TTC with PCOS (Thread #2)

[RoseBud2015]

If you have been diagnosed with PCOS and would like a small group of very friendly ladies in the same position as you to talk to, then this is the thread for you!

You can find our first thread >>>>>>>>> HERE

You can find the stats >>>>> HERE

Oh ponty I'm so sorry to hear that

isiti trying for a year before PCOS diagnosis in April, now on a never ending wait for a consultant appointment to start things going. Just feel right now that it's never going to happen for us!

Thanks biscuit, I have posted a thread with my chart on it as I'm so confused regardless of the test. never mind though eh! Thought it was too good to be true.

Really hope you get a consultant appointment soon

isit I wouldn't take SI with clomid, no; they are essentially trying to do the same thing.

ponty how very disappointing

sorry ponty that's just shit, no other way to describe it!!! I hope your cycle gets back on track xxx

Ah crapola ponty, that's so annoying but maybe test again just in case

I am going to test again but maybe leave it for a few days (if AF doesn't show) because something is definitely going on - cramping like crazy and stuff tastes weird, I'm so tired and ravenous! all could be nothing so not getting my hopes up.

how is everyone?

Definitely test again!

I'm fine except I look pregnant! I am guessing it is the metformin - I haven't had any nausea or diarrhoea (sorry tmi) but i appear to have blown up like violet beauregarde in the abdominal area. Am doing some DIY today and am wearing a tight vest top and DH gave me a most peculiar look . All for a good cause I suppose!

Ponty that's so rubbish what an emotional roller coaster but defo text again. Try and do something nice to take your mind off it.

ponty That's crap definitely test again in a few days. We're all rooting for you!

mrsbiscuit the waiting times for referrals are so bad! Where in the country are you? I'm in Wales and I think we waited 6 months for a consultant appointment.
Please don't give up hope (although I fully understand the feeling). There have been several BFPs on this thread alone.

Thank you chandelier I was thinking I probably shouldn't mess with soy but it's on my mind.

stealthbanana what a strange side effect! I wish that was what I had to put up with - I had an awfully upset stomach

So I've just had a lovely conversation with my mum about when I'm going to be giving her grandchildren, after all, I was in primary school by the time she was my age
That is so not what I needed today. The Clomid kicked in and if DH hadn't stepped in I think I would have cried right there.

Very odd side effect - but Dr Google tells me it's not uncommon. Will have to buy some more baggy tops!

Your mum!! Does she know what's happening with the pcos etc? Mums can be so mean. I told mine that it was her fault as it's genetic and she's now admitted she had irregular periods and was diagnoswd with hypoglycaemia in her 20s - she now keeps texting me telling me she feels guilty! Ha ha! Obv I am placating her but it's got her off my back. Perhaps you could also try the genetic guilt trip route?!

Thanks I really appreciate it. I don't know what the hell is happening. I've just woken up from a random nap, though I do tend to get all sleepy when I've been in the sun

stealth I'm impressed you've done DIY on the beautiful day like today! All productiveness goes out the window for me!

is it my mother could be yours - except that my DM didn't give a shit about whether I would be able to conceive, she just openly wondered when I was going to just get over myself a lose the extra stone! When I got diagnosed with pcos I was so happy to have a reason why the weight was hard to shift, but she still insists it's bollocks! Basically nothing like stealths DM! Mine just thinks I have a portion control issue

Oh I haven't told my mum that we're ttc or that I have pcos. I love her but it would go from something I'm going through to a crisis. She'd be offering to pay for me to go private whilst telling me to lose weight and having discussions with all her friends about how bad it all is. She'd be meaning to help but I'm quite private and like to just handle things mostly on my own but with some friends in the know for support.
And my mum would definitely go on about my weight. She's recently lost 2 stone and now things as is a guru on all things slimming world She's driving me and my sister insane!

stealth can you treat your belly like a BFP practise?
I'm also impressed you've done DIY. I've walked from the car to the shop and back and eaten a full Sunday dinner and some birthday cake. I'm now sorting clothes for a mini break and even that feels like work! I am blaming clomid because it makes me feel drained and flat out denying it is because I stayed up last night watching Hannibal

ponty I know it's childish but your mums attitude makes me want you to eat cake and tell her about it, just to show you're not getting over yourself and losing a stone

Hello again you lovely lot.

I've been really bad at getting on the internet for anything other than work recently. It's the school holidays now though so hopefully will do a better job at keeping up!

I need to read through the thread to catch up, but has there been any big news? Any BFPs? (Hopeful!)

I have no news other than I am not losing weight fast enough to hit my target given by the consultant when I went at the end of June. I need to up the ante. My next appointment is mid September so I still have time to lose a decent amount if I try hard.

I have also had a period! So I am currently on CD23. It was a medically induced period though, took tablets that the consultant gave me... Apparently he's not going to let me go more than 3 months without having one now.

Anyway, time to go play catch up!

Oh my mum would be brutal if I needed to lose weight - she is slim herself and unbelievably shallow about weight Fortunately I've always been skinny so that's not an issue. She has actually been surprisingly supportive and nice about all this - I had expected her to make a big drama of it but she's been pretty cool (although I know she's definitely discussing it amongst her friends!). I think we forget how much our mothers have seen and heard over the years. I also have found it's kept her off my back - rather than constantly asking WHEN AM I HAVING GRANDCHILDREN she knows not to expect any news. Anyway.

DIY was long overdue, I've been travelling and socialising the last few weekends and things were definitely starting to slip. I just cleared out 2x big bin bags of clothes to go to th charity shop so that feels good. Plus we're house hunting atm so needed to do some more scanning w DH. And just made a pcos-friendly dinner of chick pea and tomato stew with a spinach and avocado salad. So quite a productive day!

Ain - yay to having a period, no matter how it came on!

is it my sister has PCOS and is a size 6 so my DM is sure it's just me being a chunky monkey!

ain yay for the period! I had a medically induced one earlier this year and so far it seems to have rebooted my system somewhat, though im by no means regular, I've been less than 60 days each time I think. Fingers crossed for you!

stealth I've been lurking on some of the housekeeping threads in the hope of miraculously becoming a tidier person! dinner sounds lovely! I had chips from the chip shop not awfully healthy or slimming friendly, but I have been really good lately and I needed to drown my false positive test sorrows in carbs!

peeps head in Hi ladies, please may I join? I have been cheering this thread on since the start, especially the bfps! I've learned a lot but wondered if you can please give me some advice? I'm so sorry for the long post, I don't want to drip feed and I'm having a bit of a panic.

I'm just 33, ttc no 1, another hypermobile skinny cyster that only does pilates, no harcore exercise. When I was about 21 my periods started to become irregular, and acne and slight hairiness soon followed. After a long battle with docs, who wanted to give me Prozac, they admitted that my hormones were slightly out of whack, scanned me and said I didn't have cysts but "probably" had PCOS. They gave me Yasmin, which solved all the problems.

Last Oct I came off Yasmin, had a withdrawal bleed but then as expected AF didn't arrive. In Jan I went to my GP who was great - she sent me for an ultrasound, which showed all was ok but my lining was thin and there was no sign of ovulation, and referred me to a specialist. My blood tests came back "fairly normal". In June the specialist told me to put on weight in case that helped, gave me a prescription for provera and referred me for an HSG and DH for sperm analysis. The provera didn't work, but they gave me the HSG anyway, which showed my tubes were clear. DH's SA was "normal".

I've got the specialist appointment on Tuesday am and I'm panicking because I'm not sure what to ask. I've not had a period since the withdrawal bleed. Does anyone have any idea why provera might not have worked? I've been inhaling food and have put on a stone so my BMI is almost 20 (it was just over 18 - I'd lost weight in last year due to stressful job, which I've now changed) but I'm worried that it won't be enough. Should I ask for another round of provera before I start clomid? Or could there be an another underlying issue? Any help would be great, my DH is lovely but he's a bit overwhelmed - we want to go in to the specialist armed with questions and facts!

Thanks so much for reading if you've made it this far!

stealthbanana If you'd like to hear a positive HSG experience, mine was v quick and I was fine after it. The radiologists said it was like a smear, I told them I'm a total wimp about smears and they were so kind - they told me to relax, gently put the speculum in (felt a bit ouch), then put the dye in (felt like period cramp) then they took the speculum out. The whole thing took about 2 mins from start to end, I went straight to work afterwards. I was clearly lucky that they were experienced and nice, but might be worth taking a painkiller in advance and trying the 'I'm a wimp' approach?!

hi oranges sorry you're going through this! It can be so confusing and stressful.

My thoughts on why the provera didn't work is that a) what dose were you on? and b) you mentioned that your lining was thin on one of your ultrasounds? this could be related. I would definitely bring that up at your appointment as I think the lining issue is key. Try not to panic - there are so many different things to try! I think with fertility, it's all about treating the right problem, and god knows pcos throws in a few red herrings! good luck

bfn this morning with the same type of test I got the 'bfp' on so it was definitely a dodgy one yesterday! not sure if I've even ovulated yet as every setting on ff gives a different answer. I'm actually okay about it today - I'm focused on losing the weight and my holiday in a few weeks. I thought about stopping charting briefly but I'm finding it so useful that I might as well carry on!

Welcome oranges sounds like you have a lot in your favour! I Deffo have PCOS, no AFs and a blocked tube , but I am still hopeful!!
Maybe the provera didn't work because of the length of time you took the pill? I hope your appt goes well and you come out will Clomid! That would be wonderful ay?!
Ponty that is crap, cannot believe you got a dodgy test! Will AF arrive for you now then? Is there really no chance you could be? At least your holiday can take your mind of things.
I have my GP appt this evening, I am really hoping to get noresterine, cannot see why she wouldn't give me it, haven't had AF since the last dose which was months ago. And I am going to call the hospital to chase my consultant appt from my L+D!!
I also bought some tesco Soy, I am looking forward to trying this stuff!
Have a great day cysters

Oranges welcome! Thanks for the reassurance re the HSG - I can't really take days off work so fingers crossed it's quick and easy like yours. Definitely taking painkillers - my gynae said to take paracetamol and ibuprofen and has given me antibiotics for before and after too. Think she's defo from my school of "no pain...good!"

Funny how so many of us have hypermobility. I wonder if there's a correlation? I was always more worried about my body falling apart when I actually got pregnant (still dreading that) - never thought I'd have to worry about even getting to the starting line.

When you say your blood tests were "fairly normal" what does that mean? Are you seeing a gynae or an endocrinologist? Has anyone suggested metformin? One thing to bear in mind with clomid is that it thins your uterine lining so you may not want to go down that route just yet (I also had a thin lining - 4mm - am hoping it builds back up as I recover from being on the pill.)

Oh ponty

Onwards!

I am actually sat here laughing to myself because this could only happen to me Christ. but right you are, onwards it is. Still feel a bit off today but I think we all know that counts for bugger all most of the time!

I'm fortunate enough to have DD. I've always said if that's my lot in life then she's more than I could've wished for so although it's annoying as shit, I've just got to pull up my big girl pants and get on with it.

I'm extremely aware most of you lovely ladies are TTC #1 so I need to STFU and sit down really.

come on Monday

I feel the same about not having any kids - if that's my path then so be it! Doesn't make the day to day any easier...if only we could know what the final outcome is then it wouldn't matter that it took ages. Enjoy your holiday and keep buggering on, as they say in the classics xx

oranges Welcome! Best advice I have for your appointment (and I've given it a few times here) is to write down every question you and your partner have and then make it his responsibility to get answers and write them down. I know at mine they gave me so much info I was overwhelmed so I'm always armed now!
First question - what does your 'fairly normal' blood test actually show?
Maybe aske for an alternative to provera. I had noresterine which worked brilliantly.

Clomid isn't something to go into lightly, I'm on it now and the hormones are kicking my arse! Hopefully your consultant will put together a good plan for you.
I would ask for some follow up blood tests so they can get a better idea of what's happening.

Oh and we all understand your frustration - use the thread to vent and ask lots of questions

ponty That really is crap. I don't blame you for your chippy tea

pebbles Good luck at your appointment