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Conception

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PCOS and TTC! Anyone want to join with me?

235 replies

AnnieBeansMum · 14/10/2010 15:29

I ladies. I have DD1 (almost 3) and DH and I have begun talking about TTC #2. It took nearly 4 years to conceive DD1 and we finally had success with a course of clomid.

I am now in Canada and have just been referred to a new gynecologist who is apparently the leading expert in PCOS in Canada. So hopefully he will be able to help speed things along. I don't think I could take another 4 year wait.

Does anyone else want to join??

OP posts:
tinky19 · 21/10/2010 08:26

Morning all.
Have just got back from the doctors and have been told again I can't have Metformin. This time it's because they need to sort out my thyroid first so I'll need to wait another four weeks at least before they retest that. Sadand to have a scan on my nack (any time in Nov/Dec)
I know that they probably have to wait but and in the grand sceme of things it's not that long but it's all just soooooo frustrating.
Grrrrrrr
Going to make healthy breakfast now.

tinky19 · 21/10/2010 08:26

obviously they'll be scanning my neck as I don't have a nack!

pinkypanther · 21/10/2010 10:14

Thank you reallygrumpy that's very helpful. I think the tests plus appointment plus Clomid adds up to £1000 or so? I think we'll be having a very frugal winter...

Am a bit cross with DH at the moment, yesterday I was on day 16 of my cycle (not that that means much with stupid PCOS, but anyway...) and he had been away with work since the weekend. He was supposed to come home early last night but instead went to the pub with his friend, got drunk, and stumbled in late - so no opportunity for SWI last night or this morning. Not sure how he thinks we're going to have any chance of conceiving if he doesn't keep his side of the bargain!

Tinky sorry to hear about your appointment and thyroid issues. I've always had a borderline dodgy thyroid (not sure if it goes with PCOS?) but they never say it's bad enough to treat. Hope you get sorted soon.

Fairygodmother1 · 21/10/2010 19:14

reallygrumpy thats fab about the weight loss. My nausea stopped after being on mets 3 x day for 2 weeks. Gotta say it's really turned my stomach to things. I'm really put off creamy stuff like yoghurt & cream cheese!
Great news about weight loss though!!

Aww tinky know the frustration! Still think 2011 will be our year!!!

reallygrumpy · 22/10/2010 19:01

Hi pinky yes, it's about £1000 for tests plus clomid but the good thing about going private is that it all happens much more quickly. It is expensive, we were lucky (if that's the right word), an elderly relative of DH's died and left us some money which has covered my treatment so far.

Well AF arrived today (48 day cycle) and I'm having a month off clomid so i've just ordered 50opks from amazon to check if my body manages to ov on it's own this cycle.

brilaunt · 25/10/2010 11:34

Hi all, lovely to read thread. I'm on and off here quite often but this one has made me look twice and read about everyone's stories - there is some hope for us PCOSers then!!! We've TTC for 18months now... ive got BMI down from 35 to 29 - still 1st1/2 to go blahhhh! Had preliminary apt with consult... waiting on dye now to check for blockages... really hope that it's lack of ovulation thats causing the delay so that I can get cracking on clomid!Has anyone had dye? is it painful?

Good luck everyone! I havent got around to understanding stats list yet...
mine are
c.d 42 TTC#1 UCD 28-47

reallygrumpy · 25/10/2010 19:52

Hi brilaunt that's amazing weight loss. I've had dye and found it uncomfortable but not painful. Good luck!

brilaunt · 27/10/2010 11:41

Thanks reallygrumpy thanks for thst, it's taken me a year so it's not that brilliant! Have enjoyed wine and treats throughout - this has kept me sane! Hope all is ok with you and everyone else? 8RD how are you getting on? hope you're feeling ok? Anyone got any news/progress? I'm on half term week so I'm symptom spotting and surfing net far too much which is making me uber frantic again!!! Anyway... Good luck everyone. xxx

highheelsandequations · 27/10/2010 14:37

brilaunt well done you with the weight loss.

Still no news here I'm afraid, CD66 and still no period and no BFP, trying to stay positive and not think too much (although quietly going insane). Giving it till Monday and then if nothing's happened stil going to phone the clinic and ask for help.

Fairygodmother1 · 28/10/2010 14:31

brilaunt can I asked how you managed the weightloss? Teacher too, I've actually had a relaxing 1/2 term.

After my amazing thoughts of a 7 day period I had 2 days not bleeding & been bleeding since again.

brilaunt · 28/10/2010 17:43

Hi Fairygodmother1,I've lost weight with Slimming World!!! I've not stuck to it really rigidly but I have been really careful Monday to Friday and then enjoyed nice things on weekend! It's taken me ages but I've haven't felt really deprived of anything. I've got my 2nd apt in clinic end of Dec and desperately want to get my weight down to bmi of 26 before then which means me losing over a stone by Christmas... I'm going to try and bite the bullet and do it! glad you've enjoyed half term... I find hols can be hit and miss! Although I really look forward to them, sometimes having the time off makes me realise how much I want a little one! Oh well, it will come together for us all I'm sure! I dont understand the situation with your period? Has your cycle been a long one?

Take care. ba

brilaunt · 28/10/2010 17:47

P.S - FG1 - I find if I eat massive amounts of fruit like pears, strawbs and pineapple between meals I lose weight much more quickly... oh and drink tons of water. Something to do with metabolism they tell me!? hope this helps. good luck

lucysnowe · 29/10/2010 14:35

Hi all!

LOL I seem to belong to more and more TTC threads these days. Smile

Was diagnosed with PCOS just before I had DD, miscarried in Jan, have been TTC since then. Started on metformin a few months back and it buggered things up for a while but things are back on track now, I hope.

For the last couple of cycles I've been taking soy isoflavones on cd3-7 which have shortened my cycles considerably and I am really really hopeful they will do the trick. (8rubber apologies,cos I was shilling them on the other thread as well, but I am a bit excited about them and feel the need to recommend them to everyone!!)

Anyway, more info here:

www.twoweekwait.com/newsletter/2006-01/

if you're interested.

pipistrello · 29/10/2010 15:45

Ooh lucy could you tell me more about metformin buggering things up for you? I started taking it 3 months ago and have been bleeding/spotting almost constantly since then. How did it bugger things up for you and for how long? Did you leave it to sort itself out, or go back to your doctor?

Sorry everyone to crash in with lots of questions. I have been lurking on this thread but hadn't posted.

tinky19 · 29/10/2010 17:46

Yes i'm curious too lucy as i'm hoping to start on metformin once my thyriod is sorted.
Also, is their a need to have regular cycles (less then one every 3 months?) for soy to work?

boba82 · 30/10/2010 18:17

Hi ladies could I join you please?

I've recently been diagnosed and have just finished my first round of Clomid 50mg, on CD9 @ moment. Been TTC 18 months with not a whiff of a BFP, cycles all over place etc.

Looking for advice & support as no-one in same boat in RL.

highheelsandequations · 30/10/2010 19:54

I just got a BFP, shaking like a leaf and not sure whether to laugh or cry :)

reallygrumpy · 30/10/2010 21:56

highheels that's wonderful news, huge congratulations!

highheelsandequations · 31/10/2010 09:44

Thanks grumpy, just need to relax now and try to enjoy it!

tinky19 · 31/10/2010 19:49

highheels, that's wonderful. Smile

Miffles · 31/10/2010 20:43

Congrats Highheels - wonderful news! Can you remind me what your story was? Was it clomid? Share the hope!!!

Welcome, Boba. There are more people with PCOS than you'd think and we try and support each other. Did you have any symptoms from the clomid? Hopefully you'll be getting busy over the next week!

We're back to the consultant tomorrow. Had some blood tests done so results back. He had said we have the choice of clomid (limited chance of success due to DH's swimmers) or assisted conception (IUI/IVF or ICSI). We're going to ask for some cycles of clomid first, see how that goes.

What is the thinking of OPKs when on clomid with PCOS? I know the party line is don't bother, but what have people actually found? Thanks.

Hope everyone is ok. Fairy - how's the metformin going? And well done brilaunt on the weight loss. Amazing!

boba82 · 01/11/2010 10:14

Hi miffles, I have a CBFM which I bought before the PCOS diagnosis and have decided to use again this month as have leftover test sticks. I'll let you know how I find it. Did my first one this morning and it came back low so as expected so far.

As for the Clomid I check on google first and the general concensus was to take it at night to avoid side effects. I took it before bed and have no side effects to report, just hope it does the trick!

I'm kind of similar position to you as I have blocked tube but want to try Clomid first before IVF route but will be joining dreaded wait list v soon as it's 2 1/2 years here Sad Good luck for your appointment tomo x

lucysnowe · 01/11/2010 12:51

pip and tinky I took met initially just before I got pregnant with DD, so had high hopes this time around! However it seemed to actually lengthen my cycles (from 43-49) and I had some irregular bleeding. So I wasn't that happy. Went to GP and she advised me to stick with it, which I did - partly I'm taking it to avoid m/c, so would like to keep on with it if I can.

Last cycle I took soy and have still had some odd bleeding around dc 12-13 or so, but ov'ed on cd23.

As I say it worked well the first time and lots of people have lots of success with it, so tinky it may be good for you. pip sorry you have had woes though, have you gone back to the doc?

tinky you do have to take soy right at the beginning of the cycle, no matter how long it is, so if you have a definite period you could try it. It makes things worse if you take it at any other time, though.

highheelsandequations · 01/11/2010 17:14

Miffles been ttc for approximately 18 months (probably a little longer now, started to lose track of real time and just counted cycle days with recent neverending cycle), went to doctors this time last year to ask about clomid. Finally received my magic pills in May. Was given 3 cycles on 25mg, made me ovulate but no baby. I was then told to wait until my next period then schedule HSG. I meanwhile started acupuncture, vitamin b6, vitamin d and calcium, agnus castus and a spoonful of honey with royal jelly and bee pollen every day! Also read various books on alternative remedies and tried to take on board what I could. Have not had a period since 23rd August! Was starting to go mad with a neverending cycle (longest ever) and wondering when I would ever be able to have my HSG and so more clomid. Assumed the cycle was annovulatory as so long but on CD69 (!!) got my BFP. It ties in with some EWCM spotted around CD54-56 so assuming my body actually managed to ovulate on its own!

Sorry if that was long and rambling but hope it gives you lovely ladies some hope. Was starting to research costs of IVF and feeling very down when it actually happened. Don't know if it was the vitamins, herbs, acupuncture, relaxation, coincidence or luck but my new moral is to try anything and everything!

Hope everyone's okay and had a good weekend.
xxxx

boba82 · 01/11/2010 18:59

Thanks highheels you have given me some hope. I'm quite similar to what you've just described (108 day cycle!) After reading a PCOS book I'm now on loads of supplements and a low GI diet. Hope I'm as lucky as you soon!