Thank you so much AllTheGlitters - and I see congratulations are in order for you!
I'm finding it hard as I still don't really know if I want children yet! But we had thought well, we'll let it happen if it is meant to, but now that's sort of taken away from us! We have an appointment with the geneticist later this month and see whether what we think is the case actually is, or if they want to draw it on longer with further tests. We think we will ask to be referred to PGD though.
As a bit of background, there's a 50/50% chance that we would pass the gene to the baby. Then, if it gets the gene, there's a 65% chance in boys it will have the disease and and 45% chance in girls. So, we could consider natural pregnancy and then a CVS test in early pregnancy, but then if they find the gene the baby may not necessarily have the disease! And you could go on and on with it happening in every pregnancy! But still may consider it... I think we are best seeing the outcome of our appointment.
Also, I saw one of you ladies had the test for Zika. This is another concern if we take the natural route as we are potentially going to Florida in May and if we take the natural route I'm not sure I want to wait 6 months after getting back!
Thank you for welcoming me and I'm looking forward to getting to know you all and seeing you progress on your journeys.