Immune/natural killer cell treatment when TTC or pregnant (aka the 14th pred thread)

[sunnyday01]

Continuing from 13th thread

Hi all, just managing to post now although have lurked a few times this week. So sorry you are out this month Rosa. I know Christmas drinks aren't as good as a BFP but having distractions does make it all a bit more bearable I think. I found it that way anyway. Fingers crossed for everyone else this month.
I have spent the last few days being really paranoid. I go for my seven week scan on Saturday with Dr Shehata so I guess I will know what is what then. I have been feeling pretty sick although wondering if that is the cyclogest rather than pregnancy as MS doesn't usually start for me until 7 weeks. Did anyone else feel sick on cyclogest? The thing that is worrying me is that I had really sore boobs from five weeks until six weeks and the last few days I can't really feel anything, just a tiny bit sore. It is always the first sign on miscarriage for me so it is making me very anxious. It probably goes without saying but I would just feel so rubbish if it happened again. I know Dr S says symptoms are reduced pred but surely they shouldn't be there and then gone. I am trying to stay positive but isn't really working!
To make matters worse my little boy has a cold so feeling really bad about leaving him in Scotland to go down to London, particularly if it is bad news. Maybe I am just being worried as scan gets closer. Like everyone, I just want to get out of the other side of this and get on with life and being able to be happy again!

Dildoos-I looked up infertility ones. There's quite a few and some are zita west accredited. Make sure they r registered with the acupuncture council and not a quack! (Just ask them)

Hope- I'm sorry ur feeling like that. I think all of us can relate to it when we have been preg. It's so hard to focus on anything with the anxiety. Its just so hard. Just keep telling urself u r on all the meds and mr s has a v good success rate. Sat isn't too far away and I'm keeping everything crossed that all is well. U have had one scan and it was good so ur heading in the right direction
I had cyclo in my last preg and actually yes my naseau was awful earlier on. I never linked it to the cyclogest I just thought diff preg diff symptoms. But it's good ur feeling sick-it's a good sign. Think positive thoughts!

Ps if u literally can't wait till sat call ur epau and explain? They might/should scan u?

Thanks Trying. I thought about going to the epu this morning but it is DS's nativity play. He isn't really well enough but he's desperate to take part and the nursery are happy for him to go just for the play. He is in full camel costume!
It is hard because he keeps asking if he can have a sister for Christmas and we so want to be able to give him a sibling. I think I will just tough it out until Saturday unless it really gets too much. I think all the medication makes it difficult to know what is what. What day are you on right now? Do you know when you will test?

Hope - try to hang on in there until Saturday, although i totally understand your worrying, i would be exactly the same. Agree with trying, maybe worth trying the epu if you get a chance.

I've had a right random 24 hours, i was awake for about 2 hours last night - literally wide awake, i could have easily got up and done something, eventually fell back to sleep and then when the alarm went off i didn't want to get up! Also when i woke up i was so thirsty and also hungry - and i am still starving this morning - i've eaten porridge and a almond crossaint so far and had a costa hot choc to try and fill me up - guessing its pred side effects!

Hope, my symptoms came and went with both successful pregnancies on the treatment. I think you're right - the medication can mask and muddle things. Cyclogest has always made me feel a bit ill when I think about it - but who knows if that is just a pregnancy thing? And because of our miscarriages we have a heightened awareness of symptoms/non symptoms that other people just don't have!

The wait between scans is the hardest thing but I always just keep telling myself the only thing we can do is live through it day to day and take every moment as it comes. Time takes on weird dimensions but at the end of the day it's just time and will pass as slowly or as quickly as it always does. Sorry about your little boy though - mine too has been hit with cold after cold after cold.

Sunny, yep that sounds to me like Pred symptoms. They always make me quite lively! I know a lot of people who think this is quite useful to get things done in the daytime but yes it's a bloody pain at night when you're trying to sleep.

Just under two weeks left for me now and am nervous about it all going wrong, about having another cs and of course having another baby! I do have moments when I let myself get a bit excited but they are few and far between as it just doesn't feel real. This time last year I was getting over another miscarriage and wondering whether I would try again and here I am!

Thanks Sunny. I might call them. I am a bit worried I'm jinxing everything. To be honest, I'm just worried full-stop. The woman at the epu told me that even if the pregnancy failed I would probably not know as the cyclogest would prevent miscarriage from starting. Have you heard of that before? I have to go down to London on Friday morning if I'm going and the EPU only scan in the morning in Edinburgh.
Re the pred, it sounds like you are reacting in a similar way to me. I am up every night for two hours! And super thirsty too. I'm kind of off food at the moment but I was really hungry before I got the BFP. To make matters worse I think I have probably never looked more terrible in my life! I am just holding on to the hope that it will work out. If only it was decided on how much we want a baby or how hard we worked at it...

Hope - i'm not sure about the cyclogest to be honest.

For the past 4 months, i've hardly had any symptoms on the pred - apart from extreme thirst - but last night was ther first time i thought - this must be the pred!

Dildoos yes I googled fertility/pregnancy ones. The other thing I am not sure I mentioned is that it also really helps just having someone to talk to when I am there as its not one of those things you just drop into convo with everyone day to day!

Hope - Its so hard not to worry but as Trying said perhaps a trip to the EPU might help? Everything you have had (blood/scans) to date have been good and the pred does mask things (I even double checked the breast tenderness with louise...she said it can mask it all!) also dr google will tell you so many symptoms fluctuate! I also asked the same question to Louise about cyclogest holding onto things if they went wrong and she said not really...(and she was right in my case). Thinking of you and sending positivity :)

Sunny what day of pred are you on? I always found about day 7 was when everything kicked in including thirst!

Free - what a difference a year makes :) I am so excited for you but understand how you must feel about not being real until it is actually real! It such a shame that us RM's have to live with that anxiety throughout pregnancy...

x

Hope-sorry little one is poorly. It must be So so hard being worried and sickly and lookin after a little one too. Last time I was on cyclogest I started spotting and had a scan the day after. So I did spot. Try stay strong! U had a great scan a week ago and ur on the best treatment. I wish I could fast fwd time for u!

Sunny-I'm awake up day 7 of the pred too. But I've taken a break from pred and aspirin this month as was sick of them both! I'll go back on them next month and then ask Louise what to do as will be on month 6 of ttc.

Free-I imagine the whole of preg makes us lot anxious. I imagine even after trimester one ur more aware and worries of every twinge. Ur so near the end now and will have ur second little one for Xmas! Well done for enduring the last 9 months!

I'm testing on Monday. I hate testing and getting a negative test though. I convince myself maybe it will be postive in a few days and feel more upset when af comes. But seeing as I'm off the pred I prob should so can get going quickly.

Hope when did u get ur postive?

Free - wow, you are so close now. How long will you have to be in hospital after the section? Will you end up having to be in the hospital on Christmas day? Well either way you will be having lovely cuddles on Christmas day. Is the filming you did re miscarriage going ahead or has it been shelved? Hope you are taking these last couple of weeks easy, and enjoying the pre-Christmas excitement with your little lad.

Yeah I can't say the whole pregnancy after miscarriage thing is much fun - or the whole pregnancy with a toddler! It's an endurance test with, hopefully, a happy ending.

Hello willitbe, hope you are well! Filming definitely still going ahead - only held up by meeting and trying to flog it.

Thanks all! Thank goodness for this thread! I do still have proper nausea so hoping that is a good sign. It goes away when I eat so feels like morning sickness.
Trying, I got a majorly faint BFP on day 10. To the point that DH could barely see it. I was a bit worried it was an evap line and think it only came up after five mins. Two days later it was really noticeable though. I really didn't think I was pregnant prior to that though!
In some ways it is hard dealing with all this while looking after DS but mainly because I just want to be the best mummy possible to him. In other ways, of course, he makes it so much easier. I am so thankful for him. I just hope I can give him the sister he really wants! It is always a sister! Never going to stop counting my blessings that we were able to have him though!
So hoping for more BFPs for everyone this month!

Free, I just saw your message about symptoms coming and going. Made me feel loads better! I am just finding it hard to know where I am with this pregnancy as it feels different to all of the other ones, including the one with DS. I have less pain overall although still the odd twinge or dull ache in my uterus area. Sickness is probably worse than it has ever been at this stage and boobs haven't been sore for two days, well a tiny bit sore but that could be all the prodding!
You must be exhausted! I had preeclampsia with DS and could barely walk across the room during the last two weeks. I couldn't wait for him to be born and then he arrived and woke up every two hours without fail! There is nothing that takes the shine off a newborn like sleep deprivation. It is like nothing else I've ever experienced! Hope you are managing some rest!

Aw bless ur DH wanting a sister. I'm sure one day u will give him a sibling and hopefully it will be in 7 months time. :) The naseau is good sign. also all pregnancies are diff even. My no. 2 I had no sore boobs and that pregnancy was going along perfectly until week 9. While number one I had sore boobs 13dpo but I was naive and didn't think it was a sign of pregnancy as had just started trying...I wish I could go back to being naive and just having sex and missing ur af and realising ur preg at week 5/6!

So I think I'll test day 11 then. So Tuesday
Off to acupuncture!
U have nearly got through to end of wed so not long till scan.
X

Oh Trying, would be so fab if this is your month! You could always take the pred on day ten as a precaution and then test on day 11.
Good to hear about your different symptoms too. I remember with DS my symptoms did come and go a bit. I just can't remember how much... I just remember googling it!
I hope the acupuncture goes really well. I swear by it!

Ohhhh!!! I have trush! I've never had it before...do u think it might stop me from getting pregnant? Or am I being mad?! I didn't have it during ovulation time...

Could be a sign trying!!! Bacterial changes downstairs? X here's hoping! No I two t stop you getting pregnant.
How are you feeling hope?
Free not long to go now!! X

I'm only 6dpo. my
dh reminded me i had it 4 months ago prob due to the pred. But it went but now is back! Just worried its been lurking and stopping me getting preg.

I wouldn't use a suppository to cure it maybe call gp and ask advice on it? Or maybe mr s?

I've got canestan. Sure it will shift it. Just annoyed incase it means it stopping me getting preg. Websites say no but that can Change ph so make it a bit more difficult.
Anyways I'll get rid of it and hope for next month!

Hi, honeysucklejasmine

I am not sure if I am classified as Lupus patient.

After recurrent miscarriages, my GP referred me to Dr. Shehata three months ago in Epsom hospital, 10 mins drive from my home.

The blood tests showed ANA, anti ds DNA antibody, anti SSA(Ro) were positive. The medicines Dr. Shehata prescribed for me are Aspirin, Hydroxychloroquine, Prednisolone, Fragmin and Cyclogest pessary.

Thank you for the info TWNgirl. I really need to hear from the hospital asap about another appointment! (They cancelled my upcoming one)

Just delurking to say, honeysucklejasmine Mr S prescribes hydroxychloroquine as an extra way of calming down high natural killer cells (when prednisolone alone doesn't seem to be enough) so although I know nothing about lupus specifically, it sounds as though your being on hydroxy already should help. free knows more about hydroxy than I do as she was put on it before I was.

Af has arrived with a vengeance, on a positive ovulation will be Christmas Day