TTC or pregnancy on prednisolone or similar part 12

[teamdozie]

This is a positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Reading the above I am glad that when I last went to MR S he kind of made me choose to either go NHS or see him and as the NHS decided they would continue my prednisolone, I decided to continue this journey with them. I fully appreciate that Mr S has a very good protocol and is incredibly knowlesgable about this field and I do like him......but for me "bed side manner" is hugely important as I am so sensitive.

One false move and I am left in tears (not ideal I know) and I have to say that with NHS on this particular pregnancy the consultant I am seeing for MC is very kind. It makes sense for me not have conflicting information and to stick to one clear protocol, and also to use the same scanner if possible.

Charlie thinking of you. It's really hard waiting and not knowing how things will turn out.

Thanks to everyone who send such lovely messages when I was ill. I'm better, but feel absolutely exhausted. So much for second trimester energy surge.

Apart from being tired, all seems well.

Waves to all xx

Charlie I would have the intralipids! I know they aren't cheap but you don't want to be saying what if!! I know what you mean about sailing through! If only it was that easy!!
My heart is constantly in my throat!

Village thank you for the support! I've calmed down now! I'm seeing the consultant on the NHS on Monday! So I ask and see what she thinks!!

Tum I wish I could have all my treatment done on the NHS but they won't give me the IVIG. I'm getting everything g else from them though!
How are you?

Xxx

Hiya team I'm ok thanks. Today I am 13 weeks so officially moving not 2nd trimester.

I had my nuchal blood results thing and it was 1 in 1300 chance so I am fine with that. So now I am still very nervous. A few of my friends have fallen pregnant, or are already pregnant and I keep thinking dark thoughts like I am I going to lose and they will all be fine. But I have to try to be positive and the majority of the time I think I'm doing ok on that front.
I am past my personal 'date' of miscarriage so am reassured by that. Team, did you say that you had had a late miscarriage before? Apologies if I have that wrong. Xx how are you doing today?

Not = into

Charlie that's really stressful, I don't know what to suggest although I would probably hang the expense and have the intralipids anyway. I I know what's like to have a successful pregnancy on treatment and then go to miscarry so if the worst happens I am here to talk to.

So pleased to see we have second trimesters! I know you'll never relax but I was told by Mr S and the FMC that after my 12 week scan I had as much chance as any normal person of things going wrong. I have to say though I did find a Doppler helped me.

I've just had a letter from the hospital where I had my erpc and although it says please fine enclosed details of the analysis etc it doesn't enclose them! In the short however it does say it was 'a trisomy'. That all I know a the moment. It's my first analysis so feels a bit weird. I also worry now if I am prone to chromosomal problems or are these things quite common? It's new to me. I wasn't on treatment until about 6 weeks pregnant and thought I didn't catch it early enough but maybe the treatment would have actually worked if it was a viable baby.

Sorry about that free, but having had 2 confirmed trisomies at 34 no.13 and 37 yrs old no. 16 the other 4 pregnancies were a blighted ovum, a failed IVF (chromosonally
Checked and full treatment but just didn't stick either embryo after 5 wks) a chemical and inconclusive and 3 were on treatment programme so it is very likely an egg issue for me. They do say at 38 yrs old 80 per cent of our eggs are abnormal so you've got to expect some duffs in there at our age! Treatment for me is just a whynot chuck it in. Hope u more confident it try again now x

Free why didn't they include the details, gah how annoying - I hope they are going to send these through to you still. Sounds like indeed if the pregnancy was viable and not a trisomy it would have all been ok.

Charlie I agree, if you have the cash I would go for the intrapalids.

Free at what week did you use the doppler from? I am considering getting one but wondering which one is best. Any advice would be appreciated x

Thanks everyone for your encouragement to do the intralipids! I am going to do them tomorrow but just not going to get excited about this one. Doc said it was totally up to me whether I got them done but she said if it were her she would probably wait a week to see what happens. My concern is that if it's struggling due to NKC attack then it will need this boost of intralipids more than ever. I haven;t bothered retesting since I had my son so who knows - maybe they have shot up even more.

Free how annoying not to enclose those results but I suppose you have the basic information and if I were you I would be encouraged by that result as it seems that next time you have no reason to think that the treatment won't work. My doc said that they think two thirds of all miscarriages are chromosomal issues - hence why she said I was 'due' a chromosomal mc. She said it's possible you can even get a good egg and a good sperm but there can just be an error early on in the replication and then it's not going to work. I suppose if two thirds of all MC are due to this then maybe duggs figure of 80% bad eggs at 38 is right. Eeeek.

Tum Sounds like those results are great! I also found a doppler useful but did promise myself not to freak if I couldn't find the heartbeat. I bought this doppler a while ago and it seems ok. I have got heartbeats from around 8 or 9 weeks in the past ....after a lot of searching!

willitbe that's an amazing story about your DD measuring behind and then catching up so spectacularly! It just proves again how mysterious this process can be.

Mrs P glad you're starting to feel better.

team it will be interesting to see what measurement the NHS consultant gives you on Monday! Keep breathing deeply, all is going well!

Tum so glad all's going well for you too - those are excellent nuchal risk results.

free I believe that chromosomal problems are very common, and account for most of the one-off mcs other 'normal' women seem to have, so we can expect to have a few random mcs of this type too - it wouldn't necessarily mean that you personally are particularly prone to chromosomal issues. Hope you manage to get more details soon.

Charlie crossed posts! Interesting stats about chromosomal miscarriages! Really glad you're going to go for the intralipids, and so hope this pregnancy has a good outcome.

Tum that's great news about your results! I've not had mine back yet, so no news is good news? Reading your post about dark thoughts is like reading something I've written! It's so true! A friend is a few weeks behind me and I felt sick that it would work for her and not me!! I'm petrified every day! Yes I had a late loss at 20 weeks 2 years ago! So as much as it's been a struggle since to get past 7 weeks now I'm worried about the 20 weeks! I worry every week that it will go horribly wrong!
I was ok this morning! Seem to be having a bad evening though!

Free that's crap they didn't include the actual results! I'm not sure what's worse knowing that there was something wrong or having been told all was ok! But I hope this doesn't worry you!

Charlie glad you are going for it!

Village it will indeed be very interesting! I'm going with the NHS at the moment! Lol!

Xx

Team thats really sad about your 20 week loss - so sorry to read that. Hopefully time goes quickly so that you can get there quickly and uneventfully!

charlie hope your intrapalids go well tomorrow, when is your next scan did you say? Sending you loads of positive thoughts. Thanks for the doppler recommendation. I think I will need to invest, I can't go weeks without knowing the score.

Thanks everyone else for your kind words, yes I am very pleased with the nuchal results. I know loads of people that have much greater results like 1 in 10,000 but my results, 1 in 1,300 is fine by me. TBH so long as I get a happy baby out of all this I don't really mind what happens! Would be a dream come true whatever.

Tum mr s had that attitude too about nhs I felt a fool as though I'd made up the fact id seen a heartbeat, I showed him pics and he said you can't see the heart though?!
It's so difficult I'm lucky my doctor and rmc are quite supportive. It's so stressful.
Free that's annoying!! I've never actually had an results as they couldn't get any apparently which was difficult, I didn't even get any written confirmation, just that it happens so no answer after 6 mc apart from nk cells :/ my 16 week loss was no clearer.
Charlie fingers crossed for you, I know if it was me I'd want to try do all I can if possible, that's all we can do.
Well ladies previously been on 2 x 400 cyclogest at bfp, now first month on 1x 400 after ovulation. Period was due Thursday day 29, no sign at all. Neg first response on tue and fri so assuming it's the cyclogest delaying it?!
Mr gorgy requested I have a blood test and progesterone test so that will be back tues and in meantime I continue meds just in case.. Frustrating has anyone had this? If she's showing I just want to get on with my cycle!!Had 2 different postive ovulation tests ( one clear blue advanced) on feb 17th day 12 so even if ovulated day 15 surely something of some description would of happened by now!!

Just popping on quickly - just had a 7 week scan and saw strong heartbeat and baby measuring bang on for dates. Only had that once before with the trisomy 13 girl we lost at 12 wks so feeling cautiously hopeful seeing dr S on Thursday anyway so we will see. A long way to go... But it's a start. Hope u ok free?

Just popping on quickly - just had a 7 week scan and saw strong heartbeat and baby measuring bang on for dates. Only had that once before with the trisomy 13 girl we lost at 12 wks so feeling cautiously hopeful seeing dr S on Thursday anyway so we will see. A long way to go... But it's a start. Hope u ok free?

Yay duggs that is excellent news!

Duggs that's brilliant news! So pleased for you!

Having a really bad day today! Can't stop crying as I'm so worried it's all going to go wrong!

Think a doplpler might be the way forward?

Xx

Mel - progesterone delays my AF for two or three days when taken after ov. So could be the progesterone, but do test again just in case there is a better reason.

Duggs - great news on first scan.

Duggs!! That's brilliant. Oh gosh it's such a stressful time for you but a necessary step of course.

Team it is very hard to relax but it's looking great for you so far. A Doppler really helped me but I know can cause stress when you don't find the heartbeat! Luckily I found it every time although sown times it took some searching. Was it Iggi who didn't always find it an of course everything was fine.

Frustrating Mel. I can emphasise. I was a week late the month with no rhyme or reason.

I'm ok, confused as to what to think about the trisomy and looking forward to finding out more info from the hospital.

Duggs that is a very positive sign! a good a start as you can get.
Great to see some good news for Tum and Team (great names for twins!) and keeping everything crossed for Charlie's wee fighter.
Free you will not let me live my Doppler dilemmas down will you! It certainly gave me some hairy moments but I also heard the hb quite a lot. I think the feeling of lying down getting ready to use it was akin to that awful ore-scan feeling, which aggravated my anxiety a lot.
Free my third mc (the only ERPC I had and only one tested) had a trisomy, but our karotyping was fine ( I assume you've had that done along the way). Anyone can have a trisomy, I would try not to read anything bad into it.

Team I know you're not feeling good but it all sounds very positive to me. And it is worth all the bad feelings when it finally works never again though

duggs that all sounds positive. Keep up the good work

I've crumbled and ordered a Doppler, should arrive tomorrow. Will let you know how I get on x

duggs I was wondering how you got on - congratulations! That's just brilliant! I have everything crossed for you on Thurs.

I had my intralipids today but I just found out that last time they used something called 'Lipofundin' and this time Intralipid. They are telling me it;s the same thing but all I can say is it better bloody had be....

My next scan isn't for 2 weeks although I might cave in and book an earlier one if I need to.

Tum you need to promise yourself you won't stress if you can't find the heartbeat before you use it! If the placenta is in the way etc you probably won't get anything.