Immune /natural killer cell treatment when ttc or pregnant (aka the 18th pred thread!)

[Hula2]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

Sunny- amazing news... So happy for you! You'll feel utterly wiped out and overwhelmed from the c section and birth I'm sure .. But he's here! :))
Hi to everyone else... Everything crossed for you all... Really hope all continues to go well for those who are already lucky and Hula and Trying in particular I've been wishing, hoping and praying your turns are soon too.. They have to be! You're in great hands and getting the best of the best medically. I do think looking after your nutrition and mental health is also v important so sounds like you're both onto that too. I'm trying to switch some of my chocolate habit for healthier eating slowly but surely and can recommend welleco.com- the alkalising powder is actually nice in coconut water and the protein powder has cocoa in it ;) just not sure can keep buying when my salary drops to statutory pay!
Xxx

Yay Rosa, so good to hear from you !
How s it going and how is your little boy ? He must be a few months old. Hope you re enjoying every moment with him (altho hopefully there are not too many of those at 3am !).
If you haven t got it already then i can recommend the 'wonder weeks' app, it charts what ages they go thru leaps in physical and mental development and is really useful if they suddenly start waking or crying more to explain that it might be due to one of these leaps and what you can do to help.

Afm we ve stepped back a bit with our ttc efforts (so no pre bfp meds and more ntnp) but still hoping that maybe one day a good egg will pop out and hang on in there long enough for the meds to kick in. Will take a look at that alkalising powder, looks interesting.

Please keep popping in with your updates its lovely (and inspiring) to hear how you re getting on. x

Thanks Hula.. You inspired name too with your first and I think if I find the strength to go through it all again I'd do the same in terms of throwing drug treatment at it all after a BFP as wouldn't have the financial or emotional power ... Plus will be 40 this year:-/
I'm absolutely in love with my wee boy though and know every hour how lucky I am to have him.. Still frequently tear up just looking at him.. One more month and I may well have given up as IVF didn't look like it could help me.
Anyway I will always pop in from time to time as always think of you all and am so happy every time I read good news, and who knows I may one day be back for other reasons.. Too soon to say though know time isn't on my side!
Thanks for the app tip.. Off to download! Xxx

Name = me. My predictive text is still shocking! Sorry x

Hey rosa!!! So great to hear from u, am
Glad ur well and enjoying motherhood! Keep coming on and saying hello, I often think of u xxx

Hula glad ur feeling a bit more relaxed about ttc. I really hope that elusive egg pops out and meets ur dh sperm! There really is no rhyme and reason as to when and why it works sometimes and doesn't, but main thing is ur happy and enjoying life and remaining somewhat hopeful :)

Down Reg not yet-not had the green light still from Argc! But hoping to get it tmrw and then will begin down Reg early Feb .

If anyone is lurking there is a place in the northwest that does intralipids for 180 called pall mall medical. Wish I knew about this before!

sunny congratulations!

seekingmiricles how was your appointment with dr s? Did he give you any advice re super ovulation?

Morning Ladies,
Sorry you're having a bad time Trying, but hope you're counselling session helped you out. It's so tough and only natural to have sad days when it all seems a distant dream, but there are plenty of ladies on this thread who are proof that miracles happen. You're in the best hands Hun, just take things one day at a time. The future can seem a long and distant dream at times.
Rosa -lovely to hear from you. Hope you and your little one are doing well.
Hula glad you're feeling a little more relaxed. You never know what might happen. Have you thought about DHEA?
Tina - I have my appointment at 10am. So will report back this afternoon.

Also.... Wish there was somewhere cheaper down south for IL's! If anyone knows of anywhere in Berkshire/Surrey or Hampshire let me know

Hi there - can I join you? Or should I say re-join? (Was on this thread a while back)
My history is that I have previously been pregnant 4 times with x 3 miscarriages x 1 baby
I am now pregnant for the fifth time.
I went to Mr Shehata after Miscarriage number two and discovered borderline high natural killer cells and that I am a carrier of the MTHFR gene. I'm now under an NHS consultant and on Prednislone from BFP (25mg) and 40mg clexane, x1 aspirin and progesterone.

I just don't feel very pregnant (I am only 5w 3d) and I have an early scan next Monday. I'm so nervous I can't stop googling. Anyway hope you don't mind me joining you all xx

Welcome back tumtimes! Yes do rejoin us. We here to hand hold through the awful anxiety after u get ur bfp! Congrats on it though, I suppose it's hurdle no 1! Step away from Google, ur doing nothing everything u can and mr s will be taking good care of u.
Seeking good luck!

Thanks Trying really appreciate the welcome.

Yes welcome Tumtimes!

And good luck Seeking!

And hi Rosa!! So glad to hear you and your little one are doing well and you're so in love :) I second that you're an inspiration!

Waves to Hula, Trying, Snoopy, Billy, and anyone else who may be reading :)

Hi tumtimes, sorry for your previous losses, but congratulations on your current pregnancy. You're on all the right medications, under the right care. I was on all the meds with my last pregnancy and had no symptoms at all. The prednisone does a good job at masking symptoms. Just take it day by day and stay strong and positive.

Just out of my appointment - Had a scan to see if I'm about to ovulate (I'm cd13), 18mm follie and 9mm lining. Recommended hormone profile at the beginning of next cycle and a HyFosy to check tubes aren't blocked after the erpc in June. Also got SO drugs for next cycle. Feeling positive again.

Yay great seeking! Sounds like a good plan. Nice juicy lining too! Let's hope u catch this month ;)
Am patiently waiting for my tnf results!

Seeking that sounds perfect!! If you were on a SO cycle right now those results would be great... So very promising for when you're actually on SO! Good call on checking your tubes as you're obviously ovulating. Here's hoping it's just like the bad spell I had and SO rev's things up!

Thanks ladies, let's hope so. Even if this month isn't successful I feel we're on tech right path.
Annoyingly though I'm due on on a Friday when the clinic is closed. So days 1-3 of my next cycle are a no go for my hormone tests! Grrrr

tummimes1 welcome!

seekingmiracles sounds like a good visit at least you got so tables, keep us posted how it's progressing. I felt such a relief after my meeting with dr s, just knowing there is a plan and things that can be done reassure me.

Intralipids has not moved them :( stuck at 37. So for the last 4 months I've just gone from 33 to 37 and wasted time! Ugh!

Hi ladies

I'm so sorry for your losses tummimes. And you're very welcome to the group - the ladies here are fantastic support!

seeking your scan sounds great, very positive news!

Trying I'm so sorry your tnf results were disappointing! What do the clinic say? I hope you're OK? Is there a plan in place?

I had my nhs appointment today - still no period (day 47) but my bbt did go up a few days ago (sort of). I'm having my LH, FSH and estradiol to see if - in his words - Im menopausal! I'm to go back in a week for more bloods and then get the results a week or so after! Not sure what to think! I was hoping he'd do a scan to see if the lining has thickened. Kinda wonder if its a good idea to find out as if the results are bad our only option will be donor eggs and dh isn't into that idea! Also I had really high FSH and LH over 2 years ago (17.9 and 22), I got preg 2 months later first time, then again first time after that. And my FSH and LH went right down to around 7 and 10 the next few times it was tested. So not sure how accurate these tests are. Obviously my age is gona be a factor whatever the results but just dont want to be completely devastated by bad results if its not that reliable anyway. Then the stress will surely hinder any success.
DH results were much the same (low count) but this time they tested the mortality (I think) which was good, so he said this makes up for the low count! So some good news!

Love to all x

Sorry your appointment has got you questioning if you wan the test Billy. I'm very much of the mind that I want to know everything, even if it's bad. But it is daunting at times. I'm sure it's nothing to worry about if it came down. AMH is supposed to be more reliable.

Trying - i'm sorry it's not come down as you'd hoped. What did the clinic say? Are you still going to go ahead with the cycle in Feb? It's all so unfair

Sorry Trying - thats just crap and frustrating. But when mine went up after humira i do remember reading (and louise also said) that studies found even ladies who went up still had higher preg rates after humira than those that didn t have it so please don t lose hope. Also i m sure Rosa had higher levels when she got her bfp and there s still so many unknowns in this game it doesn t mean it can t still work. Big hugs.

Tummies - welcome congrats on your bfp and sorry for your losses, your in good hands and there s lots of sucess stories on treatment.

Seeking - glad you had a good visit with dr S and great you ve got a plan in place.

Billy - sorry it was a mixed appt. Nobody our age wants the M word mentioned and would seem a bit odd for it to just be that out of the blue when (if i remember right) you were preg only a few months ago. Could just be the SO meds and steriods have thrown everything out of whack. I can understand not wanting bad news esp if it may not be accurate. Have you thought of trying acupuncture to trying get things back on track ?

Waves to Drttc (must be 12 wks soon !), Snoopy, Tina, Sunny, Rosa and anyone i ve forgot.

Yeah I think I went 40 to 38... I had bad luck with most drugs in terms of side effects so who knows why it worked in the end .. All you can do is give it all a go and try stay sane in the process ... Stay positive, I know you'll get there xxx

So sorry trying and billy, I wish there was some magic spell that would make it better. billy I really don't think it could be the menopause.

Welcome tum and congratulations!

Eurgh another self indulgent post for me. Had 24 week appointment and everything seemed fine, heartbeat and movement and bump size and all that stuff. But since then she hasn't been kicking as hard. I was really worried yesterday and then as soon as I went to bed I counted twenty movements before I went to sleep. This morning she has been quiet again. I've been crying all morning and given myself a panic attack. I think if she doesn't make any big movements in the next couple of hours I will go to the hospital but what can they do?

I'm so tired all the time and DH has text me to say they have changed his fucking shift pattern again, so basically for the next week I will be sitting at home by myself wondering if she's still alive. I can't cope like this.

Trying I'm so so sorry tnf hasn't cooperated. But I'm on the same boat as the others and really don't think tnf (especially if your being treated) is the be all and end all. Rosa herself is a great example! I hope you feel better going in to your IVF cycle. You've worked so hard for this- you're an amazing woman and we hate seeing you feeling down!

Snoopy!!! Awww hun don't let yourself get so worked up- just go get checked to give you peace of mind. Everything is going to be find but you shouldn't stress yourself unecessarily. Do whatever you need to do to get reassurance ASAP! Do you have a doppler?