TTC/ pregnancy on Prednisolone or similar part 2

[Arianrhod]

Starting up part 2 of this thread since the old one closed at 1000 posts!

iggi lots of luck for today, hope it's nothing - I know it doesn't help but I know lots of women have spotting and/or bleeding in pregnancy and it still goes ok. Definitely call the EPU, get scanned - it's worth it, honestly, at least you will know one way or another. Virtual hugs coming your way.

free I also started AF properly this morning, so looks like we may be both importuning a friendly witch for a good fertility spell on Hallowe'en? I know exactly what you mean about the scary stuff ... a small part of me was actually sort of relieved when I didn't get a BFP purely because it means I don't have to go through the whole worrying about miscarrying all over again. Bizarre, but there it is.

PS what is BC? Baby centre? Can someone post a link please? :)

Choccypud yep, BabyCentre ... this is the RMC board community.babycentre.co.uk/groups/a164715/recurrent_miscarriage_support? and this is the NK Cells & Immunology Issues board community.babycentre.co.uk/groups/a3870095/nk_cells_immunolgy_issues?intcmp=SPGroups_SPPhotoGroupsRelatedModule_textlinks (although you have to request to join that one as it's set up as a private board). You have to have a BabyCentre login to access the BC boards, but that's fairly painless.

Thanks Ari. Enjoy the Halloween party...it's absolutely chucking it down here too.

Btw Mr S wrote exactly the same on my NK test results re the different levels for high/v high etc.

Comedy So sorry for the loss of your son, I can't begin to imagine the stress and pain you have endured. Whatever I've been through doesn't even register compared to your situation.

Nice to see the BFP list growing - where you three ladies V high or high and on what cycle did you get a bfp?

Echoing the others Comedy ... the loss of your son must have been unbelievably painful, I can't imagine what you must have gone through and must still feel.

TTC
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Havingkittens - High NKC TTC again from November
Freelance - V High NKC TTC/ov 1st Nov. Trying new drugs & Pred.
Arianrhod - v High NKC TTC/cd9/ov 1st Nov
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids

BFP
Digitalgirl 15+1 Due 16/04/12 next scan 7/11
Scooterchaser 4+3. Due 01/07/12. Scan in two weeks
Comedy 8+5 due 1/6/12 scan 2/11
Coconutfeet 12+1 next scan 15/11 V high Activation of NKC, Factor II gene mutation and underactive thyroid

Mr S hand wrote the relevant ranges on my notes too.
He told me that a previous pregnancy may have triggered the NKC . I had a mc, then got pregnant again with ds and had him with no major problems. Mr S suggested that my pregnancy with ds may have triggered it and that the previous mc may have been casued by something completely different. Speculation of course.

Does our elevated NKC level have any other implications for our long term health apart from TTC? I should really have asked this at one of my appointments but completely forgot.

Freelance - I would recommend acupunture. Not doing it now as we can't afford it but I would if we could. I have had it for several things in the past and always found it helpful - and incredibly relaxing, which is always good.

Attempt number 3 to post. Have list tidied and put ttc ladies in order of when they'll be testing. Have put pg ladies in order of due date/how far along - and especially for snoopy I've put my bfp cycle number!

TTC
Freelance - V High NKC TTC/ov 1st Nov. Trying new drugs & Pred.
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Arianrhod - V High NKC TTC/cd9/ov 1st Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Digitalgirl - High NKC - BFP cycle#2 - 15+2 Due 16/04/12 next scan 7/11
Coconutfeet 12+1 next scan 15/11 V high Activation of NKC, Factor II gene mutation and underactive thyroid
Comedy 8+5 due 1/6/12 scan 2/11
Scooterchaser 4+3. Due 01/07/12. Scan in two weeks

Was told by my acupuncturist that the diagnosis of high nk cells is probably just a means to prescribe the steroids and that actually even though 80% of women may test for high nk cells (regardless of fertility history) it doesn't mean the steroids aren't doing their job. And the AN doc I saw yesterday agreed that it really does seem like steroids are a miracle cure for so many things (rmc, exczema, athsma etc). The only problem is long-term use has such bad side effects (diabetes, osteoperosis etc).

TTC
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC/ov 1st Nov. Trying new drugs & Pred.
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Arianrhod - V High NKC TTC/cd9/ov 1st Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Digitalgirl - High NKC - BFP cycle#2 - 15+2 Due 16/04/12 next scan 7/11
Coconutfeet 12+1 next scan 15/11 V high Activation of NKC, Factor II gene mutation and underactive thyroid
Comedy 8+5 due 1/6/12 scan 2/11
Scooterchaser 4+3. Due 01/07/12. Scan in two weeks

Hi ladies, haven't been on here for a while and there are so many posts to get through! Glad to hear there are more BFPs so good luck to everyone who has got passed the first hurdle and let's hope that the rest of us will have our BFPs soon!
Good idea t have the list of which stage everyone is at as I was forgetting who was pregnant and who was TTC!

Am loving the list, tres organised Digi! I am adding my thyroid bits to join in with coconut

TTC
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC/ov 1st Nov. Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Arianrhod - V High NKC TTC/cd9/ov 1st Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Digitalgirl - High NKC - BFP cycle#2 - 15+2 Due 16/04/12 next scan 7/11
Coconutfeet 12+1 next scan 15/11 V high Activation of NKC, Factor II gene mutation and underactive thyroid
Comedy 8+5 due 1/6/12 scan 2/11
Scooterchaser 4+3. Due 01/07/12. Scan in two weeks

PS This is so bloody comforting having us all here and all with similar treatment!! Who else can we talk about NK cells, weird soya drips, steroids and sperm ingesting with :)

I always feel like a bit of an interloper on this thread s I have no diagnosis, just a suspicion that this might be the place for me, but I will add my name to the TTC list anyway. Feel free to boot me off until I get my results! I just wanted to check in with the thread.

TTC
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC/ov 1st Nov. Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Arianrhod - V High NKC TTC/cd9/ov 1st Nov
eurochick - awaiting first appointment (in Nov)/cd9/ov 31 Oct-2 Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Digitalgirl - High NKC - BFP cycle#2 - 15+2 Due 16/04/12 next scan 7/11
Coconutfeet 12+1 next scan 15/11 V high Activation of NKC, Factor II gene mutation and underactive thyroid
Comedy 8+5 due 1/6/12 scan 2/11
Scooterchaser 4+3. Due 01/07/12. Scan in two weeks

Nah Euro, you're with us until proven otherwise :) and even then you can hang around if you wish of course. A friend of mine (mad on MN after mc and now a RL friend after meet ups) actually went to see Mr S recently and did not get diagnosed with immune probs! Do you have a date for your appointment yet?

TTC
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC/ov 1st Nov. Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Arianrhod - V High NKC TTC/cd9/ov 1st Nov
eurochick - awaiting first appointment (in Nov)/cd9/ov 31 Oct-2 Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Digitalgirl - High NKC - BFP cycle#2 - 15+2 Due 16/04/12 next scan 7/11
Coconutfeet 12+1 next scan 15/11 V high Activation of NKC, Factor II gene mutation and underactive thyroid
Comedy 8+5 due 1/6/12 scan 2/11
Scooterchaser - V High NKC. BFP cycle1. 4+3. Due 01/07/12. Scan in two weeks.

Updating my stats as had it confirmed today that I have moved into the very high range and get my prescription for 40mg pred tomorrow. Really hope that the delay in taking the higher dose won't have affected my chances but I spoke to a midwife who couldn't really answer that question and my next Dr S appt is a way off. Can someone tell me what intralipids are please? Sorry for ignorance but I thought they were something also prescribed for v high NKC.

euro second what free says, please don't feel like an interloper, everyone has a slightly different story and its all about the hand-holding and the same goals!

Just want to say thanks everyone for holding my hand yesterday when I was going spare! And giving me so much info. I was very relieved and surprised that I did receive a callback today as promised, and the same lady was much nicer to me, restoring my faith in the system a little bit.

Comedy I have permanent major thirst and real bouts of the jitters which began a few days in the pred. I have read drinking lots is a good thing for early pregnancy though so just as well!

Digi I love the way you have organised the list, imagine your house is super-tidy :)

Really pleased they have sorted you out scooterchaser - the intralipids are basically a drip of lipids (fats) which take about three hrs to go in through a vein in your arm. Painless and no side effects in my experience of having had two now. The huge bonus is that I was told at the first one that it wasn't 5000 calories as I had thought it was but a mere 200 - so had a pie to celebrate!!

Thank you snoopy and arian for your comments

Welcome Euro!

hey Comedy lipids here I come...."bring on the pies for me if I get a bfp"!! sorry too much rose tonight... gettin it down me while I can!

Digi thanks for putting the cycle No on, lovin all the early sucess.

x

Too much Rose prior to TTC/pregnancy is almost obligatory snoopy :)

I am glad the general consensus is that there aren't that many calories in the intralipids comedy. What with the weight gain from the Pred, Omeprazole, pregnancy, eating to compensate for stress and no alcohol we don't need any more needless calories!

OOh 12 people on the list now! Who is missing...? Iggi, Stogan, Battery...?

Hello, haven't been on laptop today just phone, can't copy list yet.
Having my daily a minor freakout as just thinking how sick I was at this point with ds, and how completely un-sick I am now. I actually felt more queasy about a week ago, don't feel it at all now. How much can the steroids mask?

Had booking in appt today. Did feel something of a fraud next to the "real" pregnant people. Though for once I didn't want to kill any of them so I guess that's progress.

Hi iggi if it helps I have hardly any pg symptoms either and even at this stage had my nose in a box of ginger biscuits when pg with DS. I mainly have cramps like AF is about to show. I find it comforting to think that pred could be masking everything and making me feel so different, things still could be going in the right direction, we have a good chance.

How was the booking in appointment? I can sympathise cos I remember going and the midwife writing down all my appointments on a card, she got to 36 weeks and I just thought, yeah right! Often they don't know how to deal with us because they are used to things being textbook for most women. The local midwives seem wary of me because I had complications with my successful pregnancy too, feel like it's a case of 'oh dear here she comes!' Anyway, I just know how you feel to be the odd one out and looking at everyone else with their baby-dreams mapped out for them, really hope you had a sympathetic midwife who understood where you're at and didn't try to dismiss how you're feeling.

On a positive note I held my best friend's 5 day old baby yesterday, one of six little babies born into my friendship group in the last two months which has been hard for me to stand by and see (my next due date was November) Anyway, I'm proud to report I just really loved it. My friend has also had a horrendous journey and it's so encouraging to see her come out the other side. Good things can happen!

Hi everyone

I'm missing from the list can I be added please, would do it myself but on phone and would have to type all out individually

We got BFP ON 9/7/11 on our second cycle I'm 20+5 and due 10/03/12

Thank you, hope everyone is ok xxx

Oh and I had v high NKC and had pred cycle plus intralipids at home

Xxxx

TTC
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC/ov 1st Nov. Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Arianrhod - V High NKC TTC/cd9/ov 1st Nov
eurochick - awaiting first appointment (in Nov)/cd9/ov 31 Oct-2 Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Stogan BFP ON 9/7/11 on our second cycle I'm 20+5 and due 10/03/12, v high NKC and had pred cycle plus intralipids at home
Digitalgirl - High NKC - BFP cycle#2 - 15+2 Due 16/04/12 next scan 7/11
Coconutfeet 12+1 next scan 15/11 V high Activation of NKC, Factor II gene mutation and underactive thyroid
Iggi 9+2 next scan 7/11 High NKC & Hypothyroidism
Comedy 8+5 due 1/6/12 scan 2/11
Scooterchaser - V High NKC. BFP cycle1. 4+3. Due 01/07/12. Scan in two weeks.

Morning ladies -

Adding in my thyroid bits to join in with coconut and free, loving the organisation and seeing where everyone is!

TTC
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC/ov 1st Nov. Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC/ov 1st Nov
eurochick - awaiting first appointment (in Nov)/cd9/ov 31 Oct-2 Nov
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Stogan BFP ON 9/7/11 on our second cycle I'm 20+5 and due 10/03/12, v high NKC and had pred cycle plus intralipids at home
Digitalgirl - High NKC - BFP cycle#2 - 15+2 Due 16/04/12 next scan 7/11
Coconutfeet 12+1 next scan 15/11 V high Activation of NKC, Factor II gene mutation and underactive thyroid
Iggi 9+2 next scan 7/11 High NKC & Hypothyroidism
Comedy 8+5 due 1/6/12 scan 2/11
Scooterchaser - V High NKC. BFP cycle1. 4+3. Due 01/07/12. Scan in two weeks.

euro definitely stick around, I was on here even before I had my first appt with Mr S; as scooter says, it's all about the hand-holding and morale boosting here!

scooter so pleased you had a better response and have the prescription coming through. I understood intralipids to be Mr S's practice with v high NKC too - at least, he's lined me up to have them when I get my next BFP - might be worth giving them another call and asking? I'm very sure they won't mind you calling again, and it's worth it for your peace of mind.

iggi I've heard for some women the steroids can almost completely mask all pg symptoms - but they may well come back with a vengeance when you're off the steroids, so try to enjoy the lack of them now!! (even if that seems a bit counterintuitive, since we all want our symptoms to keep us reassured our pregnancies are still going strong, I know).

I have to echo what so many people say too - every pregnancy IS different. With my DD I felt no nausea at all, no cravings, no weird symptoms, nothing (but then, that was my first pregnancy, and I didn't know I should be worried about lack of symptoms then!). With these last three pgs, even the early miscarriage, I've had nausea, seriously swollen bbs, major tiredness, and generally feeling yucky. I know there were 5ish years between my DD and my three pgs/MCs this year, but I would have thought one's body would react much the same - this just brought it home to me that every pregnancy really is different.

And iggi ... you ARE a real pregnant lady ... really ... I know you're probably in denial, but we're all rooting for you and your baby [hgrin]

Updating for today - have left Iggi and Stogan as is, but added a day to all the other pg ladies.

TTC
Suemays - V High NKC TTC/ov 31st Oct.
Freelance - V High NKC TTC/ov 1st Nov. Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC/ov 1st Nov
eurochick - awaiting first appointment (in Nov)/cd9/ov 31 Oct-2 Nov
ChoccyPud - V High NKC / cd7/ov 3rd Nov
Cheerfulcharlie V High NKC (intralipids on BFP, no Pred) TTC/ov 5th Nov.
Snoopygirl - V High NKC TTC/ov 16 Nov ish/will be Ist try with Pred Itralipids
Havingkittens - High NKC TTC again from November

BFP
Stogan - V high NKC - BFP ON 9/7/11 cycle#2 - 20+5 Due 10/03/12
Digitalgirl - High NKC - BFP cycle#2 - 15+3 Due 16/04/12 next scan 7/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - 12+2 next scan 15/11
Iggi - High NKC & Hypothyroidism - 9+2 next scan 7/11
Comedy 8+6 due 1/6/12 scan 2/11
Scooterchaser - V High NKC - BFP cycle1 - 4+4. Due 01/07/12. Scan in two weeks.