Immune /natural killer cell treatment when ttc or pregnant (aka the 17th pred thread!)

[Hula2]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

Hi billy congrats on the bfp but sorry about the spotting. As trying said it really could go either way which doesn't you much when you're worried.

trying I don't know how you manage it. Even after the three good scans I'm still wearing black underwear to help ease the paranoia

I carted myself off to the blood clinic at the hospital to get my thyroid checked on Tuesday. Apparently my GP surgery received the result yesterday but a GP won't look at it until Monday I said just tell me the figure because I know what it's supposed to be, 'oh no, I can't do that'. It would literally take a GP ten seconds to look at it and decide what my medication should be. Soooo angry

Thanks ladies. Not had anymore spotting yet. I think if it was brownish I wouldn't be so worried but it was very red. And Ive had loads of period symptoms and not many preg.

This is exactly what happened last time and then 7 week scan and nothing there! So I really don't want to go through it all (the intralipds/travelling/steroids etc) for nothing again!

I need to decide about the intralips too as it'll mean going to surrey next week so time off work (which I might not get and then what!!) and long journeys on the train etc. Its SO hard to get an appointment there! I find making decisions at this stage so difficult - prob because its a toss up of not wanting to tempt fate but needing to go ahead as if all is well.

I realize this must sound like Im really ungrateful about a bfp but the disappointment last time was too much to bare! don't think I can go through that again, and think that would be it for us ttc. So if its a chemical Id rather know asap so we can move on and not be too effected by it!! Its hard to think of this as a pregnancy atm!!

sorry Im waffling!!

I will do another test tomorrow and then beta on Monday.

Fingers crossed for you Trying. How far along are you? Have you had the intralipids yet? What meds are you on?

xx

I know wot u mean bully it's impossible to bear the constant up and down! But u can never know how u will feel one day to the next.....have u called Louise and asked her advice? U obv get preg easily and these threads are proof that if u keep going it can happen, but for some reason we can never believe that for ourselves

Snoopy I could ring Gp and tell her it's no acceptable for u to wait till Monday and the doctor on call will have to look it up and let u know. Things like that infuriate me

I'm only 4 plus 2 but feel like I should be a lots further each min is dragging. I'm on asprin clexane cyclogest and had intralipids yest. As I'm under Argc now it's a bit diff in that he's not given me pred yet as he thinks the intralipids and humira I had preconception is enough and my hcg was ok yest. I've not heard back from this mornings level yet and I'm going cuckoo! But I'm telling myself it's because it's ok ow they would ring me to add in the pred...yest they rang me at 11 as they wanted me to come in ASAP for the intralipids. Anyways.....

Sorry you're having such a worrying time with your bfp Billy. It's lively news but I'm sure you're bricking it. It's so hard to decide what to do, especially when you're spotting and not really believing it's going to turn out ok. But you need to try to think positive, if I were you I'd book the IL's, you don't want to get further down the line, everything be on and then have the worry that you didn't do it.... IYKWIM. Keeping everything crossed for you.

Trying how has today's bloods gone?? Hoping it's good news for you x

Why are GPs sooo annoying! It's so irritating. Do they know you're pregnant?? Surely you should be a priority!!! Stupid arses!

Oh yeah they know, they wrote it on the blood test form and I didn't realise, the phlebotomist went 'awww you're pregnant' and I thought oh god am I that fat?

billy could you maybe ask your GP to test your hcg levels so you know they're rising? That way you can book your intralipids pretty sharpish

Oh and the other thing I found out is the GP had known all along anyway because Dr S had sent a copy of every letter to them along the way, they just chose to ignore them

Thanks I know its hard to be positive!
Louise doesn't work today. Am I right in thinking they wont allow healthcare at home now?
Im really worried I wont get time off so scared to ask as if they say no what do I do!!! Its not like you can explain eh!!

Let us know how your bloods go Trying. Fingers crossed!! :)

Billy I think seeking plan is a goodie just book it provisionally take all the meds and then see what happens on the day. Don't worry about work this is more imp. They don't need to know the exact reason u can't come in, just say u need some
Medical tx. Fingers crossed for u.

Thanks for asking I'll let u know once I know myself! Still waiting but spent the whole day shopping :)))

They are 101. She said they were "fine", I think they are just ok...he's got me on 10mg pred now and increased my cyclogest to three times a day. No more bloods till Monday!!!!! Agh!? I think it's prob because there's not much more they can do even if it all goes tits up!

Hey Trying - that s good, its doubled in 48hrs so try not to worry (i know easier said than done). You re on everything so just try and relax and send positive vibes to ur little bean, we ll all be sending cyber ones !

Thanks hula. It's actually 43 hours (worked out to the hour :). Yep dh has arrived and his job is to give me hugs and try keep me sane!!! X

That sounds very positive Trying!! I hope you can relax a bit over the weekend xx

Ive booked my intap! :I

I'm glad your levels are looking good trying! I hope you manage to distract yourself this weekend x

Thanks girls

Good luck billy, keep us posted hope the test is darker tmrw X

That's good news Trying, enjoy your weekend with dh. Try not to worry. You are doing EVERYTHING you possibly can. Hang tight little bean!

Glad you've booked your ILs Tea. Like Trying said - don't worry about work. You could tell them, or at least your line manager. I know it's so early but I told mine all my history and they've been fantastic. Allowing me time for appointments when ever I've needed. It might make the whole process easier and less stressful. Just a thought.

I've wholeheartedly decided that I will no longer hide my situation. I'm very open about it. If people ask about why I've not had kids yet, I tell the truth. I have nothing to hide. None of us do. It also stops them continually asking questions!!

Great attitude seeking, I wish I were that brave. We need more people like u and Lisa who made the documentary to educate people and make it less taboo. And ur right why is it something we feel embarrassed to share?! I know for me at work it's never a positive thing with a girl gets preggers as they think shitt she's going on Mat leave-and snide comments get made. So very rude.
Am shattered, might go to sleep. So glad here
Everyone have relaxed good weekends xxx and drttcc enjoy ur wine!!!

Aggreed it'd be good to be able to talk openly! I find it difficult to but want to at the same time. It'd make the situation much easier!
My test is fainter today! And my bbt is going down so not looking good. No more spotting but the cyclogest prob stopping that. I guess I'll continue with meds and test again mon.
I don't understand why I keep having chemicals now! 3 in a row and 2 on treatment. Hope is fading again.

Sorry billy :( it's so so hard. I had a chemical on tx last time and as always tx can't help a chromosomal abnormality...I took solace in that in a weird way? That hopefully the tx would work if I got the right egg and soerm combo? Doesn't make the pain any less...

Anyone can help-my sis has had her entire flat painted!!! Such bad timing. I don't want to keep paying for hotels but also don't want to be inhaling all the fumes. Anyone know when it's safe for me to go back? It's low VOC paint we checked-which means less fumes but literally nowhere on Internet says when it's safe to go back. She's got fans on windows open and doors open and also told her to put onions and lemons all over my bedroom! Haha. Not sure when I should go in....

Thanks Trying. I'm not sure it can be chromosomal if 3 in a row. Seems unlikely really, but who knows eh!!
I would prob wait a few more days before going to your sis, just to be sure xx

I know Billy, if only we knew :( , I think they say the more rm u have the chance of it being chromosomal drops. Seeking had her 4th mc on tx and it was chromosmomal....she had it tested that 25 percent chance in a 30 year old always remains...

I'm terrfied that my hcgs are not strong enough, in sure they should be higher. Anyways will just await till Monday...I'll move to hers on wed night I think?

Yeah and I'm 42 so I guess my chance of chromosome is very high! I think it's kinda odd that I get pg pretty easily (so far!!). I know there's some theory's about super fertility or something. But then it's been 2 years since I've had a preg get past chemical stage! We will never know anything for certain!
Think I've heard everyone's hcgs are different levels anyway and it's the increase that matters? How are you feeling? I've very little preg symptoms. Had them for about a day!
Fingers crossed for you on Monday!

I've got an app for hcgs mon morning so I'll still go for that.

I hope you can enjoy your weekend. Can you think of it as a mini break seeing as your in a hotel?
Keep us updated on Monday X

Sorry it's not got any darker for you Billy. As trying said there's always a risk of chromosomal cause. It could be that one or even 2 where chromosomal and 1or two were immune based mcs. Doesn't help but it could be. Since my chromosomal loss I've been taking dhea and CoQ10 as they're both supposed to help improve egg health.

Can't help you in afraid Trying, but I'm sure Wednesday will be ok.
I'm sure your hcg is fine. It's risen, that's important. Put it to the back of your mind until Monday.

Hello lovely ladies,

I posted this on some other forum without much luck except a reference to this group, hence trying my luck again.

With the history of multiple rpls, like most of u, i had my blood nk cells done. The results are as under:

NK cell count- normal

Activation marker for NK cells:
Total CD 69 absolute count - High 1.53 (normal

Hi Ellie u made it over! Sorry for ur losses......I've not had a success story but if u read back rosa and sunny and recently snoopy have been on 25mg steroids and are all into 2/3 trimesters after 3 mc and are all well!' don't know how the dose is decided - currently I've been put on 10mg but under a different consultant

No one has a consensus on tx and what's right and does or doesn't work in the world of rm. makes it so hard to navigate ur way through it all...but u have to find a doctor u trust and have faith in and close ur eyes and hope for the best.

AFM Today was the longest day of my life!!!