Covid Lungs Week 7/Day 49 and onwards

[Dandyish]

Support thread for those who've had Covid symptoms or post-viral fatigue for at least 7 weeks/49 days or longer.

If your symptoms haven't lasted that long, check out the Lung 7 thread (or later).It'll be more helpful as people there will be in a more similar position.

I went to sleep at about 10.30 but awake again after a couple of hours. Your itching sounds very annoying. I think I’m a week or so behind your stage, have lost count, but I have a strange nerve ending twingey pricking feeling every so often in hands, feet and limbs, like a very mild pins and needles, didn’t have this before COVID. The tinnitus is keeping me company too

Good luck with the sleep.

My son has mentioned the tingling, last-night he said there was a delay in the movement of his foot too he has a leg tremor he can't control and tremors in his hands too so I am not sure if it's related. I hope you manage to fall back off to sleep too. I had tingling last week too I also had a solitary bruise appear on my big toe which has since disappeared.

Hey @AltogetherAndrews If you’re still about, Ive just spotted you’re post from way back.

Hope you’re feeling a bit better by now. Basically I’m worried that the symptoms I’m now left with are actually PVFS and I’m stuck with them on an indefinite basis. I’d be really interested to know the difference between your existing symptoms and current ones? Thanks.

@Fishflakes I have the foot buzzing. This morning I've thrown up, I am feeling worse than I did last time round I think. I've been well for weeks - it's so upsetting to be back here again. I'm really starting to think I will never be better.

Nice to hear from you @Dorual. Several people have mentioned changes to their menstrual cycle.

Day 54/55 for me and so far so good except a fast heart rate and bit of chest pain. Talking to my GP today to discuss a referral for an echocardiogram. I suspect she will say it will have to be private.

@godhelpusall that’s really depressing. I hope it’s just a blip and you go back to feeling well soon.

@godhelpusall - you are not alone. This time has been worse for me too.

@Monty6 it's awful isn't it? What was your timeline/ symptoms? Were you 'better' then got ill again?

@godhelpusall - the best i felt was around 2-3 weeks before my first big dip around 3.5 weeks. It was then a bit of an up and down, but overall improving journey until i hit this latest 8 week dip. I had a few days with very limited chest tightness before the dip started. Symptoms currently are intermittent low grade fever accompanied by major chills with cold extremities, chest tightness/discomfort, brain fog and fatigue. A week ago my o2 levels were dipping on moving around, but not below 90 and quickly returning to normal. My heart rate is thankfully behaving normally. I had a couple of days where the sinus headache and jaw ache returned, but that has now eased. Also still an occasional mild sore throat and some odd nerve type sensations or short sharp pains in various places. How about you?

Good morning all.

I have my x-ray at walk in clinic at my local hospital. Waiting for it to be sent to the GP. GP has also put me on doxycycline as at end of week 8, i am getting low grade fever again. It comes and goes and I am really worried that I have a new infection. Today is day 4, so counting down another week in case this is covid and i need to get past danger zone of day 10.

I don't think the doxycycline is going to help but at the moment i am happy to try anything.

@baroqueandblue how are you doing?

@godhelpusall sorry to hear you're having a relapse, I think we're at the same stage as I'm having an 8 week relapse too.

It's so disappointing as this time I did actually think I was getting better, and was starting to think about seeing my partner again. He lives far away and is unfortunately suffering from COVID in a similar way to people on this thread.

So I've abandoned all thoughts of how or when we'd meet and I'm back to focusing on just getting better day by day again.

My main symptom is my heart. I'm almost too scared to phone my GP. It's such an effort to convince them over the phone of my symptoms. They think I'm imagining it. Then they won't come near me with a barge pole, they just tell me to go to A&E if I'm worried.

Are the rest of you seeing your GP in person now that we're past the infectious stage?

@godpplusall sorry to hear you are feeling worse. I feel like i am back in week 1/2 myself after feeling better for week. It is very depressing

@Monty6 I feel dizzy, foggy, nauseous and stomach ache. Tired and back to weird sleeping.

@user34254356 I hope your X-Ray results are encouraging.

A lovely GP has just referred me for an urgent NHS echocardiogram and 24-hour ECG (I’m day 54/55 with at least 13 days of persistent tachycardia and mildly raised troponin). @eyebrowsofinstagram I know how frightening the heart symptoms are. Would you try A&E? I can’t remember if it was you who had the very bad experience there before with the nurse. My GP said “Don’t be worrying about what A&E think - if you need help you need to get yourself down there”. She encouraged me to go again if my condition worsens. She said up to 3 months for recovery.

I have to say I am finding doctors and nurses much more understanding than a few weeks ago. No one is trying to fob me off with “anxiety” now. I think they’ve seen too many people with the same symptoms.

Ah thanks @Egghead68 I probably haven't spoken to one for about 3 weeks, so I'll try it again thanks.

Morning all!

Just had a quick read through - so sad to read that so many of you are still suffering and having relapses. It does seem utterly relentless doesn't it?! @Linus1972 a lovely uplifting and heartwarming post - thank you. 💐

Like many of you, my mental health has taken a dip. I feel as though I'm slipping further and further down a well, the light at the top of getting dimmer and dimmer and it feels harder and harder to climb back up to the light at the top. I'm having awful disturbed nights too due to symptoms and m, when I do finally sleep, really vivid awful dreams. It's exhausting!

Day 54 - definitely experiencing a dip I think, both physically and mentally. Hard to know what to do as doubt GP would be interested and I don't want to bother them anyway.

I hope and pray you all have a better day today. It's good news that there will finally be a reliable antibody test but heaven knows when it will be available for the likes of us stuck at home struggling on on our own. I'm not sure I even care anymore tbh, I KNOW I've had it. There is nothing else this could have been.....

@Egghead68 x-ray was normal like most people have had which is reassuring but i feel am going in reverse.

Glad your GP has referred you on and you get some clues to what is going on

@Littleninja1 I've been taking ibuprofen for a couple of weeks. I took the gel form on my worst chest pain areas for a week and now take 2 tablets a day with 2 lots of gel in between. I'm pretty sure it is having an effect. I haven't experienced those chest pains for a couple of days now. However, at the same time I've stopped going out for walks and drives as those activities seemed to exacerbate things for the next 24 hours. If you do start ibuprofen, take them directly after eating (I take one at breakfast and one with evening meal, with water). I think a lot of us here have had an inflammatory response to the virus - I suspect if we'd been advised to take ibuprofen from the outset as opposed to the advice not to, due to that non-peer-reviewed claim based on just 4 people, our symptoms may not have been as awful for as long.

To everyone: I'm glad my last post was helpful.

norugratsatall hang in there, I had a dip days 51-54, woke up on day 52 feeling like I could not breathe again, chest really sore and utterly fatigued three days in a row. Then last night although my chest was still sore, my head felt less fuzzy and today I feel like I can think clearly again. Day 55. I know I will probably dip again but I feel different today, not better as chest still sore and I know I will feel tired but my head is clear for the first time in ages. This illness is just a long haul recovery. Never feel like you cannot call your GP though; mine said they are seeing a lot of patients take a long time to recover. Hang in there

Just spoken to the rudest dr, apparently just because COVID is around does t mean we all have it. You can lose your sense of snell with lots of things. And even if you had it it was two months ago. I'm having bloods tomorrow so will have to see

@godhelpusall
The arrogance of some of them. When I told one of mine I'd lost my sense of smell he said "You've been reading the news!", implying that I'd some sort of hysterical psychosomatic reaction to a news story.

Speaking of reading the news...
www.bbc.co.uk/news/stories-52638382

Day 57

I'm up and had a shower.
Feeling a little shaky today.
My SATS were down to 93 last night. I felt very wheezy and SOB.
(had to take extra ventolin and symbicot). My chest is sore this morning from coughing.

So I'm back to taking things at a slower pace again.

I was enjoying feeling more normal. . I'm hoping it's just a blip.

I'm at day 93 now. I'm sorry to hear how rude and arrogance some of the doctors you've spoken to have been. I honestly haven't experienced that. I just don't feel that they have a clue what to do to help me, so there's no point in calling them.

My temperature went up again yesterday, which was a very low point. It's not the first time obviously, another 'false dawn'. And once again, it happened when I had a day needing less paracetamol because the pain was a bit better. Not the case today. The chest pain is back.

I was encouraged this morning, though, with the news about antibody tests having been approved, so I will get answers soon, hopefully.

It helps to chat on here about this, I feel so isolated right now.

@godhelpusall I’m really sorry. I’ve been told things like “it’s anxiety from watching the news” too . If only.

@KatySun thank you for that kind response. I prob don't need to tell you how much a kind supportive response in here lifts me as it's difficult to get irl. 💐

@godhelpusall gosh I'm so sorry you had such an unhelpful response from your GP. I've had mixed responses from HCP I have to say. The last GP I spoke to wasn't my own but she believed me and listened to me and it meant the world! I'm worried to call back (even though she did say to if I wasn't feeling better) in case I get a scathing dismissive response like that from a diff GP. Totally unnecessary.