PCOS support thread

[satsoooma]

Welcome to our fourth PCOS support thread. We are a welcoming bunch, all trying to conceive with PCOS, or suspected PCOS.

Here are the links to our old threads:
When To Expect Period - Provera
PCOS, Periods (or lack of!) and a lovely bunch of ladies
PCOS, Periods, Provera, Pals. Plus All The Bits In Between.

Hi holly,
No I haven't, but my husband is T1 diabetic and has them all the time if you have any questions?

Thanks changing, I know what theyre for just wondered why they were doing it,
I don't have any other symptoms of diabetes other than large hips and grandparents having it
Hope it's ok, can't be dealing with diabetes aswell xx

@Slady It's 31.8 but I was expecting it to be higher. My consultant was saying that he's not too concerned because he doesn't think BMI is a great indicator of overall health but that losing 2/3 stone would probably help my chances of conception, and make treatment more accessible if it's required. I think knowing my body isn't responding properly and that type 2 diabetes is a risk associated with PCOS so hopefully with the help of metformin I can shift this extra weight!

How have others who've been losing weight with PCOS found the most effective way to do it? I was contemplating Slimming World again, but I'm going to try limit the carbs a bit and see if it helps, it'll be painful but hopefully worth it!

Hi Never, I did weight watchers and went to the gym to shift my weight, though I suspect metformin did have a helping hand too but not straight away.

Fingers crossed the metformin works for you never I hear lots of good things about it. It's so hard for PCOS ladies. I got a few books out from my library and they talked about PCOS low GI diets in there. I've taken a few tips from there but not sure how effective it is

How is everyone? X

Had trigger shot privately on sat and scan today confirmed ovulation. That was the last of the clomid so in the two week wait now. If it doesnt work will move onto the Letrozole

Fingers crossed for you barsons
I've had Some spotting today, I'm on cd25 but it was bright red - not sure what to think as we've barely dtd, I didn't ovulate last month and DPs SA came back as low

Hi Barsons, that's great news - at least it takes away any uncertainty. If you don't mind me asking, why were you given the trigger? It's something that they've never discussed with me.
Holly could it be implanting?
I'm on 12dpo here and too scared to test after my bfn at 10dpo!

Good luck Barsons - hope this month is a lucky one for you.

I started af on Sunday, Sunday night there was a bit of red and yesterday too - which means tonight is CD2 and should be first tablet of clomid ---?! However, this is not like my normal AF, it's very very light and I don't have the full on cramps that I usually have so I need some advice - so I still count this as cd2 as there's been red blood and much more than just 'spotting' , or do I wait and see if there is more and start counting from there? I really don't want to waste my first dose of clomid. I have seen some people are meant to take them cd3-7 and I've been prescribed cd2-6 so I don't know whether to wait and do that?

I was also told to ring the hospital on cd1 to book in a scan. It's all so confusing. My DH said 'don't you know what a period looks like?!' (He wasn't being mean I think he was just genuinely confused that a 29year old woman doesn't know..!) it's not that I don't know - it's that I'm panicking I'll get it so wrong :( sorry for TMI at 7 am

Hi Elly
I was told second day of full flow. So I spotted for two days and didn't count them if that helps?

Great news barsons good luck!
It's so tricky elly especially with an induced period so it's not what you're used to. If it helps the nurse said it would be better to take it a bit late than too early. See how you get on today as you can always take it in the evening. Maybe give your FC a call too, they might be able to help?

I could be implantation I don't know whether I ovulated this month as I should've have my bloods done on Friday but you know, had a bit of an it problem. My trust is still not up and running properly so I've missed the bloods for this month :/

That's so frustrating Holly. I also missed my bloods too due to coming on holiday. It's the first time I have had any decent sized follies so would love to know if they actually released!

Thanks all. Am hoping theres more good news this month from us all!

Iamchanging had trigger as clomid didnt work one month and they said the lh surge hadnt happened. This was all done privately though

When are you testing again changing?

Fingers crossed holly

Typically I had some cramping around projected ovulation time so would love to know.
But I'm thinking I may just go and get it done anyway, it'll be cd 27 and could catch it if I ovulated late?

I had a load of cramping as well Holly when my doc predicted I was going to ovulate so fingers crossed we both did.
I'm 12dpo today and testing on Thursday. Not holding out any hope though to be honest. But at least the Clomid is now working at 150mgs so I'm in with a chance for the next few months

Hello ladies.

I was advised to join this tread by another lady, as I may have PCOS.

I have a brain condition which have been told may cause a stroke if I was to fall pregnant, so when I didn't fall pregnant for 4 months and had symptoms of pregnancy I bought a test straight away ( left it longer as before I missed a period and as soon as I bought a test I come on). All test came back negative so I booked a doctors appointment. He said I may have an under active thyroid or PCOS. Tests came back clear for under active thyroid so am now waiting for a scan for PCOS.

Can anyone share any info of what to expect if I do have it?

Hope your all well and TIA

Hi mumsie

Do you mind me asking what condition you have? I have intracranial hypertension but am in remission at the moment and my neurologist doesn't think there'll be any problems with pregnancy.

I think pcos is so individualised it's hard to say but most common is random cycles, bleeding or no bleeding etc, mine is random cycles and infertility due to no ovulation at the moment
I've always had stupidly heavy periods so I'm used to that.

Good luck - make sure you have a full bladder when you go for scan mine wasn't as full as it should've been so I had to press down over my ovaries and it hurt :/ x

Hello @HollyWollyDooDah

I also have intracranial hypertension, however I'm not in remission as of yet. I have also been told veins in my brain are tiny, so this may be why I have to be so careful.

Glad your in remission now, wouldn't wish these headaches on anyone!

Ooh thank you for the advise, that sounds painful what they did to you. Hope things are going well for you x

Thank you
I hope you get sorted too
I was on acetazolamide for a while then took myself off as it made me ill then they put me on topiramate and I joined slimming world and lost 1.5 stone
Am now off the drugs, have put weight back on again and only thing I've got is tinnitus which neurologist said could just be down to the nerves being hypersensitive due to iih

I'm a bit concerned with having to take hormones again as I think this is what caused it in the first place but we shall see xx

Hi All,

Holly I can totally sympathise with you, I am an emotional wreck at the moment and My hubby also has a low SA following a Vasectomy Reversal.

So today I totally broke down at work with the latest B Bomb, I work in a big office of women of child bearing age so its to be expected but it gets harder with each one not easier. I am so happy for her, she has had her own struggles but today I couldn't hold back the tears. I tried to cry discretely but failed. Feel bad that I made her happy announcement a bit awkward, feel an idiot for crying but I have booked the rest of today and tomorrow off as I don't want to be around people. I have my first counselling session tomorrow so hopefully it will help me try and start functioning like a normal person. I am so angry with myself for letting myself get like this!

Waiting for my appointment on the 22nd to find out if they took my right ovary during a cyst removal surgery in 2014, my AMH levels and my progesterone levels which will be off as they scanned me and said it looked like I realised an egg the day before my scan (I think that's what they said, so to go for my bloods 6 days later and I should have AF yesterday, which didn't happen and no signs of it's arrival. My tracker suggests it's not due until Saturday but they sent me based on my scan.

I am like a spoilt child and want to be pregnant now. I just want to know if my body works so we can start a plan to go for ICSI IVF. I am over the 6 year wait (plus two from my previous marriage!)

Think I now need to go and sleep off my mood

What can they do for low sperm count?
My oh knows he needs to make some lifestyle changes but do they actually do anything like they do with us? X

I'm out :(