TTC/ pregnancy on Prednisolone or similar part 2

[Arianrhod]

Starting up part 2 of this thread since the old one closed at 1000 posts!

iggi lots of luck for today, hope it's nothing - I know it doesn't help but I know lots of women have spotting and/or bleeding in pregnancy and it still goes ok. Definitely call the EPU, get scanned - it's worth it, honestly, at least you will know one way or another. Virtual hugs coming your way.

free I also started AF properly this morning, so looks like we may be both importuning a friendly witch for a good fertility spell on Hallowe'en? I know exactly what you mean about the scary stuff ... a small part of me was actually sort of relieved when I didn't get a BFP purely because it means I don't have to go through the whole worrying about miscarrying all over again. Bizarre, but there it is.

OMG!!!!!! 3 x BFP! What wonderful news. I realise of course you are all sat there in terror - but congratulations. You all sound like you are doing the right things, getting appointments etc. I am really pleased. (and a bit emotional!)

Right - ladies on the TTC list. This is our month too. Our mission is for this thread to all be PG by Xmas. We have the tools and the know how. Now crack on.... :)

Updating the chart is beyond my tiny mind at the moment but if anyone else can, please do so!

docs.google.com/spreadsheet/ccc?key=0AtEN_z1FdjUMdHd6c0xCd2JRd3hXVmtTZXROYVE1OGc#gid=0

Am still mid-messages, voicemails, emails to try to get this prescription. Thinking of you too Comedy for scan on thurs!

Agree battery was 8 v 12 ..today is 11 v 9. I wonder if the pred is cumulative it helps our chances each month.

I promise to report on superovulation ..I'll probably have 5 fekkin' follicles and end up with triplets or something hideous and serves me right for being impatient/greedy.

But for less than £200 Inc scan and drugs if it works then I'd say anyone is a candidate!! (let's see first before I try to push it out there!)

Pregnant ladies . . Huge cocoon hugs. The waiter in the buff wants to celebrate tonight with a cheeky appearance so get your orders in xx

have updated the chart. so sad writing it all down again but I don't feel so alone seeing everyone elses history. good luck to the ovulators! and well done on the BFPs.

Woo hoo ari and free as well as choccy, what a day yeeeeeyyyyyyy !!!!!

Well I fell off my chair at work today !! Actually crying with laughter just thinking about it! So big I couldn't bend over and fell right off my chair mid office !! I rolled around for a while and then just got up and carried on working Pah ha ha what a nutter !!! ???????

Choccy- I'm also 3w 5 days today.

Ari - I have that mthfr (homo on both genes) . Are you just taking the 5mg folic for that or anything else too? Dr S did not seem bothered about it at all.

Any one needing supplies of tests - you can bulk buy the cheap ones and even early FR tests pretty cheap on amazon.

Free- yes i'm on the cyclogest now

As I write this I am having the intralipids a pumpin' through my veins!

Oh wow cheerful, intralipid live action!

I am mid-logistical nightmare here as pharmacy folk received prescription but can't process. Needs to be a US reg doc. Brother been on hold for 45 mins waiting to see if his doc can do it, and if not who can. Pharmacist working out a cost for nurse and intralipids. Rather worried it is going to be huge. Otherwise might have to wait until next Tues when will be 5 weeks not 4. Fun, fun, fun...

Free is it worth asking Dr S if he has any contacts in the US he can put you in contact with to sign it off? I bet these docs meet up at international conferences quite a bit or perhaps they have a parallel thread on 'docsnet ' called" dealing with patients on pred 2".

Might be worth a try?

Good point. Wonder if I can still get through to the clinic at 7pm? Prob not so will try again tomorrow.

free is this any good to you? they are in LA

www.pacificinfusion.com/patients.html

Thanks Snoopy I might well need them.

This is completely premature but does anyone know of what dates the clinic is open/closed over Christmas yet?

I enquired a week ago and only know that they are back open on Wed 4th didn't ask when they were closing as wasn't relevant to me.
hope your getting somewhere!

Wow. What a day. I've just gone back and read through today's posts - do you guys realise we've run up 3 pages today alone?!

I must say that I don't know how I'd have got through the last few months, or how I'd feel now, or how I'll cope regardless of what happens from here on in, without our group here. You are such a fantastic bunch of people. The fact that we all know there are others out there on the life raft is SO important and knowing that there's support there if needed makes such a difference. As does the genuine emotion behind all the lovely congratulations posts today. Big big hugs all round

I've got a bit of a buzz on this evening, must be the huge Pred plus a fair amount of adrenaline presumably. Beginning to dip a bit now I've sat down to read the thread, which is good, as I would like half a chance of sleeping... I must also confess to digging the FR out of the bin to have another look at that line just to check I didn't imagine it - is that mad? Undoubtedly.

Pg ladies: what's your view on Omeprazole? I didn't take one this morning as I thought I'd see how my guts feel on 40mg Pred. Do you have to take it for a while to let it build up or can it be popped when necessary? I'm sure someone has asked before but I wasn't paying attention at the time can't remember what the answer was.

God - there is a lot of organising going on around the world tonight!
I have updated my bits on the chart

It is indeed worldwide network of drug-swapping, emotionally supportive, intelligent, well informed chatter boxes here today Choccy and Battery. I like to think we are a rather special group and I do hope that there are other people getting this support if they haven't yet found us.

I think about Cornflakes who came on and then went AWOL and I hope other people feel free to join! Let's try to remember to put something like that on the opening bit of thread number 3 - which at this pace will need doing in no time!

I also can't believe that on the 6th, those who can make it of course, we will be meeting in person to talk about steroids and weird infusions to our hearts content and we will all know what we are going on about :)

Still no confirmed intralipids here yet but am working on it and hopefully will here imminently.

Choc I took the Omep as and when I needed it after going up to 40mg last time. It was more frequent at first but not every day. I am already feeling a bit sore in the tummy today so might have to start necking it. I think I too will be getting some more pg tests as well so I completely understand.

Thanks for the date info snoopy. I am needing to know the dates on the first side of Xmas so will have to wait until I find out or anyone else might know.

free I'll ask about Xmas closure dates when I'm at NLC tomorrow. Not wanted to calculate due date yet or even when second intralipids would (will?) be due, but if you need to know, I must need to know. Will post when I've found out. Hope you get it all sorted soon.

When is your LMP date? Mine is Oct 18th. I can't help thinking about dates as I have trips to plan to distract me from everything!

Yiiihaaa! Congratulations you three! Wonderful. wonderful news. I know you're all bricking it now but we're all here for you for those mentalling moments.

Those who weren't so successful this month: I really hope it'll happen for you next time around.

Free - I really hope you manage to get your inralipids sorted out. I think asking Mr S whether he knows someone is a really good plan. I mentioned to him that I was thinking of switching to Homerton hospital and he immediate gave the the name of one of his friends who would be sure to look after me and give me a particular scan that I'm going to need at 23 weeks (can't remember offhand what it's called but apparently it's a good indicator of late pregnancy complications).

Choccy - I was on 40mg of pred and didn't bother with the omeprazole as it didn't mess with my stomach, so you may find that you're lucky and you don't need it. I think others have taken it as and when they've needed it.

Well, I finally had my NHS scan today. The sonographer was really good and took time to really talk us through what she could see, which hasn't always been my experience. It was dp's first time to see the baby as he's not been able to attend the appts with Mr S so he was pretty emotional. We've finally got an official due date (7th May). That feels weird!

Who else is being scanned this week? Iggi and Comedy I think? Good luck both of you. Keep us posted.

LMP was 20th October.

Thanks Coconut think I'll see how I go.

Just a very quickie .. cheerful I'm taking 5mg l-methylfolate (well 4.8mg since Folapro comes in 800mcg tablets) since those of us with homo MTHFR have little or no ability to convert synthetic folic acid into the methylated form usable by our bodies. I'm taking no chances.

free how did you get on/are you getting in with arranging your intralipids? It's a good idea to see if Mr S can recommend someone I think, if you're getting no joy. Better safe than sorry, right?

The omep I decided I'm only going to take as and when I need it and only then if the Rennie fail first. Strangely I haven't had the severe reaction tummy-wise this cycle that I had with the first, no indigestion at all, just wind for the first few days.

coconut great to hear about your scan, sounds fantastic. You pg ladies have given us all the hope that maybe, just maybe, we might have a chance too.

LMP for me was 19th Oct btw

Just adding LMPs....

Still in nightmare logisitcal situation here with pharmacy poised to go but need a US prescrption and can't get one. Will call Mr S first this in his morning if no luck but am about the try calling the Dr Beer institution! Figure they might know something about this sort of thing...

Tuesday 15th November

TTC
coleyoz - V High NKC. TTC #2 - ov 30 Oct (Pred and Intralipids at BFP)
eurochick - TTC#1 awaiting first appointment (in Nov)/cd9/ov 1 Nov
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing 21st Nov
Havingkittens - High NKC TTC #1 after 2 month break/ov around 18 Nov.
duggs1976 - High/V High NKC - TTC #1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ 3rd cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)

BFP
Stogan - V high NKC - BFP 9/7/11 cycle#2- 23+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -18+1 Due DC#2 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks - 15+0 next scan 15/11
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 11+6 next scan 16/11
Comedy - V High NKC - BFP cycle#2 - 11+4 due 1/16/12 scan ?
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 10+5 next scan 14/11
Scooterchaser - V High NKC - BFP cycle1 - 7+2. Due 01/07/12. Scan?
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP 19th Oct
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. Mc first cycle. LMP 18th Oct.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LFP 20th Oct
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (intralipids on BFP, no pred) - BFP cycle? - 3+5

Wowee! Gaping at my phone like a loon so delighted to hear about the BFPs! Little hoorays all round for cheerful, free, ari and choccy! I am still at the stage of allowing myself one little hooray a day when I wake up still pregnant and it still surprises me when another week ticks over so all I can say is throw all the meds at it asap and then just try and brrrreeeeathe!!

free good luck with your intralipids quest, I've heard NK treatment is generally a bit more advanced in the States so I am sure the right expert must be just around the corner, definitely badger Dr S's office for contacts out there. I had first intralipids at 5 weeks and i think coconut did later but you definitely need to hear what Dr S recommends for you. I've found Annabella and Cheryl pretty good at returning emails quickly when there is time pressure. It must be frustrating to have to deal with different time zones when you just want things sorted!

iggi well done for the big milestone and rooting for your 12 week scan! Keep us posted.

coconut glad to hear of your good scan today and that you got to share it with DP.

stogan brilliant for sharing your hilarious rolypoly pregnant moment, ever hoping for some of those in the not too distant future!

Staying optimistic as possible here, despite very few reassuring symptoms. Just hoping they are pred-masked. I was frankly overjoyed during an hour of nausea the other morning!

Went to the counsellor today, first time since the pregnancy. She was really reassuring and told me to just accept the rollercoaster and try not to beat myself up when all the bad memories and negative thoughts fight their way in. She also said that they had done studies and there is NO correlation between maternal anxiety levels and miscarriage. There is a slight link between anxiety in pregnancy and post-natal depression but I can't see any of us being depressed at the point we finally get a baby!!! Touch of mania, maybe!

DH is away now for the two week window in which I lost all of my pregnancies (7-9weeks) so I may be keeping a low profile while I try and trudge through time and make it out the other side. This week has already felt like an eternity and it's STILL Tuesday.

Updating with 8wk scan date

Tuesday 15th November

TTC
coleyoz - V High NKC. TTC #2 - ov 30 Oct (Pred and Intralipids at BFP)
eurochick - TTC#1 awaiting first appointment (in Nov)/cd9/ov 1 Nov
Snoopygirl - V High NKC TTC, will be Ist try with Pred, Intralipids on bfp Testing 21st Nov
Havingkittens - High NKC TTC #1 after 2 month break/ov around 18 Nov.
duggs1976 - High/V High NKC - TTC #1
batteryhen - High activation NKC, factor v leiden. TTC#1
Suemays - V High NKC TTC/ov 30th Oct. TTC#2.
Cherrycheeks - V high NKC, TTC#2/ 3rd cycle of pred
pureequeen - High NKC TTC #2 again from November (BFP cycle one but mc)

BFP
Stogan - V high NKC - BFP 9/7/11 cycle#2- 23+3 Due 10/03/12 next scan 30/12
Digitalgirl - High NKC - BFP cycle#2 -18+1 Due DC#2 16/04/12 anomaly scan 23/11
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks - 15+0 next scan 15/11
Iggi - High NKC & Hypothyroidism - BFP cycle#2 - 11+6 next scan 16/11
Comedy - V High NKC - BFP cycle#2 - 11+4 due 1/16/12 scan ?
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP on cycle 3 of Clomid - 10+5 next scan 14/11
Scooterchaser - V High NKC - BFP cycle1 - 7+2. Due 01/07/12. Scan 25/11
Arianrhod - V High NKC, MTHFR homo, hypothyroid, TTC#2 BFP 2nd pred cycle LMP 19th Oct
Freelance - V High NKC TTC#1 Hydroxchloroquine, Pred, Intralipids. Thyroid/hashimotos. Mc first cycle. LMP 18th Oct.
ChoccyPud - V High NKC / TTC #1 BFP 4th Pred cycle LFP 20th Oct
Cheerfulcharlie - V High NKC, MTHFR/TTC 1/ (intralipids on BFP, no pred) - BFP cycle? - 3+5

Oh my god - look what happens when I don't go on here for a few days!! Massive congrats to all you newly pregnant ladies!
Free I said you would get pregnant so how funny!!!

I now feel like the pressure is on and really worrying it will take me ages to get pregnant again!

Did you all do the sperm meets egg plan or SWI every other day??? The rest of us TTC need some tips!!!

OMG indeed!!!! I haven't been around for a few days and it is all a go go here. Whispered Mexican wave for Free, Choccy, Ari & Cheerful. Know you must be bricking it, sending you lots of hugs.

I have had my head buried in the sand till we had our scan yesterday, I had convinced myself sudden lack of symptoms meant I had had another mmc. Happy to report the little bean measured according to dates and had a strong heartbeat. We were blown away as never had a hb this far on. Next scan is nuchal on 28/11

Only a quick post now sorry, good luck to you girls having scans tmrw. I will update the list and spreadsheet tmrw morning. X x x