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Conception

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TTC after a miscarriage - Wishing everyone shed loads of love, luck and babydust xxxx

928 replies

Coathanger · 22/01/2006 17:57

Ahhhhh, thats better!

A nice, shiney new thread! All fast and efficient!

Heres hoping this thread brings more BFPs, keep everything crossed it does (except legs...don't be crossing your legs ladies!!)

oh and here it is

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OP posts:
kreamkrackers · 02/02/2006 17:01

thanks for that. forgot to put i think it's up to an individual family on how long they choose to bf for, i thought the nearly 8 year old was bad at first but i'm not sure now. the spanish woman that was forcing the child to have her milk knocked me for sick, i know it was fashinable in the old days to bf another mums child but the girl was too old by that point and clearly didn't want it.

Coathanger · 02/02/2006 17:22

KK- you gave it your best shot with DD. Of course ever one in ad ideal world should BF but there are exceptional cases and your is one of them. You did everything right by your DD But I'm plesed you have decided to try again with your new baby. And by chosig to do it in a predominently anti-BF community wil go some towards them seeing it as normal - it has to start somewhere!! Perhaps look into support groups in your area, ask your HV or MW!

OP posts:
going4potty · 02/02/2006 17:46

Hi you guys, you have all the interesting convos when i cant get to comp . Hope you all feeling ok. I didnt watch the programme, but bf till ds was 6 months would have loved to go to 1.5 - 2yrs but he wasnt that bothered, so i felt a bit upset, but went with it. 12 inch penis, my godd, the mind boggles and my eyes water. Been busy at work, but going to a lecture tonite, so hope i dont drop of.

Coathanger · 02/02/2006 18:40

Enjoy the lecture G4P!! hehee!! No falling asleep

So what everyone up to tonight?

OP posts:
Coathanger · 03/02/2006 08:06

WHERE IS EVERYONE?

I have never had to drag this thread from lower than a few threads down - it was abot 15 down on the conception board

Where are you all?

OP posts:
Coathanger · 03/02/2006 08:14

WHERE ARE YOU

????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????????

OP posts:
Coathanger · 03/02/2006 08:20

Right well, I know when I'm not wanted!! I know you are all ignoring me!

Hehee!! No, really I have to go to college now so I will chat later!

(I'll be able to tell if you all start chatting once I have gone! I have feelings you know!!)

OP posts:
diddle · 03/02/2006 08:20

I;m here!!!

So who's due for testing soon, we seem to ahve drfited from actually chatting about ttc now we're all so familiar with each other.

Come on who's next!!!!

mygirllolipop · 03/02/2006 09:01

Message withdrawn

diddle · 03/02/2006 09:09

Mygirl - sorry the old cow has visited you, how annoying. Hope your impetigo clears up soon, and i bet your mam will be thrilled to see you

FirstNikki · 03/02/2006 09:40

morning ladies,

mygirl hope impetigo clears soon

how is everyone looking forward to seeing some more testers in a few weeks...and hopefully some well deserved bfp's

the cold is rearing its ugly head just in time for the weekend - hooray

hope you a great day..

ch have a good day at college

kreamkrackers · 03/02/2006 09:48

i have a really nasty cold too. i couldn't take dd for her cardiac appointment today incase any child in the waiting area is due surgery next week. the next available appointment is 20th march. we've always had 6 weekly checkups and she hasn't had an appointment since 14th oct. i know not to worry as if we did need to see a doctor urgently we could do.

kreamkrackers · 03/02/2006 09:48

forgot to say morning everyone.

kreamkrackers · 03/02/2006 11:24

this made me cry. i think it's the combination of the music and the poem as well as the feeling that there is nothing i can do to fix my little girl, the poem is so true. the chromosone deletion it is on about is digeorge syndrome, not many people have heard about it yet it is one of the most common chromosone abnormalities. i'm lucky in a way that dd only has this chromosone abnormality but there are some children with digeorge syndrome that also have other chromosone abnormalities. sorry to go on about my dd but i just wanted to share it with all of you.

FirstNikki · 03/02/2006 11:54

oh kk what a sad poem really feel for you and your dd x

Piffle · 03/02/2006 13:25

KreamKracker my dd has Noonan Syndrome, one of the most common syndromes after Downs Syndrome.
We are lucky dd is only mildly affected
link belowI think it has many similarities with effects too?

here

kreamkrackers · 03/02/2006 14:54

sorry very long got a bit carried away
it does have many similarities. my dd's heart has a large hole between the top two chamber of the heart, a large hole between the bottom two chambers of the heart, a narrowed aortic, a narrowing of the pulmory arteries and a thickened valve on the right side of the heart. the doctors repaired it by widening the aorta and pulmory artory with shunts and the unique part of her heart operation is that they put a cow's jugular going from the right bottom part of her heart and it comes out near the top of the left of her heart to get it to go back through the lungs (this was a high risk operation which stopped her being put on the transplant list). she also has very noisy breathing, a cleft in the soft palate, poor muscle tone, learning difficulties, feeding difficulties include aspiration of thin liquids, severe gastric reflux, is peg fed, does take baby food but not much and still gags on lumps, very bad constipation (is on high fibre milk, high doses of lactulose and glycerrine supposeteries), she is small for her age although she is putting on weight and the doctors keep noting that her head is very small compared to height and weight (although i can't tell by looking at her), she has tags (like extra fingers but didn't develop properly) on both hands, she has to have irradiated blood given to her and non live vaccines at the moment due to the fact she might have a poor immune system and am sure there is other problems i can't think of right now. however, she is such a loving happy child who really doesn't care about all the things she goes through. she loves people and animals and seems happy to play and go out on walks. although it's hard to deal with having a child with all these problems i feel so blessed to have her. we don't carry the chromosone deletion ourselves so we are unlikely to have another child with digeorge syndrome. we didn't realise anything was wrong with dd until she was 3 days old, she seemed to be bf ok (although when alder hey found the cleft they told us she wasn't getting any milk). we had her home (she was born in liverpool womens hospital) and when we realised something wasn't right (she was very very tired, was gasping for breath and was very pale and cold) we called the mw out at 3 in the morning and she called an ambulance. the ambulance took us to warrington due to catchment area of were we live. we were in warrington aau (in a cubicle with dry blood on the floor) and the nurse wasn't happy that we brought her into that hospital when she was born in the women's hospital. she laughed to a doctor outside the cubicle that we were young parents who just didn't know how to latch a baby on to the breast. i had only had 2 hours sleep since giving birth but knew it was something else (her eyes had started rolling around to the back of her head at this point). we pointed out that she was found to have a heart murmour. a doctor came and said he couldn't hear any heart murmour but he wasn't a paediatician. we then were left waiting until 6.45 when we were taken to the children's ward. they took one look at dd and rushed us out the room, we seen loads of doctors going in. at this point i was thinking the worst had happened and was leaking milk which even changing my pads every 10 minutes wasn't helping as my top was soaked. i called my family to let them know what was going on. it felt like hours passed by but it must've only been an hour. the doctors came in and told us a team from alder hey was coming to collect her and asked me whether i wanted to see my dd. when i went in she was hooked up to loads of machines and they explained they didn't know whether she would make it. i thought the world was ending, i wanted to die. the team came and it took about 2 hours to move her into the incubator ready to go to alder hey. my dad was there by that point and when dd was taken away in the ambulance he managed to drive us to alder hey. when we got there (after 1) we waited in the icu waiting room for some news. the nurse brought us through to see dd and the doctor then explained about her heart and at the moment she is in multiple organ failure. we were asked if we wanted to get her christened. it took them two weeks to build her up for her operation (in which time the cardiac team went to birmingham and discussed doing this unique operation). we got her christened just before the operation. it only lasted 11 1/2 hours but it felt like a life time. she came out and it was very much touch and go again. she was so so cold (went down to 18celcius during operation and had to be warmed up very very slowly) and her chest was left open due to the swelling (although covered with a patch). she only had three chest drains put it but it was horrible to see them. slowly she got better. two weeks after surgery her chest was closed, a week later she was of the ventilatior and then she only spent 4 weeks in the cardiac ward before being allowed home. she has had one more open heart operation and she has had and will need more cardiac cathetre procedurees, but hopefully no more open heart surgery for 2 or 3 years. she has come through an awful lot and yet she is so happy. she is the only person who can put a smile on my face when i'm having a really bad day.

kreamkrackers · 03/02/2006 15:21

wow! that was very very long. i don't usually talk to people about what we've been through with dd as it hurts too much but i've just managed to write it down (although was crying whilst i wrote it). i forgot to explain that the reason it was three days for us to know there was something wrong was because although they found a heart murmour they are usually innocent murmours and dissapear although we would've had her heart scanned in a few weeks to double check. also every baby is born with a duct that closes so long after the birth, so amelia's blood was going through a hole and through this duct. her duct started to close and that's when she became ill. alder hey gave her drugs to keep this duct open. i would also like to say alder hey is a wonderful hospital and so is the ronald mcdonald house where we get to stay whilst dd is in hospital.

Piffle · 03/02/2006 17:02

my dd is Emilia- how old is your Amelia KK? My dd is 3.3 yrs
It sounds like you have really been through the mill, we were on rollercoaster of doctors, discussing open heart surgery (not needed as not as bad as first feared)
But the slow weight gain, the reflux, the gross motor stuff, all the things that you take fro granted with an NT child.
Even now when we consider her low intervention, in just one week, she has Sensory impairment assessment, ed psych assessment, portage, paed check up, fitting for orthotic shoes, speech therapy plus 2 sessions of nursery.
Her eyesight is probably her worst and most problematic problem, now and in the future.
Otherwise she is one amazing little bundle of fun and happiness.

FirstNikki · 03/02/2006 17:11

piffle and kk so sorry that your children have these conditions have you thought of creating a thread on the subject there could be other mothers out there who are in the same position? xx

hope everyone has a good weekend and plenty of bd'g for the next testing marathon

kreamkrackers · 03/02/2006 17:24

dd is 20 months. she has a portage worker who is really good at helping her as well as being there for me. she also has a physio therapist and speech therapist and gets assessed in our child development centre on a regular basis.

going4potty · 03/02/2006 17:31

Hello all, wow kk and piffle you guys are amazing, dealing with children with health problems on a daily basis is so tiring emotionally and physically. like nikki said maybe creating a thread to help other mums is something you might consider.

going4potty · 03/02/2006 17:34

oh by the way i will be on cycle day 28 on wednesday, which was the length of my cyle prior to the ectopic, so heres hoping I am going to resist testing until next weekend, but im getting some stomach/ back dull ache which usually indicates af coming in a few days

Coathanger · 03/02/2006 18:04

G4P - stay positive hun, and remember that AF symptoms and PG symptoms are very similar

How are you all today? Were you all avoiding me earlier???

OP posts:
pepperpots · 03/02/2006 18:10

evening ladies
G4P i am crossing my fingers for you hun xx
CH hows college going? are you teachers pet yet? xx
Havent had time for a long read of posts so if i missed anything im sorry will promise to have a read later when boys are in bed xx
Hope you all have a good weekend xx

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