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This is concerning

283 replies

owlstwooting · 27/04/2020 09:00

Significant alert in respect of Children and Paediatric shock. It has been reported that over the past three weeks, there has been a rise in the number of Children presenting with a multisystem inflammatory state requiring intensive care.

Looks legit, sadly

mobile.twitter.com/ThePalpitations/status/1254529121134264322

OP posts:
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DuLANGDuLANGDuLANG · 27/04/2020 10:21

It’s interesting that one of the twitter links describes it as like atypical Kawasaki as Kawasaki and HLH are hard to differentiate:

www.ncbi.nlm.nih.gov/pubmed/19434728

I So sorry that happened Dulang it must be a scary time for you.

It is scary (I pulled her out of school ten days before they closed) but I have a plan with her consultant (in writing!) as to what to do if she gets sick (take her straight to her usual team, no 111, no isolation at home) so that helps enormously. They saved her life once, so there is no one better placed to do it again. She only went back to school in September so we are already used to being at home (just seems weird that almost everyone else is too).

The immune system is still very mysterious compared to other areas of medicine. This is a recently published article about HLH and CV19 looking at adult patients, It seems that from the brief descriptions linked from this thread that something similar is now being observed in UK children:

www.sciencedirect.com/science/article/pii/S1568997220300926

Shitsgettingcrazy · 27/04/2020 10:21

@owlstwooting op if you are getting anxious over information, that actually has no detail, have you considered that you may need support for anxiety?

Not really sure how relevant leaving school at 16 is. Many people on here did the same.

Its like that the anxiety is making you jump to conclusions that something is definitely really bad, rather than your education.

Itisasecret · 27/04/2020 10:24

Don’t worry op, people are just being patronising and worrying they may have to look after their children at home for a little longer. No Whitsun trips to Spain and all that.

JustStayHome · 27/04/2020 10:27

Its on the news....

Why do people have to be so horrible to posters. Christ!!!

EdgarAllenCrow · 27/04/2020 10:28

They're just highlighting possibilities to other medics which is the responsible thing to do. It's a very small number of children, they're not sure what it is and they're not sure if it's anything to do with COVID or not.

But it will cause panic.

Ronnie27 · 27/04/2020 10:29

Thanks for posting op, I hadn’t seen this.

vera99 · 27/04/2020 10:30

James O'Brien has picked up on this on his LBC show just now. Mail too.

www.dailymail.co.uk/news/article-8260399/NHS-issues-doctors-urgent-alert-coronavirus-related-condition-children.html

Pythonesque · 27/04/2020 10:30

dulang years back my daughter had a not dissimilar episode related to scarlet fever (ie strep); she didn't end up in PICU but I think it was close. Recuperation took time but she is now a very healthy late teen and had no recurrence. I saw the report referenced here yesterday, and immediately thought, better make doubly sure to keep her away from covid then. I then cross-checked myself since she's all but adult and probably has no additional vulnerability.

I hope your daughter continues to improve and that in a few years' time you are looking back on this era with "who'd have thought it to see her now"

To others reading this thread: There is a saying "hear hoof-beats and think of zebras" which is often applied to medical students, who need to learn to think of the most common explanations first. However it is true that doctors whenever they are diagnosing something common and routine, also have a list of zebras in the back of their mind so they don't miss the stripey horse. The quoted alert is very much targeting doctors to give them the information they need about a rare presentation, so that if they come across it they can recognise the possibility and respond appropriately.

Judystilldreamsofhorses · 27/04/2020 10:31

I read this in the Guardian this morning too.

DuLANGDuLANGDuLANG · 27/04/2020 10:31

it is important to be aware of this, and to know symptoms to watch out for. But this sort of condition is not something that is unique to Covid-19 (although obviously we don't know whether it's more likely to cause it than are other viruses). Awareness is a sensible response. Further fear and panic are not.

Absolutely. This is basically why a fever lasting longer than 5 days in a child needs medical attention - to rule out anything more complicated going on under the surface. It’s probably nothing serious, but it needs attention to be certain.

www.nhs.uk/conditions/fever-in-children/

We are truly lucky to have the NHS, it has some amazing people working in it (and amazing scientists behind the scenes too) they will get to the bottom of this and honestly, looking at my daughter 18 month on from near total organ failure, you would never guess she had been ill at all.

These sorts of reactions are rare, but as long as they are recognised, they are treatable.

All viruses are capable of some weird ass stuff, the only difference is that doctors aren’t usually having to learn everything about one all at once, globally. Which is why slowing down the spread is so important, it gives them more time to understand what the virus is doing and how best to stop it.

Peapod29 · 27/04/2020 10:32

Do people not read the news? Why the obsession on here with jumping on everything that doesn’t fit with ones narrative and crying fake news. It’s a bit Trumpish. I’ve hardly seen anything on here related to Covid that was completely untrue but presented as fact, unlike Facebook. I agree it’s worrying for every parent but I’m sure the numbers are still very small and little is known about what’s really causing it. I do worry about people thinking that kids are completely immune. Even with the tiny death rate if the virus ran rampant around the school population that’s a lot of deaths.

WhentheRabbitsWentWild · 27/04/2020 10:35

That's all some on here do OP Pile on

Now that other posters have confirmed your source they might SHUT UP with their snide remarks .

vera99 · 27/04/2020 10:37

Here is the tweet and replies - some doctors are worried as to how this has been presented.

twitter.com/PICSociety/status/1254508725227982848

DuLANGDuLANGDuLANG · 27/04/2020 10:40

years back my daughter had a not dissimilar episode related to scarlet fever (ie strep); she didn't end up in PICU but I think it was close. Recuperation took time but she is now a very healthy late teen and had no recurrence.

How lovely to read a happy ending! My daughter seems gloriously healthy at present but we are still seeing three lots of consultants (treated by haemotology/oncology, further investigations with immunology and now on to rheumatology in search of an underlying reason for why a common, mild, virus was near fatal for her) but I am trying to just live in the present and enjoy having her home again (sending her back to school after a year of illness was much harder on me than on her 😂)

I’m just hoping that any other children (and adults) who experience a similar reaction to CV19 as she had to EBV are able to access the same high standard of care as we did.

Mintypylonsfryingsurplus · 27/04/2020 10:44

Thank you OP for starting this thread all information and sources that are reputable are incredibly useful.
Clearly more research is needed and vigilante health professionals picking up on anomalies like this however thankfully rare will assist us.
I personally think more research should be done, such as the traits/lifestyle choices that have ensured recovery and survival from positive tested cases, so we can learn how to stay out of hospital until a vaccine/ treatments etc.
Why is this not bring done?
Oh yes its because reports like this get piled on and are seen as non relevant.

buckeejit · 27/04/2020 10:47

Thanks fo sharing Op, this is concerning. Yes small numbers is all very well but I have a very low risk appetite when it comes to my dc health.

Quartz2208 · 27/04/2020 10:53

I tihnk the way this has been handled is appalling. Just enough information to make non medical parents panic and not enough information to be seen

Things like this should not be put on twitter

TheStarryNight · 27/04/2020 10:55

People should be aware of the various ways the virus presents, it’s not just respiratory symptoms/fever.

For example , the Coronavirus causes sudden strokes in young adults

Covid-19 causes sudden strokes in young adults

Generally speaking there are problems with blood clotting, which can cause various things from stroke, to kidney failure (and dialysis is tricky when there is abnormal clotting) and amputations.

owlstwooting · 27/04/2020 11:02

It's not just on Twitter though (despite my crappy first post), it's on the mainstream media now as well such as the Guardian and Independent. The HSJ website also.

My hope is that more research is quickly done on this and that Parents are widely informed as more information comes to light. In other countries the public seem to be given so much more transparent information. I don't feel we are. I'm aware they need us not to 'panic' , but we deserve the full information on risks as Parents.

OP posts:
WhyCantIThinkOfAGoodOne · 27/04/2020 11:08

It's certainly concerning and it is a legitamate effect which has been noted but the numbers are still so low that we just simply don't know and it would still seem that this is unlikely to affect any given child (obviously still massively concerning when we look at the population as a whole). It certainly is still the case that children are at much lower risk than adults.

DuLANGDuLANGDuLANG · 27/04/2020 11:10

Poor clotting is another feature of HLH (DD had to have IV cryoprecipitate due to inability to clot).

I agree that the comms were poorly thought through but there are great swathes of Twitter where people with common interests talk to each other, almost as if it’s a closed system (forgetting that there might be onlookers).

iseeu · 27/04/2020 11:12

Thank you so much for posting OP. This isn't about panic it is about awareness that might save lives.

I can see all the legit sources and your analysis was right in the first place.

Please ignore all of the people on here criticising, on this and other posts where the disease is being minimised, and the most important thing is that you cared enough to post.

Appuskidu · 27/04/2020 11:15

This is very worrying :(

This is concerning
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