Chronic pain Pub Corner - support thread#4 All Welcome

[Akire]

Welcome to our new shiny thread for February. The lattes and expressos were not quite hitting the mark so we have moved to the pub. Whether you need Diet Coke or stiff drink help yourself we have a tab going and hunky staff are very attentive.

@Akire

Can I ask what bladder issues are? What more nasty perimenopausal things do we have look forward to?

Feeling I had constant cystitis or feeling I needed a wee constantly which never let up even when I had one. Some stress incontinence too.

[quote RainbowZebraWarrior]@wildthingsinthenight Thank you and to you too. Funny enough, my bladder issues are back too. I had a note in my diary for a review next week as it would have been a year since my last period, however one came from nowhere. Massively frustrating. I thought I was actually finally in menopause, and now it seems I'm not. I really don't know what to do. I'm almost 51 by the way, and perimenopause probably started at the same time as my pain worsened. That's the reason I had hoped HRT might have helped me with all of my symptoms. But I was diagnosed with osteoarthritis at 48 and Ehlers-Danlos syndrome 6 days before my 50th birthday. It's like falling off a cliff.[/quote]
I was 51 in January.
It's all fun and games isn't it? Not only are we dealing with the issues that give us chronic pain, we now have peri/menopause thrown into the mix!
Such fun

Oh lovely! I keep meaning to do more pelvic floor exercises. I’ve not had kids but apparently that doesn’t really save you in that department. The human female body needs an upgrade. Sorry it’s coming back for you it’s another background irrational and pain isn’t it

Frequent UTIs and urge incontinence are my bladder issues here. Although I seem to be on top of the UTIs now through avoidance tactics (only wear certain fabrics, use certain washing powder and loo roll, nothing scented, no bubble baths, no sex - couldn't give stuff about that any more)

Found you all!! I didn't realise we had moved onto a new thread. Silly me!

Bad bad pain day again today after about half an hours sleep. I'm exhausted.

@RainbowZebraWarrior

Frequent UTIs and urge incontinence are my bladder issues here. Although I seem to be on top of the UTIs now through avoidance tactics (only wear certain fabrics, use certain washing powder and loo roll, nothing scented, no bubble baths, no sex - couldn't give stuff about that any more)

Morning. That sounds rubbish. ❤ Mine never were UTIs it just felt like it. All the time

Apologies.. l'm mixing up stress and urge incontinence. Mine was urge incontinence.

Bad pain day here too, and got DD off school as she vomited everywhere.

Hugs and tea to everyone had a rubbish start to the day. I had better night than expected only Up about 5 times. Hands really sore luckily had last winter (3m) but seemed go in the spring so I shall be grateful if it dosnt hang around. Had X-ray looks fine apparently I can cope with lots things but not my hands going.

Operation get through the day is in progress

I finally got to see the rhumy doctor at my surgery last week. I had to make a big fuss about seeing him though. My surgery is the sort that puts off doing anything to actually help, and talks to you like a child. I've had to make a complaint to them about my treatment. They haven't responded yet though.

He's not ruling out fibro, but he thinks I may be suffering from muscle spasms too. He prescribed me some baclofen and he's going to see me again in a few weeks. 😊

That’s good start they either help quickly or not so one thing to try. I hate when talk to you like a child “so you have tummy ache” no since I’m not 3!

Having shitty afternoon with my kidney/gallbladder pain that didn’t show in scan last time so just have put up with random flares. Least with codeine and constant tens it’s masking it. Still Tuesday!

Fell asleep on my lunch break! Knew I should have got a big coffee and powered through rather than sitting on a comfy squishy sofa with a trash mag!

Hello everyone. Managed to track you all down

I have been stopped in my tracks by the thoughts that this is the long haul and there is no cure, as such.
We have een trying to make half term plans but I'm unable to do much. We have loads of potentially brilliant options (ven more tempting after lock down). Physically they are all impossible for me as it stands at the moment.
Added to which, I feel very self cconcious now. I'm very aware of how akwardI look walking, a hobble that gradually winds down to a shuffle and sometimes a bit of a sit down.
This is all new to me and I'd like a plan of action but I can't work one out.
Anyone had odd sense of slightly disconnected with amatryptaline?
I don't kbow how much difference its made after 3 weeks.

Have you thought about trying a wheelchair for days out or holidays? They are a big “statement” look at me something is wrong. But if it’s stay at home because can’t walk far or get out with a chair and still be some
Pain but feel like have some quality of life is a no brainier. Easier on holiday as not going bump into anyone you know.

It can be tricky get around the “when I feel better I will…” school of thought. I spent years recording stuff to watch when I was having a good day as I didn’t want spoil it. It took years to think I’m never going have good perfect day so let’s crack on things I can enjoy now.

Life sucks you have try make most of it. Your pain may get better may get worse but don’t look back and think I should have tried this or that. If you spending all mental and physical Energy getting from A-B you will be surprised how big the difference is with a mobility aid. You don’t have wait till unable to take single step before a wheelchair is useful.

@lolaflores

I have been stopped in my tracks by the thoughts that this is the long haul and there is no cure, as such. We have een trying to make half term plans but I'm unable to do much. We have loads of potentially brilliant options (ven more tempting after lock down). Physically they are all impossible for me as it stands at the moment. Added to which, I feel very self cconcious now. I'm very aware of how akwardI look walking, a hobble that gradually winds down to a shuffle and sometimes a bit of a sit down. This is all new to me and I'd like a plan of action but I can't work one out. Anyone had odd sense of slightly disconnected with amatryptaline? I don't kbow how much difference its made after 3 weeks.

Sorry to hear things are so rough for you If I take Amytriptiline too late in the evening I feel very spaced out until mid afternoon next day

U know, I think taking a wheelchair beats just not doing anything when i look at it and I'm ot getting this Time back either.

Definitely look into a wheelchair @lolaflores mine is so useful.

Just heard from my surgery. The doc has booked me in for Feb 26th 👍🏻

Well done I’ve still not made an appointment yet

I'm bicycles, I dropped off the other thread as decided I needed a name change and didn't get round to it.
Would highly recommend a wheelchair or mobility scooter if it helps you get out and about. I have a mobility scooter for days out and it's made a massive difference to my quality of life.

Hello @lolaflores
Think we've all had those days. Last year I could barely walk, every movement I did resulted in constant searing pain. I was so desperately low. And the myriad of drugs I was on made me totally spaced out and sleepy. Honestly every day was such a mountain.

I've actually improved a lot since then. And not for everyone but I'm exploring hypnosis at the moment to tackle my chronic pain.

No solutions, just sympathy 💐❤️

@lolaflores

U know, I think taking a wheelchair beats just not doing anything when i look at it and I'm ot getting this Time back either.

Agreed!

Be lovely have a holiday to look forward too you 100% should book something if you have means to do so. Not managed a shower today as had to do some
Minor bathroom cleaning and something had to go. But least the rubbish from there is gone now and floor had swish with the mop.

This is a silly question..
People who have wheelchairs or maybe scooters (I don't have anybody to push a wheelchair) . Do you get any help to buy them? My legs are getting worse daily now and am stuck in the house, don't trust the crutches any more and can only use 1 due to my left arm being weak.
Ive already bought a better set of crutches with 'ergonomic handles', but am starting to struggle with the new ones.
'Mobility' is part of pip isn't it, and they refused me.
Am being sacked this week too, so do not have a lot of money, will need to start saving.
Thanks