Bus 9 - Donkey Cart departing soon, all aboard with ivf, pcos, endo, sub/unexplained fertility jump on

[Marvellouslymadmum]

New thread 😊😊

@thislittlebird £14k sounds very expensive. Is that a package deal? It cost us €6000 Inc meds and that was in Germany, which isn't known for being cheap. I was looking at somewhere in Copenhagen. Apparently a lot of people in Denmark do IVF and so it's well researched, affordable and they have good success rates.

@CycleGirl20 yeah it’s a package. Last time I looking into it was 11-12k for two rounds of icsi, including unlimited transfers, which is the part that potentially makes it worthwhile for me since I likely won’t get enough embryos to justify PGA. Meds 2k on top of the package price. Then more meds for round two but I’m not worrying about those yet. BPAS do it cheaper here, as do kings and guys, maybe £3k for the round of ICSI but you’ll then have to do the transfers on top at £1-2k per attempt.

I just checked and BPAS say £3500 including embryo transfer. Singular. I am assuming that means one transfer only, but I could be wrong.

Yeah found it further down, £1500 per transfer. If I get even 2 x embryos that’s £5000, £7000 with meds. £6500 for three embryos and so on. That’s why I think the package makes sense. It’s fixed at about £6k per cycle.

That makes sense @thislittlebird. I was unsure about what to do package wise. In the end we thought better just to try it one time and see what happens, then look at packages. It did end up costing us more than anticipated. I think the clinic quoted €4500 but then the medication stacked up or something, even though I needed less medication than the average person due to high amh/short protocol. It's all rather expensive but then a friend did her IVF in the US and she said it cost $35,000, so there is that. It's hard to figure out the optimum plan, but sounds like you're well prepared.

@CycleGirl20 yeah we've ummed and ahhed about what package or not to get after the nhs funded round and I think now with two failures, possibly another failed double transfer to come, we can say the 12k package makes more sense. The other option is refund package, you pay them 19k for 3 cycles and you get half back if you have no baby at the end, but obviously with meds that takes it to about 25k, which seems a lot. But you have to have medical tests for that one and they might say no to us with our issues.

Tests still stark white over here and AF is due in 4/5 days. Losing hope.

Starting injections on Sat/Sun, what is your advice for me please? General well-being things...TIA

@Sunbird24 I'm sorry to hear your test is still white, you know where we are if you want to vent x

@ShirleyValentineManc not much in the way of well being really, other than icing injection sites helped me not bruise, and there's an app called Mindful IVF that you might find helpful.

I hope you don't mind me jumping on this thread! Any advice/guidance is greatly appreciated

I'm 30 and have a daughter (7) conceived naturally

I have been diagnosed with PCOS and have a high follicle count

The fertility clinic (CRGW) have recommended IUI or IVF Lite but I am unsure what to go with. The success rates with IUI worry me and although IVF has a greater expense, is it worth going for this first as last to save "wasting" money?

Any experiences/advice on the success rates for first time IVF with PCOS please?

@MammyandAva I have pcos however 2 failed ivf and no children. Generally the clinic suggests what will work best, is it nhs? Thye don't tend to suggest stuff that won't work, have they said why natural conception not working eg sperm quality/pcos? With pcos the hormone imbalance can get worse over time and it success can depend on if you ovulate and the quality of eggs. For example I ovulate relatively regularly but my eggs don't mature and release properly. My husband has low volume/count but everything else now normal with him

Thank you for your reply. It's a private clinic and they have said my two options are IUI and IVF Lite.

@thislittlebird you definitely need a good plan, if I were you I'd make a nuisance of myself until they listen and offer more help!

@Sunbird24 I am sorry it doesn't seem to have worked for you this time 😔

Hi and welcome @MammyandAva I'm afraid I don't have any advice on the iui or ivf as I've not been through them yet but there are lovely ladies here that have who I'm sure can help

Day 4 of injections. Had period like pain yesterday, 30min yoga sorted me right out!
No bruising, injection pain 2/10 and no emotional rollercoaster. Am I just lucky or will it come later?

@ShirleyValentineManc yoga sorts all sorts! However, you may be fine or like me (I'm always different!) I get bloating and ovary pain pain by day 7 of stims I can't do my yoga as I can't bend 🤣 i get increases fatigue and some ibs flare up but mood swings, bloating, nausea for me come more with the progesterone. Some people don't have much in way of symptoms and sail through. Egg collection is a little sore for some and afterwards, others no problem 🤷‍♀️

Well no need to test on OTD, started spotting yesterday afternoon and AF arrived full force this morning.

@Sunbird24 what dpt are you now? Spotting started at 9dpt for me, another thing to worry about next time. They told me to keep taking meds but I don’t see the point when the tests are negative and it’s clearly AF.

I’ve got my follow up consultation scheduled for august 23rd, and I’m doing a microbiome test this month too.

@thislittlebird transfer was 2 weeks ago tomorrow. Clinic have said stop the progesterone and start weaning off the steroids. No follow up booked yet, just give them a call when I’m ready.

@Sunbird24 I'm so sorry, I really hoped you'd be lucky this time. Hope you're not feeling too blue, sending hugs!

@thislittlebird that's great that your follow up consultation is lined up and at least you don't have too long to wait. Do you think you'd try for the next transfer in sept?

@99pctpractice yeah, i think so. I'm keen to move to private in 2022 and realistically it's going to be a November EC if we have a September failure. December will be unlikely because of Christmas closures.

Part of me wants to do more tests first but I can't see me wanting to delay. I think if this last, double transfer fails I'll put the house up for sale. I need to move on, I'm so tired. I won't stop IVF, but I need to change something in my life.

Hope it’s ok if I jump on this thread 😊 30 ttc our first, I have PCOS and nightmare periods. They go missing for months and then I’m now on week 4 of my period!!
Couple of weeks ago saw private Gynae who has prescribed me metformin to start and asked my gp to send me for another ultrasound. Mentioned the prolonged bleeding last week and he suggested tranexamic acid which has slowed it down loads but there are still bits coming through. He said next option would be the pill for two months to try and regulate and then more than likely move onto covid - has anyone else done this?

@thislittlebird and @Sunbird24 my heart breaks for you, I am so, so sorry, there really are no words. You have all my empathy and thinking of you through these difficult times. I hope you can make plans for moving forwards. @thislittlebird it sounds like this clinic need a kick up the arse!

After years of TTC and 3 failed fresh IVF rounds I have some news to share . . .

@MIW01 thats amazing, so happy for you!!

@Sunbird24 so sorry it hasn't worked for you this time

@Hopeful1992 hi and welcome, I don't have much advice I'm afraid but hopefully they'll sort something for you

@MIW01 omg I'm beyond happy for you!! Was this another ivf round or natural? I'm so happy one of the long term donkeys has a bfp! Congratulations and everything crossed for you