PCOS support thread

[satsoooma]

Welcome to our fourth PCOS support thread. We are a welcoming bunch, all trying to conceive with PCOS, or suspected PCOS.

Here are the links to our old threads:
When To Expect Period - Provera
PCOS, Periods (or lack of!) and a lovely bunch of ladies
PCOS, Periods, Provera, Pals. Plus All The Bits In Between.

Hi cheese are you TTC? If you are then most Drs want you to have tried for 1 year then there are various tests to have done for a referral to a fertility clinic (blood tests etc) first line of treatment is usually clomid for most people. Your cycles seem to be quite regular which is a good thing! Hope that helps

Sounds like a long day never will be interesting to find out your result! My cycles have ranged from 33 days to 71 days. But I've never had a cycle shorter than the last so basically they're just getting progressively longer!!!

Guys, I just started bleeding , not sure what is going on yet. I am just 5 weeks, so it might just count as a late period. I got a super strong BFP this afternoon though. Doctor is going to call me back.

Is it old or fresh blood? Any pain?

Satsooma, hugs. What kind of bleeding? Any pain? Fingers crossed it's just a bit of baby settling in! Keep us posted xxx

It is red. Absolutely not spotting, but not heavy. What I would normally class as a medium flow, like what I get at the start of my period, but maybe darker? No pain.

Satsooma, fingers crossed it's nothing. Hope you hear back from the Dr soon xxx

Thanks Boggle x

Have you got a photo of this afternoons test? If it's really strong I wouldn't call this a late period.

Thanks for the advice. Yes we are TTC, 4 cycles in. I'm paying for tests privately (the year wait would be unbearable). I will get blood tests done next, thanks.

satsooma fingers crossed for you that it is nothing.

Today's test was crazy strong! But the doctor just called me back and said it could take up to 2 weeks for pregnancy hormones to go down enough to show on a pregnancy test. So the positive test is not evidence of much either way.

She reckons a scan would be pointless, as it is too early to see anything yet. There is just no way to tell. If a week or two passes with no bleeding, then it is probably ok. If I get sustained bleeding, it is probably a miscarriage.

Two weeks seems like an impossible amount of time to wait. We had so fallen in love with our little one already.

Can you try and get a private scan?

You should be able to see something at 5 weeks? I guess all you can do is see what happens with the bleed and go from there. Here if you need us Satsooma and sorry we can't do more to help xxx

I think I will phone my fertility clinic tomorrow and ask when is the earliest that they could do a private scan. Anecdotally, I think that I have heard of people getting scans at 6 weeks. I believe the doctor when she said that 5 weeks is too early to see anything at all. It is only about a mm long at this point.

I keep forgetting to say that the bleeding was as soon as I got back from a run. It was a teeny run, maybe 5 mins total with lots of walking in between. But maybe it is just due to that somehow, rather than anything more serious.

Gonna go watch a film or something to try and take my mind off things.

Thanks again Boggle. Really don't know what I would do without this thread. xxx

I guess all you can do is keep an eye. Look after yourself. Xxxx

satsooma my friend had bleeding at 7/8 weeks and again in her 2nd tri and she was absolutely fine. Sending you huge hugs. Take it easy and keep positive xxx

We are all here satsooma. Put your feet up and try to stay as rested as possible. Maybe it was all the jiggling about, so stay nice and calm and still for a bit.

Keep us posted. Thinking of you x

I had at 5 weeks and they can see thing that indicate pregnancy, could you ask to be seen at an EPU? They would do a scan and also your blood HCG to see if they're rising like they should.

While I didn't get a good outcome I found out that there are loads of reasons that you can have bleeding in early pregnancy and don't all point to a bad outcome, have you had any cramps?

Sent that too early. I'm thinking of you xxx

@satsoooma sending positive vibes your way. Praying everything is going to be ok! Keep positive and take thing slow and easy until you are certain of what's going on.

@allthecheese if you can afford private, do it. The wait is horrendous. I am def an emotional eater too, pass the ice cream, I'm having a bad day too :(

Any update Satsooma?

Hoping all is well satsooma x

Hi all, fairly new here... Sorry to butt in, and satsooma I have my fingers crossed that all is ok for you!

I just had a question that I thought some of you guys might know the answer to.

I'm 27 with PCOS (high end Normal BCS, slightly raised testosterone, and long/ irregular cycles), endo and a bicornuate uterus (I know, unlucky huh).
On 9th cycle TTC and been on 1000mg metformin once a day (every time I try to increase the dose I get so sick) since the beginning of Nov. Prior to this I was definitely ovulating but with v long cycles (44-46 days) as had several pos opks and a '21d' progesterone blood that showed I would have o'd the day of my pos OPK.

Since Nov I haven't had a single positive OPK (possibly bad timing? I'm a shift worker so I test same time of day where I can) but have had lots of ew cm 12-14 days prior to AF, and my cycles have all been shorter (34-38 days). This cycle I have started temping and fertility friend has predicted I o'd on cd10!!! At which point I was still spotting after AF (TMI?) and would obviously be massively early for me anyway due to my 'normal' cycle lengths. I am cd 21 today and the line on OPK has gotten darker over the last 3 days so maybe I just need to be patient but (and I will get to the point if this essay eventually!!) has anyone ever known metformin to stop O?

At this point I'm finding it really hard to stay positive and am a little bit tempted to throw myself on the floor at my GP and refuse to leave until they have run every possible test to reassure me!! OH has no fertility issues and I feel like I'm massively letting us both down atm. We also haven't told anyone that we are TTC and I feel so so alone when I'm have a down day about it! This cycle has been particularly hard for me and I keep randomly bursting into tears!

Sorry for the massive essay! Would love to be a part of this wonderful community- you all seem to be such kind, supportive ladies it's really lovely to see xxx

Ah I meant High end normal BMI! I'm a vet nurse and we use BCS for the animals haha! Clearly still in work mode!!