Chemo. No hospital bed for DH.

[OneOfTheGrundys]

So DH’s medical team say he needs an inpatient bed now.
We’re stuck in the outpatients hotel and no bed forthcoming because of corona. He’s rapidly becoming neutropenic and there are no beds available.
This is actually happening today, now. I am stressed beyond belief.

I'm crying with you, it's such a scary time but please use all the support available to you from blood cancer charities - Anthony Nolan and Bloodwise, wishing you the best of luck to get through all of this together

Thank you. Those charities are amazing.
Im still in bed. Just answering messages from friends and family.

My DH was in hospital for 23 days, including 6 pre transplant (when he was having chemo, which your Dh has already started). When the graft took he felt better within a very few days.

Couldn’t just read all this and not comment. Wishing you and your DH the very best. Sounds like you fought hard to get him where he needs to be right now and you know he is in the best of hands. Take care x

Just popped back to wish you both all the very best

Thank you.
I’m coughing now so certainly better not to be visiting him. I hope it’s nothing and I hope I haven’t passed anything to him. I cared for him when I could and have to trust to the nurses now.
Kids and I will be self isolating.
Sorry, tearful tonight.
Thank you for your support. It means a lot x

My heart goes out to you and your family. What an awful situation to be in. I have everything crossed that a bed becomes available. Trust the doctors if you can. They will want to be helping your dh ( although I know that doesn’t help you right now)

One of How is he today? And how are you? Thinking of you.

Oh OP. Thoughts are with you and your family.

Thinking of you all

Hi, bit more steady in myself today. Still coughing a little so I’m going nowhere.
He’s doing ok. Bit emotional. He’s going to start feeling really poorly soon with the chemo but we’re working our ways our family in London can do laundry/treats for him by driving to the hospital and doing a drop off/pick up at the door of the ward.
I feel fine except for a little dry cough. I’m just terrified I gave something to him while I was caring for him without knowing it. Oh well, nothing to be done now.
We are very rural so phoned our elderly neighbours today. They’re fine.

mobile.twitter.com/BloodyMargot/status/1238944316363595778

some corona puns for light relief

So we’re all self isolating now as I’m coughing nicely but no fever. So kids are off.
My mum says I’m overreacting! I just think I’m following instructions to the letter...
DH has had GCSF now to boost levels as he’s officially neutropenic. If he’s home in a few weeks I want us all as bug free as possible.
I don’t think I’m overreacting...

Those puns are terrible and brilliant 😂

GCSF seems to work very quickly. I hope his period of neutropenia is short lived and his neuts pick up quickly. My DH lived on milk for a fortnight and I knew his neuts had come up when he fancied a sausage sandwich!

Just doing a stroll by the thread to say still thinking of you. How are you all today ?

Hoping you're all ok, this is such an incredibly tough time for you all.

Hi all, DH is very poorly in hospital. He’s still neutropenic but I call every day to speak to the nurses and they assure me his fever and vomiting are all ‘normal’ for this stage in the transplant.
He’s not in good spirits as you can imagine and although I am happy he’s in the right place it’s also so upsetting not to be able to be with him.
I feel awful saying this but I’m glad the responsibility for his care while he’s so ill is with the hospital. I’m just getting so anxious about what happens when (god willing) he is discharged. In the current climate especially. It’s 100% on me then and that’s scary.

Thinking of you, have a cyber unmumsnetty hug !

It’s totally okay to be glad the hospital are looking after him - that’s not selfish at all, you are already doing an insane job to be looking after your family. You’re not overreacting and wishing you all the best xx

I also wish Mumsnet would put this thread on blast - the sacrifices people are making and the people at risk for others to not see the importance of social distancing.

Thank you for hugs...
Wehrmacht we dropped him this time last week there was one woman kicking off at the ward door. Up until that point there had been one visitor allowed per patient. She said her family were ‘swapping’ so one would come out and she could come in. Nurse trying to explain that wasn’t the point... then the ward shut to ALL visitors NO MATTER WHAT CIRCUMSTANCES that night.
I’m sure he will pull through this bit but it’s on my mind that if anything were to happen to him worse and we lost him we’d never see him again. Even to say goodbye.
I haven’t gone through this with the boys. I don’t want to scare them.

Wehrmacht?
When we.

You poor thing OP. No wise words - just sending you all good wishes and positive vibes. I know from experience just how ill some people can be during chemo - and how incredible it is watching it work.

you poor thing.
I really really hope you all will get through ok.