Covid Lungs Week 7/Day 49 and onwards

[Dandyish]

Support thread for those who've had Covid symptoms or post-viral fatigue for at least 7 weeks/49 days or longer.

If your symptoms haven't lasted that long, check out the Lung 7 thread (or later).It'll be more helpful as people there will be in a more similar position.

Thanks @Mittens030869 . I'm not sure @Moodgie it might be but I've been feeling a bit like I did when I was ill again today. After two weeks of being better. I'm just back in bed again, I feel very tired again. I'll try see the doc tomorrow.

godhelpusall I was going to ask if your blood sugar could have been low but noticed you said that. Sometimes when my blood sugar is low I get sweaty, shaky and feel awful mentally. I usually eat something which is high carb. I had that before I got covid though.

I feel like I have had a dip again; tight chest feeling, worse coughing, chest pain yesterday and terrible fatigue and chest pain today. Day 53. I was out walking with the children on Sunday just locally up our street and thought I was doing fine, til DD asked if I wanted to stop as I sounded out of breath... I used to be able to run up there! I felt short of breath yesterday like I was struggling to fill my lungs properly.

I spoke to my doctor this morning and she said they are learning this is not 7-10 days and then you are fine, but a long recovery

Day 55
At last,I can say I've had a good day.
I managed to do the laundry,put it on the line,bring it back in again.
Iron DH suit shirts/trousers ( 7 weeks worth, lucky he only goes into the office one day a week ).
Cook dinner (chicken bbq and salad).
I am still pacing myself and sat down every 15 minutes for 10 minutes while ironing. Took longer but made a huge difference to what I can do.

All in all it's been a good day.

My symptoms seen to be more in the background now.
Only rearing it's head when I do too much or go too fast up the stairs. Yawn,cough,sneeze or deep breathe.
I think because I am used to a certain amount of pain and tight chest/wheezy I'm now coping better.

That sounds great @Rosesofeyam! Long may it continue.

Sweetie60, thankyou for that. Gives me reassurance that mine will recover. I am trying to hold out on getting in touch with Gp as he wants me to go to hospital to get checked out and I am trying to avoid it! My resting heart rate is always around 70, but on slight exertion rises to 130. Even reading makes my heart rate go up. I think I could cope with the other symptoms, back burning and sternum pain if my heart would just settle.

egghead68 Thank you. I've got my fingers crossed for you.

This is the first time I've felt this well in 7/8 weeks.
I know I've got to take it easy and not over do things.
I can now say there is definitely light at the end of this very long tunnel.

For everyone who has helped me through. unmumsnetty hugs all round. X

@Sweetie60 Thank you so much for your post! It sounds like similar symptoms to what I have been experiencing. I phoned gp to try and get a referral today... when he phoned back he said the consultant cardiologist had insisted I got a CV swab test before I can do anything else! Despite me being day 51+ today and having had a negative swab test 2 weeks ago. Your post has made my extended wait a bit easier xx

Hey Mumsnet peeps. I’ve not been on for a while. I really wish I could say to you all I’m just popping in at day 58 To say I’m fully recovered but unfortunately I’m not.

I’ve posted this in the slack group and I’ll stick it on here too. If ANY of you can get any answers from an immunologist (doctors just haven’t heard of it) please please post them on here. I’ve got a theory this may be the root of the problem for those of us suffering with long running symptoms. It matches EXACTLY with what we are experiencing.

www.survivingmold.com/docs/UNDERSTANDING_CIRS_EDITV2A.PDF

Hi @worriesomedad, good to hear from you, how are you doing symptoms wise? I'd be a little sceptical of that Biotoxins theory maybe, a quick Google search suggests the doctor behind it is discredited and hasn't been working as a Dr since 2013.. I agree his description has similarities to many of our symptoms but I reckon that's maybe because he's describing what happens to different parts of the body if they experience inflammation.

Sorry you’re not fully recovered yet @WorriesomeDad. Hope you are doing OK.

So today for me is 14 weeks since this whole thing started and have reported in occassionally as my symptoms were similar to everyone elses. I had indirect contact with a very early confirmed case and after a brief minor bout of flu-like illness I was left with tightness in the chest, mild breathlessness (Oxygen levels dropped to 93%) along with intermittent fainting, kidney, liver and heart issues probably caused by inflamation and constant post-viral tiredness.

A couple of weeks ago I started to feel much better and the gaps between relapses were much longer. I could go for a half hour walk and only feel mild soreness in my lungs afterwards and the other issues had largely gone.

Unfortunately I started to do too much and am now back in bed with horrendous sciatica. I am not suggesting it is in any way related to CV other than the fact that after three months of doing nothing but lying around my back made me very weak and I should have been more careful!

The other major thing to report is that like a few others on here I paid for a private antibody test but it came back negative. My private cardiologist (I have existing heart issues) who has spent a lot of time on the front line at an NHS hospital does think I had CV although he only diagnosed me by telephone as I was not admitted to hospital at any point.

Thanks @Mittens030869 hopefully my consultant appointment will give us some answers. I had antibiotics 3 weeks into my illness but they made no difference to the lung pain or abdomen pain. I haven't been prescribed anything else.
I hope your husband will be ok, especially since he has asthma. I've never had problems with breathing before and I never realised how frightening it is.
I had a covid test 2 weeks ago and it was negative, so I'm probably not infectious ( assuming it is covid that has caused my dreadful sickness). Hopefully this is the same for you and your husband won't catch it.

Thank you @Lightsabre . I'll post on here after my consultation. The nausea in the morning is really horrible, followed by a mad dash to the toilet. Never known anything like it in my life. That's interesting what you say about lymph nodes and glands in the stomach. I do feel like there is some sort of inflammation going on.

Day 56 - think I need to accept I’m relapsed. It started on Saturday and it’s still a problem.
One positive thing - I’m glad I’ve been wearing my Fitbit religiously so that I can monitor heart and steps and sleeps.
I clearly overdid it last week, but now I can adjust activity downwards.

@godhelpusall I've had an awful funny turn this evening as well. I was sat at the table eating when I came over all dizzy and faint. I felt sure I was going to pass out. I've been having a lie down but still feel woozy. This has happened quite a few times since my illness started. It's so scary..

@Notgoingouttoday

Sorry about the sciatica! Is that a new thing for you?

Do you feel like you've finally beaten the virus or are you still worried about relapses? Looking back, whenever I've felt 'better' during this I wasn't really 100%...anyway I could cope if I thought there was only a month or so more of this!

Just adding to say I tested positive a few weeks ago.

Symptoms were mainly gastric, a day of slight fever, slight chest pain.

Still got a bit of a tight chest but nothing worse than a normal code. My parter who has lived with me and shared bed etc throughout has shown no symptoms at all.

I think it came from my teenage sin who had a bad stomach that wiped him out for a week at the end of feb.

@Countingsheeps I'm so sorry to hear you're having the same problems but pleased to hear that my post helped in some way. I hope you are able to get some answers soon.

@Tootsey11 I'm sorry to hear that you are having to put up with this racing heart issue too. I was very nervous about going to see the cardiologist. But I can honestly say that on both visits to A&E and to the cardiology clinic, I was very well looked after, and in particular, I felt so relieved after I had seen the cardiologist - it was a huge burden lifted from my shoulders, and now I know what is happening, the other symptoms (which are still pretty awful and keep coming back) somehow seem more manageable.

Get well soon and sending hugs to you both.

@Howlongwillthislast thank you for your kindness, I hope you get some answers, I'll be really interested to know how you get on.

I'm not likely to get a test sadly. I had a GP telephone appointment and the doctor did go through the necessary criteria for a test with me, and I definitely don't qualify as my DH is working from home. It's a worry, with DD1 starting back at school in June. Thankfully, she can walk to and from school herself now/

I just wish the antibody test was available, as it might show that my DH and DD1 have had it without having symptoms, which really would take a load off our minds. And at least we would know one way or the other! But I'm not holding my breath.

@Sweetie60 Thank you for your post, reassuring for me too.

@sweetie60 can I ask what your cardiologist said? Sorry if I have missed it.

@WorriesomeDad that is a very interesting article with many similarities I wonder if you are onto something.

I am so sorry that so many of you are experiencing the 50/53 day dip I found once this passed we started to make improvements so long as I rested. I have relapsed at points due to this but I am
Definitely bette than I was. Please please please take things very very slowly our bodies have been putting up a tremendous battle and it will take a long time for us to get better.

@worriesomedad I’m sorry you’re still not well.
As a veteran of CFS, I can tell you there are a million and one studies and protocols and pathways out there. And they all sound great. And eating healthily and avoiding junk food is good.
I’ve had too many people including HCP’s tell me sincerely that eating/not eating or supplements, or whatever is what I need. Yet, coincidentally when I became unwell with CFS I had been following a clean eating plan recommended for people with CFS!
I’ve had people tell me I’m ill from electromagnetism, (guess it would be 5g now) WiFi, smart meters, past life transgressions, parental divorce PTSD. And by people I include Drs.
I don’t know why I have CFS or why I am so ill right now. And neither does science. So I’m just doing what I can to take care of myself.

@mumlurker. I have had sciatica before but not for a few years. I do think I am better and almost symptom free although I am now limited by my back pain so not able to do much.

Does anyone here know anything about pancreatitis? I've had pain in my right side for weeks now which isn't terrible and comes and goes but after my weird spell yesterday I started wondering if I have something up with my pancreas. Apparently it can be brought on by viruses.