Immune / natural killer cell treatment when ttc or pregnant (aka the 15th pred thread)

[sunnyday01]

This is a thread for those diagnosed with high or very high natural killer cells and trying to concieve or are pregnant and taking steroids/intralipids etc

Newcomers very welcome

No I didn't, the only one I thought was t quite right was #3 (as did SO and I just had the feeling the eggs weren't right, massive in fact!). I know any of them could have been genetic but generally mine have all had the exact! I mean exact same pattern (plus my nk cells have gone mental now) so I believe it's most likely immune...with #4 I didn't go to epu and don't think my GP even knows...I just was so fed up and done with it all.

Xxx

Forgot to say I am a great believer of you need to do what you need to do...if you need testing for your sanity, hope, grieving, whatever you must push for it...you still have a chance though (but I know how it feels too when you think you pretty much know :( ) hugs xxx

Rosa just popping in to say hope you re ok. Sending hugs.

Ps i can completely understand about the testing so at least you can have an answer to why and think i would make the descision to go for that if it was possible. Take care of yourself. x

Thanks guys.. I'm not sure how I feel yet. Even if I did know, no way of knowing if it would be genetic every time again after or not.
I didn't know the size of the eggs had anything to do with things though.. Must look into that. It was my 2nd cycle of SO and one was large and was told 'could go on its own' and another they hoped I would get with ovitrelle. I had two others deemed two small. I have 5 antrals on each side which in told is not bad for 'nearly 39'. Who knows though! I just don't want this to be all I remember about 'some of the best years of my life'. But I know why we do this... And of course would all be worth it IF.....

So sorry Sasha. You're right. It really does fucking suck. So cruel. Also feels crazy in this day and age we still have so many unknowns and need to suffer so much. Hope things go smoothly and quickly and you can recover and look forward soon.
I worry I will be in limbo before in your boat... Anyway at least nearly home. Take care x

Sasha so so sorry. No one should have to go through this. I hope it goes ok tomorrow and sounds like once you feel strong enough then immune testing would be the way forward. Take care of yourself. Big hugs.

Rosa glad to hear you re home. Praying for positive news from your scan tomorrow but sending strength to bear it ifs not. x

I'm so sorry to hear that Sasha. It is so unbelievably rubbish. I have had seven miscarriages but I'm now six pregnant with my second son so I do believe there is hope for people like us. It is bloody hard though.
Rosa, I only just logged on and saw your posts. I will be thinking of you so much this morning. My sister-in-law had bleeding all through the first three months and I had spotting intermittently. I know it is never a good feeling to see it though even if things are absolutely fine. See what the scan says and know that we will all be here for you. It is unbearable but you have been so strong already and I am sending lots of love and positive thoughts your way, xxxx

Well people... I'm in utter shock. The brown and the pain are exactly like before all my miscarriages and perhaps a sign things are going wrong BUT my scan showed everything is exactly as they would expect at 6 weeks.. Even a heartbeat.. So I have hope! In shock and can't really take it in. Had contacted the hospital about a D&C was so convinced and been seriously thinking about adoption. It's still so very early and I can't get my hopes up, but so hard not to a bit now... What a roller coaster !!
Sasha- thinking of you today. You haven't tried the immune therapy and I hope for both our sakes I can give you a reason to be positive about the future too. Look after yourself and allow yourself the time you need to wallow etc.
hi everyone else x

SO HAPPY FOR YOU ROSA!!!!! Amazing news!!! Happy dancing for you!!!

Could it be one of subchronic bleeds people also talk about? Xx

Oh thanks Drttc. I'm too petrified to celebrate. Still worried about the colour and the twangs and my heart is racing! They are thinking of moving my original scan that was next week to 8 weeks now so I have a long fortnight before the next milestone probably assuming everything did still go ok. I wish I could believe this was going to be ok.. I really, really want it to be! X

There literally aren't any words!! That is the BEST NEWS so so pleased Rosa xxx

Thanks Determined. I do hope I can now continue to pepper this forum with positivity and avoid any more stressful meltdowns. You guys really, really help as I know you get it.
Happy weekends everyone xxx

Rosa so so pleased that your scan was all good !!! Been thinking about you all day but couldn t get online. I understand about not wanting to get your hopes up too much but you ve got your foot one step further up the ladder to your take home baby and thats worth celebrating. Hope you can have a relaxing weekend with your dh.

Sasha hope you re ok and today was as easy on you as it could be. Thinking of you.

Rosa, I am so happy for you!!!! I just logged on to check how your scan had gone and this is just the very best of news. I think I told you about how I was convinced I'd miscarried this pregnancy at six-ish weeks and then they found a heartbeat and I was so overwhelmed, happy and scared at the same time. For now just take it day by day and imagine your little bean getting stronger and bigger all of the time! Everything is looking really good!
Sasha I hope you are ok. I can really relate to that feeling of wanting to get tests sorted right away. I always had to have a plan (DH called it being manic too) after I miscarried and actually I think that was pretty constructive for me. I live just outside of Edinburgh in East Lothian but went to see Dr Shehata in London for testing and treatment, as many of the girls on here have done. But there are lots of options to consider and I guess the key thing is to find the right person for you. I wouldn't say that I ever massively clicked with Dr S but I have had success on his treatment plan and maybe that is all that matters. There is also a Dr Siobhan Quenby to consider but I don't know much about her. Sending you a big hug and lots of luck for the future.

Thanks Hope - I really won't feel reassured until at least past my longest miscarriage about 10.5 but it's starting to sink in again that there's a chance. I was 99.9999% sure it was over.
Sacha- yes, you, Hope and I all Edinburgh. I think there's someone else too. It's a long way to go but I really did do a lot of research and for me felt Mr Shehata had the most comprehensive outlook and very good reputation. Reading 'is your body baby friendly' and The Miscarriage Clinic website helps inform you of choices and also gives you hope.. Which helps heal as we all know. The weather isn't great up here right now, but when you feel up to it try go for a short walk as I found my endorphins nearly disappeared completely when I let myself stay couped up too long with box sets in bed. But whatever works for you. Huge hug xxx

Hi, I've been lurking for a little while. I'm in the same boat as a lot of you.

I just wanted to say I'm so pleased for you Rosa & have my fingers x.
Sasha- sorry to hear that you had another MC. I see you're thinking about seeing Prof Quenby in Coventry- I saw her recently & would recommend Her- I'm happy to answer any questions if that helps.
AFM - it helps to know that other people understand what it is to go through this & that there is hope

Hi everyone, sorry not been around much, but after DH sperm result it's all been a bit hard - it just feels like it's never going to happen. We are not doing SO anymore as Dr s says chances are so low there is no point, so for next two months I'm off all drugs apart from my pregnacare vits and DH also taking some vits too, then he has to do another test to see what results are and then depending on those results will either begin SO again or go to ivf. I've also got to loose 4 stone to get my bmi down to under 30 (which I'm annoyed about as I should have let myself get this big - emotional eating has a lot to answer for!). I'm scared about ivf and having recurrent miscarriages too.

Anyway hope everyone is ok, I
L probably drop in from time to time.

P.s so happy that it seems to be working out for you rosa xx

So sorry Sasha :( This is a shitty journey for some of us. But all we can do is keep going. There are so man by success stories and what they all have in common is persistence after loss. I hope you can have some healing time that gives you strength for your next steps.

Hi Susie - welcome!

Sunny! God I can really relate to how your feeling right now. I feel very positive for others, but lately I'm struggling! Thinking about taking a break from thinking about these things as well :(

I've not been able to identify my ovulation (which has never been an issue) and it's devasting. I even ovulated fine in March after my last mc in February.... And now ever since I've been on meds I've suddenly not has CM! Bought CB digital ovulation kit and I've had no peak fertility smiley. Already on CD15, with a 26 day cycle... So this is just no good. I've always ovulated on CD12-14 like clockwork. Needless to say, with no ovulation, I'm not expecting anything to happen this month... So I may pass on the pred in the hopes my cycle will return to how it's been for 28 years! Big sigh.......

rosa have been lurking for your news. So pleased you saw the heartbeat and that all seems ok at this point. I hope the books helped! I know that once you see a heartbeat and if you are measuring ok for the dates the chance of miscarriage drops. Mr shehata and Mr Nudweke both told me that once you get to 9 weeks with a positive scan the miscarriage threat is gone so you haven't got long to wait.
sunny a friend of mine had twins on ivf after being told her husband had a 1% chance of conceiving and her bmi was worse than yours. She lost two stone and then was successful on the first ivf round so it can still happen?
sasha I would def recommend private testing as the nhs will test you for the basic stuff (which will take ages) and then only offer low dose aspirin, clexane or progesterone. They won't give you intrallipids or any of the other drugs such as steroids that the private clinics offer.

Ignore my typos ladies- I type too quickly!!

Sunny, Suemays is right - there's def still things you can do to give you a good chance so try stay positive. To help with weight you might want to consider the Paleo type approach - even just cutting gluten might help. I wasn't trying to lose weight but did by cutting gluten which my accu lady said I should if have autoimmune issues. Sure you know all this but soup is amazing for being filling but not too calorific too. Hope in another month or so of healthy eating you both feel better and get some positive feedback from Mr S about trying again. I'm sure you will.
Thanks Suemays for what you said about me too.. I'm literally petrified. I know people say there's nothing you can do to affect things but I'm so scared to do anything!! I would love to think I could relax at 9 weeks if make it that far but my first stopped growing at 9+3 and found out at my 11+5 scan so will find it difficult until later if make it that far. Perhaps these stats are on treatment though and of course I wasn't then. I've not really got any symptoms which is freaking me out too - and I can't stop worrying 'what was that brown?' I don't know whether will help to find a way to get a scan every week (even if pay for some) or try get through the fortnightly ones. I guess will see what the nhs consultant says tomorrow.
Hi to everyone else x