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Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

TTC/Pregnancy on Prednisolone or similar part 5

999 replies

suemays · 25/01/2012 16:48

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 www.mumsnet.com/Talk/conception/1348773-TTC-pregnancy-on-Prednisolone-or-similar-part-3

Part 2 here www.mumsnet.com/Talk/conception/1323594-TTC-pregnancy-on-Prednisolone-or-similar-part-2

Part 1 here www.mumsnet.com/Talk/conception/1236324-TTC-pregnancy-on-Prednisolone-or-similar

OP posts:
suemays · 27/02/2012 09:25

snoopy that's strange as louise told me the intrallipids only support a pregnancy but they won't make a difference if it's due to fail. I would still get them booked in ASAP next time though. She might have just told me that to make me feel better when going through the chemical as I didn't have intrallipids in time.

OP posts:
Arianrhod · 27/02/2012 09:31

I'm with you on the verging on obsessed with eggs duggs, and I too read that piece of research with great interest - it's just a shame (for me personally) that any results will certainly come too late for those of us on this thread. But such fantastic news for all other women faced with fertility issues, I just hope they crack on and make a viable go of it.

Morning twin lemon ... interesting that you're on a different treatment plan, can you share why Mr S has you doing pred in the first trimester and intralipds in the second? Loving the Ford Cortina analogy - what has he recommended, if he feels your TSH is too high, has he put you on thyroxine? And how high is too high - I'm curious if he thinks your TSH is too high, yet still says you're not really hypothyroid? Did he say you were subclinical, do you recall?

stogan how are those BH coming along? So very excited that the first pred thread baby is almost here, Baby Stogan has a whole bunch of virtual aunties eagerly awaiting Baby's safe arrival! :)

Testing tomorrow, but not holding my breath - I don't think I've ever felt less pregnant in any of the cycles since I started this TTC. Ah well, at least I'll be able to sleep again from tomorrow, must look on the positive side!

sue you're testing Thursday, aren't you? Any twinges/indications yet??

Arianrhod · 27/02/2012 09:32

Crossed posts with sue, sorry!

Arianrhod · 27/02/2012 09:33

And a big welcome to zoe - doh, my brain is definitely frazzled from not sleeping properly. I don't know much about LIT treatment (except that it's out of my price range anyway!) but perhaps you can be our pioneering lady with that? :)

Arianrhod · 27/02/2012 09:36

And missed that bellyd is testing on Wed .. come on you ladies, at least one of us needs to get that magical strong second line this week! :)

Stogan · 27/02/2012 09:57

Morning all, still here !!!

Welcome to zoe Grin

Thanks ari ur comment really made me smile, the thought of my baby having all of u as its virtual aunties is so heart warming, oh god here come the tears again, how are my eyes not dried up ???? ! Smile

snoopygirl · 27/02/2012 09:59

that's what the Dr said to me sue but he does seem to have varying treatment plans for some. I sure there's a reason for that. When I went to Florida at Christmas he reiterated then that I mustn't try to conceive in case I got a bfp and needed Intralipids, so what I gather from that is that they were just as important for coating the cells to ward off attack as it were.
TBH this is all experimental to a certain extent anyway as with you he is trying you on the Hydroxy now and eg. like me asking him about taking the cyclogest from just after ov and he said yes try it. It's hard to know what to believe half the time as we are all analysing every little variance in the treatment. What works for some may not be relevant to others I spose we have just got to keep faith in this treatment as it's definitley working for a good number of us on here.

Welcome zoe! Sorry I can't help you with the LIT, someone may come along and be able to help you with that.

ari & Bellyd Fingers crossed x

freelancegirl · 27/02/2012 10:00

Oh I really want to reply properly but am on the phone again.

Pebbles, can't believe you were run over by a scooter! Glad it was funny rather than too painful!!

Was it duggs asking snout intralipids? yes ms s says 4, 8, 12 weeks and because I gave v high levels he hand me another dollop at 16 weeks.

Zoe! Great to have you with us, welcome to the thread. May I ask why you stopped seeing mr s the first tone round - was it because you didn't get pregnant do went on to ivf? Sp sorry to hear of your losses. I personally have ruled out the need for a uterine test. My theory is that yea it night say something different in terms of levels but that the treatment is probably the same anyway so if might not make much difference. I don't really know anything about LIT apart from what I have read in dr beer's book. When you see mr s again there is a good possibility he might put you on super ovulation, wr have a lot of experts on here about that now and there's also a super ovulation thread because there were getting so many of them. My old friend pebbles might be able to discuss the ivf etc with you too as I know she has tried both ivf and is now on super ov with high nk cells. Please stick around! You are in the right place for support :)

I have another theory about teachers which might also include lawyers, media types and others as we do seem to also have quite a few 'types' on here. Could it be that we are the ones who have FOUND treatment as we ate used to doing research, searching online for anything, trying to find solutions? And there night be plenty of other people out there who are struggling without finding anything or thinking about looking, beyond what conventional medicine and their gp tells them. A sort of 'volunteer bias' in research terms?

Coconut I think we are facing the same thing with property. there's just very little on the Market! (I hate that iPhone caps that!). What is on the Market is expensive. we are driving up from Brighton in a bit and starting to look in London. An estate agent told me that people are either just not moving or that they are buying a new place but not selling their old place being that interest rates are so low. So anyone who is already on the ladder it can be quite beneficial for, until you want to move. Technically we are those annoying people too as although we are selling dh's flat in Brighton we are renting my flat out in London so won't be putting anything on the Market locally to where we are buying.

Anyway, I digress...

Who mentioned Cyclogest? I always went with the front entrance rather than the back but I did get so sick of them smell of it, am sure some of you rrmnrt me going on about it! since stopping I have noticed my skin is a lot less greasy, actually it had gone really dry in places, and my constipation has eased! Apparently it is progesterone that slows down movement in the bowl dept.

Sorry fit any glaring errors or spelling mistakes or for not acknowledging everyone's posts! Good luck to all those SWI and due to test!! We will all be here for hand holding when the results start rolling in xxx

digitalgirl · 27/02/2012 13:03

Just popping in quickly to welcome Zoe and wish the testers good luck today.

Am 33 weeks today. DH got baby clothes and blankets down from the loft yesterday evening and we both got a little ready looking at the teeny tiny vests and socks. So so little. Washed and dried and in drawers. Started packing hospital bag so it's all starting to feel real now.

snoopygirl · 27/02/2012 13:32

Aahh digi that's lovely and it's going so fast. Your not far behind stogan!

I long for the day when I can empty our loft of DS's baby stuff. My husband is desparate to have a clear out in there and keeps moaning that stuff has got to go. But it's a waste when i may use it again Smile

Arianrhod · 27/02/2012 13:46

Wow digi, you're so close too ... that's two pred thread babies that are almost here. Absolutely fabulous, and so exciting!

I know what you mean snoopy, we too have a loft half-full of DD's stuff that I insist on keeping "just in case". Sadly I sold or gave away most of her baby stuff as I didn't know back then I would be trying for another a few years later, but I have boxes of baby toys and toddler clothes. I just hope I may get to use them again.

eurochick · 27/02/2012 14:05

free I think it was me mentioning Cyclogest. It is grim stuff. I am sticking with the front entrance for now as I have IBS and don't want to risk aggravating it. I've just started noticing constipation. I hadn't realised that was linked to the progesterone. Everything slows down for me a bit normally at this point in my cycle anyway (which I guess is probably my body's own progesterone at work).

digi that's really exciting!

digitalgirl · 27/02/2012 14:48

meant to say we both got a little 'teary' not 'ready' - stupid iPhone auto-correct.

Yes, got so much stuff in the loft that we've been hanging onto in the hope that we'll get to use it again. Next to come down is the moses basket and cot. I think I may get rid of my maternity clothes afterwards though. Even if we do decide to have another I think I might be happy to buy some more...but the thought of having them in the wardrobe 'just in case' would be too tempting I think.

coconuts happy to plug away for you and any others in the South East, his website is perfectfitkitchens.co.uk and we're on facebook if you look up perfect fit kitchens. Need to add a lot more photos to FB (guess which one is our kitchen!) and tweak the web-site because it's too wordy at the moment. But this is all stuff I'm hoping to do while on ML (in between juggling baby and DS - ha!).

zoeella · 27/02/2012 14:58

Hi Ladies,
Thanks for the warm welcome! Freelance: I decided to go to see Dr Gorgy privatly to have the full Chicago immune tests as wanted to see the whole picture. He diagnosed v.low lad and high uterine NKs I had x3 Lit treatments and humira we spent approx 4k in preparation for my NHS funded IVF, which was cancelled so a waste of money! Don't think I want to try that again as my LAD results are back to v.low again! And thought I could try Dr Shehatas protocol instead maybe we should hav done this is the 1st place but thought the LIT could really make a difference with ladies but then I have found all you ladies with high NKs which are having sucsess with just the steroids & drips :) So maybe it could work for me too? I received a call from Epsom today do will be seeing Dr Shehata tomorrow, I want to discuss the super ov with him as I don't think I want IVF again after last time and I do have 1 patent tube, is this something he only offers in his private clinic & not on NHS?
Thanks for help xx

Cheerfulcharlie · 27/02/2012 15:23

Welcome Zoe. Sorry I don;t know about LIT either.

Oh no poor Pebbles pinned against the wall by an errant scooter! Can't believe she wasn't sorry.

With the intralipids I think Louise might have meant it would only support a pregnancy assuming it wasn't a chromosomal problem but then that would be the same for the steroids. I am a big believer in the intralipids as I am classed as very high NK cells and have got this far only on intralipids and no steroids. I found a journal a while ago NK cells journal which is quite encouraging and shows most women get to a normal NK cell level within a week of a single intralipids and it lasts about 6 - 9 weeks.

Interesting theory about the teachers. I'm not a teacher but am a researcher by nature and my career also involves researching and finding things out. Obviously we are all very intelligent ladies on this thread and I do think you need a bit of nouse to navigate your way round recurrent miscarriage, the causes, treatments and where to go, especially if like most of us, you don't have a medical background. You also need a bit of drive. Imagine trying to do this before google though, it would be bloody impossible.

Very interested to hear you ladies looking for new homes in London. Hope you find somewhere. free are you looking in a particular area of SE London only? Personally I love the East Dulwich / Dulwich / Herne Hill area and is where I would go to if I were to return to London. Definitely a good place to be a mummy too and I personally think a great investment, but then most of London will be at the moment.

I'm looking forward to some good news in the form of BFPs from everyone waiting to test.

Cheerfulcharlie · 27/02/2012 15:25

PS - digi did you know if you type in your website without the www at the beginning it comes up with a load of dating websites? Love the website though, the kitchens look lovely.

Stogan · 27/02/2012 15:36

Woo hoo digi got ur bag packed, all seems scarily real now after months of being in denial doesn't it?!. Hope ur keeping well Hunni xGrin

snoopygirl · 27/02/2012 15:49

digi not saying your a soak but is it the one with the myriad of bottles!!Grin

Cheerful.That's really interesting...will read your link

FrozenNorthPole · 27/02/2012 16:01

Sorry to pop in here without introduction - I've had 3 x losses and took pred for my last two pregnancies but not for this one. However, I have a cyclogest question. I've been on 400 mg but just noticed that the GP has written my next prescription up for 200 mg. Would anyone be willing to share what dosage they are on?

< sits in corner waving gingerly >

snoopygirl · 27/02/2012 16:10

Hi frozen I am on 400mg from bfp but am deciding to take from just after ov to help with poss implantation problems. When my womb lining was measured on a scan the other day it was 8mm which doctor thought was ok.
What is your situation at the moment if you don't mind me asking? Did your consultant give a reason that they lowered the dose?

digitalgirl · 27/02/2012 16:17

snoopy not ours, that is a lovely kitchen - the husband brews his own beer hence the bottles. Ours (if you're looking on the website gallery) is the one before that ie the second picture on the second page. The tidiest it's ever looked.

frozennorthpole I was on 200mg cyclogest a day from BFP to 16 weeks. Are you currently pregnant but not on pred?

snoopygirl · 27/02/2012 16:29

digi it's lovely very sleek and tidy! Mine is a bit like the one with the bottles -with the bottles Grin (shouldn't tar everyone with same brush as me!). Except it's painted in light grey with oak floor to match tops. Big mistake buying an unpainted kitchen, it took five coats all round. been in nearly two years and still have not really finished it!! Should have paid for a painter but was trying to keep costs down.

eurochick · 27/02/2012 16:36

I'm in exactly the same position as snoopy, even down to the depth of womb lining!

FrozenNorthPole · 27/02/2012 16:55

Hi Snoopy - that's an impressive endometrium - are there many other places one could say that with a straight face Grin?!

Digi - not on pred at the moment, because my GP wouldn't prescribe it, and feeling distinctly wobbly about it. I'm on progesterone, 75mg aspirin and high dose folic acid with other B vitamins.

At the moment I am about 10 weeks pregnant (it feels risky writing that). The cyclogest was actually prescribed many moons ago by the first consultant I saw about my RPL, at a dose of 400 mg. Since moving house I've not seen a consultant about my losses so the cyclogest has been prescribed via primary care on the basis of the original consultant's letter from a few years' back recommending it. I think the GP possibly made an error when writing the prescription ... most GPs (my other half included) don't know the first thing about its role so I'm really shooting in the dark here.

If I sound massively confused, I am Confused! Thank you to you both for answering my blundered-in-with question.

Cheerfulcharlie · 27/02/2012 16:57

Pico - that stem cell thing is very interesting. I think stem cell technology will boom in the next few years and am definitely going to get the baby's cord blood and tissue stored. In fact the kit just arrived today!

Imagine if you found you had run out of eggs / they had all gone bad but you can whip out your stem cells and have a few more eggs grown. Incredible!

Is anyone else planning to store the cord blood / tissue?

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