TTC/ pregnancy on Prednisolone or similar part 3

[freelancegirl]

For those who are TTC/pregnant undergoing immunotherapy treatment. Current list as it stands, do feel free to come and join us, it's moving quickly round here!:

Tuesday 22nd November

TTC
Waiting to test
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing from 21/11
Havingkittens - Upgraded from High to V High NKC TTC #1 after 2 month break/testing 29 Nov -2 Dec depending on my resolve.
Waiting to ovulate
coleyoz - V High NKC. TTC #2 - ov 3 Dec (Pred and Intralipids at BFP)
duggs1976 - High/V High NKC - TTC #1 - Superovulation cycle1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ ov 25th-26th Nov/ 4th cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)
eurochick - TTC#1 awaiting first appointment (in Nov)/ov expected 28-30 Nov.
BFPSeeker

BFP
2nd Trimester
Stogan - V high NKC - BFP 9/7/11 cycle#2- 24+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -19+1 Due 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks ? 16+1 next scan 14/12
Comedy - V High NKC - BFP cycle#2 - 13+3 due 26/5/12 next scan 12/12
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 12+6 anomaly scan Jan

1st Trimester
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 11+4 next scan 28/11
Scooterchaser - V High NKC - BFP cycle1 - 8+1 Due 01/07/12. Scan 25/11
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. MC 1st cycle. LMP18/10 - 4+6 - Scan 3/12
Arianhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP19/10. 4+5 Scan 7/12
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (metformin, intralipids, no pred). LMP17/10(Ov'd 3rd Nov) 4+5 Scan 6/12.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LMP20/10 4+4. Scan 3/12.

:) Ari, that's good news. I bet you have been holding your breath waiting for that. Take a big deep inhale now!

Digi, that's awful. I hope the CCTV footage is useful.

Thanks digi ... I actually feel like I haven't breathed since getting the first lot of results on Monday. I can actually breathe again now!!! Still in shock.

And thanks euro, you're absolutely right!!

brilliant news ari. Phew.... breathe........

Hello! Sorry I have been MIA - Internet has been off since monday - nightmare.

Firstly hooray for ari - doubling numers are very god - so you can breathe out now!
digi hooray for a good scan, and boo to thieving little bastards. My Uncle caught someone (a girl) with her hand in his jacket in cafe in London. He chased her down the street - he was 70 at the time. The police said he should have tackled her down and held her down till they arrived!

I won't post masses as I have to read all through the posts as I have missed so much. Ov weekend coming up for me so time to get the sexy undies out :)

Yay Ari that's wonderful news!

Will you rest a bit easier now?! Do try at least, all the worrying clearly isn't stopping things happening as your numbers show, but now you know you can calm down a bit.

I'm delighted for you x

Hello there. I've also been MIA and unable to catch up on all posts for a few days. Great to hear your levels are going up at a more promising rate ari, what a stressful few days you've had!

Contrary to my plans, I am not in France. I am laid up at my auntie's with a bug which crept up on me during the early hours of the morning I was due to fly. I got as far as the off site car park at Gatwick, ran into the loo to throw up, drove back to my auntie's and went to bed. Stopping en route to throw up out of my car window on the hard shoulder . So, just trying to feel better to re-book my trip which annoyingly means loosing all the money for the original trip and probably canceling some work. On top of that, I have just called my GP surgery to ask if my prescription is ready in case I need the 40mg pre whilst I'm away as the delayed trip will mean I have to test whilst away, and no, it isn't.... despite all my phone calls and visits last week. Sigh.... Now waiting for a call from my GP. For all I know I won't need them for months yet but trying to make sure I have them in time for "just in case" makes me feel like a right bloody high maintenance patient and all these calls I have to make makes me feel like a nuisance.

Sorry to flake out on the rest of the personals. I've been feeling so ill and spaced out I've not had the mental capacity to take in all that's been going on. And boy, have you lot been active over the past few days!

Free I really do hope all is well with your nan and you get her home and comfortable soon.

Congratulations Ari! Such great news- now just try and stay positive for the next scan. Fingers crossed for you.:)

ari amazing news ! Exactly what you were hoping for and 21 other sighs of relief. . Because we care and because we want positive stories !!

Thank you for all your info on metformin! I must have a mild version as always get AF .. BMI crept up to 27 /28 and fed of of struggling with it. Dr S has doubled my letrozole.

Anyway - looking forward to seeing a couple on sat and do pm me if u haven't already about 6 dec will send venue out next week when spoken to free (hopefully free and all be ok )

Ari - brilliant news. I have been having my fingers crossed all day

Choccy - glad to hear it's easing off.

Perhaps we can chill out until the mentalling starts for the first scan!

Duggs - apart from a spell of going almost a year without AF aboiut 3 years ago I have always got AF too and seemed to ovulate but my cycles were too long - about 46 days. As soon as I went on the meformin they went down to 39 days, which was still too long to be healthy apparently. Then with acupuncture they have now for the last few months have got down to around 32 days. Are your cycles long at the mo? I bet after a couple of months on the metforminn as long as you try and eat only low GI foods (this bit is very important), you will be pleased with some weight loss without trying too hard.

I am interested in how many of you mention you've had hematomas in previous pregnancies. Dr Beer reckons this is related to NK cells. I had one in my first pregnancy too. I am slightly suspicious I have one this time too.

Thanks ladies, all of you, for your good wishes and support, it really means a lot I'm sorry I've sounded so pessimistic but things really didn't look good there for a while. I appreciate it's a very long way to go but I promise to stop panicking now, until the scan anyway :)

kittens so sorry to hear you've been ill and you're having problems with your prescription too. Never fear you're being a nuisance with ringing them - they're supposed to be there to help, remember, that's their sole reason for existence! Well, job-wise anyway.

cheerful how would you know if you have a haematoma, do you get spotting or something? Has anyone suggested what caused your last one?

choccy how are you doing now?

free how is your Nan? Is the clot breaking down, do they know? I don't know how you track these things.

Digi how awful for you, sending a hot, sweet (possibly even fully caffeinated tea) for shock. Glad they have got the CCTV and can round them up and sort them out, it's just so brazen isn't it, unbelievable. Relieved to hear you are ok and it's in the hands of the police now.

My scan is at 1.15pm tomorrow. Slightly anxious about my decision to go alone but think I am more likely to hold it together whatever the outcome that way. Stupid of me? Probably!

ari brilliant news on the HCG, as everyone says it won't stop the rollercoaster but at least for now, today you have a little bit of relief and a positive sign, so grab it with both hands. Really pleased for you.

kittens poor you, what rubbish timing! Are you starting to feel on the mend now? Hope you can get your trip rebooked without too much hassle and that blasted wayward prescription turns up for you!

Echo everyones feelings about actual babies in our lives. It has occurred to me that I pin my happiness on it a little too completely. But at least it won't be limbo, and that's all I feel at the minute til a pregnancy works out. I am fairly confident that I'll just be SO unbelievably grateful if it happens I will be ready to roll with all the new challenges, but also think I'm such early weeks I just don't dare to be daunted by that prospect yet.

Obviously the sorting/decluttering season as I have just spent the morning doing the family filing! At the other end of the 'interesting life' spectrum, DH woke up this morning to see hippos and giraffes. Wishing I could transport myself out there just for a day, little mini safari and a break from all the appointments seems so appealing!

Been lurking from the hospital all day and shocked to hear of Digi's pick pocketing situation! How awful. I think it's the shock with that sort of thing isn't it. Kind of like falling over. Although some nasty little oik has bestowed it on you. I remember I had my phone stolen by two street children in a cafe in Victoria Station once and although I was completely unharmed I cried afterwards from the shock. Glad you were able to get it out your system to the work friends after. Loving the crime flighting uncle battery!

Ari that is great about the HCG levels! I know you will still mental about things as we all do but please do stop POAS now. No good can come of it! I've only done one and it was really, really faint but am going to wait until the scan. I did thing about getting a follow up HCG but I don't think I can be bothered to put myself through it now.

Your Christmas last year sounds awful Ari. I know it sounds terrible but along the same theme of wanting to know as soon as possible, am also thinking I am going to lose it it would be good to get it out of the way before Christmas so at least we can drown our sorrows! Pessimism, realism...? I just don't know. On a post-mc thread I still chat with friends on three of us got a BFP in the same day and then others followed and I was the only one that had a second mc (although there was later one chemical). I can't help but thinking that might be a pattern repeated. I know we are probably all going over the same thoughts though.

Scooter good luck for the scan tomorrow. Just scrolling back through the list and thinking you might be around 8-9 weeks? Does that mean another intralipids for you potentially too?

Interesting about the haematomas Cheerful. Will def keep an eye on that. What makes you think you might have one this time around too?

Kittens - my gosh what a nightmare! You must have been really ill. Has part of you (this is the way my mind is working at the moment) thought I wonder if being ill will actually be a good thing as it might have suppressed some NKC...? Didn't someone say they on here (or maybe BC) that they thought a successful pregnancy might have been because they were ill...? But that is a real pain for you not being able to go to france and see your mum as planned. Remember if you're ever desperate for meds we can probably all muster some up here to send, so don't worry about that.

Nan not doing too badly at all considering. Fingers crossed she might come home tomorrow.

I logged on to see what the news was Ari. Been wondering about you all day ? I?m so pleased for you. Of course you won?t be able to relax completely (who of us can?) but I really hope you?re able to breathe a small sigh of relief. Don?t apologise for being pessimistic. We all understand how hard these things are.

Digi ? I realised that I forgot to say great news about your scan too. What happened today was horrible though. Those kinds of things are always really unsettling aren?t they.

Get well soon Kittens.

Full of cold today. Dp out tonight and I?m enjoying having the place to myself now ds is asleep. Just off to watch the second half of The Killing.

Hope everyone else is OK!

Cold coconut! Another one who is ill. Good news IYKWIM

Thanks everyone for all your get well wishes.

free I suspect my illness is brought on by the steroids suppressing my immune system as I so rarely get ill and have only just started taking them again. I don't know whether the illness will suppress them further or not. I can't begin to imagine! Not sure when I will plan my trip yet. My mum has told me to make sure I feel well first and then plan it. I reckon I will probably go on Monday but we'll have to see.

Annoyingly I waited until about 7pm and didn't hear from my GP so left my mobile in my room and went next door to my granny's (who lives in the granny annex) and had a missed call at 7.30 from him! Typical. He left a message but assumed I was calling to chase up my referral to the fertility clinic, which he did last Thursday so that's one good thing. But he didn't get the message about the prescription and I mightn't be able to get hold of him in time. BUT I have a back up plan now. I have a prescription for the 25mg for 4 months worth and I have acquired 2.5mg preds from my granny's unused "weaning off" stash so if needs be I can take one and a half of the 25mg and a 2.5mg to make 40mg. Phew!

Digi sorry to read of your experience. I think it's the feeling of being violated that leaves you shocked. Someone tried to grab my phone off me on the tube once as they were getting off. They didn't even get it and I still cried. Did I mention about my lodger a few weeks ago? I can't remember. Anyway she came home saying some hoodie on a bicycle grabbed her phone off her. Unfortunately he managed to get away with it but before he did so she wrestled him to the ground and stole his bike . Once the adrenalin had worn off she cried too.

coconut sorry you're full of cold too. That's also pretty miserable. Keep cosy.

Kittens LMAO at your lodger nicking the bike off a hoodie mugger! that's hilarious! But, yes, still very shocking for the poor thing. Wonder what the hoodie will be telling his mates. It is indeed the shock and feeling of violation that is upsetting.

Also finding it mildly amusing that you are nicking meds off your granny. But good that you have a back-up plan in place. The illness might quacktastically be the NK cell killer you need :) It's still a big pain you couldn't go see your mum when you wanted to though.

On my own at Nan's again and getting a bit Dr Google obsessed without anyone like DH or other people to exert some parental controls. Still getting mild cramps occasionally. All very weird.

Oh, I forgot to mention I haven't been taking the Omeprazole. I just didn't fancy taking something else and my stomach is actually ok this time. I am now paranoid that I have done something wrong. Is anyone else not taking these unless they need it?

free You only need to take them to prevent the pred giving you bloating/heartburn etc. Not for any other reason as far as I'm aware.

Bloody hell, just accidentally deleted all my post. ARGGGHHH!
MAin jist was, fab news for Ari. Good to hear Choccy that it seems to settled down.
HAd my follow up and i'm rating as high nk cells with 1.19. pescription for pred and cyclogest for when/if needed. Pleased in a weird way, I needed to hear a reason for all the m/c's.
Just wanted to ask where you lovely ladies would recommend getting the tablets? Anywhere cheaper than another? I'm thinking I'll try my luck with my GP.
All the best to all. Will write more at a more sensible hour!
xxxx

Hey hopeful I think it is indeed good news that you have discovered a reason for the mcs! Now you know there is a path of treatment. I hope you feel somewhat comforted by that. My GP has been really good and converted all my prescriptions to NHS ones, hope yours is sympathetic too. Great news though! When did he say you can start ttc again....?

Re prescription costs, I haven't asked my GP but my local Lloyds chemist is very nice and gives discounts when the bill is over £50. Can't be arsed to go see the GP until I need to get into the nhs system.

Re Omeprazole you should take it - it's preventative but needs to build up I think. It prevents/reduces damage to your stomach caused by the Pred. Yes it's yet another drug but you don't want to end up with eg greater propensity to heartburn in the future due to Pred eroding your stomach lining or whatever it does. Ari and I got the lecture from Louise when we went for intralipids!

Update on me: pretty much almost clean on wiping this morning. Not quite stopped but lets hope. Bit of an achy lower back though. Feel distinctly un-pregnant which still definitely throws me even though I know I shouldn't worry about it - or at least that I shouldn't until someone tells me that the reason I don't feel pg is because I'm not pg, obv!

Good luck today scooter, welcome properly hopeful as u can see from here dr s treatment is working! cheerful no my cycles are generally 31 or 32 days sometimes I've had the odd 35 day usually after mc, but a few days in on this metformin i feel a bit better. Less cravings, more balanced am sure.

Had a dream we all met up and I arrived at a strange house and you were all in different rooms depending on where you were in your "journey". . but no one knew me when I introduced myself as duggs so I used my RL name and still blank faces!! Doest take Freud to work that one out, but I remember feeling panicked. A friend from RL appeared and she was chatting away to you all moving from room to room and I was wondering how she knew about you all! ( although I am not making it a secret that I've found a life saving group of amazingly strong and inspirational women on the same journey). I almost see the sigh of relief on RL friends and family's faces when I say as they have run out of consolation words and just scraping the barrel with their -you're doing so well gestures. I don't blame them, not sure I'd be any better if hadn't been going through this.

Anyway - the 2 WW starting for some of us again - hopefully some more of you can bugger off out of the liferaft into the yacht. And some from the yacht get to the cruise ship - homerun as time ticks by. Not holding out much hope from my overcooked, eagle sized follicle - but ok with that as not a wasted exercise this month due to discovery. Leaves some BFPs up for grabs ladies. Happy Friday x

Morning ladies, hope everyone's doing great this morning!

hopeful good news that at least something has been found, and you can now feel that you can do something positive. I think that was the relief for me, that there is definitely something wrong (or several somethings), which can be hopefully addressed. Welcome to the Pred club! My GP couldn't help me with the prescription unfortunately, so after some shopping around I found Lloyds online much the cheapest (cheaper than my local Lloyds chemist) with a next-day turnaround.

free What choccy said ... we did indeed get the lecture from Louise. However, I confess, I'm still not taking it - I know, I know, I hear what Louise was saying and no doubt she's absolutely right, I have no reason to doubt her logic. But for me it's one medication too far, until and unless I need it. I've never had indigestion/heartburn in my life (until the first month of the pred) and while I obviously don't want my stomach lining messed around with, I'll hold off taking the omeprazole as long as I can, I think, and see what happens. iggi was it you who said you didn't ever take the omeprazole, or am I misremembering?

choccy fabulous that things seems to have settled down, and don't forget that the pred very often masks pregnancy symptoms.

kittens love the idea of you raiding your granny's stash of medication! Don't forget we can help you out if you need it too, albeit all my pred is in 5mg tablets due to them being cheaper than the 25mg ones so I'm taking 8 a day!

scooter lots of luck for today, let us know as soon as you know!!

duggs don't discount your extra-cooked follicle ... it might be a case of bigger is better/stronger/tougher, you never know! :) Loved the dream, isn't it amazing how our subconscious tries to sort everything out for us.

Well I spoke with Louise last night after my test results, and we were talking about dates for next lots of intralipids/scans etc (assuming we get past the 7 week scan on Wed 7th), not because I am in any way over optimistic about things going that far but because I was wondering how Christmas affects things. She said the New Life Clinic closes for Christmas on the 19th; IF I get a reasonable scan on the 7th, then I should book the 8 week intralipids for the following Wed/Thu/Fri 14th/15th/16th at NLC, then the following Wed, 21st, for next scan with Mr S but in Harley Street, obviously. That then hopefully takes me past Christmas. Obviously I am in NO way counting my chickens, I'll wait to see what happens on the 7th, but I'm relieved that I won't miss something I should have had due to the Christmas break. Presumably free, choccy and cheerful you'll have something similar - I am assuming with crossed fingers that we all get to that point!!!

Sounds like everything is looking good for everybody today then! Lovely! Fab way to start the weekend.
I'm holding off ttc until new year. We had already decided to have Nov/dec off to settle my body down after 5 m/c in 10 months, Mr S agreed that was a good idea and that also gives me the recommended 8 weeks of vitamins. I'm actually enjoying the break in a way, I know my body needs it. Complete revelation to get my period this week, and to just deal with it knowing thats all it is.
I'm not rushing it as if I have another m/c I'd blame myself for not giving the 8 weeks of vits. Hubby is more then happy with that as well. As soon as NY hits I'll be back at it, SWI!!!
Have a great weekend all,
xxxxx
P.s Thanks for the tips on pharmacys
p.p.s FYI I'm 29! Saw everyone swapped ages previously!

hopeful that is a very good idea indeed. Give your body a rest, relax and enjoy the festivities knowing you have a plan, and use the time to get your body all vitamined-up. Definitely sounds like a great plan! And you're a mere spring chicken too :)