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Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

TTC with PCOS (Thread #3)

999 replies

RoseBud2015 · 02/09/2015 19:04

If you have been diagnosed with PCOS and would like a small group of very friendly ladies in the same position as you to talk to, then this is the thread for you!

You can find our first thread >>>>>>>> HERE

You can find our second thread >>>>>>>>> HERE

You can find the stats >>>>>HERE

Smile
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9
stealthbanana · 18/09/2015 01:35

Freddie it's a Cigna international plan based out of the U.S. My work heavily subsidises it - it only costs £660pa for both me and dh. It covers everything - acupuncture, all infertility treatment, massage - you name it! Don't need to get referrals, can just book straight in. It is a godsend.

Really looking forward to acupuncture, I've had dry needling at physio before so hopefully it should be good.

Keep on at them rosebud - you'll get in for an appointment in the end!

To those struggling w dtd - xxx

I'm not temp tracking as I get up at a diff time every morning and I can't be bothered Feel like maybe I should be doing some of this stuff. I stopped doing opks too - maybe I should start again?

bananafish81 · 18/09/2015 09:38

Hi Lucina. I'm temping, I'm under no illusions that it's a failsafe method but I've found it a very useful tool. I'm glad your GP is so thorough. For me it has been a useful tool to better understand my cycle. My consultant didn't recommend weekly progesterone bloods when I was on Clomid but as he is the head of reproductive medicine at Barts hospital, I trust his judgement as to what is required to give me the best treatment. This month hasn't been a monitored cycle as I start IVF shortly, so temping is purely for my own benefit. It allows me to confirm my myself if I did ovulate and I could tell it wasn't worth POAS because my temps were already on their way down. Saved me the heartache of seeing a BFN. There's no point temping next month as obv the Cyclogest will keep temps artificially high, but for me personally I find it a useful tool for understanding my own cycle. Your mileage may vary!

FeeFeeLaFew · 18/09/2015 09:47

Ah Stealth that doesn’t sound pleasant. Hope it didn’t last long. You’re right, I haven’t heard anything about a link to non-response to metformin and non-response to clomid, but the GP I saw yesterday seems to be pretty clued up so I am inclined to trust her. Then again I don’t want to give up on the thought that the clomid, if I get it, will work. Though bananafish’s cautions about CM make me a bit nervous. Oh and thanks stealth for the Flowers – it's a long road for us all! I am more than happy to have the dye test done before the prescribe anything (part of the reason I am so glad to have been able to bring my ACU appointment forward – no doubt there will be a bit of a wait involved for any/all of the tests they would like done/redone) but I just really want my tubes to be clear. Having just had the laparoscopy, I don’t really want to need another one. To state the obvious! Smile. Very impressed by your insurance policy. Hope you enjoy the acupuncture. As Freddie says, it can be very relaxing.
IsIt maybe you’ll be able to take Clomid for longer if only one ovary is responding. Hope you can relax - have a glass of Wine (alcohol-free if you prefer). Sounds like your DH is super-supportive and looking out for you, which is great. See you around, when you’re up to it Smile
Mistletoe ouch, poor you! Sorry AF got you.
Rosebud that’s great – a couple of weeks will rush past in no time! Keep phoning. Yes I’ll be glad to be on the waiting list and no doubt kicking myself for not starting this process many moons ago.
Pontygirl and Freddie sorry to hear how the hormones have been making you feel. Flowers
Lucina is it an NHS GP that is giving you the weekly progesterone checks and prescribing clomid? What other tests will they do?

bananafish81 · 18/09/2015 16:12

Feefee don't worry about the CM - it's fairly infrequent, and can be overcome by the use of pre Seed. It thinned my lining and dried me up but my oestrogen was ridiculously low anyway what with my prematurely aging ovaries so I really wouldn't go on me as a guide. Given that my fertility has declined 93% between the ages of 28 and 33, I'm really not the best advertisement for anything fertility related, given my body seems to specialise in throwing curve balls. Wishing you all the luck in the world xx

stealthbanana · 18/09/2015 20:59

Acupuncture was nice although the acupuncturist was a bit judgey - when I told her I was on the pill from 1999-2002 and then 2002-2015 she said "didn't you ever think about the impact of being on the pill for so long?" Hmm erm, yes - (1) my gynae always told me I SHOULD stay on it to lower ovarian cancer risk and (2) there is no link between being on the pill and subsequent failure to get pregnant. She also told me it wasn't good that my LH:FSH ratio was 1:1 and LH should be a lot LOWER than FSH - wtf?! Anyway, she stuck some needles in me and left me there for 20 mins or so (easiest job ever!). She said she felt confident we could get my ovaries kick started - that'd be nice!

Then went straight to my gynae appt. she extended my metformin and we talked about next steps if ov didn't happen/no improvement in cycles regulating in the next couple of months. She is of the opinion we should go straight to a fertility clinic and start clomid if my day 21 bloods come back negative. She said it's early days but she really isn't sure metformin will do anything for me, partic as my bloods are normal (bar v high AMH) and I'm slim. That was a bit sobering - but she's right.

PontyGirl · 18/09/2015 21:26

stealth the acupuncture sounds really good. So many TTCers seem to rate it. I would like to give it a go starting next cycle if nothing comes of this cycle. The lady seems a bit strange though - being on the pill doesnt do anything to harm your fertility!

stealthbanana · 18/09/2015 22:58

Yeah it was nice - quite different from the acupuncture I was having before (much thinner needles for one!) Slightly odd lady though!

MrsC2013 · 18/09/2015 23:06

Dollface- I know there is nothing I can say, I just wanted to let you know I'm thinking of you as we all are Flowers

Luciana- I'm temping for the first time this month to try to confirm ovulation as that seems to be the major issue for me (that I don't). It is useful but a bit of a pain setting the alarm even on days off lol! I haven't got to the stage of taking Clomid yet as I'm losing weight first, and then should be starting in November hopefully. It sounds like a good plan that they have you on, as my previous bloods have shown low progesterone so it makes sense to check and get this prescribed alongside Clomid for the best chance of success.

We really have had a lot of bad news this week haven't we?! I'm adding to it unfortunately. My temps lowered so FF changed my ov date (still within bd time) and I started getting pinkish discharge during the night last night. I tried not to, but got my hopes up as everything seemed to fit with it being Implantation bleeding (11dpo, temp drop then rise etc). It has got a little heavier today though, although with only slight cramping not my usual doubled up in pain cramps on the first day. Took a test for the first time in a long time this morning and it was the usual BFN. Just cause I never bleed when it's not AF I allowed myself to think this might be it, and spent a while last night googling all about implantation bleeding LOL! I'm sure you've read the stories about people saying they bled like a period so didn't know they were actually pregnant until later on? I've got a tiny bit of hope still even though I know it probably is just early AF. On the plus side though, at least my cycle is getting shorter if it is just normal AF :)

Sorry for the epic post! Ha x

MrsC2013 · 18/09/2015 23:09

Sorry I spelt your name wrong Lucina! Blush

bananafish81 · 19/09/2015 08:31

I'm also having acupuncture with a practice that specialises in acupuncture for fertility - like stealth said, it feels very different to the 'medical' acupuncture (trigger point dry needling) I've had once or twice before. There seems to be some compelling evidence for acupuncture during IVF, as it seems the endorphins may help follicular growth and increased blood flow to the uterus may help to build up the lining. It seems to be very much encouraged on the day of embryo transfer (if we get that far) - I'm very lucky that the lady I see is about 5 mins from my house!

Feefee the timer tip is a great idea, thanks! I actually really liked hypnotherapy - at first I was lying there feeling fidgety, thinking 'well this is bullshit, it's not going to work for me', but then I just chilled out and let it all wash over me. I found the visualisation stuff really helpful - it sounds like a load of massive woowoo, but frankly I'm grateful for anything and everything that feels like it might be helping...

Dollface136 · 19/09/2015 12:37

Hi ladies,

Thank you so much for all your kind messages, support, stories of how things can get better etc and you will probably never know how much it helped in such a very dark time.

My luck got a little worse (what? I hear you cry) and the surgeon who did my procedure tore a hole in my uterus so I had to have an emergency laparoscopy as well. Fortunately it will heal and wont affect future pregnancy but it does mean I have a longer road to recovery ahead. Hopefully that is the worst of my luck done with!

I am still very fragile and will be for a while but my DH and I have decided we will try again as soon as physically possible. We now know at the very least we can conceive with PCOS and I can carry a baby to at least 12 weeks, so all we need to pray for is the same to happen again with a healthy embryo.

I'll be taking a week or two to be kind to myself and then will come back to catch up on how you are all doing and work towards trying this whole thing again. We've been told there was nothing we could have done to prevent it so that is some comfort at least.

Hope better luck is shining on you all and thank you again for all your kindness. You guys rock xx

PontyGirl · 20/09/2015 12:08

Oh dollface Sad when it rains, it really does pour. I am inspired by your strength, it really comes through in your posts. I wish you and your DH all the best and can't wait to see you back on here when you're ready.

I feel like utter shit today, I stupidly took a test and obviously BFN because I doubt my chart is right - if my temps stay up the way they are, it looks like I will actually be only 3dpo instead of 11dpo, and we will have missed the fucking fertile window. So sick of the amount of effort and energy it takes. I'll be fine tomorrow I'm sure, but today I'm just feeling fucking irritated. I am so sure weight is what makes the difference for me, and yet I've taken my eye off the ball and stalled with it and I find myself questioning my efforts to get pregnant. The silver lining (and I use that loosely) is that I got the bloods done, so tomorrow I should know for sure what I'm guessing is true - that I haven't ovulated. I can't wait to get referred, it's hard doing this without any guidance.

Sorry for the ramble, I know it could be worse. Hope everyone is okay Flowers

newhere1234 · 20/09/2015 12:37

Just wanted to stop by quickly to say I am truly so sorry *dollface

Your courage at this time is truly amazing and inspiring.
It seems like there is a lot of disappointing news around for everyone at the moment. Not good. Fingers crossed we'll have some brighter news from someone at some point soon! Positive wishes to us all :) xxx

RoseBud2015 · 20/09/2015 13:14

Dollface Flowers Flowers Flowers So sorry to hear about the emergency laparoscopy. I hope you are now able to just rest up and take some time to recover- have you taken some time off work? I hope so x

MrsC Sorry for the BFN Did the bleeding turn into full AF in the end?

Ponty Sorry for your BFN too! I completely get the frustration and anger- FF can mess with your mind sometimes! If you feel like a second opinion, you could post a link to your chart for us to have a peek at?! I hope you get your referral soon- the waiting around is the hardest Flowers

I've had my CD3 bloods done (awaiting results) and have my AMH blood test on Tues, then I can finally fill in my IVF forms! Woop!

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FeeFeeLaFew · 20/09/2015 14:01

A giant bunch of beautiful Flowers for every poster on this thread - I think we all need it.
Dollface, yeesh I am so sorry to hear you had another trial to go through! I hope you aren't too uncomfortable after the lap. Do make sure you take time off to recover physically and mentally from everything you have been going through.
Bananafish, thanks for the reassurance about the CM. I have ordered the preseed. And I'm glad the timer tip might be helpful re destressing.
I think I need to start limiting the amount of time I allow myself to google/MN about fertility/infertility a day (though I won't have any time for it when I'm back at work, so maybe I'll carry on indulging). There's a thread on the Infertility board about 'the mind-numbing boredom of infertility' which is expressive and cathartic to read.
Oh and Banana, don't focus on the 93%. There's no way that can really be measured. Just focus on the positive stats for IVF especially given that you are a young IVFer!
Stealthbanana ugh who needs a judgey HCP when you (or your insurance company) are paying for the privilege and trying to use it for relaxation! Glad your gynae is thinking ahead. How high is your AMH, if you don't mind my asking?
Ponty, don't be so hard on yourself. Or rather, if you are then I have to be too as weight is probably the key for me too. Only one way to find out, of course. How long til you get referred? Just a matter of waiting for the blood test results?
Rosebud are those tests being done by your GP while you wait to see your consultant again? Any luck with the appointment being brought forward yet?
A question for all - I've got my first fertility clinic appointment the week after next. Should DH come with me? As his SA was fine, I'm not sure there's not much to be gained by him coming (other than the emotional support!) and it's awkward timing for him with work. But if it means they can't get the ball rolling then he will reprioritise!

stealthbanana · 20/09/2015 20:02

FeeFee I would have your dh with you, just because I think they will explain your options and its best to have him hear it from a Dr rather than you!

My AMH was 65pmol/L - well above "normal" range.

Pebbles086 · 20/09/2015 20:09

Dollface cannot believe that he happened to you! Glad it will not cause any lasting damage. Take care and rest up! Looking forward to hear from you when everything has settled down. Lots of love xx
ponty that is really shitty. Hope the bloods say otherwise. Flowers
feefee I can totally agree with you on the amount of time spent researching fertilty! My eyes hurt sometime from all the things I read and look up online. I know I have an unhealthy habit of googling things Sad
rosebud another step closer to your IVF, really hope things go smoothly up to it and your happy ending is in sightxxx
I plan to contact the hospital tomorrow and chase up my appt. With the fertilty Dr. Sooner I get the ball rolling the better.
I always have to find a quite corner to make these phones calls, doesn't help that I work in a hospital full of nosey colleagues! Hmm
Oh and last week in work I accidently shared my private calendar with the whole office! I must have clicked on something! Luckily only one person noticed and I don't actually put a comment on what my appts. Have been for!!! So stupid! Blush
Here's to a better week for all of us! Flowers

PontyGirl · 20/09/2015 22:23

You are all a lovely bunch Flowers thank you for letting me rant. I'm afraid DH can only take so much!

I am also addicted to googling PCOS and infertility stories and spend waaay too much time reading such threads on here. I've been in such a mood today because (and this is awful of me) I found out DH's exP is expecting again, almost immediately (no joke) after having her first. And I KNOW I'm being irrational, but part of me feels totally inadequate - a stupid part of my conscious asks "would DH prefer someone whose body worked properly and could just conceive at the drop of trou?!" I know it's so ridiculous but that's one of the many roads this whole journey seems to take you down: completely batshit crazy thoughts. I am actually smiling at myself now, it's so ridiculous

mistletoeprickles · 21/09/2015 07:54

Morning all
Hope everyone one is ok?
So CD5 here and on our last round of clomid.
I currently have very mixed feelings about it. The consultant has assured me it is not the end of the road which is obviously good but I also want the clomid to work.
The 1st of October marks a year of trying and I think that'll be hard.
So this month we're going to give it everything we've got. DP is taking zinc and vitamin c, I'm already on folic acid and we've ordered some preseed. We've also planned a date night in my fertile window which should hopefully influence the mood rather than feeling we have dtd.
I'm welcome to anymore suggestions?

Will catch up with everyone later

PontyGirl · 21/09/2015 10:51

mistletoe really hope this is your cycle - you are doing everything you can. A date night sounds like a great idea too, a good way to keep things fresh and just get some good quality time with each other. Fingers tightly crossed for you.

My news this morning is that I didn't ovulate and my GP wants me to wait until next cycle to do yet another progesterone test until she'll even consider referring me. Annoyed as hell, but getting over myself and focusing on losing this damn stone!

bananafish81 · 21/09/2015 13:41

Dollface god it never rains but it pours. Thinking of you and DH and hope you're physically on the mend soon, and that emotionally you're being kind to yourself. We're all thinking of you.

Rosebud so glad things are moving forwards! Keeping everything crossed for you

Ponty Oh lovely, I can only imagine how frustrated you must be feeling. Rant and rave here as much as you like - we're all here for you

Rosebud things are really moving forwards - excited for you. Great that you've got the bloods done and the wheels are being set in motion for a positive plan.

Mistletoe date night sounds like a great idea. It's easy to forget why we're ttc in the first place - we want to have a family, but the foundation of that family is our relationship with our partners. Making time for the two of you is so important - I need to take my own advice and spend less time on infertility forums and websites and endlessly googling premature ovarian aging and various protocols and driving myself up the wall and spend more time talking to DH instead of staring endlessly into the laptop or phone.

I like your timer idea Feefee for general 'infertility madness' time.

I really do feel so much like a failure as a woman - how the hell am I in peri menopause at 33?! You're right that the 93% decline is just a measure of my AMH decline so it's a decline in my ovarian reserve, but age is the biggest determinant of IVF success, and the consultant says it's quality not quantity that matters. DH is brilliant at reminding me that 'it only takes one!'. I'm on a forum on Fertility Friends for women with high FSH / low AMH, where both mantras are very evidently true. Feels so dangerous to let myself see the glass as half full rather than half empty, as it feels like there's further to fall. Except that no matter how much emotional armour you put up, even if you tell yourself to expect the worst (but hope for the best) - it's not going to make a negative outcome any less disappointing!!

So, AF turned up today, so should be going in tomorrow for my baseline scan & injection teach, so I can start stimming tomorrow evening.

Here we go....!

bananafish81 · 21/09/2015 14:45

Oh and FeeFee I would agree that would def be good for DH to attend the first appointment - not only for emotional support, but for a couple of other reasons. We've found that DH is basically ignored throughout the whole process - he's essentially the sperm donor, and almost an afterthought. It's been good for him to attend major appointments so it feels like it's something we're doing together. And actually big decisions are something we SHOULD make together, and it means he was able to ask his own questions rather than having to be translated through me.

It's also very helpful to have someone else in the room to be able to listen to what the Dr is saying - as we're so emotionally invested in it, and having to process a lot of what's been said, that the appts can sort of whizz by in a bit of a blur. We've found it really helpful for DH to be able to remind me of what the Dr said about X or Y - friends said much the same, and advised DH to attend as many of the big appointments as he could.

DH isn't coming to any of my tracking scans, but he did come for the big 'here's your results and here's what I recommend as the next step' appointments, and I'm very glad he did. xx

PontyGirl · 21/09/2015 15:23

bananafish I can't imagine how you're feeling right now - it's almost like excitement should be the default emotion but I can completely understand your cautiousness. Wishing you all the best for it all Flowers keep on keeping on!

FeeFeeLaFew · 22/09/2015 16:40

To both lovely Bananas, thanks for the advice on bringing DH. I was able to bring my appointment forward again (!) to this morning and it meant he couldn’t come as it was far too late notice. As well as not enabling him DH to get as directly involved, I’ve already got that thing of ‘what exactly did the doc say about xyz’ so it would have been good to have him there. Couldn’t be helped though. (Writing an update via this post will serve as a record for me of what I do still remember!)

Oh and thanks Stealth re AMH. Mine was 117 i.e. pretty darn high – the doc today said ‘ah yes, typical PCOS’.

And Bananafish, do think of the glass as half full not half empty! That’s a world away from thinking the glass is overflowing – it’s just being quietly positive. Which can only be a good thing. I hope the injection lesson today goes/has gone well and that you don’t get any side effects from the stimming.

Pebbles, I'm sure noone saw the appointments. Good reminder to be careful though - everyone’s got access to my calendar. I always try to mark the hospital ones as private but it's easy to forget.

Ponty, I’m glad you managed to realise you were being ridiculous by the end of your post Smile. Sometimes we just need to write something down to be able to snap out of it, I reckon. Anyway I hope DH is being suitably supportive to help stop you from thinking such thoughts! Sorry that you didn’t ovulate. How long til the progesterone test?

Mistletoe, fx for this round of clomid. Date night sounds like a great idea.

I had my fertility clinic appointment today. Doc said I need an HSG and then, if it’s clear, I can go on clomid (he’s given me the prescription already). If tubes are blocked or clomid doesn’t get me anywhere, then straight to IVF. He said there was no “IVF waiting list” and certainly no 18-month wait, and wants me to tell my GP she had the wrong info on that. The HSG waiting list, OTOH, was super-long, so I decided to pay for it at the hospital privately, which means I can have it done on Monday morning. (Oh how I wish the dye test had worked during the lap!). In addition, the hospital charges for follicle-tracking on clomid even as an NHS patient. (Though if 50g works and no issues in the first cycle, but no BFP, I won’t have further scans in subsequent cycles). So these next steps are going to be rather expensive, but obviously worth it if they get us closer to a BFP.

Oh and interestingly (weirdly?) the doctor has given me a prescription for the contraceptive pill to induce a bleed for clomid, rather than norehisterone/ provera. Has anyone else been given the same?

I am feeling semi-excited that I might be taking Clomid within a few weeks from now – s*’s finally getting real!

And for those interested in metformin- the doctor today has said that 2g was a high dose and as it obviously isn’t working for me, I should reduce it to 1g, and then (I prompted him on this) stay on it for first trimester if and when I finally get pregnant, though there is still a debate on this.

I also asked him about soy isoflavones, agnus castus and inositol and he basically said that as I pretty clearly have severe PCOS, they won't do anything for me. So I can save a few pennies there, I guess . But he didn't pass on any general wisdom about their use for those whose symptoms are less severe.

RoseBud2015 · 22/09/2015 18:11

Fee Glad your appointment was productive- it's very annoying that you need to do the HSG privately to get it done quickly but at least then you can get on with the clomid! Sometimes the cost outweighs the agony of waiting around- I completely get that! That is odd about the pill instead of Provera. I haven't heard of a consultant doing that before apart from in the run up to IVF!
My bloods are being done by my UK NHS fertility clinic but I am pushing for them because my private Czech clinic need them (I'm not telling the UK clinic that though).

Pebbles Oh no! Sharing calendars/private emails/private texts seems to be a specialty of mine! At least you managed to limit the affects!!! lol

Mistletoe I really am keeping my fingers tightly crossed for you! I have just gone past the 'TTC for over a year' mark so know exactly how you feel..... I would suggest a couple of date nights in the fertile window if you can do so without putting too much pressure on it? How about you organise one for one night and your DH organises one for a couple of nights later? DH and I have weekly date nights- we love and value the quality time together so much! I thoroughly recommend them Smile

Ponty Sorry to hear you didn't ov Flowers I can understand them wanting to repeat the test on the next cycle but it does make things really drag, doesn't it?!

I got my hormone blood tests back and they have all come back within normal ranges, which is fab! The only one I haven't got back yet is the AMH one but it takes 2-3 weeks to receive. The nurse also said that I can't get the results over the phone in 2-3 weeks and I have to have an appointment with the consultant to receive them...... the earliest appointment I've been able to get so far in January (although the receptionist is trying her best to get me one in the coming weeks). Has anyone had this happen to them with AMH results? Is there a way I can get around it? I don't want to wait for ages for this result because it will delay our IVF journey! Banana Fee Stealth anyone? Help!

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