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TTC or pregnancy on prednisolone or similar part 12

999 replies

teamdozie · 24/12/2013 17:42

This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

OP posts:
suemays · 10/01/2014 14:19

village yes you are more susceptible to catching bugs whilst on preds so try to avoid ill people! I always catch colds whilst on the steroids.

teamdozie · 10/01/2014 16:14

Hi Village dare I say I'm fine thanks! A bit of cramping now and again today but nothing major!

Re the roids! It's funny you should mention that! My mother in law is coming to stay this weekend and she had the flu this week! So I said if she would go and see her elderly farther then she would be well enough to come over! But I will be soooooo cross if she gives it to me!

Although a few weeks ago DH had a cold and I didn't get it!

Touch wood! Lol

How are you feeling? Wen do you have to test?

Xx

OP posts:
teamdozie · 10/01/2014 16:19

When even sorry

OP posts:
VillageMum · 10/01/2014 16:32

Thanks Sue and Team. I can see myself getting majorly neurotic about staying well now, as every second person I meet seems to be ill! But then ttc is such a weird time anyway...

Team I always have cramping until about 5 weeks as the embryo makes itself comfortable! If your MIL had the flu earlier this week and is up and about again she shouldn't be contagious any more, fingers crossed! I'll only be testing next weekend, still ages away.

bakingtins · 10/01/2014 17:38

luna thinking of you today. Hope your op went smoothly.

remember nice to see you here

to everyone else.

Remembermyname · 10/01/2014 17:53

Hi all smee hope you're doing our

luna hope today went ok

village and team I didn't notice it so much on the steroids but caught flu for the first time in years - I hadnt even had a cold in recent memory, so I think pregnancy does lower those NK cells..

I had cramping too - I think it's your ligaments stretching ant making room and as village says, the embryo tucking itself in!

brownstag · 10/01/2014 18:15

Village, Mr S told me that you're not really any more likely to get infections; I have never found any difference myself so I wouldn't worry too much about it. I didn't get any illnesses when I took them for the first trimester with my DS and I've also resisted the many bugs that have been around over the last few weeks despite being on steroids.
I did have drowsiness on the steroids incidentally but assumed that was pregnancy not the steroids. Can't remember if it started before I was actually pregnant, i.e from ovulation, or not.
Well, this is my 5th day of a positive ovulation test. Bordering on polycystic ovary syndrome due to DHEA methinks ...

willitbe · 10/01/2014 18:36

I am 5 weeks today, and it feels so so far from any first goal to hit. I have my first hospital appt on Monday, to sort out further prescription for pred, aspirin, heperin, progesterone and anything else they feel like throwing at me.

Smee I am wondering how you are doing?

VillageMum · 11/01/2014 14:28

Thanks remember and brown. I also believe that pregnancy can lower the NK cells - I fell ill as soon as I conceived DS (my first, didn't even know I had an NK cell issue back then) and spectacularly ill with DD (my only other successful pregnancy). In fact I'm certain that I only managed to have DD at all because my immune system crashed completely, exactly at that time. I had everything: rampant thrush, colds, recurrent flu, norovirus, even had a lymph node infection. Both sprogs were fine!

Brown, 5 days of positive OPKS - are you using the cheapie tests? I once had a bizarre run of seemingly positive results with those when the lines were dark for days but maybe not dark enough, and suspected in the end that I may not have ovulated that month. Re drowsiness: I'm leaning towards thinking it's caused by the Ovitrelle in my case. It's wearing off now, round about the time the Ovitrelle should be leaving the building.

Luna you're in my thoughts xx

Hello all the pregnant ladies, hoping you are managing to put your feet up this weekend and that stress levels are staying down! xx

cartoontrickster · 11/01/2014 19:51

hi ladies
just stopped by to tell you that my pred baby boy is here!
I was induced at 38wks due to my miscarriage history and baby being slightly small. he was born at 10.30pm on tues (7th) weighing 5lbs 9.
love and luck to all.

brownstag · 11/01/2014 20:22

Woo hoo! Congratulations Cartoon! Fantastic news. You've finally made it to the other side of pregnancy! (That's 5 years minus one day that my also slightly small pred boy (6lb) was born at 38 weeks!) xx

Buzzybee123 · 11/01/2014 20:28

Cartoon Congrats on your little boy :)

bakingtins · 12/01/2014 09:12

Congratulations Cartoon wonderful to hear he is here safely!

suemays · 12/01/2014 09:48

Well done cartoon enjoy those first few weeks with him!

MrsPixieMoo · 12/01/2014 16:19

Congratulations Cartoon that's lovely news.

VillageMum · 12/01/2014 17:32

Cartoon huge congratulations, love the success stories on this thread!

BrandNewIggi · 12/01/2014 18:08

Congratulations, Cartoon, fantastic news Smile

willitbe · 12/01/2014 20:07

Cartoon - congratulations on the birth of your special baby.

cleovera74 · 12/01/2014 22:21

Hi ladies!

I'm a newbie here and was interested looking through this thread as I found a few comments that weren't very reflective of the introductory post describing this as a 'positive thread for all those diagnosed with High or Very High NK Cells.'

I am sorry to hear about all your losses and experiences. Many congratulations to those who have been blessed with little angels as I was on my successful treatment with Dr S recently after 5 miscarriages! The stories I am hearing here are not resonating with me at all actually. I have had a brilliant experience with Dr S and I can't praise his work enough. He gave me hope when I had none, but was also realistic about my possibilities. He seemed to know what he was doing; and his treatment's success is a testament to that. I highly valued his opinions during our consultations (which were very welcoming and not in the slightest bit rude) and so I decided to recommend him to a few of my friends who had similar problems. I'm happy to say they all came back as happy as ever with their consultations and successful treatments and actually berated me for not telling them about Dr S sooner!

Personally, I would definitely stick with Dr S regardless of what is said on this post as I'm sure there must be a misunderstanding somewhere. He is definitely delivering any more babies I decide to have in the future!

Best wishes to all. X

BrandNewIggi · 12/01/2014 22:56

I'm really happy to hear that Cleo and I too have had no negative experiences with Mr S - but I think your post is very undermining of those who have had less pleasant encounters with him, and who have fertility issues more complex than his form of treatment tries to address. Why would you wish other women to stick with his protocol if it just isn't working?

I think I have "bog standard" auto-immune issues and he has given my body the help it needed to carry to term. But others have different issues and sometimes a different approach is required. People can speak their mind here, it's not a fan club.

cleovera74 · 12/01/2014 23:42

Hi BrandNewIggi,

I'm also happy to hear you too have had a pleasant experience with Dr S. I think you may have misunderstood me. I spoke for myself personally regarding my future pregnancies. Of course this is no fan page for a particular person but I felt like the comments did Dr S injustice, especially when my experience with him was far from what some were describing. Nonetheless, I bear in mind that others may have more complex issues than mine to treat but this wasn't a discussion of his capabilities but rather him as a person and I felt as though they weren't fair or representative of who he is in his consultations at all. I hope that clears it up for you Brand! :)

BrandNewIggi · 13/01/2014 00:00

But you can only speak for your own consultations. We all behave differently at different times. All you can say is that in your consultations with him, he was perfectly pleasant etc (as he was in mine) but you can't say he is like that with everyone, every day!

teamdozie · 13/01/2014 06:01

Morning everyone! Cartoon a huge congrats to you and your DH!! There is hope for us all!!

Village thanks for the info!

A quick update from me! I woke up this am to none other than bleeding! Deep reddish sorry TMI but no pain or cramps and no clots! So keeping everything crossed!

Think I'm going to call for a scan today! Didn't want to but DH is insisting! I'm hoping it's all magnified because of the aspirin and double dose heparin!

Xx

OP posts:
VillageMum · 13/01/2014 09:02

Team I'm thinking of you. Sounds as if your DH is trying everything to put your mind at rest. Did you manage to book your scan? xx

Arianrhod · 13/01/2014 09:49

cleo Welcome to the thread, and of course your opinion is just as valid as anyone else's. I would say though, to echo in part what iggi has said, that if you read through all of the threads in this chain (and there are 12 of them, we've been going for quite some time) that I don't think anyone here would really wish to "knock" Mr S - but some of us have had different experiences with him and there's no reason why their opinions aren't just as valid. For myself, as one of the 'long-termers' here (like iggi and free who originally started this whole thread chain), I would say although I deeply respect Mr S and indeed like him personally, he did not have the answers for me as my particular issues run deeper than he was prepared to test for or indeed treat. I am very glad to see that tests that I had to really push him to do after quite a while of seeing him, he now does offer, and treatment that he dismissed as irrelevant (that I need) he also now offers. It's a good sign when a consultant is willing to change his stance on things; unfortunately it was too late for me.

I remain on this thread as I have a genuine interest in everyone here and the problems they face, although I am no longer under Mr S's care. I do wish for myself that my own issues had come to light much earlier - as they would have done if Mr S had tested for all the things that others, such as Dr Gorgy, routinely do - but I still have a great respect for Mr S and his work, and I never found him to be in any way rude or abrupt. Having said that, it's over a year now since I've seen him, and perhaps things have changed.

Anyway, just to say that if you haven't read the whole 12 pages of discussions you may not realise the history of some of the ladies here and these all have a bearing on what is being said here. You shouldn't take the comments on this particular part 12 thread as stand-alone - but as I say, everyone's opinions are valid, as are everyone's individual experiences - and yours are just as welcome as everyone else's! I am so pleased that Mr S had the answer for you, and your friends are just as happy. We have all suffered on this nightmare journey, and it's always a joy to hear of someone for whom this nightmare has ended happily.