COVID Lungs 8wks plus

[baroqueandblue]

Saw the previous thread is almost full. Hope I've not duplicated a new thread! And I might not be the best person to be custodian of this one, so feel free someone else to start a replacement and I'll get this deleted. Otherwise -

Here we all are, at least 56 days plus 😕

Hi, checking in! Thanks for the new thread @baroqueandblue. New symptom Sunday! Who else has had a numb tongue...?

@Fedupofbed Yours sound very similar, mine have also been in the day sometimes, today my mouth/jaw feels funny and I just feel weepy as I want to feel normal again.
Do you have any pulling/aching in your legs or the throat thing? My neck is also stiff too and feels like sinuses sometimes.
I’ve also been prescribed anxiety meds but am reluctant to take too, it all just feels far too physical to be just anxiety?

I’m also sneezing lots so that would explain the possible numb face, throat etc as being sinuses or hay fever, but it doesn’t explain the fast heartbeat, waking up, diareah etc.

Thank you for the new thread! 

@Whatnext2018 Yes I've been sneezing a lot too, which I hardly did at all during the first 3 months, when it was just coughing fits. The sneezing really causes a lot of pain in my chest.

For all of you going through thin, I hope things improve for all of us soon.

Another one sneezing a lot and suffering from a numb mouth and jaw, as well as a crazy painful jaw - clicking sound everytime I try to chew. I think the joint between my jaw bone and skull is inflamed?

Oh and thanks for the new thread! I've given up hoping each new thread will be my last...

Thank you @baroqueandblue for the new thread.

@Whatnext2018 my legs are fine but everything neck up feels odd and achey. I know exactly what you mean about too physical for anxiety as these episodes happen so randomly and there's no link to how I'm feeling at the time. I think the virus/our immune system has attacked the part of our body that creates these physical manifestations of anxiety if that makes sense though? I've written this before but it feels like I'm in permanent 'fight or flight mode'. I'm doing abdominal breathing exercises when I can, and trying to stay positive!

@fedupofbed and @Whatnext2018
I’ve had the same horrible feelings as I’m drifting off to sleep (eventually!) that I’m suddenly falling and then suddenly gasping awake, frantically trying to catch my breath?! I was trying to explain it to my husband yesterday but he just looked at me as if I’m mad?!
It’s horrible because it takes me long enough to get to sleep in the first place but it keeps making me scared to even try now. Horrible feeling/symptom?

@hollieberrie @Lightsabre @Needsomegoodnews @AndsLee and @Linus1972 and anybody else who’s said the same....
I too feel sadly alone/jealous/upset that we’re the tiny section of society that have had this and had it for the entire lockdown period and even before that.
As you’ve said, I hardly know anybody that’s had it. Nobody confirmed and the few that ‘think’ they’ve had it were up and about and over it within a week or two?!
Some of my friends are now back to meeting up with friends, visiting parents, town, garden centres etc going for walks and bike rides, doing exercise classes and almost having a life!!

I’m on Day 74 now.
The first 3 weeks I was in bed/on the sofa.
Then I had 10 days of gentle 20/ 30 minute walks.
Since then I’ve relapsed and barely been able to move or leave the house.
So, the only times I’ve left the house in the last 7 weeks were twice trying to go for a walk when I collapsed within 5/10 minutes due to not being able to breathe and a visit to the GP who sent me to A&E!
I feel like nobody understands how ill we’ve been or why it’s dragging in for so long?!
Or why when they ask if I’m better and what have I been up to? I’m really struggling to know how to answer them? “Nothing, I’m worse” type comments seem to fall into the void.....😳😩😭

Thank you @baroqueandblue!

@mumlurker I've been seen by my GP once to take bloods. No examination. To be fair though that particular GP has been good, he only works 3 days a week though.

Is it possible hay fever is now affecting you all? I have been getting flare ups more easily since being sick

Thanks for the new thread @baroqueandblue!

Agree with others that anxiety can’t explain all the ongoing issues. My chest pain is back today after a few days off and I’ve realised when it reappears my eyes are quite bloodshot.. weird

Yes, another thank you to @baroqueandblue for starting the new thread. How many have we had now?! 🙄

55th day for me today.

Like most, ups and downs aplenty. After my last flare up 7 days ago, adopted a new strategy of doing as absolutely as little as possible.

Seems to be paying off, as this weekend, the SOB hasn’t been as bad. Here’s hoping that continues. Still suffering with Pleurisy though. Hate not being able to exercise, as was very cardio fit before CV & now I’m not even going for gentle short walks, but needs must & all that.

I have just admitted defeat and accepted I needed help, I had developed severe health anxiety from this i so feel the virus contributes to being low understandably but i was really bad my whole day was taken up with worry and reading about the virus which wasn’t healthy and I focus on every little detail. Today is my 11week anniversary boo! I didn’t expect to still be feeling so Unwell and tired at this point it’s safe to say this virus has thoroughly kicked my as and my body is exhausted I just need to learn not to over do it which to be honest doesn’t take much at all. The reflux has been awful these days and I have struggled to get off to sleep my antidepressants do cause issues with this but I am not sure it is the tablets after reading a few of your updates. I think the hardest part is realising our bodies have been through a lot and it will need to let them rest.

One thing I learnt is reflux can present as chest pain and felt like I had a lump in my throat, omeprazole, gavisgon and a slice of ginger soaked in hot water then drink it all helps. I also seem to get more hay fever flare ups than before.

mumlurker to answer your question on the previous thread, my GP referred me to the coronavirus hub which was basically a re-purposed health centre where they asked a LOT of questions, listened to my chest, used a pulse oximeter, prodded a lot and gave me a diagnosis of presumed covid 19, a one page leaflet telling me to self-isolate for fourteen days and that was that - now four weeks ago. But I have basically had the same symptoms now in total for nine weeks - some days worse than others.

At that point they said I did not fit the criteria for testing. I checked and now the Scot Gov website says they test within the first five days of symptoms - but this is over two months too late.

I need to speak to my GP on Tuesday so I will ask her at what point this chest pain become a cause for concern. Am I just stuck with it? Fatigue I can kind of understand as post-viral but I basically have had the same chest symptoms now for nine weeks so it does not feel very post-viral just the same 🤷🏻‍♀️

Day 75 here, feel pretty sorry for myself now! Basically can’t do anything much at all due to crippling fatigue and muscle ache. I’m sick of no medical advice or support now. There should be some sort of help available to us. I’ve not been given anything useful at all from my GP yet other than ‘yes just rest and take paracetamol’. I’m totally exhausted and f-offed now with it all.

Actually leaflet is being too kind, it was a badly photocopied piece of paper with about three lines of information.

longshot totally with you on that.

@KatySun @AndsLee

I was also seen at the covid hub the day it opened - totally surreal experience, it was very shambolic and people hacking away in every room! I had been told on the phone I would be tested, which I didn't really believe and of course turned out not to be the case! My GP is refusing to see me - I know test results would probably come back normal but I'd still like the reassurance. I also don't feel very post viral - or at least, this doesn't seem like chronic fatigue. I'm tired but not wiped out, it's the pleurisy, palpitations, nerve problems and shortness of breath / inflammation that's bothering me...

@MelClare Yes I'm feeling really sad and yes, jealous. And I find all the complaining about the lockdown really irritating because I end up thinking, 'You have no idea'. But it's know that's my frustration talking.

But I'm more upset for my DDs, who aren't only missing contact with their friends and extended family, but also know that their mum has been ill for weeks. They're adopted, so change is always very stressful for them anyway.

I'm now at day102.

@longshot I'm with you. Aches and crippling fatigue here too, 74 days in.
If I'd contracted it more recently I would have had longer off work, got tested etc. As it happens, I had to fight to get a few days off work (and prevent possibly spreading what I had to vulnerable people I was in contact with) and had no time off to recover.

We're all in such a similar situation. It's just shit isn't it? I'm propped up in bed yet again looking at the blue sky from my window.

I'm sorry everyone, sending love 💐

I find reading posts on Mumsnet about how the virus is no big deal if you're young pretty depressing. You just don't know if you'll end up like us and one in twenty isn't great odds

@fedupofbed I love your username. It sums up how I feel. I think my DDs are even more fed up than I am, too.