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Conception

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TTC/Pregnancy on Prednisolone or similar part 8

999 replies

Arianrhod · 11/06/2012 10:06

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 7 www.mumsnet.com/Talk/conception/1452035-TTC-Pregnancy-on-Prednisolone-or-similar-part-7

Part 6 www.mumsnet.com/Talk/conception/1419032-TTC-Pregnancy-on-Prednisolone-or-similar-part-6

Part 5 www.mumsnet.com/Talk/conception/1391787-TTC-Pregnancy-on-Prednisolone-or-similar-part-5

Part 4 www.mumsnet.com/Talk/conception/1366323-TTC-Pregnancy-on-Prednisolone-or-similar-part-4

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
GreenOlives · 02/07/2012 17:16

belly my HCG levels were done by NHS, my consultant is lovely and is doing all he can for me, Im very lucky. My lovely GP is also sorting my prescriptions after having a letter from said consultant saying he would be supporting Dr S's treatment plan on the NHS which is great. CB digitalmoving up is a great sign though and well done on the PMA, Im still very up and down, it seems almost impossible to believe that I may have another baby one day.

mercator · 02/07/2012 17:50

Congrats on reaching 20 wk mark pq

Lovely to hear from you snoopy glad to hear Things are going as well as can be expected. Often think of you so hopefully sending some positive energy your way.

free wow only 15 days to go that's amazing! Hope things settle down on the house front, stressful enough without an impending arrival. Will you be able to move prior to to the op and also has your lovely dh taken lots of time off to help you or if not do you have friends family who can rally round with support? Also suggest some freezer food or something similar to the cook shop if you have it for the 2 of you post the birth!

belly had a fab holiday thanks but this awful b...dy weather, will it ever stop raining. Ugh.

molly try not to worry about age I had mt first a month off my 40th and now this at 43 dare I say it. eek

sara welcome and not too worry about a binge. I didn't realise I was pg as tested and negative plus dh was away so thought I wsan't pg so did have a few glasses of the old vino.

free forgot to mention, yes booked in for another section on 14 Sept.

batteryhen · 02/07/2012 18:34

Hello everyone :)

Just checking in to say hello, and see how everyone is.

snoopy I am glad things seem to be going well for you. Do please keep dropping in to let us know how you are getting on x
sarah welcome - I hope you find lots of comfort and reassurance on this thread.
pq yay for a good 20 week scan. Did you find out the sex or are you having a surprise?
free. OMG not long now - are you excited??

I am feeling a bit annoyed for my friend. She had one MMC at 12 weeks about 3 years ago, she then had her DD. But since then she had had 3 further MC. She has at last been referred for tests etc, so she asked me what questions she should ask. I told her to ask about her immunity and killer cells, and if taking aspirin might also help etc. Basically she said the consultant just dismissed her out of hand completely. Said there is no evidence of steroids or aspirin working. I wish I had gone with her because I would have said 'I am evidence!!!'. She can't afford to be tested privately, and her consultant said if her results come back normal there is nothing more he can do.
Balls I say - he can refer her to st marys, and also offer her a HSG/hysteroscopy. I have lent her my Prof Regan book, and need to find my Dr Beer book. How infuriating.........even if there is no 'evidence' taking aspirin and pred does no harm so why not just prescribe and see???? Intersetingly he has given her progesteron suppositires for when she falls again...

Rant over.

I am now nearly 34 weeks, I actually think my bump is shrinking. I have the MW tomorrow so will ask! I am getting plenty of kicks and movements so I am not too worried.

Waves to all.

And kittens I didn't get a bfp till at least 12 DPo. Just saying ... :)

GreenOlives · 02/07/2012 18:48

P.s meant to say earlier great news on 20 week scan PQ thats a fab milestone to have ticked off!

sarahs999 · 02/07/2012 20:28

THank you all for making me feel so at home!

Well, the GP was a bit suss but he gave me the scrip. Only for ten days though Shock. When I said that I worked full time and was too busy to come back every 10 days he said that he would renew it once but that because it is an anticoagulant he can't put it on repeat prescription. Eh? Anyone else been told this kind of fluff? Anyway, it sees me through two more weeks with the stuff I have leftover from last time. I even broached the subject of double dosing as Shehata has suggested but he didn't really seem to care- he just wasnt giving me any more days!

Still, at least he said yes.

freelancegirl · 02/07/2012 22:42

Cross posts first time Sarah - I will be almost your neighbour so we will have to have tea and help each other through the mentalling. I have always been around the Greenwich area, PQ similiar, but when I move (mortgage nightmare excepting) it will be to sunny Deptford (St John's if you please...). Euro is pretty local to you I think too so not far away at all. Bummer about the GP not giving you any more - looks like you might have a battle on your hands. But hopefully he (she?) will come round with a bit of persuasion. Mine was confounded by my treatment but went along with everything I asked anyway! Which was a big relief.

Well done for 13 weeks Helter! I think you are teetering on the second trimester - I remember it being 13.4 or something...? Hurrah! Yes tapering is a bit scary but no-one so far has had any bad things happen to them when we have tapered - so that has to be good. I had a few Pred withdrawal side effects but just a few aching limbs and things and nothing we can't handle.

PQ I missed your scan news - too busy I was waxing lyrical about tea, weight and maternity clothes. Great news!!!

Good news on the tests going up BellyD, yes it does seem an age to wait for a scan but think of it as nice growing time for the bean. I remember trying to visualise and saying to myself 'Come on baby, grow!' over and over again. On the day before you have your scan I will be having a CS so I have the same weird count down where time seems slow but fast.

Baby might be changing position battery hence the feeling that the shape is chaning. Can't believe you are 34 weeks. I remember the stress with your early tests like they were a month ago. What a nightmare for your poor friend. Can she also ask for a referral to Mr S on the NHS at Epsom General? I did eventually get a referral for him there but was impatient and went privately before hand.

Nice to see you Merc. Did you have a nice holiday? Wow you have a date too, it feels weird doesn't it! DH is a very good organiser and also the cook in the house so we are taking a gamble and not making any pre-made food to freeze. It's become a big of an in-house joke as all advice has pointed to the fact that this is a very good thing to actually do in advance, so we will be intrigued to see whether he really won't be able to grab ten mins to knock up a dinner. Will feed back (ho, ho, ho) at a later date and let you know. We don't really have any friends or family around who can help - not locally anyway - but hopefully some can fly/drive/train it in.

I've been trying to write this for hours but kept getting distracted. Sooo hot this evening (I think that's me rather than the weather). AM lying on the couch like a big pregnant person, fanning myself with a bank statement and drinking ice cold water (something that seems to do a bit of Baby Bothering for some reason...).

mercator · 03/07/2012 09:32

Battery I was told pretty much the same by the obst I was hoping to deliver this baby - I think we forget how sceptical they all are and they probably absolutely hate people like us who perhaps have done rather more research than they on this particular issue. I had pretty much the same response from my GP when I told her as I mentioned that she should refer anyone else to Mr S who was going through a similar thing. (Maybe its the teaching to suck eggs sort of thing..)

Free I have an image of you now like a reclining greek goddess - not sure the bank statement goes with that image though ;-)

I wouldn't worry about the food thing I know my OH managed to get a xmas dinner for 3 on the table post my elcs first time round admittedly with a mother in law who drove him up the wall ;-) and we didn't do the precooked thing. Probably will get a couple of meals in this time just in case.

Hope you get the move sorted out quickly now.

sarahs999 · 03/07/2012 10:32

Wow, free, you really will be close! Would love to do a Pred ladies meetup sometime though I suspect you may have you hands rather full shortly! I do wonder how people ever found out anything specialised, or connected with anyone before the internet. I think women are particularly good at using it for things like this - to find similar people to share experiences with.

I am feeling a bit wibbly today. Boobs are much less sore and don't feel full or heavy. It's my eight year wedding anniversary so I'm trying to keep upbeat (we're going out for a meal at HEston Blumenthal's new restaurant tonight which I'm VERY excited about) but I just can't keep the downers away. It just seems too incredible that I might actually be carrying a brother or sister for my DS. I think I have become quite clinical about getting pg and learnt not to attach at all - in fact my mental connection between being pregnant and actually having a baby has completely collapsed! Being pregnant is now something of an occasional condition that means I can't drink for a while. How dreadful is that....

eurochick · 03/07/2012 12:20

Welcome sarah. I am another local - in Brockley. I was at the fertility unit at Lewisham before being referred on for IVF (of which more later). I'm in a slightly different position to most of the ladies on this thread in that I cannot get pregnant in the first place. I have a diagnosis of high NK cells and am also seeing Mr S. I've done 6 months of the Pred and not seen a BFP yet and am currently on a break from it.

Free how frustrating about your move. I hope they sort it out soon! I can't believe your baby will be here in 15 days! It's great that so many of you are so far along now.

I've had a bit of a rough time over the past couple of weeks. I have been downregging for IVF and had horrendous side effects from the drugs. Incredibly painful boobs for the first few days (to the extent that the pain would wake me up if I turned over in bed) and then pretty much every side effect on the list including night sweats, hot flushes, joint pains, difficulty sleeping and so on, with full on Black Dog depression as the icing on the cake. I've always reacted badly to hormonal drugs (including the Pill) so I wasn't expecting to sail through, but this was really something else! Anyway, we had our downreg scan yesterday and everything was shut down as it should be but then they said they couldn't start us on the next set of drugs until Saturday (to fit in with clinic timings), meaning I would have to stay on the downregging drugs for an extra week. Mr euro and I decided there was no way we could put me through that, so we decided to stop. They came back to us and said we could start on Wednesday instead but we had both felt so much relief at making the decision to stop that we are sticking with it.

So I am going to take a bit of time off ttc (this would be our 21st cycle without a break or hint of a BFP), have the additional immunology tests that Duggs had with Gorgy, have our 3rd IUI at NLC in a few months (we bought a package of 3) and then think about mild IVF (no downregging and lower doses of the stimms so shouldn't send me quite so loony) next year.

mollieboo · 03/07/2012 12:28

Hi girls, hope you're all well today. I am now 'ttc' after being diagnosed with high nk cells on Saturday. I am to have intralipid infusions every four weeks from 4-32 weeks of pregnancy, has anyone else had to do that too? Bit nervous but I know some of you are having the infusions and have said they're fine. Thanks for any advice...

Hi to everyone.

sarahs999 · 03/07/2012 14:04

Hi Mollieboo. Interesting that you are only 'high' nk cells but are having intralipid infusions. Are there other complicating factors?

And Eurochick, how exciting that you're in Brockley. But sorry about the crap time the drugs are giving you. Hope the break does you good.

I have just had a date through for my six week scan - 19 July. I should be 6+2 then so hopefully, if all is going well, there will be a heartbeat. Still seems a complete impossibility from this side of the goal!

Bertha337 · 03/07/2012 14:25

well, I've had my scan and it is great news!
I have a little beany heartbeat! I'm so pleased...but still going to take things one day at a time, so we are still being quite cautious.
The doctor thinks that I'm closer to 6.5 weeks, but is going to wait until my next scan in 2weeks time to do some more measurements and to provide a more accurate date.
This is such a relief! Yeah for my left tube! (I was completely convinced last night that I was having another ectopic)

I got loads of reassuring measurements. The CRL is 7, and the heartbeat is 121bpm. OH and thanks to all the ladies who helped out with the left sided pain. It was indeed my corpus luteum.

The doctor I am seeing for the early scans is the same doctor who told me that the steroid treatment and progesterone were a load of 'placebos' but despite the frown that she gave me when I told her that I opted to take them, she didn't say anything else. Which is great, because I quite like her. She did save my life in November, so for me it is a real reassurance to be in familiar hands.

battery I'm surprised that your friend's consultant is so narrow minded - I am angry about it as well! I only ended up at Mr. S at St. Heliers because one of my doctors had a patient who was having miscarriage after miscarriage and was being told over and over again that 'she was fine.' This doctor had the foresight to say to me 'skip your local hospital testing, lets go straight to this guy because I've seen first hand the success he's had...' Maybe your friend can back track and ask her GP to write to St. Heliers direct? It is part of the NHS, so a referral shouldn't be too hard...

Welcome Sarah and great news on your BFP, and I completely relate to the 'being pregnant is now something of an occasional condition' comment. Even today after such great news my OH today said 'so, we have a heart beat, that makes me soooo happy...but can we get excited yet - given your history and all...?' Sadly, I could only sigh and say 'well, lets just keep positive and get to 8 weeks, and then we can review where we are at...'

Good new on your levels green (by the way, my ectopic was in November of last year, so I feel like we are in parallel universes at the moment!).

euro - I hope the break helps. My grandmother was on drugs for years trying to conceive my dad, and the minute they decided it was all just too much and to pack it in, she fell pregnant naturally. Go Figure.

I feel slightly deserted by Mr. S right now. I contacted Lissa last week to tell her I was going to have my early scans at St. Thomas's as it is much easier for me to get to (I'm another south london girl - Elephant and Castle) and asked about how best to arrange my follow up visit to take bloods and check vitals and to get my next lot of drugs. She wrote back saying that maybe my GP could write the prescription and I should be in touch after 10 weeks. She also offered to leave a prescription at the reception for me if my GP wasn't going to help out. But what about all these warning about blood pressure and having the bloods tested again? Any advise? As happy as I am about everything that is occurring in my body, I'd like to know that the doctor prescribing the drugs is actually still interested in me! (or am I asking too much?)

oh, p.s.- just an update on the schedule thing. My info should say 1ectopic, and 2 miscarriages. And for those keeping track of age, I'm also over 35, sneaking in at the age of 36...

Hi to all the other ladies.

freelancegirl · 03/07/2012 14:46

Hello all, gosh this thread moves fast. Bertha that is excellent news on the heartbeat!! What a stress you must have had waiting for that scan. It's such a great step in the right direction, ticking off those milestone boxes.

I wouldn't worry about not seeing the clinic - there are very few of us who have had levels re-tested once on treatment. I went to Mr S for all the early scans (as well as doubling up at St Mary's) but if you have said you are going elsewhere for them they probably don't need to see you. Am sure he is still interested in your progress but if you're going for scans elsewhere there wouldn't be much else he would do. He did once tell me off for not going back to him for scans but it was a time when the scans weren't going well and I had another mc (no hb ever seen and sac that wasn't growing, so don't worry).

I will update your details on the list. Re age - I was wondering if we think it's relevant to add that to the list too?! I am 37 although will turn 38 on the official due date for this pregnancy so secretly pleased I am having a CS at 39 weeks and will still be 37 when I have a baby :)

Great you have a scan date now Sarah. And yes, amazing that we are so close. I am in Charlton at the moment but looking forward to moving closer to the action :) I know what you mean about not associating being pregnant with having a baby. I think this is why it feels especially weird now I am on the two week countdown. I haven't had a baby before and not sure what to do with it Confused. My mum asked me if I was excited and/or nervous earlier and I said yes, putting aside fears and disbelief that this will actually happen and assuming I am going to have a baby in a couple of weeks, yes I am both excited and nervous! It's a shame that those of us who have been through this can't just have that innocent excitement about being pregnant: 'hey, I'm going to have a baby'!

Mollie I think I forgot to remark on your prescription for intralipids until 32 weeks. I haven't heard of that before! It's great that they are trying something different for you, particularly in the light of what happened with your baby. How are you feeling with the diagnosis? It must be great to finally have some answers and a plan of treatment. Don't be nervous about the intralipids. It does feel a bit odd, especially if like me you have never had a drip in the arm before, but overall it is painless and just a weird way to pass a few hours - sitting in a private clinic in Surrey wired up to a drip when technically you're not ill! There is something quite soothing about it also as you just have to sit there and relax. I always took some nice magazines and things to nibble on to keep me occupied. Oh and kept my mobile with me so I could chat to everyone here.

Euro the reaction to the downregging sounds awful. No wonder you want to give it a rest for a while. I too have heard of plenty of people trying everything and then having a break and it all happening naturally, but either way it is good to give your body and emotions a break and have some time. Try to enjoy life without the meds and do lots of things to make you happy!

Merc I AM indeed a greek goddess... albeit a very large one in the belly department. Ok, we are going to fly solo WITHOUT frozen meals. I will let you know how we get on :)

Had a midwife appointment with my GP again this morning. All ok and bump measuring to size even if the baby was still measuring as a whopper at last scan. She was really accepting when I told her about the CS thing. In fact everyone I've encountered has been really cool about it - I was worry (from some of the things I read on here in 'Childbirth' etc) that people would be judging me. But it seems medication practitioners 'get it' that after what we've been through a lot of people with previous complications might choose this route.

freelancegirl · 03/07/2012 14:55

Mollie thanks for adding your details yesterday and changing to TTC! Bertha you have officially been moved up to the 1st trimester list. I know it's scary but it's such an amazing step. So glad to see more people getting pregnant and hoping we can move two more up on friday after Olives and Delta have scans.

Feel free to add/update if there is anything I missed. Today, at 37 weeks, is also the day when Charlie and I are officially classed as 'term'. Another milestone for the Pred Thread. Helter will officially be in the second trimester any day now too.

Haven't heard from both Choccy or Duggs for a while. Hope you're both well and all others who haven't been around too.

Tuesday 3rd July

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 ? 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs

BFP 3rd Trimester

Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle) heart stopped around 7-8 weeks, Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 37+0 wks CS 17/07/12
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 37+0 wks EDD 24/07/12
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 33+6
coleyoz - V High NKC. DC#2, BFP cycle2, 32+5
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 29+3
Mercator - V High NKC, DC#2 28+2 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks)
Hopefulfor2nd - High NKC - TTC#2. - 27+3
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 27+3

2nd Trimester

PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 22+6

1st Trimester

HelterSkelter (IVF and immune therapy) 13+1
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 10+2
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 6.5

BFPs awaiting 6 week scans

GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. Est 6.3 Scan Friday 6th July
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 6.3 Scan Friday 6th July
BellyD - V High NKC, MTHFR homo, TTC#1 cycle 2, hydroxychloroquine. Scan 18th July when will be est 7+3
sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin and cyclogest. Est 4.1. Scan 19th July

TTC ? ASSISTANCE - SO/IUI/IVF

EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w).
Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
duggs1976 - TTC#1 4 mcs all 7-12 weeks. High/V High NKC - TTC #1 - IVF cycle #1 ?pred, intrallipids, metformin, clexane, cylogest
Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -10 pred ? 3rd cycle SO
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),
eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine)
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, SO

TTC

London - High NKC, April - mc on treatment.
ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Carebear1 - V high NKC
Gransol - Seven mcs - all losses between 6 & 7 weeks
Mollieboo - 5 early mcs between 4 & 10 weeks, 1 premature birth (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest

Current status?

Cherrycheeks - V high NKC, TTC#2
Breezyweezy - V High NKC - TTC#1
AandRmum - High NKC
Cornflakes30 - V High NKC, underactive thyroid, 2 mcs on treatment?
Zoeella V.high NKC, Factor V Leiden. abandoned IVF, pos PCOS

mollieboo · 03/07/2012 15:50

bertha excellent news on your scan, v pleased for you.

charlie and free huge congrats on being term, I'm very pleased for you both (and very jealous!), how exciting!

Yes even though my nk cells are only high, not very high, I'm being treated quite aggressively in the 1st trimester then having a maintenance plan throughout the pregnancy because I had problems later in pregnancy with my son. Amazing to know I'll be having all that care. Its an 8 hour round trip to the clinic and back from my home in Wales so we'll be spending quite a few weekends in the Premier Inn in Epsom for my intralipids sessions! Thanks for the info, it sounds fine and I'll do whatever it takes. I'm so nervous about trying again but I assume everyone on here feels like that beforehand?...Great to have support on here though.

Arianrhod · 03/07/2012 16:00

free Just to say I've heard from choccy and while she is still around, she's staying away from the thread at the moment as she's trying to work through everything she's dealing with. She says she'll be back as soon as she is ok to chat again.

OP posts:
Havingkittens · 03/07/2012 16:00

bertha, are you seeing him at St Heliers? I started off seeing him there and am now sort of doing both NHS and private with him as I have to see him for the Super Ovulation in his private practice. On the NHS side, he said it would be absolutely fine to have my early scans at UCH (my local) and get them to send any information to him at St Heliers. Also, they originally sent the prescription recommendation to my GP so I could get him to prescribe the meds for me and also that any blood pressure checks etc could be done at my GP surgery too. Much better than traipsing all the way to Carshalton for either or those things. Unfortunately my GP won't prescribe the meds anymore as he said he'd prefer Mr S to be in control of everything (which I read to mean "I'd rather our PCT didn't have to pay for your expensive experiment" - but maybe that's just me being cynical!). Anyway, as you say, St Helier have said that they will leave a prescription for me at reception anytime I need more meds. So it seems pretty standard. I did get re-tested once but that was after I'd been on the pred for a good while and then had a 2 month break. I don't think they re-test that often.

Euro, I'm sorry this has turned out to be such a rollercoaster for you. It was a big decision for you in the first place. I only wish it could've gone a bit more smoothly. It will probably do you good to take a bit of time out though. It feels very strange not having to think about TTC but it's also a blessed relief in a lot of ways!

Talking of which, I'm wondering how choccy is. If you're lurking, I'm sending you a wave and a hug. And also to scooter too.

helterskelter, fantastic news on your nuchal results. I know all to well that fear!

We do seem to have an ever growing community of SE Londoners on this thread don't we? I think digi is the only one who lives anywhere near me.

free, I hope you get your moving issues sorted soon. Very frustrating!

Thanks for all your crossed fingers. I'm still none the wiser, I have to say. AF hasn't shown up yet. I was expecting it Sunday or Monday according to my usual cycles. Lots of cramps on Sunday and nothing since. Felt more like period cramps than implantation feelings I've had in the past. Negative HPT today, absolutely no PG symptoms. It could be that the Vitamin B12 that I added to my arsenal of supplements has lengthened my luteal phase, or that the Cyclogest has done that, or that the Progynova has held off my AF. Who knows Confused

GreenOlives · 03/07/2012 16:30

Sarah I completely "get" the disconnected feeling - it's self preservation I think. I've made a decision that if I get to 12 weeks and all is well I'm going to try my hardest to behave like a "normal" person and be optimistic! It's great you've got a scan date to look forward to and please try not to over analyse symptoms, they do come and go and the Pred does mask them so there are lots of variables. Happy anniversary, enjoy your meal out, sounds very nice indeed!

Euro So sorry to hear that the drugs made you feel so shitty. From the tone of your post you sound so relieved that it's all stopped for now and that is obviously the right thing for you and MrEuro Enjoy not TTC for a while, SFF instead of SWI is a novelty I'm looking forward to in the future!

Bertha Fabulous scan news! Grin We are indeed in parallel universes - my left tube is gone and I am very happy with my right tube for getting the egg to the right place!

Free and Charlie Huge congrats on reaching term!

Mollie I know nothing about intralipids I'm afraid but it sounds sensible to give them for longer bearing in mind your history. I hope that it won't be long before you get a BFP so the treatment can get started!

Kittens My implantation pains were exactly like AF pains - what tests are you using? Maybe try a First Response if you haven't already, that gave me a BFP at 12dpo which is the earliest I've ever had one (and I didn't test until 12dpo this time so maybe it would have showed something earlier IYSWIM?) I really hope there's a sneaky BFP waiting to creep up on you!

sarahs999 · 03/07/2012 16:49

Congrats Bertha. It must feel wonderful. So hope I'm going to be following you down that road in a couple of weeks.

And thanks greenolives, I am really looking forward to the meal. Although a bit gutted about not being able to have lovely wine with it... still, will keep the price down a bit! Will certainly have a couple of swigs from DH's glass when he's not looking...

GreenOlives · 03/07/2012 20:21

sarah Also meant to say earlier that as well as my own history I also have a skewed view of pregnancy because of my job. Im an A & E nurse and therefore see lots of pregnant women at work every day but obviously pregnant women only come to A & E when something is wrong! So even in my first very uncomplicated pregnancy I still used to drive my mum mad by assuming that it would go wrong because that was what I was used to seeing at wotk! In fact on Sunday at work I triaged 5 different women who all had bleeding and/or pain and that was just one shift! I just have to remind myself of the hundreds of other pregnant women who must be living locally and not having problems!

freelancegirl · 03/07/2012 21:40

Wow Olives I didn't know that's what you did for a living. It certainly must give you a different view point on things.

picolina123 · 04/07/2012 07:10

hi everyone, just lurking here and keeping up todate with how everybody is . continuing on accupuncture, herb drinks and mushroom capsules, chinese doc is trying to lengthen my cycle and my period by a couple of days, i got peak on my ovulation monitor and should tomm as well if its normal , would be day 13 and 14, im usually 11/12 , wonder if its her treatment or just one of those things .
anyone have any ideas on stress management , im going to try everything in the next few mths ! im still only working 4 hours a day which is great, i want to spend the afternoon on trying to calm my mind etc etc , chinese doc says worrying isnt good for body, esp when preg but i have no idea how not to! so maybe i can have some sort of system i can practice now, its hard not to about everything ,im such a stress head. im being retested for nk levels early oct, they do it every 6 mths.

helterskelter99 · 04/07/2012 08:43

Ahh lots of heartbeats that's fab news xx one day at a time is the only way to cope I think if I can wake up pregnant and go to bed still pregnant it's a good day lol xx

Picolina - I too am a bit of a stress head lol I had Zita West's Cds that are OK. Andrew Johnson has a number of apps on the app store - so had his relax, sleep and positivity ones... can't say they made it disappear but god knows what I would have been like without them lol

Havingkittens · 04/07/2012 09:46

Negative on a FRER this morning at 13dpo. That's not a good sign is it? Even if my AF is 3 days later than usual. Hmmmm, I wonder where my period is then? Round the corner I suspect given my string of negative tests.

There was a Groupon offer for a Lobster dinner in my emails this morning. I was considering buying it just to see if sod's law comes into play! I have just bought 3 new pairs of trousers to get the ball rolling.

mollieboo · 04/07/2012 11:30

Hi picolina, regarding relaxation, I have been going for reiki, also going to yoga classes has an amazing effect on me for calming the mind. I'm also going to buy a meditation cd to do at home too, will try Andrew Johnson as tried by helterskelter now then.

having kittens sorry to hear you got a bfn today.

Hi to everyone.