TTC with PCOS (Thread #3)

[RoseBud2015]

If you have been diagnosed with PCOS and would like a small group of very friendly ladies in the same position as you to talk to, then this is the thread for you!

You can find our first thread >>>>>>>> HERE

You can find our second thread >>>>>>>>> HERE

You can find the stats >>>>>HERE

Feefee sorry to hear about your tube problem. I too have tubal issues but mine is a lot more severe than yours. I had an US pelvi scan that picked up I may have fluid in my tube. Doctor went straight to lap and dye no HSG. My tubes filled but no spill. So I have decided to have mine removed to give IVF the best chance. Wish I'd of had them removed at the lap and dye.
I am in no way saying you'll have the same outcome as me and hope I haven't worried you, just wanted you to know your not alone when it comes to this sort of issue. Hope you get everything sorted soon.
I am sure you've read that tubes can clear (yours maybe fine anyway) after a HSG anyway. xxx
banana you must be counting each day on your IVF journey hats off to you for staying so strong. I cannot ever imagine injecting myself or even getting as far as you. Your really giving me some hope for if I do get there. Xx

AFM I am super happy!! AF decided to show today!!! After 9 months, I am still in total shock. Took all my strength not to tell the guy I sit next to in the office that I got my period!!
I am convinced it's down to the inositol, cutting out caffeine? Or maybe the noresterine I took last month kick started my cycle back. Got there in the end. big thanks to this thread for all the suggestions on supplements and diet
I plan to take SI again and see if I can get bloods to check for OV I know I have my tubal issues but I'll feel so happy knowing my ovaries actually works in a way they should.
Hello to everyone else xx

Just a quick catch up

stealth wtf! Why?! You poor thing! Really hope you feel well soon

feefee don't give up hope on your tubes yet! But do keep bugging for an appointment!

Thanks for explaining Banana. It sounds promising so far then. Exciting to think how close you may be!

That thing about only 1 in 3 eggs being of the necessary quality does sound familiar Rosebud. I just keep thinking I only need to ov and then that'll be it, but I suspect there is more to it for me that hasn't yet been discovered. Even though I know biologically some eggs don't take for a reason, I still look into it more than perhaps I would because of my situation. I've been looking through the post by Banana on IVF as if I'm going to do it, which is silly as I've no idea if I'll need it yet but I can't help thinking of what happens in the future if I still haven't become pregnant. I'm one of those overthinkers (about everything, but esp something as important as this!) but I should try not to, and just to take each step as it comes. That's easier said than done though.

Sending hugs to Feefee and Stealth- it sounds like you've both been through it in different ways. Hopefully your tubes will be ok Fee and if not, like Banana said, IVF is still an option. Hope you feel better soon Stealth.

Congrats on your AF Pebbles! That's not something I say often I know (or think) what SI is, Soy Isoflavones right? I'm not sure what noresterine is though? Pleased it worked for you though. I know what you mean about being reassured that ovaries are doing their job.

The doctors just called me - I did ovulate so now I'm on 8dpo and dangeroudly daydreaming of bfps, though I need to stop.

mrsC love that we both rubbed that picture! i'll try anything!! desperate

Congrats on your ov! Can't blame you for dreaming of that BFP, we'd all be doing the same. How soon will you be testing?

I recognised you on there straightaway, I'll clearly try anything too! Can't hurt though and who knows...

ponty yay go you... don't blame you for dreaming! Lots of exciting news to catch up on here.

I am currently 11 DPO and just had a BFN will keep testing but its a blow. I had a good feeling about this cycle so disappointed....

mrsC I'll be rubbing it every cycle now!

freddiesmother 11dpo is still early says the person who tested at 8dpo so you're not out yet! It was 14dpo before i got bfp with my DD.

Stealthbanana, euch - sorry for bringing back memories of a bad night! I'm not really sure where my numerous vials of dye went (other than down a vein at the end)! And oh my gosh, Lyme disease - you poor thing. Have you had any symptoms? Three weeks isn't too long at least.

Thanks Bananafish - somehow I don't think anyone will be telling me my tubes are tip top, but I'm interested to know what the proper report from the HSG will say. Sadly no earlier appointments with the consultant available just yet, but I'll be trying regularly . Fantastic news about the developing follicles. Are you booked in for the scan on Friday now? So close to being PUPO!

Pebbles, sorry to hear that. Great that you've got a plan ahead. I've had a couple of ultrasound scans and an MRI and noone has mentioned anything about potential fluid in the tubes. So it's a bit of a mystery as to what's been going on in the tests. When are you having the op done? And huge congratulations to you on the AF! I know exactly how you feel as mine is 14 months late and I will be soo happy when it arrives.

Ponty, congratulations on ovulation!

Rosebud - you are so organised in keeping the stats sheet up to date (I saw my clomid go on and then go off ). Very impressive!

Thanks for all the support here ladies. I have told a couple of people in RL but there is a limit to how much of the ins and outs of TTC (especially if they are either not in that place, or are happily upduffed etc) I want to test their patience with).

I have my post-op consultation with the surgeon tomorrow. Hopefully I can use it to ask about tubes etc (or rather, whether it is possible for an HSG and lap and dye both to be wrong!?) while I await my ACU appointment. And ask if there is anything I can do to start sorting out NHS funding (sadly one cycle only) already.

Right, I'm off to go rub that picture that Ponty and MrsC mentioned....

Sending lots of positive wishes everyone's way.

Fee- no probs, it's a distant memory now! Fx for your consultant appt. even if bad news, it's better to know than not know.

I've had a rash on my ankle for ages - almost a year. Just didn't bother going to the doctor because it didn't hurt or itch. Sigh. I've started to get really tired though and eventually DH told me I should go to get the rash checked out. Voila! Just another obstacle.

Have our first appointment at ARGC confirmed for end of November - am glad we got in now! Hopefully we won't need to use it but am pretty sure we will. Cd22 and still no ov symptoms or +ve opks. Boo.

We are so close to referral now - had GP appt to confirm what receptionist told me about day 21 (43 actually!) test and now DH goes for his SA and then after the results come back we are to be referred. Waiting list is 4-6 weeks, which I thought was quite good. Is it?

Thank you Banana I have now ordered my CoQ10 ubiquinol from Amazon and the book you recommended! I am going to get Zita West's book too when I find a cheaper copy of it on ebay. What would I do without you? Amaing that your follicles are growing and that now have some others to potentially add to the mix- things are going nicely for you so far! Good luck for your scan tomorrow!

Fee So sorry to hear about your HSG result- keep pestering those receptionists until they give you an earlier follow-up appointment It's the only way! And hahaha about the scans sheet! You call it organised, I call it anal! I swear I have a problem lol How did your appointment go today?

Stealth- Hello lovely! Absolutely no harm in getting yourself on that IVF waiting list sooner rather than later! In the meantime hopefully the fertility clinic will leap into action for you and you will have clomid soon! I am so sorry to hear about the Lyme disease and the long course of anti biotics.... hwy does it always feel like 3 steps forward and 2 steps back?! It is so frustrating! x

Pebbles Well hello there! WOOOOOOOOOPPPPPPPPP!!!! For AF! That is absolutely amazing news! I bet your body is in shock lol!

And more good news....Ponty Woop for ov! How is your temp chart looking?! P.s. I have been rubbing the picture furiously too- so glad I'm not the only weirdo one! And you MrsC- what are we like!!!?

Freddie Don't give up yet! Give it another couple of days... how are you feeling in yourself? x

Fee Stats sheet not scan! Got scans on the brain!

AFM- I've just got back from another appointment with my consultant! She has agreed to prescribe me 2 months of Femara to try instead of clomid! Woop!

I had to also get some of our previous results back from her that Reprofit have asked for. She agreed that having to wait for my AMH result is ridiculous so she has promised to phone me with it as soon as it comes in! Double woop!

A very productive appointment!

Then when she handed me DHs sperm analysis result (which Reprofit needs) she said to me that if it were her, looking at his results and how severe my PCOS is, she wouldn't be wasting time with the Femara and would be moving straight on to IVF!

You'd think I would be upset by that comment but I actually feel relief because it's stopped me from being in limbo.

So now I'm thinking forget the Femara and just proceed with Reprofit- WWYD????

rosebud woah - a very productive appointment! Wrt the femara v IVF - I think I would be tempted towards IVF. BUT your DP's SA may not be great now, but it can drastically improve, depending on the problem. I guess it all comes down to how you're feeling. If you're feeling that IVF is the way forward for you, then do it

Oh stealth lucky your DH suggested going the GP. Hope the antibiotics do there job sharpest so you can get back on track.
Ponty nearly there with the appt. Hope you get a cancelation and all goes well with the tests before hand. How does your DH feel about doing a SA, some men find this short of stuff very awkward!
Fee it's really good that throughout your scans fluid in the tubes hasn't been mentioned. Surely it would have been picked up. Your tubes may just not have responded under the circumstances. Hope the consultant can put your mind at ease x
Rosebud I am really not surprised you managed to get the Femera and AMH results will be given. There was no-way you was letting them get away with that lol hope what she said hasn't confused you too much. How did your DH take the news? Are you leaning more towards IVF straight away of Femera first? At least you have been armed with all the info to help make a decision.

AFM we had our appt. at the fertilty clinic today. Was greeted by a lovely receptionist who was at least 8 months pregnant and there was a lady in the waiting room with a screaming new born?! Felt like I was in a bad dream!
When we finally got called in, we basically started the IVF route. Had our bloods done, BMI is ok and DH already had his SA that is normal. I had a TV scan and it seems my ovaries are not poly cystic? she said there is 3 small follies on one and I could ov given this is my first natural period. The nurse suggested I try a CB OV test just to see. Said its worth seeing if I can OV on my own, however my tubes do need removing or clipping. Said once I've had the surgery there is no waiting list and I would be eligible for 2/3 funded cycles. So I could start as soon as I've healed!
Seeing the IVF consultant end of this month, think it maybe to discuss funding application?
I came out the appt. In a total fizz, all moving along very quickly. Just have to hope bloods etc come back ok and my surgery goes smoothly. Actually felt optimistic for a change and hubby seemed so happy. Don't want to get my hope up though far too early days for that!
Sorry for the epic post and it being a bit self centered.
Have a nice weekend ladies, it's round the corner!

Wow pebbles, it's all go for you now! How exciting! Are you going to do some ov tests?

DH is really relaxed about doing the SA, he sees it as a means to an end. He did one first time around and said the most challenging part was the logistics of getting it to the hospital within an hour!

ponty that's great he is relaxed DPs felt like a right ordeal!

rose it's a tough one but I think I would go for ivf if that's what she reccomended. How long is the wait to get the ball rolling with the clinic? Could you do one cycle while you wait?

I was feeling quietly optimistic which is why I was even more disappointed. Been feeling v hot and sore boobs. Another bfn today and I am 13 dpo so it's looking like game over. Will test again tomorrow but feel like I am setting myself up for further heartache!

I have two rounds of clomid left ..... It's so annoying it appears to be working perfectly but just no bfp. Got to go to the Hosp today to pick up my next lot in case I need to start on the weekend.

It's my hen do next weekend and going to be off my face on clomid!!!!

freddiesmother I feel you - a bfn for me this morning at 10dpo. It's not over until AF but it's so discouraging isn't it? But - that is really, really good that you've had such a good reaction to the clomid! Granted no BFP yet but that shows your body can do its thing with a little help.

I got a bloody evap line, I hate internet cheapies! Evil things

Hi
I've been gone a bit too long to check in with everyone but I hope you're all ok? Seems like a lot of treading water and waiting for updates / appointments / results at the mo

I've been making a concentrated effort to put my focus elsewhere and it's been working. I am currently cd 11. Me and DH decided to try a lower dose of clomid (100mg) this time, as it worked before for 1 cycle. We're guessing I have 1 ovary that isn't playing ball but if I follow my usual pattern, I will hopefully ov this cycle. If tht happens then I'll stay on the reduced dose and give myself an extra cycle with the extra tablets.
No real news apart from that - I've been working like a demon and DH has been planning lots of treats for us to keep us busy. It's been great. Sad as it sounds we did about 10 days with no sex at the end of last cycle / beginning of this one and it was so nice. We cuddled and held hands and snuggled up together with no pressure and it's just restored the intimacy for us.

Sorry for such a rubbish update but I wanted to say hi, I'm still here and wishing the best for you all!

Freddie and ponty will keep fx for you both! It might still happen!

Rosebud so pleased you had a productive appointment. Going straight to IVF at least means you can DO something! One step closer lady.

Isit- sounds like a nice break. I know what you mean re the DTDing - my DH has got a little bit too, erm, goal focused being the super competitive type that he is once he realised there was only a limited window that I could even hypothetically get pregnant in, and I am exhausted. Cuddling sounds so nice

Rosebud So so pleased for you for getting to the bottom of everything. I can totally relate to the not being in limbo thing, we felt much the same, it felt like at least we knew where we stood. You have a plan, and a great DH, and lots of eggs and SCIENCE. And a load of TTC women cheering you on. Are you going to take Femara while you wait for the paperwork etc? Not that this will take long, so so so excited for you. You’re getting so so much closer to your BFP!

Also I LOVE a good spreadsheet so I’m with you all the way on the anally retentive organisational freak tendencies. I have an excel spreadsheet with my daily doses of meds, how many doses I have left, which side I did which drug on each night. I’m SUCH a knob

Pebbles Gosh, wow it’s all been going on. Your head must be in a whirlwind. I can relate somewhat, as I remember just being totally floored by having gone from PCOS to being in peri menopause and facing a completely different fertility issue than we thought I had. It is a lot to take in, but it sounds like you have a really great plan in place - fantastic that there’s no waiting list, and incredible to have 2/3 funded cycles. I’m so excited that you’ll be well on your way to BFP-ville very soon after your surgery

Mrc and ponty OK, I have to ask, what is this picture, as frankly I will rub anything (oo-er missus) for a bit of luck!!

Ponty so sorry about the BFN but thrilled that you ovulated - nice work ovaries!

Your DH and his SA made me giggle. We decided to have the option of doing something similar for collection day - as we don’t live far from the clinic, we thought it might be preferable to have the option of bringing the sample in from home. It’s not the most pressure-free of situations, to have to go into the w*nk booth and do your business knowing that your wife is a few doors away, anaesthetised in theatre having a massive needle stabbing through her vagina into her ovaries. No pressure! DH went to the clinic today to collect a sterile pot so if he wants to go for the BYO option he can. The clinic has a barcode & photo ID system for all labels, so the pot not only has both our names and DOBs, but also has both our photos on it!!

Freddie really hoping the next round of Clomid is the one. How exciting about your hen weekend - hope you have the most wonderful time

Isit That sounds like a really lovely plan for you and DH - not a rubbish update, just fab to hear from you and know you’re doing OK

AFM, it’s all confirmed, I trigger on Sat night, for EC on Monday morning. OMG.

Stealth, congrats on getting your appointment in the diary. November will be here before we know it

Oh and thanks for the inquiries re my consultant appointment (the consultant who did my cystectomy, that is!). He is pleased with how the cuts have been healing after the surgery, which is good. He confirmed that after two failed tube tests, IVF is the way to go but he was very positive about the likelihood of success. Which was nice to hear. And he said the tubes don’t need to come out as during the surgery there was no sign of fluid in them (so you were right, Pebbles ). So there’s a possibility the tubes might do what they need to in the future.

Oh feefee that's brilliant news! So glad your consultant has given you a straight forward answer and your tubes can stay put. Glad your healing well. I had a X scar on my tummy from lap and dye it's virtually vanished now.
isiti hello there! Your plan sounds good and you seemed some what more relaxed. You done the best thing having a lil break. GL this cycle
freddie sorry about the test! I didn't realise you was getting wed soon. Have a lovely hen do and don't let there be any mention of Babies! Get as drunk and merry as you can
bananafish EC on Monday whoop whoop. Hope it all goes well, your reall so close now. You really are giving me hope! Rest after it but keep us posted!
ponty we have to laugh at our poor DH having to drop samples off and within an hour. They must feel like 007 on a mission.
I am going to do OV test from next week. I begrudge spending so much money on the clear blue tests, but needs must.

Well AF is definitely on the way for me - cramping like hell! I have been expecting it though so I'm not feeling too down about it. Onto the next! Will also be investing in some OPKs for this coming cycle.

banana I did laugh at the thought of your faces on a sperm sample hilarious! As if!

DH is doing his SA on Monday. It must be awkward for them but it's nowhere near as invasive and awkward as some of the things we have to do, so my POV is suck it up mister! Get it done!

feefee that's fab sounds promising.

ponty sorry about AF. But it's great you won't have to wait long for your referral.

I thought you might be interested in this article it's about secondary infertility but the description of how Clomid made her feel is better than I could. I made DP read it www.telegraph.co.uk/women/womens-health/5088578/Secondary-infertility-One-is-not-enough.html

Still a negative test for me so just waiting for AF. Getting married three weeks today. I have to say this is overshadowing proceedings somewhat.