Hi, might I just join for a vent?
Firstly wanna say that I know I am basically secure and better off than many and my heart goes out to everyone struggling because what matters to everyone is different and no less important as far as I'm concerned and so
to everyone xxx
So my Mum's terminal ovarian cancer started deteriorating at the beginning of February - she was put on the palliative care route with Macmillan who promised home visits at hers every week and they were great in the beginning - come mid-March she had to have a drain fitted to relieve her of between 9 and 11 litres of ascites on that day which needs doing every other day now - at least a litre most times.
Two weeks ago on Thursday it became obvious that she was no longer safe at home as she was having falls, and had low sodium diagnosed. As I have been her main carer and had been visiting daily it made sense that she should move in with us as we had a room spare with ensuite for shielding etc. Macmillan said a straight no to this, because of lockdown but as I had been scrupulous about social distancing and all the precautions, I couldn't see why this would be different - I couldn't move into hers because bathroom sharing etc.
Fortunately her GP got her admitted for 24 hours for sodium drip, which the consultant who saw her and couldn't wait to get rid of her seemed to think was unnecessary, but as a result the hospital OTs and the GP okayed her move to ours. I had 24 hours to rustle up a man with van and do a smash and grab for her electric bed and chair and whatever else I could sweep up to make her comfortable. Side note my Mum is lovely but very particular about things if you get my drift, and as she's dying no request seems unreasonable.
So we have her at home with us now and I am on 24 hour call as if she wants to go to the loo she must be accompanied. Her system is not working efficiently if you get my drift without TMI and causes her horrific pain - quite bizarre to be dosing my so straight anti-drug Muvva with morphine.....
She is bed / chair bound - my life is one long round of fetching her the little bits of food she can tolerate as her taste buds are shot and everything, no matter how savoury turns sweet in her mouth and she is on a low residue diet ...... egg mayo in a pot (Only Tesco's in town not the one from local Sainsbury's which means my son who lives close to Tesco's is bringing it every few days and also spending a few non contact minutes with her - yep, we're those selfish people but she probably only has a few weeks at best so bite me). One particular brand of yoghurt. Occasional bacon. That's it. She has tried Complan which made her nearly physically sick which is not good.
My housekeeping in her room is so OCD it hurts - the rest of the house can moulder into dust as far as I'm concerned.
I combined necessary trips to the pharmacy with another raid on her flat to grab things to make her room more "hers" - she feels more at ease now. She has started to phase in and out, her legs are swollen and leaking and keeping a brave face is really FUCKING hard.
DP is helping as much as he can but has massive panic attacks and is worried about his job which is his main raison d'etre. He is coping by drinking and sleeping and social media - I can't bear to look at SM and it's a huge effort to message anyone without just typing AAAAAAAAAAAAAAAAAAAGGGGGGGGGGGGGGGHHHHHHHHHHHHHHHHHHHHHHH
Currently waiting for the distrcit nurses -e very other day I just have to wait and wait until they come as they can't give a time but they are good about ringing just before so I can open the door for them.
Our housemates (yes we live in a shared house long story) will only do their own fucking washing up as a point of principal which is really just fucking me off as I will happily clear the decks because it's just helpful..... and they are vegans so we are awash with fruit, veg and pre-prepared healthy food of theirs while I am eating crap and drinking vodka and chain smoking and just want to slap their sweet, meditative yoga faces (not really because they are very sweet about it all and sincere and understanding but younger than us and still full of ideals which I have given up on).
ironically if we weren't in lockdown and I was trying to run my non-essential actual shop this would be much harder but it still SUCKS!!!!!!!!! And after 6 weeks of zero activity in my ebay shop two fuckers have bought something so I have to go out and post them
tomorrow and that's without the person who bought something last week and asked me to send it to a different address to the paypal one which I declined and refunded and then she asked me to put it back on and I told her my whole sorry life situation and she went very quiet so I feel guilty because it's not her fault.
And I'm angry with the government, and everything and if either my Mum or my DP asks me if I'm okay one more time because I have resting bitch face I may just lose my shit - so if I may - AAAAAAAAAAAAAAGGGGGGGGGGGGGHHHHHHHHHHHHH.
But i aslo know this too will pass - fingers crossed, touch wood, etc etc etc........
Thank you for providing a safe space to confess my lockdown sins and moan - my own FB is a vipers next of Stasi so I've gone radio silence and people think me and DP have problems but sod 'em.
These strange and interesting times can go fuck themselves.....