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Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

*****PCOS - Anybody in the same boat?******

930 replies

fruitloop79 · 04/02/2008 14:58

I don't know if there are any threads already started but I've just officially found out I've got PCOS this morning - I've always known deep down. Please tell me it's not all bad I'm feeling very sorry for myself.
We've been TTC for 6 months - only 3 cycles. I supposedly ovulated on CD36 (now CD43) this cycle. Gynae reckons not preg cos uterus lining would've thickened. (Had a scan this morning)

Any hints/tips on treatment/TTC?
How to deal with symptoms?

How did Posh spice and Jools Oliver manage to fall preg?

---------------------

Hi - this thread is a little out of date. We've got some more information on PCOS here. MNHQ

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Moonlit · 04/03/2008 12:40

Hey Hun,

How are you?

I have been feeling awful for about a week and bit. Cramps, bloated, erc. The last couple of days, both my breasts have leaked milk. So bloody weird. AF is due on Friday (DD 2nd birthday) and I am trying to wait until then to test.

Have you tested?

Good luck xxx

fruitloop79 · 04/03/2008 14:03

Hi guys, My appointment with the gynae is tomorrow! I'm on CD72 today! My friend reckons I should phone them up 1st to see what I should expect from the appointment. I feel a bit silly though. I MUST buy some printer ink! I thought I should take along with me my FF chart.
I'm really worried they wont give me any clomid! If they dont and my AF turns up soon, I'll have to wait at least another 3 months until the start of my next cycle! I cant bare it!!!!!

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fruitloop79 · 04/03/2008 14:06

ooooh moonlit and tigerschick sounds promising!

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Moonlit · 04/03/2008 14:14

Fruitloop where have you been hun? I have missed you FF chart = ? I hope it all goes well tomorrow. Be positive and I am sure everything will be ok. He will see you are not overweight, so can he rule that out pretty quick. I am sure you are going to get your clomid.

Good luck xxx

AttilaTheMeerkat · 04/03/2008 14:18

Moonlit

I would see your GP about the milk production as this is sometimes caused by an excess of prolactin hormone (this can also affect ovulation to its detriment).

Fruitloop

Certainly call these people beforehand, also write down what you want to ask these people too. Make notes. Do not leave there without having full answers to all your questions.

I would also suggest your man comes along with you to this initial appointment; such things are usually nerve wracking anyway and you could do also with the moral support.

Not sure whether you should actually take along your FF chart; such things are often dismissed by gynaes because they are not accurate. It may be dismissed out of hand.

Good luck tomorrow, let us know how you get on.

Attila x

AttilaTheMeerkat · 04/03/2008 14:21

FF chart - think that's the temp chart done by fertility friends.

I would guess that the initial appointment will be a chat with both of you followed up by various blood tests and ultrasound scans.

If he does give you clomid you MUST ensure you are monitored whilst on it. No monitoring is a no-no.

Moonlit · 04/03/2008 14:53

Hey AttilaTheMeerkat - I have already booked myself an appointment with the GP next week and will be asking her to check my prolactin levels. I am aware there is a pituitary gland tumor that can cause an increase in prolactin levels hence causing breast leakage. Also this can be a cause of infertility. This could explain why i have not bee able to conceive again.

Thanks x

fruitloop79 · 04/03/2008 15:06

Attila I'm not really sure what I want to ask Just the obvious ones which cannot be answered "when will i get pg!" "how long will I have to wait!"
I thought by showing her my fertility friend chart she might be able to get an idea what's happening. It shot up for the 1st time today
moonlit I know I've been neglecting my thread! there's just so many it's hard to keep up!

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DungunGirl · 04/03/2008 15:14

Hey there everyone!

Nice to see everyone back on again.

Moonlit and Tigerschick....I am crossing fingers and toes for you!!! Another lady - pinkali has just had a BFP so maybe it is time for a few more!

Fruitloop - Good luck with the appointment! If you have done all the tests and like Moonlit said you don't have loads of weight to lose (like me )... then I am sure you will be fine.

I am still plugging on! Just weight this morning....first time in a week and I have dropped 2 kgs!!!! 4 pounds!!! Hooray! My sufferring has not been in vain.

Slimfast + excessive exercise + low GI + trimgel CAN WORK wonders!

Now I have 15 more days till my appointment....as long as I lose at least another 2 kgs I should be home free!

I am so excited!

Moonlit · 04/03/2008 20:28

DungunGirl -Well done hun. Although I don't approve of the slimfast . I think you have done really well. I think you will be well within your target before you appointment. You should be really proud of yourself for not giving up

x

DungunGirl · 05/03/2008 08:23

Thanks Moonlit.

It has definitely given me a boost of positivity to keep me going for the remaining 2 weeks.

How are things with you? Metformin still working wonders?

I must say that I am a bit miffed at the weather. I was cycling every morning and with the last 2 days it has been to bloody cold to cycle in the morning...and today I have the beginnings of a cold as well.....grrrrr

Anyway....fruitloop!!!!!!! Let us know how your appointment went ok!

Tigerschick · 05/03/2008 09:04

Hi all

Fruitloop - really good luck for your appointment today. Let us know how you get on.
Moonlit - Hope all is going well with you. Are you having a party for your dd? What about for your 30th?
Dungungirl - Fantastic news about the weight loss. Just be careful not to over do it!

Well, thanks for all the crossed fingers, but I didn't ovulate this month either. I have no idea what all the symptoms I've been having are about but there you go. My specialist is having a meeting with my consultant on Friday and they will discuss what to do next. She said it will be one of 2 things - either another cycle of Metformin + 150mg Clomid (that would be my 5th cycle in total) or starting injections. If anyone knows anything about these injections I'd love to hear more.

Hope everyone is well and happy

Moonlit · 05/03/2008 09:24

Hey Hun,

We are celebrating both birthdays together next weekend, because there are so many relatives and friends, it's better just to have one big party

I am sure AF is about to turn up, so I am not hopeful. Injections? Progesterone injections? I think Atilla had something like that. Have a look through the post at the beginning. I hope it all works out for you darling. I know how you feel. Let us know how everything is going.

Fruitloop - Please do let us know hoe you get on today. We are thinking of you. Good luck.

xxx

fruitloop79 · 05/03/2008 13:28

Well, I'm back from the appointment. Feel really cr*ppy now. I shouldnt at all, I should be grateful the ball has started rolling but the selfishness and impatience in me is taking over. I cant even see the keyboard cos I'm welling up.
Surprise surprise, cant have Clomid because you need to have regular cycles to take it. Also they need to make sure my tubes are clear before. So......

-I've gotta take Norethisterone to bring on my AF

  • Then have a blood test for FSH/LH between days 1-5 of my period
-Make an appointment for an HSG (hysterosalpingogram) which is a lap and dye -Then take Doxycycline 2 days b4 HSG and supository the night b4. -I've gotta avoid BDing before last period and prior to HSG (HSG better be close to start of AF!!!!) -Then and only then will I get a baseline scan which I've booked but not till THE 7TH JULY!!!!!!!! Which is the next available appointment!!!!!. So Wedding Aug 09 will be postponed to following Aug unless someone cancels and I get a MUCH earlier appointment.

DP's also gotta do a Semen sample (I havent told him yet - should be fun )

The reason I feel so upset and cr*ppy is 1.Because they wont just give me Clomid (understandably) and 2. because they had to do a pg test before I take this tablet to bring on AF. This came back neg
I've done so many tests in the past but I've never had so many symptoms of pregnancy. I actually believed I might possibly be pg. DP even asked me if I though I might be. My temp has gone up, got nausea, bad indigestion(never had it b4), cant finish a meal (very odd), tiredness,awful headache, and spotting a couple of weeks ago. Now if that's not my body playing tricks on me then I dont know what is!!!! I just wanted to believe I might be just for a few more days

I know I'm being stupid and I should be over the moon that something is being done but It's such a long and complicated process

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AttilaTheMeerkat · 05/03/2008 14:25

Hi fruitloop

First and foremost(((((((((fruitloop)))))))))

I would actually try and see another gynae ; some of the info you've been given I would query further (you do not need a regular cycle to take clomid; this is often prescribed for anovulatory cycles). They could also do internal ultrasounds as well as blood tests to see whether your ovaries are polycystic.

Northisterone to bring on your period - hmm why not provera instead?. I would query this anyway. My periods were pretty much non existant when ttc and the unit I was at never gave me anything to bring on a bleed.

Blood test re LH and FSH - that's fair enough on their part. Make sure they compare the level of LH against FSH!.

HSG is a useful test to have done as it is a tubal x-ray. Deformities INSIDE the tube can only be seen by such a method. You will be fully awake for this procedure; it is not the same as a lap and dye (this is basically the dye without the laparoscopy which is keyhole surgery). Have had a HSG myself and did not use either of what you've been told to use the days before. Was also not advised to avoid intercourse before HSG.

7th July is waaaaaayyyyy too far away, you need to be seen far sooner than this, both regularly and monthly. I would ask your GP to refer you to another unit as regularity of appointments and continuity of care is vitally important (you should be seeing the same people each time).

You should not also have to postpone your wedding day.

Re the semen sample he will need to do this and likely have it repeated. One semen analysis alone is not conclusive of there being any male factor problems (hence repetition).

Temp can rise during the second half of a cycle when an egg has not been shed. This is why I would not use temp charting if PCOS is suspected.

I hope the above has helped a little, I certainly do not want to make you feel any worse.

Any questions just ask

Attila xx

AttilaTheMeerkat · 05/03/2008 14:30

My treatment in order and in a nutshell:-

Blood tests and internal ultrasounds monthly. Was seen at hospital almost every week on a monthly basis (had week off between day 10 and 21 tests).

Not given clomid as cons said not suitable to take it (said it would not help due to sky high LH levels. Clomid encourages production of LH hence this would be unsuitable for me)

HSG (paid for this as was not offered on NHS)

Semen analyses (again paid for privately)

Injectible drugs offered as treatment but had to wait six months for funding to come through before I could use these. Cons in the meantime therefore suggest I have ovarian diathermy surgery (was advised to have two days off work post op).

There's no emotion shown in the above as treatments are only shown but at times it was all pretty much unending and draining for us as a couple.

Moonlit · 05/03/2008 14:37

Fruitloop - I understand you must be so frustrated my darling, but one thing I can say they are being very thorough. Maybe a bit to thorough. Did the consultant have much experience of PCOS? Yes I agree with Attila, I thought Clomid was for those women who don't ovulate, so I am very surprised that the consultant won't be considering this option.

You need to be positive. It will happen. It's funny how we both managed to conceive first time and now are having problems with TTC another child. THe body is a bizarre place.

I would definitely take Attila's advice on board.

xxx

fruitloop79 · 05/03/2008 14:43

Ah Thanks Attila you're such an amazing support! I dont know what I would've done without you!

I have already had an internal scan for PCOS and I definitely have it. Sonographer said they could be worse as they're only 15mm. 20mm is bad. Not a big difference as far as I'm concerned!

I had to wait 6 weeks to see this Gynae, Is it wise to ask to see another? Also what's the difference between Northisterone and Provera? is one better than the other? What's Provera for?

Obviously the woman had no idea what she was talking about then cos I asked if HSG was a Lap and Dye and she just said 'yes' (she wasnt actually the main Gynae who I thought I was gonna see)

About the eventual baseline scan, she said to call every week to see if there has been a cancellation. Also I didnt ask her what it is, maybe she told me but I was bombarded with so much that I probably didnt listen.

the wedding - well, I've worked out that I'll need about 6 months to lose the baby weight so if not pg by May then I'll have to postpone it. And I've got my heart set on a summer wedding so will have to be following year as I cant see me being pg b4 May! I also dont fancy waddling down the aisle and having another child is far more important to me at the moment. Dp's very relaxed so it's sort of up to me.

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fruitloop79 · 05/03/2008 14:46

Thanks moonlit yes it's weird having been able to conceive b4 but it does give me a lot of hope. However, I was mainly off the pill for 3 years previous to falling pg with DS although we weren't actively trying. Hopefully it wont take that long again!

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AttilaTheMeerkat · 06/03/2008 11:28

Hi fruitloop,

I would certainly ask to see another gynae, preferably at another unit or at the very least the main consultant gynae at this unit. I would talk to your GP about this recent appointment you've had and complain.

Provera is also used to bring on a bleed.

When you do have your next appointment, do not go on your own. Make notes on a notepad. Apart from moral support he can also ask questions.

Any other questions feel free to ask

Attila x

DungunGirl · 06/03/2008 12:07

((((fruitloop)))))

Sorry to hear you are down in the mouth. I can sympathise with the feeling.

Fair enough with all the other blood tests etc that they require, this is irritating but is needed for them to have the whole picture.

As for the July appointment...that really is weak. However frustrating it is though...i guess if they are booked up then they are booked up! Keeping fingers crossed for you that someone cancels!

I feel like this has been going on forever....startedd investigations in October 2007...and my first appointment with the consultant is that 19th march appointment.
So that is a 5 months of tests etc before getting the first available appointment!

Don't worry about feeling selfish....I do too when it comes to this! I just want them to fix me and fix it now!!!!!!

But there you go! We are all here supporting you and sharing frustrations as well.

So chin up!

DungunGirl · 06/03/2008 12:10

How is everyone else today?

I am miserable today.....got a bad cold and feeling really achey all over.

Not going to the gym as I feel rubbish...oh another day of wasted oppurtunity to burn off some fat!

Nooooooo!

fruitloop79 · 06/03/2008 13:31

oh dungun poor you

I'm feeling very positive today! Check out my new thread!

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AttilaTheMeerkat · 06/03/2008 17:54

fruitloop

I will comment here rather than on the other thread.

I sincerely hope you are not setting yourself up for disappointment re the temp chart. Know all too well what PCOS is like though and if you're feeling desparate you'll believe and or try anything.

Attila

fruitloop79 · 06/03/2008 18:54

I know attila but it does make sense that I ov in the 70's cos my cycle was 88 days last time. Also I've looked at loads of other temping charts with PCOS and they all seem to ov. I know at the back of my mind it mite mean nothing which is why I'm gonna sit it out for a while, test on the 22nd (what FF says I should do) and if -ve and still no AF by then, I will start on these AF inducing tablets.

x

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