Immune /natural killer cell treatment when ttc or pregnant (aka the 18th pred thread!)

[Hula2]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

I used to run quite a lot so 3 miles is just the start but I aiming to try to get 3 3mile runs and one 5/6mile run in a week. At least that way I don't have to feel too quilty if I have a bad day!

Billy, I had an anovulatory cycle before... No temp rise and it just went on and on. Finally came on on day 50 something! So frustrating. But it is quite normal to have them occasionally. Hope af comes soon though so you can draw a line under it!
Snoopy & Drttc, you both have the perfect excuse not to be out running! I'll stop if when I fall again. And stick to just walking the dog!

Well I'm still impressed seeking. How is Loki? Our little pup still has an upset tummy, he's running around as usual and the vets not worried but my anxiety has absolutely shot through the roof.

He's good thank you Snoopy, absolutely massive. And I'm forever cleaning as he loves mud but he's soo loving, I can forgive him

Have you tried yours on some natural foods? We only feed Loki raw stuff and so far never had any tummy issues. It might help.... Sorry I'm rubbish at remembering names , what I his name?

Haha that's ok, his name is Max. I'm worried he has colitis because this episode came after we tried to switch him to a food which was basically just turkey and rice. But we love him so much and we're lucky because he pretty much wipes clean with his wiry coat haha

Ahhh bless him, poor Max. I'm sure he'll be ok in a few days. He might have just eaten something he shouldn't have while out on a walk..

Hi ladies. Well my temp went up yesterday (so I may have ovulated) which was actually when i would've ovulated had my period come. So maybe I just missed a period?! Annoyingly my dh has been away so we not bd' and if my period comes in 12-14 days that means he'll be away again when I ov next time! Feeling pretty pissed off as this means 3 cycles of not trying but taking the hydroxy! And in Nov I was thinking the next few months are crucial. We've an NHS app on Thursday so will see. We get results of dh test too. Feeling almost like that's it for us, but I bought my friends baby a lovely jelly cat fox the other week and strangely have kept it (and bought her something else!). Not sure what that means!! But have also been thinking and talking about adoption. Not sure how I feel atm.

I hope everyone's well and have had good weekends xx

Billy- I understand how frustrating and disappointing this is. We actually considered adoption and even met twice with an adoption agency in the autumn. They suggested we hold off because we were planning on moving soon (we're now settled) and the process involves home visits. Of course we still tried in the meantime and here we are... Hopefully carrying our take home baby.

As for the hydroxy- which has pretty much changed my life- it takes a while to properly build up in your system. I know they say to take it for 6 weeks but when I've researched how it's used for other autoimmune disorders patients say it takes months to feel a shift in symptoms. Of course their immunes issues are likely more aggressive than the ones most RMC patients are dealing with- but my point is that letting hydroxy build up over the course of a few months is likely really helping with elevated NK cells. I still can't believe that I suffered with hives for years and now they're completely gone!

billy that's so frustrating, but people have been successful bd up to a week before ovulation. On the plus side does that mean it was probably just an annovulutary cycle and hopefully back to normal now? Also, what is a jelly cat fox?!

Toby Arthur was born today at 10.35 by emergency c-section weighing 8lb 11 1/2 oz.

Awww sunny how wonderful! Congratulations!! How are you both? Has it all sunk in yet?

snoopy and seeking yes I hope it's just anovulatary cycle. My acupuncturist says they are common. I think because my amh wasn't very good I'm worried SO has used up my eggs. I'm kinda stuck between trying to be more positive but also needing to prepare for the worst!
(The jelly cat fox is just a cuddly toy)

drttc glad hydroxy cleared your hives. How are you getting on? When do you have a scan next?

(Sorry if I've missed anyone, typing on my phone and hard to see comments st same time)

CONGRATS SUNNY!!! Wonderful news!! Hope you're enjoying mommy hood :) xxx

I'm well Billy! Saw Dr S on Saturday and he was really happy with my scan. No sign of any bleed and baby was great. He even encouraged us to take a video as the baby was doing aerobics in there! So wiggly! He said he believes this pregnancy... Trying not to get carried away but feeling hopeful. But then I read things off google and get knocked back down!

Billy is there any way DH's schedule can be changed?

Ahh drttc that's fantastic! It sounds so positive. And fantastic that the bleed has gone and dr s sounds very positive.
My dh has a walking holiday with friends that was booked ages ago. He said he could not go. But I don't know if I want to ask that of him as he deserves some fun. Hes already paid some money for it too. Will see when af comes and have a think.

congratulations sunny and welcome little Toby Arthur, such a lovely name! Hope the both of you are doing well.

Great news drttc, now step away from Google!

Thanks for all your best wishes, the nervousness and every is still with me as now vw got him, I want todo my best for him! We're both ok, I'm a bit sore from the c-section (very odd experience!) and Toby had To go overt to Special care baby unit last nights he is struggling with his blood sugars, but will hopefully be back today.

Awww Sunny! Maybe once you get home you'll feel more at ease? Hope baby makes a swift recovery so he can be back in your arms ASAP. If/when you feel up for it I'd be really interested in hearing about the c-section- know nothing about that procedure and am curious! Have you been able to get some sleep? You must be knackered Hun- rest up!!!

Billy- I see what you mean about letting DH have his down time. What about the other cycle when he's away? Even a little tweaking of schedules could help! Or maybe you can pay him a secret visit while he's gone Hehe

Congratulations Sunny, you must be on cloud 9! Sorry that you ended up having to have an emergency c-section, that must have been frightening. Glad little Toby Arthur is being looked after well, I hope he's back with you and your dh asap!

That's rotten timing with DH being away at the crucial time Billy
We could potentially have the same problem over the next few months - we're having to move out of hour house while building work is done and thanks to my mum stitching us up, he's having to move in with his business partner and the dog in Bristol, while I stay up here for work! So I'm gonna have to make a drive down if/when it's needed!!

Haha seeking you'll have to make booty calls!

Oh no seeking that's a pain! These situations just add more preasure to an already stressful situation eh! (Hey I live in Bristol you should give me a shout!)
drttc I think I'll be ov next cycle when dh is away . There's no way he can change it and it's too far for me to visit. Will depend when af comes.

Oh Sunny thats fantastic to hear he s here safe and sound ! I love the name. Its normal to still worry and honestly you never stop worrying, they are so precious and the love you feel for them so strong that you ll wear your heart on your sleeve for the rest of your life but you ve already done so amazing to get him here, he s a very lucky bubs to have a such a special mummy.

Drttc so pleased to hear you had a great scan with dr S and that everything is going so well.

Seeking and Billy sorry to hear of your timing issues. My dh usually has to go away for 1-2 nights every couple of weeks with work and without fail it would always seem to fall on ov time (i think this happened every SO month!). This usually necessitated a romantic 5am covering bases bd before he d go! At least now we re taking a bit more relaxed approach its not so bad but i totally know how frustrating it can be.

Trying - can t be long now. Hope you are doing ok.

Waves to everyone else.

Huge congrats sunny I hope u recover soon and that the little one is back in ur arms soon!

Drttc what wonderful news!! Mr s does think 10 weeks is a big milestone so congrats! :)))

Had my tnf retest yest results in on Thursday. Am struggling with a general negative mood about the next cycle. I feel like everyone has gone from - it will be ok to maybe it won't? And it's really affected me. My parents told me if it doesn't work maybe I should take an entire break from it all to fully recover as I've been a rollercoaster for 3 yrs now...but I just don't know wot to do if it fails again. And I think a mc from Argc will hit me like the biggest tonne of bricks ever.
Ive been thinking more and more about surrogacy too and I think the imminent move to London and quitting work etc has made me a little anxious and I'm not really myself right now. I need to try be positive as this really may nearly be the last go for us for a while at least. Not sure where my optimism has gone!

Seeking good luck for appt this week
Bully ur af will come! And sorry u will have to miss out a cycle :( it's so frustrating when life gets in the way!

Waves to others X

Trying - sorry to hear you are finding it hard. I think your feelings are completely normal, you ve been through so much already and its a big thing moving and quiting you job.

I guess just try and look at the very short term, one day at a time. If you start thinking 'what if it fails' etc you re bound to feel overwhelmed.

This CAN work for you, you ll be on full immunes before those eggs even think about being fertilised, your dh s sperm has improved (enough to even catch naturally), you know you can fall pregnant with ivf and you ll be monitored really closely so will have a tailor made protocol. Mr S has had sucess with ladies who have had 18 miscarriages with similar protocols so it can happen. You can do this Trying, i know you can !

Have you thought about having some fertility hypnotherapy ? I ve tried it and its very relaxing and is supposed to help with a positive mindset during ivf.

Anyway big hugs hun, this journey is shit and you ve done amazing to go through all you have so far xx

Hi hula, thanks for ur kind words! It's funny how u can be positive for someone but not urself!? I have a counselling session today and she's pretty good at helping me out so I hope she manages to get me my fight back! U r right, I just need to keep going. Some days I'm just a bit defeated and tired of it all. but if sunny rosa and hope had stopped they wouldn't have had their boys! So we al just have to keep going along I suppose....

on the good news is that I'm the lowest weight I've ever been in 4 years yay! I'm feeling good and I feel really healthy. My bmi will certainly be at 24 by time I start :) only a few more pounds to go!

How r u feeling hula?

Yay well done Trying that is great !

Hope you have a good session and i guess once you start the stims and scans then hopefully it ll distract you, are you down regging now ? If so that could make if difficult to feel positive too. Here s hoping your cytokines are playing ball and you get some good results tomorrow.

I m ok thanks. Af showed today which is always a bit of a downer but at least is was a 25 day cycle rather than 18 ! Been having some hypnotherapy sessions to try and ease my mind, whichever way things go and they do seem to help. We are slightly more 'trying' than just 'not preventing' (but alot less than before). However i do struggle not to think i m running out time....Anyway we are going skiing in a couple of weeks so looking forward to just forgetting about stuff and just enjoying that.