Bus 9 - Donkey Cart departing soon, all aboard with ivf, pcos, endo, sub/unexplained fertility jump on

[Marvellouslymadmum]

New thread 😊😊

@Marvellouslymadmum this was au naturelle! It was our 1st Natural cycle following our 3rd failed round of IVF and the end of our NHS funding. So we were in a really dark place amd just kind of gave up all hope. I then had spotting 5 days late that only lasted a few hours and thought I might as well test, fully expecting it to be blank amd the start of my menopause or some other nonsense and my 1st ever BFP greeted me instead! I can not describe this feeling!

@MIW01 you’re going to be a unicorn instead of a donkey… 🤞

@MIW01 you must be absolutely over the moon! There's so many cases of people going for ivf then it happens, it does make you wonder if it kind of resets everything!

I think that and my fiancée had his varicocele repair and treatment with antibiotics so we've both been tackled as it were! Very fortunate. 5 weeks atm.

Great news @MIW01
Today, I went for my day 10 scan of my 1st IVF cycle.
I have 38 follicles. But none are big enough just yet. So another 48 hours of injections and egg retrieval on Friday (hopefully!).
I was a little disappointed to hear that none were big enough BUT I'm usually a 32 day cycle so a little slow to mature anyway, and I've just decided that's what's going on here, they just need a few more days.
The doctors think I'll have 8 follicles ready for Friday.
It'll happen exactly how it's supposed to!
How is everyone else right now?

Thank you @ShirleyValentineManc I am keeping everything crossed. Went through it 3 times myself so I really empathise

I checked the old thread and saw there was a new one and saw @MIW01 wonderful news!! Congratulations 🥳 you must be over the moon thrilled! Such a journey, well done for staying on it.

Sorry to hear that not everyone is there yet, fingers crossed it'll happen soon!! 🤞🏾

Hi all. Second scan has shown 62 follicles so doctors taking about freezing all embryos and doing a frozen cycle? Any experience of that here? Really not happy about a possible 2 month delay!

Thank you @becarefuloutthere I hope things are going well for you. I'm 5+5 today. Got my 1st appointment with diabetes midwife on Monday. I am over the moon and I am so excited I don't have the words.

Am sending wishes upon wishes that everyone gets the result they seek sooner rather than later!

@ShirleyValentineManc thats an amazing number, sounds like they’re concerned about the possibility of OHSS? Freezing them all will give your body a chance to recover and rebalance before your transfer, fingers crossed for you

It's confirmed, I have OHSS. My ovaries are 3 times the size they normally are. Very uncomfortable.
The egg retrieval op going ahead Friday.
Thanks @Sunbird24

@ShirleyValentineManc its good that they’re still doing the collection - make sure you drink lots of water or ideally sports drinks and there are some suggestions that salty snacks or a high-protein diet can help.

@Sunbird24 thanks for the advice, pint of water on the go..... The OHSS has caused constipation but that's subsided.
It's day one of no menopaur and estro decreasing meds. This morning was not good but after an afternoon sleep, the bloating seems to be reduced.
Pretty pissed that MRI loaded me with two extra days of injections rather than just let the originally found 38 follicles grow. To create a situation of 62 follicles (I think that's created OHSS) has put my safety on the line

@ShirleyValentineManc yep, 38 would still have been lots, the rest seem a bit unnecessary! But hopefully you’ll get lots fertilised and growing to day 5, so at least you’ll never have to go through this again.

@ShirleyValentineManc sometimes it happens that there's lots of small follicles but not growing very well hence extra days/doses given as need to be above certain size however there's tiny follicles not always able to be seen that may have suddenly joined the party - I was warned it may happen with pcos but its hard to know how body will respond. Ohhs can be very severe and result in hospitalisation and worst case high dependency care and can get worse after transfer so although it's disappointing, it may mean you only ever have to do one retrieval. Alot of people don't get frosties. I understand your feelings, totally valid and any delay seems awful x

Well I had my egg retrieval yesterday, 47!
And I have kissing ovaries (sounds sweet😭) with an inch of internal fluid.
As you can understand, with that and the number of puncture of walls, Doctor got me to stay in over night.
High as a kite on pain relief.
@kerrym87 you know what, you're right. Some girls on here would love to be in my situation so I'm trying to see the positive side of this!
For anyone reading this post please take my advice and speak up if your IVF treatment is giving you pain. Don't allow any of the medical staff to fob you off with "IVF gives you bloating". You know your body better than anyone.
I hope everyone else is ok and has a good weekend.
Off to eat my hospital coffee and toast with delight!

@ShirleyValentineManc huge haul! How are you feeling?

Ive booked my next review appointment with the consultant to discuss my final transfer, it’s not for 3 weeks so the actual transfer won’t be until October.

OMG, it just got worse and worse. The op caused bad constipation, so on top of the OHSS and high estrogen, I was in real danger. I'm on 8 different meds to reverse all the issues.
I was completely fine for the first 10 days and then bam, worst 5 days of my life.
Out of hospital.
26 embryos on ice.
Now waiting on ovaries to stop kissing and get back to their places. Painkillers and bed rest while they do so.
@Sunbird24 how are frozen cycles?

@ShirleyValentineManc I’ve not had any dramas with them - mine have mostly been unmedicated so I call the clinic on CD1 to give them a heads up, then do OPKs to catch my LH peak indicating ovulation, and they transfer the embryo 5 days later. With the last one they did a CD10 scan and gave me a trigger shot to do the next day as my follicle was fairly close to popping but they wanted to control when it did so that transfer day didn’t fall on the weekend. That was the only one where I didn’t get a BFP but no way of knowing whether there’s any link.

Sounds a little different to what they want to do for me. We have unexplained infertility and all my results show normal fertility for my age. But they want to give me hormone patches for frozen cycle. I don't understand why they want to pump me full of hormones when my body doesn't need them. Do you know why you don't take the patches for the first 10-14 days?

I think it’s to do with the ‘normal’ peaks and troughs our different hormones have during our cycle. My next one may go that way but my appointment with the consultant isn’t until 7 Sep so I’ll find out then what protocol she wants me to try next.

Hi ladies

@Marvellouslymadmum and @thislittlebird I hope you remember me!

It’s taken me a while to return to Mumsnet and the TTC thread…I miscarried at 10 weeks (January) and went into a downward spiral. Heartbroken doesn’t cover it! Bloody horrendous.

Now on antidepressants, and having CBT and hypnotherapy, which is helping.

Currently in the middle of an ivf cycle. @ShirleyValentineManc I have the very opposite problem to you- only retrieved 4 eggs! So sorry to hear about your experience, sounds awful. I very much hope it’s worth it in the end.

Would love an update from everyone so I can get back in the loop? You’ve never been far from my thoughts ❤️

Hey @Misty84, I didn’t expect to see you back here. I’m so sorry that happened, I thought you were long gone from these donkey lands. I hope the therapies and meds are helping somewhat, I know not a lot really helps with coping with any of this and even moreso if you’ve got that far then miscarried.

What are you doing now? Not ttc and recovering? Ttc?

I’m not in a great place myself tbh. Just feel lost, and part of this weird sub category of a sub category where I can’t get pregnant even with medical intervention. We’ve had two embryo transfers and two BFNs, feels like the optimism for even this has gone now. Doing a double transfer in September, if that fails we’re moving to private, hopefully a new EC in November with the Lister. Life remains on hold! As it ever was.

Yeah I thought I’d left the donkey lands too! Scary now that even a future bfp won’t give me confidence. Until that baby is in your arms it all means jack shit really!

Same with you and your embryos @thislittlebird. You would think your struggles were over wouldn’t you? Instead it’s just given you more heartache! Gosh so next month your double transfer…it does seem to be a complete lottery of whether it works or not.

So if you remember I wasn’t eligible for any funding so went straight to the Lister for first round which was a spectacular fail (no fertilisation).
Then had the miracle pregnancy and subsequent miscarriage which crushed us.
Yesterday I had egg retrieval for my second (and most likely final) round. Can’t afford any more, we’re already up to £18k spent. Got the call this morning to say 2 have fertilised. So an improvement on last time. Small steps…hardly dare breathe.

How is it going with your house move or is that on hold due to all this? I’m so sorry you’re feeling so low, it’s like being on a hamster wheel so I completely understand. And doubly hard when the routes you expect to work don’t. Adds insult to injury!
Hang in there…I have everything crossed for your double transfer 🤞🤞🤞

Oh and I forgot to say, after the loss we finally got a dog!! Meet Toby 😍