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Immune/natural killer cell treatment when TTC or pregnant (aka the 14th pred thread)

993 replies

sunnyday01 · 29/11/2014 13:57

Continuing from 13th thread

OP posts:
Tryingno1 · 17/01/2015 11:47

What a stupid thing to say!!!!!!!!!! At least u would know what the problem was would help psychologically , then u would lnow u had a 50/50 chance. and also in USA they do PGD with ivf for it (I hear rates no better than we have) but still ) What idiots
Yes I did mean determined. Shehata will do them if u push but he said he doesn't do it as routine.
Have a lovely holiday (if u can!) u deserve after everything. Try switch off and recharge

Determined123 · 17/01/2015 12:00

My thoughts entirely! And if Pgd is the way it's the way (or sadly if there is no way) but at least we know the score rather than going through all the heart ache emotionally and drugs which I hate.

Thank you...can't wait! Just got to get packing now Smile xx

Tryingno1 · 17/01/2015 12:11

Yeah! Shehata will do it for u I'm sure
Have fun! Hope it's somewhere warmer than here!

Hula2 · 17/01/2015 12:52

Dildoos - i m on day 4 so just waiting to see what happens now. I m like you in that i feel i can give this another six months and then we need to stop. It can get so all consuming and i m so grateful i have my ds that i don t want to spend all his early years taken up by ttc but also not quite ready yet to accept that he ll be an only child, it s just soooo hard.

Trying - yes i am obviously really sensitive to the pred, not sure where that leaves me for using it from ov. I probably should nt be surprised as breastfeeding even just twice daily stopped my periods for nearly two years.

Determinded - have a great hol. You really deserve a break.

suemays · 20/01/2015 08:08

Hello ladies just to let you know we had our little boy at 2.07am after a very painful birth with just gas/air and a tens machine. He weighed in at 7lb 2 and we are both fine. I'm lucky I didn't need any stitches so will be going home later today.
Never give up on your dream as I am another success story that it can happen even after 10 miscarriages and a medical termination at 20 weeks over 5 years. I had everyone telling me to give up including my family and DH so listen to your instincts and keep strong even when you feel like giving up! I truly believe you will all get there whichever route you end up taking xxx

Iggi999 · 20/01/2015 08:18

Sue!!!!!! FlowersFlowersSmile

freelancegirl · 20/01/2015 10:25

Checking in to see if Sue had posted and you have!! I'm so so pleased for you, especially having seen everything you've gone through here. Am sitting here wiping away a tear (stuck to the sofa with my own, and second, Pred baby) for you. Hurrah for hard drugs and medical miracles :)

Tryingno1 · 20/01/2015 10:34

Thanks for ur story sue. What a wonderful end to what sounds like a though journey and well done for being so brave! I can't imagine going through all that
Enjoy every second with ur miracle
X

hi girls hope all well? Hope have u had ur 12 week appt yet? Sunny did u get the sperm results back? U must be getting ready for ur last SO?

sunnyday01 · 20/01/2015 16:58

Hi - sorry i've been AWOL it was DH birthday over weekend, plus work is crazy busy at the moment so working longer hours so hopefully ill get time to check in towards the end of this week/at the weekend!

Haven't got DH result sback yet but its only been 4 working days so hopefully be back at end of this week.

OP posts:
Hula2 · 20/01/2015 18:06

Thanks for your inspiring story Sue and many congrats on your little one. Amazing you managed to stay determined and overcome such adversity and so deserving to finally have your beautiful bubba in your arms. Really helps to know it can happen. I hope you can relax now and enjoy every precious moment !

Rosa27 · 20/01/2015 19:40

Congrats Sue!! Lovely news and I'm only a few months into this treatment so can only imagine how tenacious and strong you must be .. But how very happy you must now be. I bet you can't quite believe it. It does sounds like you can get there if you're tough enough.. I so hope I am.. I fear I'd not last as long as you did - well I suppose that's one good think about being 39 this year.. I don't have that long.
It's just so nice to know that people who so badly want a child to love can get there... Enjoy every second!!

Hope - thinking of you.. Be great to hear from you too. I went to your accu lady last week and again tomorrow so hoping she can work her magic on me..
Hi everyone else. Hope everyone is feeling positive and smiling more than not x

Determined123 · 21/01/2015 08:27

Massive congrats Sue Flowers - you did it!! Grin Its so inspiring and helps us to see it really can happen if you want it bad enough. (bringing a little tear to my eye right now). Enjoy every second and huge congrats again!

Hope everyone else on the board is doing well?

Hugs
xx

Hopender · 21/01/2015 13:29

Huge congratulations Sue! A lovely little boy. Well done sticking to gas and air too. You are a super woman! I hope I'm as tough as you when the time comes! I had my 12 week scan on Monday and all is looking good. The harmony test results came back good too. I didn't realise but the test was also able to tell us gender. We are also having a little boy! I am going to be thoroughly outnumbered at home but couldn't be happier. Next scan is in two weeks so will find out about the genetic issue for sure then but the person scanning me said that it looked like everything was ok.
Rosa so glad to hear you went to see Fiona! I am excited to see if it does the trick. I really think she helped me to get pregnant. I took the herbs too but stopped 10dpo.
Determined how are feeling? I wrote a post to you a few days ago but it seems to have disappeared! I just wanted to send you a hug and say not to lose hope. I was 100% that I had miscarried but all was well. I hope you have been able to relax on holiday.
Hope everyone else is doing well too. Thinking of you all, xxx

Tryingno1 · 21/01/2015 14:35

Hey girls!
Determined how r u?? I hope u not been peeing on any more sticks while u been away?? Any spotting or cramping? I hope the bean is staying put for u. When is ur appt with mr s?

Hope that's lovely! How exciting! U will be outnumbered! Glad things r going so well for u!

Rosa-how r u finding the acu? I haven't had a session in a while need to get back into the swing

I'm ok, loosing hope I will ever get preg again naturally. Also feeling a bit bored and irritated at the whole ttc. I don't know wot else I can do. I feel like ive given up desperatley trying as im tired of it all. For now I wait for ovulation this weekend and see what happens in a few weeks time. I'm very undecided about the pred-mr s says the nk may be stopping us getting preg, but so many women seem to struggle getting preg on the pred?! (Even u hope, without nk got preg once u were off the pred!) What to do!!!!! Any advice? I might do this month by the book and then if no luck completly stay of it.

Tryingno1 · 21/01/2015 14:38

Determined anything come up in ur book???
I'm trying to cut out cake and biscuits and eat a high protein but also balanced diet. It's not really happening :( feeling guilty I can't control my food intake! I'm good for a few days but just had 2 biscuits and a fondat fancy!

Determined123 · 21/01/2015 15:24

Ahh hope a little boy! That's amazing and also that everything is going well! I am so pleased! Thanks for the note (even though I didn't see it ;)) really means a lot to have the support.

Unfortunately the miscarriage started yesterday. I knew deep down it was coming so glad it started without sounding grim. Just need it over with so I can get some closure but if I am honest I am pretty heart broken right now. I have done everything to the letter and more, my diet was amazing, the treatments, supplements, the medications, lifestyle, less stress and I got no further along than without it all. I have my appointment next Thursday but just don't know what can be done (am on complex programme). I feel at a loss ;(

Trying I haven't done much reading these past few days (bad headaches) but as soon as I have I will be here with some notes ;) promise xxxx

Tryingno1 · 21/01/2015 15:27

Oh determined I was so hoping it would work for u this time. I'm so so sorry. U must be devastated. But there's so many postive stories on here. I'm sure u will be one too one day, u just have to keep going as we all do. It's such a hard road, but stay determined like ur name says. It will come one day.

I truely so sorry, I hope ur DH doing ok too.

Maybe this was a one off chromosomal error?

Lots of hugs cxx

Determined123 · 21/01/2015 15:38

Thanks Trying I will...I think I just need time. I will bounce back I am sure and back on it in no time (I hope). DH is ever positive (almost too much unless he is in denial I don't know?!)

Yeah that's my worry...all of them are so consistent I.e very early! Either my immune system is super super strong or our genes just don't work together! Only more tests will tell! For now I am forgetting diet and going to have a couple of drinks! I think I deserve it ;)

Xxx

Tryingno1 · 21/01/2015 15:41

Yes! Have a lot of drinks! Just forget it all and then take a break and recharge. Ur still young and have many years for it to eventually work out. It's just so so hard. My DH is positive too-not sure why! I'm terrified of getting preg again and it failing, but also want to be preg again. Either way it's stressful and horrid.

Hopefully in a few years time we will be there. Just keep rem those positive stories.

dildoos · 21/01/2015 16:11

Determind- so sorry for yours and DH loss. No words can make you feel better right now, please take comfort in that we are here to help you through next part of your journey. SadThanks Take care of yourself. Xx

Determined123 · 21/01/2015 17:42

Thank you so so much! That's very kind xxx

dildoos · 21/01/2015 18:55

I just feel so sad when I hear my unseen friends have had such a rubbish time, it makes me feel so sad. I guess when you can relate to the pain and grieving of our journeys it just makes you feel sad for each other. I hope you are looking after you and DH is talking about his loss too. I often find a good rom com chocolate and a cheeky wine helps a little with loads of cuddles for each other xx

Hopender · 21/01/2015 20:10

I am so so sorry Determined. That is just the worst news. I was so hoping that things would work out for you this time. I don't understand why life has to be so cruel. I got your message when I was in the car and I had to pull over for a second to catch my breath. I just think we all want it to work out for each other so much. Now is the time for wine and chocolate and other nice things but I really know that you will get there. I found SueMays' story so inspirational earlier on and hopefully that helped you too. In the meantime I'm sending you the biggest hug in the world.
Hope everyone else is doing ok. Trying, I just know you will get pregnant soon. Not sure about the pred. It never sat easy with me taking it from ovulation but it is hard to know if it causes a problem getting pregnant or not. So many people have success taking it. I think part of my problem was that so much had become about trying for a baby in my life and the pred made that worse somehow. On the other hand, I don't have NK cells and I had reason to think if I was cutting out gluten then that might be enough for a pregnancy to take hold. It is so hard! In some ways I worried about the aspirin stopping me get pregnant more. Aarg, why are there so many difficult decisions on top of everything else! Xx

Hula2 · 21/01/2015 20:33

Determined - so so sorry, life can be so unfair sometimes Sad. Virtual hugs.

Tryingno1 · 21/01/2015 21:35

My feelings exactly hope. I welled up a bit when I read ur post. I know we haven't met but I genuinely felt that sadness for u. Prob because I can imagine how u must be feeling and the desperation your having. We have all been there in our own way

Hope ur pissed and enjoying time with DH!!! It will happen for u, just going to be a long and bumpy journey.