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TTC with PCOS (Thread #2)

999 replies

RoseBud2015 · 12/06/2015 10:56

If you have been diagnosed with PCOS and would like a small group of very friendly ladies in the same position as you to talk to, then this is the thread for you!

You can find our first thread >>>>>>>>> HERE

You can find the stats >>>>> HERE

Smile
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13
battenberg123 · 03/08/2015 08:57

Welcome Oranges, I'm not sure about clomid but I'd assume it would be better to have a bleed before starting, otherwise it could be less effective? I'm also a skinny "cyster" and the only exercise I do is swimming!

Ponty sorry to hear about the test confusion, in no way are you any less deserving for already having DD, you're still entitled to be just as p*ssed off as everyone else!

Hope everyone else is okay, still wondering how rosebud is enjoying her trip of a lifetime!

I'm cd31 and waiting for AF, I keep thinking it's coming and it's painfully dragging on, I'm sure I'll get it by the end of today!

PontyGirl · 03/08/2015 10:40

Thanks Thanks Thanks you're all wonderful - it's nice to talk to other people who actually know wtf pcos is - I usually just get confused looks or something similar. back on the healthy train for me today!

chandelierswinger · 03/08/2015 10:59

That's pants ponty Flowers

But yay for ain- AF!!! Woo hoo!

Welcome oranges!

ZanyZazu · 03/08/2015 11:08

Hi everyone.

I've just joined Mumsnet and this is also my very first post so I'm kinda nervous Blush

The thing is I think I have PCOS as I used to have EWCM when ovulating but it stopped for few years and I get EWCM once in a blue moon. So I'm assuming it means I am not always ovulating?

My younger sister has been diagnosed with PCOS ever since she was a teenager so she has gotten the help she needs to address hormonal issues and such.

But the problem is my GP doesn't think I have PCOS or endometriosis, though I have many symptoms of the latter (e.g. Abdominal cramps and painful periods etc), saying my difficulties trying to get pregnant are down to stress. I used to be underweight in the past so my GP said that the painful periods was because of that, but when they persisted after my weight becoming normal, she said I should get back to her when I am TTC.

But now that we are TTC for a few years, my GP is refusing to do any blood tests/scans etc so how will I know if I have endometriosis or PCOS?

The first year she said we weren't trying long enough and by the second year she says its down to stress. But without any tests/scans how will I know for sure?

I'm worried that the more I delay, the worse it will get.

I'm hoping to change doctors so is there any scan/test that I can ask for?

My mum and aunts seemed to have it easy falling pregnant but my dad has no siblings at all, not out of choice or lack of trying on my grandparents part, so I'm wondering if the difficulties falling pregnant comes from my Dad's side. But I don't know anything for sure.

I do worry a lot but that's only because I feel as though everyone expects me to have babies by now as I have been married almost three years and we've been trying for two years Sad

Sorry for my long post.

TriJo · 03/08/2015 11:09

Think I may have to join in over here - came off my pill in April and I've only had an immediate withdrawal bleed and a very light three day period in May since then, radio silence from my ladyparts for the last 11 weeks - on CD79 now. Had blood tests done in early July which seemed to be quite indicative of PCOS (LH to FSH ratio was around 4:1, also had raised prolactin) and now waiting on a dildocam to confirm things. I don't really have the androgenic effects though and I'm not overweight (5'5", size 10).

ZanyZazu · 03/08/2015 11:14

Hi TriJo. I know it sounds silly, but was there a specific blood test you did that showed that you may have PCOS?

TriJo · 03/08/2015 11:23

FSH and LH levels, prolactin, gonadotrophins etc - general hormone panel. He just seemed to order everything that was on the list for a secondary amenorrhoea investigation.

battenberg123 · 03/08/2015 11:31

Welcom TriJo and Zany

Zany definitely change doctors, especially as you've been trying for more than a year? Your doctor should have started the ball rolling a long time ago, I'm actually really annoyed on your behalf!

ZanyZazu · 03/08/2015 11:54

I try not to stress but I'd rather know than keep on guessing why it's taking so long. What got me confused was that my GP was on the ball and referred my mum and my sister for scans and tests - we all have the same doctor at the same GP surgery, well for several years lol.

So I just tried to be patient, thinking it's down to stress but DH was saying that I should join a new surgery as I am not being referred for any scans or tested for PCOS or anything.

And now after all these years, I am thinking I need to change, but it's a scary prospect changing to a new surgery as I don't know if it will be better, could be worse for all I know Sad.

VixxFace · 03/08/2015 12:33

Hi everybody,

congratulations on the bfp's!! It has made me smile knowing there is hope and a happy ending possible.

I am on my second cycle of clomid, had a scan on cycle day 7 and nothing was there. Going back Wednesday and hoping to see some follicles. If not ivf is booked for September.

PontyGirl · 03/08/2015 16:28

hi all - another day of feeling like a zombie, had to leave work early and come home and nap - will read up on today later. What is wrong with me!

Pebbles086 · 03/08/2015 17:52

hello newbies Smile zany WTf for is wrong with your Dr?! They should have at least sent you for bloods, there's nothing wrong with them at least ruling out the possibility after 2 years! If you fee comfortable enough with the Dr, I would sternly ask they do more than blame this on stress! It's a long road to diagnosis and treatment, but this thread shows it's not impossible xxxx
vixx FX Next scan shows some follicles!!
I am currently sat in GPs waiting room, FX I come out with a prescription. I am ready for a fight lol I have lots of energy after 1 hour in the gym!! Xx

battenberg123 · 03/08/2015 18:01

Good luck Pebbles hope you get the prescription!

Vixx good luck with the scan; if not IVF it is - is that self funded? I hope you're getting it on the NHS!

I've just caved and tested, got the faintest positive but feel like AF is coming so it could be another chemical Confused going to test again in the morning.

VixxFace · 03/08/2015 18:19

pebbles did you get the prescription?

batten when is af due. I really want to say congratulations!

PontyGirl · 03/08/2015 18:20

oooh battenberg sounds promising! fx for you Thanks

pebbles how did you get on?

hello newbies Thanks Thanks Brew Brew welcome, I'll pop back on later to have a proper read

Mrsbiscuitmonster · 03/08/2015 18:57

zany hi! Deffo get another opinion!

Got my fingers crossed for you battenberg how exciting!

oranges I've always found my doctors to be really helpful and approachable so I would just go in there with any little question and query that's playing on your mind! My appointment was like a round on mastermind haha

isiti I'm in South Wales.. Been waiting three months already for mine, stalking our poor postman!

battenberg123 · 03/08/2015 19:05

Thanks everyone, AF was due today/yesterday or tomorrow! I'm not going to count my chickens just yet as this has happened before...

Ooh Biscuit I love South Wales, it's so nice and green compared to London!

Pebbles086 · 03/08/2015 20:26

FX batternburg you seem prepared for AF if it arrives, but I really hope she stays well away from you!!!

Soo my appointment was good and bad.
Dr was lovely and gave me the prescription. But she had the letter from my L+D, both my tubes seem blocked. So she said I'll prob get IVF for treatment. She did say that I don't necessarily have to have my tubes temoved to have IVF.
She's really nice and we even laughed a lot when she said I should do a preggo test before starting noresterine GrinGrin
I am prepared for the worst now. Glad I got the tabs and I will still take to SI when AF arrives xxx

Freddiesmother · 03/08/2015 21:55

Battenberg sounds promising indeed keeping everything crossed for you. Tomorrow is the day when I am supposed to test but having done a test only two days ago that was negative I have very low expectations. I feel really really gutted. I still have 4 more cycles left to go but it's so hard and I have just started a new job so all the time off is really hard work. I know my expectations were ridiculous that it would work 1st time I had a dominant follical but my imagination runs totally wild.... I really just want to scream it's not fair v v loudly!

PontyGirl · 03/08/2015 22:07

pebbles you sound amazing and deserve a big virtual Wine I'm so sorry. Thanks Thanks Thanks

freddiesmother as the old TTC saying goes, you're not out until AF shows. Don't give up hope yet. Brew

Freddiesmother · 03/08/2015 22:10

Lolz ponty but I don't really think af will ever show until I take provera .. Haven't had a naturally occurring period in 3/4 years.

stealthbanana · 03/08/2015 22:19

Ah zany get thee to a different doctor! Pcos, stress or something different - after 2 years you need to be checked out!

Pebbles Flowers and possibly Wine too (if you're allowed). Ivf will be ok, it's just the next step in all this being poked and prodded xxx

Fx to freddie and battenburg for their BFPs.

Meanwhile I am on the edge - no diarrhoea, but it's, erm, not normal in that department. Spent a v uncomfortable day at work today!

Orangesarenot · 03/08/2015 23:07

Hi everyone
Thanks very much for the advice and suggestions. I've scribbled them all down, added some of my own, and told DH we're not allowed to be British and polite tomorrow, we need some answers! Thanks for listening, I feel much calmer tonight.
Stealth I think there's a definite link between hormones and hypermobility, which may be why so many of us have PCOS or similar disorders? I also worry about whether my body is strong enough for pregnancy/birth/running round after a child, but nothing is certain in life so I guess we just have to go for it with good DHs and physios and osteopaths on standby!
I hope everyone has a good day tomorrow.

ZanyZazu · 04/08/2015 02:31

Mrsbiscuitmonster & Stealthbanana - Well, I have now joined a new GP surgery, but my main doctor is on leave and haven't been told when she will be back? This was supposed to be my first appointment with her. Kind of regretting changing surgeries, but no point dwelling on it now.

I had the option of waiting until my doc comes back, though I haven't been told when that would be, or I could see I different a doctor. And so I obviously opted for the latter because I want to get the ball rolling as soon as. But I have been told that if I want an appointment this week, then it will be with a locum doctor. Makes me wonder how much a locum doctor can do Confused

I don't want delays in referrals etc. as I'm just tired of fielding nosy questions by well meaning family members about when I will be bringing home a bundle of joy, being told how many children they've had by my age and also wondering why it's taking me so long whilst others are having babies left, right and centre Sad

Sorry for the rant.

stealthbanana · 04/08/2015 05:38

I think you need to be firm. You have been trying for 2 years - you are clinically infertile (sorry) and entitled to a referral under NHS guidelines. Have a look online for specialists at your nearest NHS hospital and fins someone you'd like t be referred to and push the Locum to get that referral done!

Also ask them to order a full hormonal blood. Be very firm and don't take no for an answer. You have been treated appallingly by the system. Good luck!