TTC or pregnancy on prednisolone or similar part 13

[VillageMum]

This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Hopender- no I'm not on SO programme. Last 3 times taken me 1-5
Months to get preg so I suppose I don't need it. But as usual I'm now convincing myself I'll never get preg! Agh!
Sunny day- I saw the article too. It have me hope and also despair at the thought of having to go through that many before I might get my baby! But I suppose we are under mr shehata already so all fingers crossed. Also with u for the pre Xmas bfp I'm hoping the same!
Rosa-I think me shehata would have offered u SO if he thought you needed it he didn't offer it to me either but I've seen a lot of his patients have this. U prob had ur fsh levels checked as routine miscarriage screen as its part of the pcos diagnosis which they usually check for quite early on.
Hope the 3 of u and any others out there get their lucky bfp in the next few days! I've booked another holiday to try keep myself busy until next af so I don't mope around feeling sorry for myself!

Sunny day-I'm in the same position as u. Everyone around me preg or having a baby. It's so hard as friendships change and you try to be strong but it does get harder. We just have to keep going. My acupunturist says as long as your strong in ur mind, and u keep going it WILL happen just not when and how you want. But it will. I reg repeat that to myself!

Day 10 for me today so I did the test (even though I said I wouldn't) and it is BFN. I have been having bad cramps for a week - has this happened to anyone else? - so I didn't expect a positive exactly, but it still feels rubbish. Combined with my AMH results, it just makes me worry. I think I will retest tomorrow morning and if nothing I will stop the pred. With my DS I had a faint positive at 10dpo so even though I know it could well be too early I just don't think this is my month.
Hope the pred is going ok Rosa. I have been wondering if my worse-than-usual cramps have been related to it. They started on day seven and have been pretty constant since then. Are you sleeping ok? I would love to start it from a BFP but I think I will give it three months and then reappraise. I also wonder about taking the aspirin from BFP. The NHS doctors always told me to take it from then as it can interfere with implantation. I do trust Dr S more than them though and he says it will help implantation. So much conflicting advice!
Re your questions my DH hasn't had the sperm fragmentation test either but I had The FSH through my GP on the advice of Dr S. My FSH was 6.something which I think is ok-ish. It has never taken me more than five months to conceive either and earlier this year I had back to back miscarriages without a period inbetween so I think I am still fertile, it just seems to be getting harder to get pregnant than it once was. I asked about the Super Ovulation programme because I was hoping it might speed things up. Dr S told me I didn't need it but that I could come back to it if I wasn't pregnant in two months. One month to go...thanks for pointing out the Daily Mail story. I love positive stories!
Sunny I completely know what you mean about preferring to think you aren't pregnant than to keep hoping. The highs and lows just feel rubbish and I guess it is more sensible to put positive energy into preparing for next month. I am going to call the acupuncturist as soon as her clinic opens! My DH will have a fit as he thinks it is a load of rubbish but it can't do any harm and it might help!
Trying I can completely relate to that feeling that the BFP will never happen. I think I am basically shoehorning Dr S into the super ovulation but I can't take the wait, particularly if there is a risk that it ends in another miscarriage. Strangely the not getting pregnant makes me fee as low as the miscarriages. Years seem to be going past pretty quickly at the moment! My acupuncturist says the same as you about keeping faith that it will happen, as did the nurses in the early pregnancy unit. They told me that if people persevere then for the vast majority it works out. A lot of people give up after six of seven miscarriages apparently, but in their experience the people that continue tend to go on to have babies. I hope that will be the case for all of us.
Sorry for the super long post but wanted to get back to everybody! Hope all doing well! Off to have a busy day now and to try not to think about babies!

Meant to say, a lot of my friends are pregnant or have new babies too. I can admit here that it makes me feel horrible! I try so hard to be excited and massively positive about it in front of them but the energy it takes to get you there is exhausting. My sister-in-law had a baby at the same time as our second DS was due and they rang a week before their baby was born to ask if they could use the same name that we gave our little boy that died. Luckily my DH answered the phone as I just don't think I could have found the words to explain how that made me feel. They didn't mean anything by it but are just incredibly wrapped up in their own world. I think I must've done a good job at showing them that I was ok with everything or otherwise they surely wouldn't have asked. My husband mumbled something along the lines that he was sure it was fine but he cried when he got off the phone. Luckily the baby was a girl but I will always remember that they did that. You don't expect people to make it better for you but it would just be great if they didn't make it worse!

Oh gosh hopender about ur SIL. People do the strangest things I think people don't realise the grief post miscarriage...my SIL went into labour the same day I was having my medical management for my 2nd miscarriage. 2 days later I went to see her and the baby and I've never cried so much in my life. My DH family didn't know I was preg and that we had miscarried that time so I also did a great job hiding it. It felt like the most cruel timing! Sad thing is my nephew now reminds me of the anniversary of that miscarriage (I got to week 9 and saw a heartbeat so was heartbroken). Sory about ur bfn I've never had a postive till day 13-so until af comes always hope.

I'm having the same worries about the asprin and steriods! I really can't decide! I don't want either to hinder my chances but I don't want another miscarriage!! I spent some time reading the precious threads and some women did start pred on a bfp either under quenby or as they forgot/were not ttc. Most were fine...I think I'm going to omit the asprin as I'm getting a million bruises! And I feel that my uterus must be too! But I'll take the pred....

Month after night stop the pred too. If I'm not preg after 6 months of trying ill go and see him and see if I need a hand. But I'm hoping my fertility hasn't suddenly dropped and I'm still fairly young so although I'm impatient I suppose I have time on my side.

Have good weekends.

Hi ladies I'm doing super ovulation this month on gonal f, I had it prev for several months. My amh is low so it looks like ivf for us next. I've been under mr s and now dr gorgy after 5 mc. It's so hard as you all say about "everyone" being preg. I have someone at work who sneezes and conceives and is 20 weeks now :(
Good luck to you all. I'm not on aspirin anymore I'm on clexane x

Hopender I'm sorry I just thought-did you have a later loss? I misread your message. If so I'm so sorry that must have been so difficult and even more inconsiderate of ur sil. What were they thinking?!im glad they had a daughter. People so shock me sometimes....

If anyone sees the anti aspirin consultants (until a bfp) could they ask why? Or does anyone know? The reading I've done shows it can help/or not help. But no reduced rates of pregnancy unless I've missed it. Some ivf clinics use it pre bfp too.
Such conflicting advice! Yet I've decided to maybe stop it incase it's going to stop me getting a bfp?! So confused!

That whole name thing I'd awful and inconsiderate too. Glad fir you they had a girl.

I'm going to test again on Tuesday which would be 14dpo - I'm worrying that I may be pregnant and not taking the steroids!

In terms if conflicting information, I personally feel reading too much makes me confused and unsure of what I 'should' be doing for the best. Based on the information I have, I believe dr s plan will work for me, maybe in a years time if no success then I may have to look at why but I think if I start questioning what I'm doing now and why, it makes me doubt things (and then obsessed with what I should be doing otherwise). Hope that sort of makes some sense!!

Thanks for your lovely messages! I think you are right Trying, people do the strangest things. I'm so sorry for what you have been through too. Life is just incredibly cruel sometimes. By nine weeks I know you start to hope that everything is going to be ok so it must have been incredibly hard.We have had six miscarriages in total and last year I lost a little boy when I was six months pregnant. He had a chromosonal problem which we found out about shortly before he died. I was able to hold him and say goodbye. We put the memory box the hospital gave us in the attic and we haven't been able to look at it yet but we will do one day when we are stronger.
The reason he died isn't related to the miscarriages so if he had been healthy then the pregnancy would have survived. So out of eight pregnancies I have had six failed due to the immunological issues and two would have been ok. It is quite worrying that I am still hoping that is an ok-ish success rate! This is the first time I've had any treatment.
Re the aspirin, one doctor told me it could cause a problem with implantation but there is a lot of evidence that suggests the opposite. I think I will stick with it for another few months at least. I feel like I want to give Dr S' plan a real go.
It is so great you have age on your side Trying. I'm sure you will get there. In some ways if feel like age is one of my biggest challenges now.
I know what you mean about the worrying you might be pregnant and not taking the pred rosa! I ended up drinking loads of wine last night to get over the BFN and bit paranoid now. I will test tomorrow again I reckon. Probably won't happen for me this month but you never know!
I hope the super ovulation goes well mel! Do you mind me asking what your AMH level is? Is there a level when they suggest IVF? How are you finding Mr Gorgy. I know somebody that had a baby after ten miscarriages through him.
Hi to everyone else!

Hopender so sorry how awful for you :(
My amh is 2.2 well it was over a year ago :/ no Idea what's recommended for ivf he said not to ttc for a year but by feb it will of been but can't afford ivf sooner :(
Thanks for the hope about dr g. I felt v down when it seemed dr s didn't work for me but maybe he would of eventually who knows. Dr g is ok abit hard to understand and doesn't give much away you have to write everything town but I felt I needed more testing which he offers x
Good luck to you all x

I feel age is against me too as my daughters nearly 20 and my mum is 80, I'm nearing 40 and hubby 44. It's taken me 18 months for me to concieve before and yet other times I can be preg 2 in a year but feel I can't wait now. It's always been hanging on to the preg that's been the difficulty :(

I keep feeling really dizzy and sick rap in the evenings - wonder if it's the pred withdrawal!

Sunny-have u done a hpt? After ten days pred you prob wouldn't get many withdrawal symptoms I wouldn't think. Lets hope u have some
Good news. (Although I was sick on wed did a hpt negative and then thurs af came-so so mean! ESP as the only time I've ever been sick is when preg)

Mel-there's plenty of women on here in their 40s with sucess stories - keep going and keep everything crossed I suppose. I don't know much about amh-but at least your under a super specialist and doing everything you can.

Hopender-I'm sorry to hear of that loss. I'm hoping your sticky bean is round the corner. Your def right to give the plan 100percent and follow it fully. I'm 30 so have time but I have no dc yet and have been ready for 2 years and still waiting! It's scary to think of a life without the family
I wanted. I always wanted 3, now I'll be grateful if I can just have one. Funny life is!
Hope there's some good news this week from one of you!

I did a hpt yesterday (sunday) and it was negative again, will take another tomorrow. Haven't got any other symptoms though so think prengnancy is unlikely this month. Just want AF to turn up so I can get started on month 2!

Your similar in age to me trying, i'm 32 and we have been trying for a baby for nearly 2 years - in some ways it has gone quickly and in other ways it feels like forever, especially as friends have been getting pregnant and having children in that time. I'm an only child and I always wanted at least 2 children, but like you I'd be happy with just one at the moment.

Ladies, I wouldn't worry too much about low amh levels unless you are going for ivf. It just means that the lower your amh the harder it will be for your body to respond to the drugs and produce enough eggs. My amh was 0.57 eighteen months ago and I tried ivf but it was cancelled due to poor response. Since then I have conceived once naturally (but lost it at 9 weeks) and am now 23 weeks pregnant on the first round of super ovulation at the age of 42. It only takes one good egg!

For those who don't know me I have one dd and then have suffered 10 miscarriages since plus a medical termination at 22 weeks for an unrelated miscarriage problem. I agree that only those who are determined to carry on will eventually succeed. I was advised to switch aspirin to clexane once I got a bfp as was told it can interfere with implantation (zita west clinic). I changed from mr shehata to zita west as his protocol of steroids from ovulation messed up my cycles.

suemays - thats amazing news. how wonderful. well done for having the strength to keep going - thats amazing too!

sunnydays - I've been trying for 18 months now. it does drag. although i rem the day i got my coil out like it was yesterday i was so happy and naive! I'm bored of TTC weeks - i get obssed with when we should DTD and i know in 4 months if I'm not prey I'm going to be crazy worried. currently am keeping a lid on as only been 2 months so i can't complain. ..lets hope its our turn soon! hope af turns up tmrw/or not for ages!

sunnyday - when you saw st marty i saw they mentioned to loose some weight - do you know what BMI they think is ok? i presume under 25? I'm just on 25 and trying to loose more but its hard work!

Just wanted to say hello to the new ladies on this thread, and that I hope you all have success soon.

Sue did ZW give you a reason why they believe aspirin interferes with implantation? This one is vexing me too...

I have been tracking your news Sue and was excited to hear about your pregnancy! Funnily enough I was thinking, before your announcement the other week, that you had gone strangely quiet. We are not too far behind each other! I am now 26 weeks.

trying I am in the overweight category - BMW is just over 30 so I think the fact your at 25 is probably nothing to worry about!

Congratulations sue - I've seen various posts from various threads I've read and it's so nice to hear you are having a successful pregnancy - hope the last few weeks go ok for you - it just shows if you keep going it can happen!

Oh and forgot to say - think AF is starting as had quite a bit of spotting today.

village ZW didn't say why aspirin interfered with implantation but I was happy to switch to clexane. I switched back to aspirin at 12 weeks.

free its funny we are only a few weeks apart. Do you know what you are having?

I hope everyone else reads the success stories on here to spur them on - it's helped me over the last 4 years of TTC.

I think with bmi its advised to be under 30 as otherwise your hormone levels can be effected making conceiving harder.

I haven't found out this time yet, no. Have you? I didn't with DS either but it's tempting to with this one just as it might be more practical. But on the other and I'm not sure because I already know the date - being that I will have another CS so maybe it might be nice to leave it as a surprise.

I'm dithering still as at the 20 week scan we got them to put it in a sealed envelope so we still have the option to find out and it's quite tempting!

Did you find out this time?

Waves to everyone else - so nice to have new people on here. So many people disappear as they're all off looking after babies!