Immune/natural killer cell treatment when TTC or pregnant (aka the 14th pred thread)

[sunnyday01]

Continuing from 13th thread

Hello ladies,
Thank you all so much for your support recently.
Sunny- sorry to hear about your worries at the moment. I am hoping that the brown blood stays this way and stops as brown is usually nothing to worry about. ( fro. The lady who had 9 months period and now has gorgeous daughter at the end so red didn't mean much in this pregnancy either.) speak with louise tomorrow am sure she will be able to give you good advise.
Trying thanks for your thoughts on the NK cells- I have googled and googled and researched in library and determind if you could ask Dr s at your appointment if there is time what his thoughts are in the Nk cells fluctuating between pred and no pred I would be truly grateful but if no time it's really ok I will try and type a simple? Email to ask louise (poor love trying to decipher what I mean!)
I am now going to have a good read through thread as glimpsed over and I am never any good at retaining everyones info and worries at once ( I swear I was male in a former life) .
For me I am day 17, nothing to report 3rd acupuncture session tomorrow. 4 pred left this cycle to complete 3rd cycle of pred.
Feelings: absolutely nothing???? Probably settled as settled can be for now!
However weird AF type pains since Friday? (Day 15) Ovulation maybe?
DP and I went to at night at the races with my sister and husband and my daddy and his wonderful wife last night! We can safely say betting is NOT my strongest point and I had absolutely no idea about greyhounds. I just wanted to go and stroke them all! Ha ha oh deary me.

Anyway Hi to you all x

Hi dildoos. Glad u had a nice day out! Hope ur feeling better?

Determined when is ur appt? I hope
Mr s is supportive and answers all ur questions. I found he speaks so quick! I hope the fog is lifting. A lot
Of Women on reccurent miscarriage thread have sucess with prof quenby. She gives clexane not asprin and starts progesterone earlier. She does her nk diagnosis via uterine biopsy (prob a more realible method via blood test tbh). Something to look into along with nduke and gorgy?

Sunny-hope ur holding up ok. Let us know what Louise says. Hope ur taking it easy and trying to stay positive.

Hope I hope ur ok! Thinking of u and ur growing bump.

Hula i hope ur period behaves! Are u using ovulation sticks? And r u trying the pred again?

Hi rosa and mackoo and anyone else I've forgotten sorry!

So girls, any advice about diet? I know determined has read into it? I've done a quick look but how much evidence is there? I've gone teetotal (previously having a few drinks during af for last 6 months which is really nothing but DH decided to stop totally so I'm joining in with him!) and given up caffine (for last 1yr!). (Life is fun?!) Now I'm doing low gi (but prob every third day having a few biccies or piece Of Cake but ow sticking it to well,
Prob shouldn't be doing that but I have a sweet tooth) . Anything else I can do with diet? Taking 1200mg fish oil and vit d Too. Also going to start yoga and had a 1.5 month break with acupuncture but going back on it next week. (Not that it's helped me get preg!)

Sadly my bleeding got a lot heavier last night and I had strong period pain type cramps in the night, with clotting this morning so think it's highly likely I've had/having a mc.

I'm heartbroken and angry, I can't understand why it's happened exactly the same as before - it's like the treatment has made no difference at all.

:( I'm so so sorry sunny. It's utterly crap. I hope ur DH is ok.

Just rem there's always a chance of chromosomal problems which the meds can't help.

I hope u haven't gone to work and are being kind to urself

Thanks trying. Louise said there could be many reasons not just immune issues but I am finding it hard that all 3 miscarriages have happened exactly the same and within the same few days each time. I've got to stop the steroids, progesterone and asprin now but carry on with my vitamins. She also suggested going to the local epu but I'm not sure I can be bothered - may just do a pregnancy test instead.

I'm off work today - I can't face people asking if I had a nice weekend but I actually find once I've had the mc I'm a lot better than I was whilst I was bleeding - it's like relief that I haven't got all that anxiety anymore. I'll see how I feel tomorrow but I like to get back to some kind of normality.

Planning on keeping my feet up today and watching telly!

That's a good idea. Do whatever makes u feel better. :(
It's so so hard,
It never made me feel any better but-even off all treatment ur chance of a sucess next time is still really high. And u got preg again. (These things didn't help when my husband said them to me but I do take comfort in them now(minus the preg part which hasn't happened yet).

Oh sunny its just not fair. So sorry. Think you should add a big bar of chocolate to the sofa and telly plan. I know what you mean about the relief when it finally happens even tho it s not the outcome you wanted the anxiety and limbo beforehand is horrible.

I think that being able to endure such difficulties is a sign of ultimately what amazing mums you ll all be when you do finally get to hold your LO in your arms.

Take care of yourself. Sending lots of hugs.

Dildoos I thought u might want to know I'm off on a spa day now!

Sunny, hugs to you my love this is just awful for you. I thought once you were diagnosed miracles happen? It appears I was so very wrong, have you thought any on your next steps?

Determind how are you doing now?

Trying- delighted you have gone for a spa day! Envious or what? Have you had some treatments? I bet you feel very relaxed now hey?

I had acupuncture needles in for 25 minutes which has been the longest so far but she stayed in the room with me so no time to close my eyes and drift away but it was apparently because she went deeper with needles and apparently spleen pulse was the strongest which was a good thing I was told. So very pleased with this.
Hello hula, Mac, and Sue x

Thanks hula and dildoos, this forum is a god send!

I really thought the hurdle would be getting pregnant and then I would be sorted - I really didn't think I would have another mc, I know there are other reasons for mc which can happen but it hadn't crossed my mind that I would be that unlucky.

We have an appt next week with mr s so will be interested to see what he says but I want to get cracking ASAP. The one positive I can take this is that I got pregnant again. Although I'm scared it may take ages again. I wish there was so e way of knowing when it was all going to happen and actually get a baby - the whole unknown time bit is so hard.

Yes sunny I know what you mean.
I have been re readin zita wests book for the 100th time and her first paragraph is do you visualise yourself with a child because if you do you will get a child! So visualisation helps I think! I am going to try this positive visualisation for next 2 weeks xx

Alright ladies...there's been so much on the thread so apols if I miss anything! (long post alert).

Firstly Sunny I am so sorry to hear your news. So sad :( Having had a very early one end of Nov/Dec time followed by another this week too (just short of 7 weeks) I know exactly how you are feeling - heartbroken, angry, frustrated, upset, confused, grief, disbelief, why me you name it I have/am feeling it. All I can say is that with each day that passes it gets a little bit easier and the pain is less, it will never go away but it is easier to function. 3/4 days ago I thought the fog would never lift! (probably no pred is helping!!)

I also thought when I saw Dr S he had a the answer...all I needed to do was get pregnant and take my tablets and boom - gorgeous baby born 9 mths later! I think our 'magic formula' needs some tweaking and I too am going to quiz Dr S on Thursday!! Am a girl on a mission I can tell you!! There are so many positive stories (this week) and Sue Mays was one that will always give you hope and drive to keep going :) xxxxx I hope you and DH are looking after each other and you have enjoyed plenty of rubbish TV, chick flicks and chocolate :) xxxx

Hula - saw you mention Wobenzyme!? I too came across it but completely did not understand it. It sounded a bit scary to me but that's my tiny brain! Are you thinking of trying it?

Dildoos - Love that your spleen pulse is strong :) I never knew needles went deeper!? Your acu sounds great. Could that be a good sign for a BFP? My old acu lady (just gone on maternity - the irony :)) could by my pulses tell if there was a bfp. (she didn't actually say but I remember one time she said is there any chance and I said no (wrong timing) and it turns out I was). She also however knows when my pulses were weak which they were last week :( Anyway, have enquired about a new acu as that was the last treatment with my last lady - ended on a high note ha ha!

Will deffo as DR S about the NK cells too. Glad you had a good evening out this weekend too.

Trying - ohh jealous about the spa. I hope you are all relaxed now? :)

Diet wise it seems like you are doing a lot already. and thanks Sue Mays for the tips. I generally tend to be decaff now and have to eat a low GI diet for the pcos and metformin. (If I have to much sugar I can feel a bit weird on the met). Alcohol I can't have loads on met either (I learnt the hard way at a wedding a made a fool of myself and took 5 days to recover!!). Whoops! I will say however that im not sure alcohol impacts BFPs for me. I think because when I do drink I am generally happier, more relaxed and chilled out - he he I also cut out gluten because their is a big link between hashimotos/thyroid antibodies (mine are really high) and gluten and I know some ladies cut out diary but I haven't gone that far yet. I also juice and have a nutribullet so try and get as much nutrition that way rather than supplements. When I ever get to the end of my books (they are super complicated talks around TH1's and 2's I should pout together a synopsis of it all!

I hope everyone else is doing well (rosa, mackoo, hope and anyone I have missed!)
xxxxxxxx

Determined your post has summedup exactly how I am feeling! Will be interesting to see what dr s says to you this week and me next week!

That's very interesting determind, did she know by pulses? Wow they are clever! Yes I know she said I am going deeper today, maybe as my 3rd time she felt I could take it? I don't know xx

So many of your comments resonated with me Sunny! Shame it is just over such a horrible situation.

Sort of yes, she didn't say but both times I had bfp before I knew (before I had to know at 10dpo) she said is there a chance or there is a chance you may be preggo (although i don't think acus can t are allowed to really say exactly-you are preggo...and not sure how true but the pulse also determines the sex of the baby and also if it is twins!) Not sure if its hocus pocus or not but if you google it you will see so many stories

That's a lot of info they can tell which is weird someone knowing you more than yourself.

Good luck with your Dr s visits determind and sunny. Are you writing your questions and thoughts down as not to miss anything? Xx

So sorry Sunny... Thinking of you and hoping you can put this crappy time behind you quickly.. But of course don't rush it.. I found it helpful to be proactive with planning next steps but also had many days not moving from my bed or couch.

Dildoos I think there's def something in visualisation. I went to a fertility hypnotherapist with hundreds of pics on her wall of babies she'd helped arrive after my first miscarriage. I am thinking should go back as didn't finish it as was hard to get to and fell pregnant. I then spent all my money on accu bad tests etc. I do remember her saying after one session where she asked me to visualise myself with my baby in a black and white picture and then slowly add the colour and other sensations .. I had to describe details... She said after the hynosis that 'maybe I want a baby more than I think'. I thought that was so weird as she said she thought my subconscious wasn't sure.. But deep down I did as she saw my smile through that session and look calm. Going to try it more.. It's cheap, easy vas everything is worth a shot right?
Hi everyone else. Trying - VERY jealous. I'd kill for a spa break. X

Yes I have a huge list of questions (and requests for more tests!) xxx

Definitely worth a shot-That sounds awesome rosa! I think I'd love to try something like that!

They say athletes visualise winning and then do so I don't see why that logic wouldn't apply to beating rmc's!! It's all about the power of the mind a positivity!!

X

Rosa and dildoos my acupuncturists has told me about that too. I might try picture it for a few mins every night before bed. Not sure what to picture? I actually find imaging me with a bump the hardest. I don't ever imagine being 30 weeks
Preg? It feels like an impossible hill to climb. Sigh.

Sunny-hope u had a really lazy day and feeling ready to see mr s with all ur questions. Are u going back to work? Lots More hugs to u.

Determined how r u feeling? Are u back? Again, look after urself.
the weeks back to Reality are so hard and sad. saying hi to people and smiling when actually u want to look up stories on mumset of women who got preg successfully after miscarriages. U keep going with the wine-To be fair my first bfp was conceived month 2 of trying on a drunken night! So I don't know why I've cut It out. It's just to feel
Empowered that we do it. I can't stop diary though I love my decaf latte! U sound fighting and ready for ur appt and to try again. As ur name says-determined!

Spa was lovely! Except my friend asked "how I was". She doesn't usually ask as knows I don't like to discuss it. She's one of 2 friends who know. I don't know why it left me rattled. I think it's because outside my home I prefer to not to think about it and pretend it all hasnt happen. (In the house I talk about
It to DH everyday!) I said "I'm fine, shall we go for a Swim" (!)

Oh I wish we could fast fwd 5 years!

Still not decided wot to do with the bloody pred!!

Sorry everyone about my terrible spelling- on phone and auto-incorrects!
Determined- I think there's so much in it.. Just wish had tried before.
Trying - I'm off pred again but in hydroxy. But I've really high levels.. Prob need to be on pred. Just need time to get head round decision on SO and my life.. Want to be sure and commit to a plan and not regret anything as 16 months to 40..

Meant to add- I'm the same. Only some people can ask and only at the right time.. Otherwise my precious 'up days' are derailed .. Not easy for us or our friends!

Trying I know what you mean about being preggo...it seems so impossible to imagine that bump and being nearly there. That said I do often see myself and DH bringing home a baby, in our house we are in now and I see us being in the kitchen and lounge etc...maybe it's me looking after my nieces or nephews or a friends baby! Ha ha!

I fly back tomorrow. Seems weird I left preg and fly back not (I almost feel like it never even happened which is probably a good thing) I may feel differently when I am working on Wednesday! I don't know. I'm am just grateful I got to enjoy the 2nd half of my hols even if the 1st half was pants!! I do feel a lot better though and I am on a mission for some answers!!

I know what u mean about drinking although drinking red wine has a really powerful antioxidant called reservatrol-did I mention it before? Helps with egg quality I believe!?

I am glad you enjoyed the spa! Has your friend got children or ttc? i only speak about it with certain friends too and very often it's quite a difficult subject to come up! It's so hard! ;(

What Cd are you on?

Yes I must apologise too. Spelling grammar and sentences are appalling! Hopefully you understand what I am saying ;)