Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

Conception

When's the best time to get pregnant? Use our interactive ovulation calculator to work out when you're most fertile and most likely to conceive.

TTC/Pregnancy on Prednisolone or similar part 4

993 replies

digitalgirl · 19/12/2011 11:28

A positive thread for all those diagnosed with High or Very High NK Cells and looking to start TTC or already pregnant on Prednisolone and/or Intralipid treatment.

Newcomers very much welcome!

Part 3 here

Part 2 here

Part 1 here

OP posts:
cornflakes30 · 30/12/2011 09:01

Hi all freelance yes please I would love to go onto the list please, it's so nice to have this board to talk to people who are in the same boat makes me feel like I'm not the only one. And it's so lovely to hear all the positive stories keeps me positiive.

Kittens I'm so sorry to hear your sad news I'm thinking of you xxxxx

cornflakes30 · 30/12/2011 09:03

Quick question does anyone know of any good meditation CDs for early pregnancy? I'm thinking about getting one that I can listen to to relax just once a day...

Arianrhod · 30/12/2011 09:43

Morning all ... cornflakes do you have an ipod/iphone? If you have, there's an app by Andrew Johnson which is exactly what you're asking about, meditation for pregnancy, it's called Positive Pregnancy. I haven't been pregnant long enough yet to use it, but it sounds really good and I have it in waiting on my iphone for when (not if!) I get far enough into a pregnancy to be sure it's worth connecting with!! HTH.

/waves to everyone, kittens hope you're doing ok

eurochick · 30/12/2011 09:59

Kittens I hope the French bureaucracy is not proving to trying.

I'm very pleased to hear about all the good scans. That's great news.

iggi ignore the MiL - I find that is usually the best course of action in most situations!

Snoopy the holiday sounds good! Could you possibly acquire a turkey baster and take turns in the tiny plane loo?

Hi to jane.

I am on CD 20 here still with no sign of ov. I actually don't think it is going to happen this month now. I am so annoyed. This was my last chance to get pregnant at 35. I had a lot of reservations about taking the Letrozole as I ovulate myself (and hate taking drugs) but went with it and now I really wish I hadn't. Mr S gave me a prescription for a higher dose next cycle but at this point I don't think I want to take it. I'm mostly feeling pissed off today!

duggs1976 · 30/12/2011 10:28

euro forgive me if you've already said, but how come you know you didn't ovulate if you did super ov and trigger injection? Are you taking letrozole and waiting to ov naturally?

digitalgirl · 30/12/2011 10:56

stogan good luck today with your scan

euro that must be very frustrating, but I remember when mr s offered me superov he mentioned the first cycle as more experimental as he needs to start on a low dose. Didn't need the superov program in the end as I conceived on day 31 of this cycle (hope that doesnt come across as smug - just trying to offer some hope that a late ov can still be successful).

Very quiet weekend planned. Apart from kids birthday party tomorrow morning we're staying in on nye. Then taking Xmas decorations down on Sunday and returning house to normality for one week before dh's 40th birthday party the following weekend. Building work starts on the 9th.

OP posts:
digitalgirl · 30/12/2011 11:01

Welcome Jane I think if there's a chance you might be pg I would take the pred just to cover yourself.

OP posts:
freelancegirl · 30/12/2011 11:01

Oh of course, silly me. Jane is Jane and not Janet. Doh.

Hello Digi, I too am going to be staying in on NYE I think. My first ever night in! Not that I am exactly usually clubbing until dawn these days but DH and I are usually away somewhere hot and will go out and explore and get rip-roaringly drunk on some beach somewhere and find a random party. Could always go down Brighton beach with a flask I guess?

I think your conception efforts this time deserve a medal Digi so you are fully entitled to feel smug if you do. I remember it unfolding live ? to keep going diligently until day 31 was an incredible feat! I still can?t quite believe you did it!

Good luck to Stogan too from me!

Sorry you are having a frustrating time of it Euro. It?s funny how we all have those mental age targets. Those with children preferring a certain gap between first and seconds, those of us without children wanting to do things before a certain age. It feels like a bummer when you have to move the goal posts. I guess 35 was an aim for me at first but then I didn?t start trying until I was 36. I will be 38 by the time I have a baby now, and that?s if this one definitely survives. Oh well, people do have them quite a bit older.

Cornflakes I will indeed add you to the list. Do give us more details so we can make sure you are on there properly. I will leave a couple of question marks. Shall we add any other newbies too? Have forgotten who has been diagnosed and who is just speculating about testing for high NKC.

Ari that Positive Pregnancy thing sounds like nice a idea. I may investigate it if I ever start feeling a bit more positive about this pregnancy! Maybe if I reach the second trimester.

Duggs that is really depressing to have been pregnant two Christmases in a row and not have anything to show for it. I really feel for you and can of course relate. Luckily my LMP of the first mc of this year was boxing day so at least I got to drink myself through last Christmas and New Year. Not that it is all about drink, but it certainly does help take the edge off! Remind me, what is an IUI? I do hope you have a fab 2012 along with all the rest of us.

Scooter sorry you are feeling so sad still, it is bound to have a lasting effect though unfortunately. Especially as you got so far along this time. You have been on my mind of course as it is a reminder as to how fragile the situation is with all of us. I know there are no real answers to be had with these things but has Mr S speculated as to what might have gone wrong this time? It could of course be just one of those things, a chromosomal issue. I think my last one was ?just one of those things? and nothing to do with the treatment not working. But you are on my mind and will be on my mind too when I climb on the bed for the next scan hoping something is still alive in there. By my LMP I would be 10.3 today.

Hi Iggi! It?s great to hear that you are going to be getting later scans too. I have to admit, I have no idea what is usual after the 20 week scan. I have never investigated that far ahead.

Did I mention that Mr S says (thinking really far ahead now) that I could actually see him as my consultant for the whole duration of the pregnancy? It is something I would really like to do. He visibly winced when I told him what my local hospital was Grin . Of course it would mean that the hospital I potentially give birth in is two hours away from where I live, which might at some point prove logistically complicated, but if I get that far along I think it is something I would like to do.

I am staying with friends in the country tonight and it will mean telling them about my ?situation?. I am always really nervous about this as I don?t want them to say ?congratulations? and will try my hardest to explain that although I am pregnant now I might not actually stay pregnant. It will just be too impossible to lie all evening about not drinking and not feeling crap. And they are close friends so hopefully it will be ok. But it?s not much fun though, this limbo stage that seems to be going on forever.

eurochick · 30/12/2011 11:53

free I hope tonight goes well and your friends are understanding. That's interesting about seeing Mr S throughout pregnancy. I can see some sense in having that continuity.

35 isn't really a target as such for me, my birthday is just another sad landmark of not being pregnant. We started trying properly this time last year and that first cycle of knowing we hit the right days crashed and burned when my period arrived on my birthday last January.

My plans for NYE have fallen through - the people we were supposed to be spending it with have called it off because she has been diagnosed with c difficile! She has no idea how she has picked it up. It is usually contracted by people who have been on lots of antibiotics and have weakened immunity. She doesn't fall into any of those categories so it is a mystery. She is a dr, but none of her patients have been symptomatic of it.

Duggs I know because I can always feel ov and I am also charting. I have had pre-ov twinges but not my usual ovulation bloated/constipated feeling. I am on the Letrozole but no trigger shot this month because when I was scanned on CD 12 none of the follicles were ready enough for him to tell me when to take it. He said he normally would have rescanned in a few days but that would have been right on Xmas so it was impossible. He predicted I would ovulate on day 18 based on the size of my follicles when he scanned but that was 2 days ago and there is no ov yet. I am really pissed off. All that stealth sex with Xmas visitors in the next room for nothing!

freelancegirl · 30/12/2011 15:15

Have added basic details for Cornflakes and Jane and moved everyone forward a day. Hopefully successfully... Do edit though if I have missed anything!

Friday 30th December

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 29+6 Due 10/03/12 next scan 30/12

2nd Trimester
Digitalgirl - High NKC - BFP cycle#2 24+4 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 21+5
Comedy - V High NKC - BFP cycle#2 ? 18+6 due 26/5/12 next scan ?
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 18+1 anomaly scan 05/01
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 17+6 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 10+3 Scan 6/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). 10+1 Next Scan ?
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 6+6 Scan 29/12/11
coleyoz - V High NKC. TTC #2, BFP cycle2, 6+3, Next scan 11/01/12
Cornflakes30 - High NKC 6+5 ??

TTC
Waiting to test
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle2
buster76 - V High NKC, Factor V Leiden.
Janethomas

Waiting to ovulate
eurochick - High NKC, superovulation cycle 1, pred cycle 1
picolina123 - V High nkc, pred cycle 1
Snoopygirl - V High NKC TTC, #3,
Cherrycheeks - V high NKC, TTC#2
Suemays - High NKC, TTC#2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)

WTTC
Hopefulfor2nd - High NKC TTC in New Year
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - (chem pg cycle 2 of pred (only found afterwards), mc @c.5 wks cycle 4 of Pred, confirmed @6wk scan) TTC#1, review w/Dr S 14 Jan.
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC

hopefulfor2nd · 30/12/2011 16:39

Please can be added to waiting to ovulate? Should be hatching over the weekend! X x

hopefulfor2nd · 30/12/2011 17:49

I'm trying ttc number 2 x

Stogan · 30/12/2011 17:57

Hey ladies sorry it's taken me all day to post and thanks for ur good luck wishes.

Scan was fantastic, very emotional. Baby is weighing 3lb9 and is measuring a week and 5 days ahead at 31.4week ! It's finally hit home now that I'm having this baby and it's unreal. I just wanted to say a massive thank u to each and everyone of you on the thread. I could not have got this far with my sanity in tact without you ladies to help me through aNd I can't thank u all enough (emotional, irrationally upset pregnant woman ahoy !!!) xxxx

Stogan · 30/12/2011 18:00

Oooo could my next scan date be updated please. 13th Jan , only 2 weeks away as the fluid was higher than my consultant liked so he wants to scan me again, says it's fine baby just wees alot so he wants to monitor me ! X

digitalgirl · 30/12/2011 18:11

Friday 30th December

BFP
3rd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 29+6 Due 10/03/12 next scan 30/12

2nd Trimester
Digitalgirl - High NKC - BFP cycle#2 24+4 Due 16/04/12 MW appt 25/01
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks 21+5
Comedy - V High NKC - BFP cycle#2 ? 18+6 due 26/5/12 next scan ?
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 18+1 anomaly scan 05/01
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3 - 17+6 next scan?

1st Trimester
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. BFP#1 10+3 Scan 6/01/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). 10+1 Next Scan ?
batteryhen - High NKC, factor v leiden. TTC#1 BFP cycle 3. 6+6 Scan 29/12/11
coleyoz - V High NKC. TTC #2, BFP cycle2, 6+3, Next scan 11/01/12
Cornflakes30 - High NKC 6+5 ??

TTC
Waiting to test
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle2
buster76 - V High NKC, Factor V Leiden.
Janethomas

Waiting to ovulate
eurochick - High NKC, superovulation cycle 1, pred cycle 1
picolina123 - V High nkc, pred cycle 1
Snoopygirl - V High NKC TTC, #3,
Cherrycheeks - V high NKC, TTC#2
Suemays - High NKC, TTC#2
Havingkittens - Upgraded from High to V High NKC TTC #1
PQ77 - V High NKC TTC #2 (BFP cycle one but mc)
Hopefulfor2nd - High NKC - TTC#2

WTTC
ScooterChaser - V High NKC - TTC#2
ChoccyPud - V High NKC - (chem pg cycle 2 of pred (only found afterwards), mc @c.5 wks cycle 4 of Pred, confirmed @6wk scan) TTC#1, review w/Dr S 14 Jan.
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2
Lemonsherbet - awaiting results
Breezyweezy - V High NKC - TTC#1 from January
AandRmum - High NKC

OP posts:
igginezerscrooge · 30/12/2011 18:32

That's great news Stogan, really pleased for you. Smile

I'm lying in bed with a stinking cold, and trying to persuade bean to make some kind of discernible movement - surely by now!

igginezerscrooge · 30/12/2011 18:32

That's great news Stogan, really pleased for you. Smile

I'm lying in bed with a stinking cold, and trying to persuade bean to make some kind of discernible movement - surely by now!

cornflakes30 · 30/12/2011 18:45

Stroganoff that's great news xx

My details are v high nk cells, underactive thyroid, intrepilids, 40mg progesterone , 7 wks next scan 11.1.2012

freelance you sound like me I am struggling with the fact I'm at this point and can't believe it, I'm trying to be positive but every twitch scares me.

Arinrahod thank you so much I will look into that one, I figured if I can relax it would help.

X

cornflakes30 · 30/12/2011 18:49

Just realised I said stroganoff sorry meant to say slogan.

Ii have also noticed there are a few of us with thyroid problems on here as well, can I ask some advice? I was tested twice in the last month, only because I asked the doctor it came back as 2.18 fsh so I put my dosage up 25 mg without asking the doctor as he was happy with that? Im not I thought it had to be 1-1.6 I'm booked into see the endrocrinologist but not until the 18th of jan so 4 more weeks yet
Any advice ?

Cheerfulcharlie · 30/12/2011 19:01

Lol @ Stroganoff !!!

batteryhen · 30/12/2011 20:53

lol @ stroganoff - I thought that was your pet name for stogan!

Well as some of you may remember I did say I had a little story to tell you if my scan turned out ok. It's a couple of things that happened in the week leading up to my scan that made me think 'actually this could be Ok'.

Firstly - Dp and I have said if we ever have a girl her middle name would be Faith or Hope to signify what we went through to get her ( I think a lot of recurrent miscarriers think of these names).

When I found my hcg was low and not rising as it should - I did a lot of googling ( I know I know) and one girl had written her situation and at the end of her blog she had linked a passage from the bible....... 'The lord has a plan for you , a plan for you to prosper, a plan to give you hope and a future' . Now I am not religious, but it really made me tingle.

When I went to the hospital on Saturday for my bloods I was waiting in the day room to be seen and was browsing the books for sometihng to read, and came across a book called 'She will be called Faith' .

For some reason I knew my bloods would come back OK, and I am in any way saying that this pregnancy is going to be Ok, but for that week, for that day it gave me reassurance and a sense of calm.

I thought I would share it with you - whether we believe in fate/god/mother nature etc etc ...it is nice to receive signs sometimes.... :)

Other news - the new puppy keeps peeing on the carpet , and the cat still hates him. Everytime he looks at her she hisses in his face :( - he lies down all submissive but she looks at him like she is saying 'come closer and I will kick your puppy ass' :(

Stogan · 30/12/2011 21:25

I like faith for a middle name battery if we end up having a girl for the obvious reasons !!!

Loving my new name, stroganoff, very me lol GrinGrin x

Havingkittens · 30/12/2011 21:40

Sorry I've not been on for a few days. I wanted to thank you all for your kind messages and support. I did try to post yesterday but lost my connection and my post disappeared. We've been very busy sorting everything out, all the paper work etc and everything for the funeral, sorting out the house, all that stuff. All the people we have dealt with have bent over backwards to help us every step of the way, which has been wonderful. It's funny being in a small rural village. The mayor actually popped round to the house with his deputy yesterday afternoon to offer their condolences and any help at all that we may need. The nurses who were coming morning and evening for the past few months came over this afternoon too to see us. They were absolutely amazing. I'm so grateful for everything they did for my mum. My auntie is arriving tomorrow morning and we are all flying home on Tuesday, the day after the funeral and then I will stay a couple of nights down with my granny who is really struggling to get her head around everything due to her dementia. She also had a fall today so it wasn't the best time to leave her, but needs must and my uncle is looking after her along with the carers who will come twice a day.

Duggs I can relate to your frustrations about being pregnant 2 Christmases in a row and having nothing to show for it. My last miscarriage was last Christmas, the Christmas before I got a BFP on 23 Dec (which involved me having to stay sober at my 40th birthday party!), a couple of years before that I got a BFP on New Years Day. I do feel a bit like if I'm going to start the year having lost the generation above me it's only fair I should get a new generation to compensate! One of my granny's friends puts a lot of stock in the theory of "exits and entrances". Apparently there is a lot of research into the fact that people who have lost a parent recently go on to have a baby. Something to do with the loss of life giving way for new life. I don't know if I share the belief, considering we started trying just after my OH lost his dad but it would be nice to be proved wrong.

I have had to cancel my scan next week as it's on the day we fly back but I will start all my tests next cycle (around the 18th or so). I might phone Mr S when I get back to see if he thinks me having a break from the Pred next month would be prudent.

Sorry about the me, me, me post. Not had time to read all the posts recently.

Oh, I just remembered, PQ's question though. No, we are only really Jewish by race and are a bunch of agnostics/atheists so we don't do the sitting Shiva thing. One of my mum's friends will say kaddish, but privately, on her own rather than at the funeral. I will probably light a candle for her every year though.

freelancegirl · 31/12/2011 12:54

Hi all, I've been wanting to post properly but my laptop has chosen to play up so am on rhe mobile before I pay a visit to the mac shop. Kittens wanted to respond to you properly. So lovely to hear the village have been rallying round but it us all so sad still and so awful for you with your poor granny trying to explain to her what has happened.

Cornflakes I have easentially been self managing my thyroxine dosage for around 15 years and I would have done exactly the same. I am taking 125mcg at the moment and last TSH was around 1. I like it to be under 2 so will ask for regular tests and suggest you do the same. Good that your doc is supportive.

Sorry can't post properly but hope everyone is ok in the circumstances. I have to say I just can't wait for to ughts and therefore 2011 to be over with, i keep feeling a bit tearful about it. I know it haa been a really shitty year for all if us really so let's make like we're in Australia and pretend it's already midnight! And a happy and healthy 2012 for us all.

snoopygirl · 31/12/2011 14:53

Hi all,

euro told DH about your turkey baster method and he looked confused so had to explain!!! bless him. think I'll draw line at that one!

Scooter yes fab holiday and cathcing plane at 9pm tonight so off for fun day in Orlando and New Yrs Eve in air over atlantic somewhere. If ever I win lottery my one luxury would be turning left on plane every time! Hope you are ok and wishing you lots of luck for next year x

duggs sorry about your bfn x

anyway waves to all and HAPPY NEW YEAR lets hope it's a good one for all, going now before I start blubbing (hate New Yrs eve, feel all melancholy),
speak soon.

xxxx

Swipe left for the next trending thread