you for feeding back. And I am glad she is interested in your more distressing symptoms! Quite right too! Xx

*@alittleprivacy I am so sorry to hear all your bad news. Make sure you rest and don't let the worry take over.

I still feel very weak and I a, fed up. DH is going back to work on Monday and he only told me as I was going to bed last night. He said he thought he had told me but I made it clear he hadn't.

So, all of my blood results have come back normal. Im not going through the menopause, im not pre diabetic and everything else they tested for is fine but this brain fog/fatigue is getting worse!
Today is the worst day for it so far. I am struggling to concentrate so badly.
Has anyone else had this as a symptom and found that it got better?

@ofwarren - my brain fog and fatigue has also been worse recently. I am only working a few hours a week while i am looking after / home schooling my kids, but even that is really hard at the moment.

@ofwarren I am not sure if my brain fog is worse, because I was alone and unable to speak until this week. I am certainly noticing it now that I am having conversations, and I can’t find words.
I am sure I’m suffering with POTS again, as I’ve been going out in the car I’m noticing it as I guess I wasn’t standing and sitting as much before.
I’ve had both before with CFS so I’m not too scared by them, just inconvenienced!

I'm going through menopause stuff and I think I had the virus in March, and again now and I have been struggling for ages with words. Some times saying completely the wrong one, sometimes struggling to say any and stuttering which is new.

Tonight I feel like crying. Felt awful this morning and just yuk all day.

@Coleoptera I have still got the same chest symptoms as you. Was ill mid March but just can't shake chest pain and sob.

I have had a sore throat today, headache, tinnitus and oxygen sats back down to 94% when it has been 99 for so many days I had stopped monitoring. No obvious SOB but feel absolutely exhausted again. I’m gutted, have thought it had gone. End March since I first had symptoms.

So the last time I was ill was this time last month ish. I’m approaching my period again and all my “covid-y” symptoms are back. Palpitations, fatigue, slight cough, upper back ache.
This month I’ve also got an upset stomach, but my toddler started back at nursery and has been ill will similar so I’m blaming him for that.
ECG booked with the doctor on Monday, the last one I had wasn’t clear apparently. Blood tests all normal.
I just want my bounce back. Properly, not partially.

Has anyone noticed their sob getting worse since the weather has turned a bit more damp in the UK this week / last week? I’m wondering if that might be setting things off.

@TheWooisStrong Sorry to hear your symptoms have returned, I hope it will be temporary but it is so awful that our periods make us so much worse!

Sorry you’re back @TheWooisStrong after such a good run of it. I guess we can all just hope the good days outweigh the bad more and more over time. I’m with you on just desperately wanting to feel normal again!

Sorry about your dear dog @alittleprivacy that’s really tough.

@ofwarren my brain is all over the place too. I’m working from home and the concentration takes so much effort and is stressful and it gives me a headache eventually.

Morning all, someone on the 1in20 Facebook group posted an article on another report of long-term symptoms. Not sure if you’ve seen it:

www.glamourmagazine.co.uk/article/coronavirus-long-term-effects

Coming up to week 11.

SOB becoming less and less but do keep waking in the night with nasty episodes.

Racy thumping heart, back pain, head aches and stabbing pains, eyes hurt, weakness, trembly legs, aching calfs, poor circulation, cold easily, weak and fatigued.

Last few days acid reflux has been better. Cut down to 1 x 20mg Omeprazole in the am and have raised the head of my bed by putting a brick under each leg.

CT scan attempt 2 later.

Just popping onto this thread to let you know that there's a group of physios who have published some info and management advice for people who are presenting with PVFS. There's a lot of misinformation and misunderstanding about PVFS but these guys get it. It's really important it's managed correctly as doing it the wrong way just makes you worse and worse.

www.physiosforme.com/covid-19

I'm sorry to read about some of the problems many of you are experiencing getting back to full health. DD had PVFS at 14 following glandular fever and this developed into ME. That's now 4.5 years ago. It's hard, really hard, and there's usually no one to help you. You're on your own. So it's well worth doing your own research and not relying on anyone in the medical profession to advise you correctly.

@MillStone, I am breathing a little deeper again at 11 weeks but still can't walk uphill easily or walk and talk properly at the same time. Throat/oesophageal problems the same as yours but I'm not getting the racing heart as much. My heart rate is still high on walking/activity - 100+. Did you have a chest X-ray? Just wondering how you've managed to get a CT scan (or is this for your heart?). I don't think my GP will refer me for one as I've got a feeling my chest X-ray will be clear again.

Thanks @BonnesVacances.

@BonnesVacances @Silvergoldsilver
Thank you for the articles, they're very helpful though also very discouraging. It's hardly a surprise in my case, as I already had CFS in the first place.

Thank @BonnesVacances

I feel I am improving a little day by day now that I have accepted this as post viral fatigue.

Unfortunately from about week 1 (when immediate symptoms subsided) until week 10 I pushed through - returned to a stressful job (albeit working from home), looked after a young child, and completed my studies. There was no let up.

I'm so worried I've done irreversible damage by not slowing down after those initial symptoms, and listening to the messages (virus lasts 7-14 days in healthy people) rather than to my body.

I think I went a bit insane during that time !!
I was extremely angry, exhausted, and confused. It coincided with early lockdown etc, and although I was grateful not to have to go out and about (because I had zero energy) everything else was still needing to get done. Plus no one believed me when I said I thought I'd had Covid!

Anyway just putting that out there. I'm doing my best to manage things now but worry that the damage has already been done. I'm quite terrified of developing long term CFS/ME as I know it can be absolutely debilitating.