Chronic Pain- Daily chat drop in thread #2 All welcome

[Akire]

Hi all well we filled up the last one and now we have our newish chronic pain boards.

This thread is for anyone who has days , weeks, months at time when get chronic pain flair or lives in pain constantly. There are so many conditions that have pain and often limited understand of how it feels to be living through it. All welcome jump in and feel supported

I've had a painful shoulder since July, when I'd had an MRI of my brain (had a stroke), and when getting me out of the machine (I was unable to move my arms then), my left arm was bent right back. I've had CT and MRI scans plus an x-ray on the affected areas, but nothing has shown up. The hospital now says it's a "stretched" nerve and has prescribed Gabapentin which dope me up but doesn't stop the pain. Waiting for an appointment to have tests done on the nerves now.

I’ve got the cold again, last one was okay 3 weeks ago all choked up and full of phlegm, lovely. Just what I need. This is a strange one but my head is painful just now, not a headache but you know the feeling when you’ve had your head up in a tight ponytail or bun for the day and you take it down? That feeling. Ribs sore too just feel very delicate and sore to touch. Feeling the cold now the weather has turned too.

It’s never ending isn’t it? Hope everyone has a decent nights sleep tonight

Blood test just turned out to be no iron again. Such a relief. 😁

@Worrysaboutalot

Blood test just turned out to be no iron again. Such a relief. 😁

Could the chest pain be costochondritis? I had that a few years ago and it sent my anxiety sky high because I kept thinking there was something wrong with my heart!

GP sent me to a&e and a lovely doctor explained it all to me. It lasted about 6 months but at least I stopped panicking about it!

I've had costochondritis too. Its awful, the pain si so sharp and you do worry about it being something much more serious.

Tired today. DS1 is 13 tomorrow, so got to get everything ready for his birthday. Cake is being delivered this afternoon, as are helium balloons.

Hi all. It's been a while since I checked in.

@sweetkitty I had a cold a couple of weeks ago like that. Had the exact same feeling your describing in my head, but only my left hand side. Scalp so sore to the touch and felt like I'd had a tight pony tail in. I worried it might have been shingles starting, but touch wood, was back to normal in a few days. Hope you are too.

I had physio session yesterday. Was thrilled to be told I'm stating a 12 week hospital gym rehabilitation course today. 3 days a week. Finally, I'm hoping I might get somewhere. (EDS, Osteo and Fibro) I've also had funding approved from NHS for a custom made body suit which will protect / hold my joints together. Seeing as they are no longer capable of doing so themselves.

@HerRoyalWitchyness that’s lots of baking! I’ve done couple gluten free and been disasters. Even when followers recipe!

@RainbowZebraWarrior great about gym hope it has decent benefits.

@Worrysaboutalot good about iron least nothing more serious.

I’ve been enjoying really bad bone pain in shoulder arm and wrist on/off. Years back vit D was practically zero but have been taken high dose. Don’t always remember over last few months but don’t see how can go back down zero. Will take few months and see if helps. But annoying feeling like broke wrist for no reason! Comes and goes so no actual damage and no falls or anything.

@Akire xantham gum is your friend when baking gluten free. It holds everything together.

If only there was xantham gum for humans...

I had gum and all proper stuff. Instead of lovely looking brown scones came out as pale ice hockey shots impossible to break!

Oh scones are buggers. I cant seem to get them to go right bi matter which recipe I follow.

@Akire funny you should mention Vitamin D I’ve just ordered some I’ve not take it for a while but I’ve joined a Vitamin D well-being group and am going to follow their protocol, sane with the vitamin B12 I figure I’m low in it anyway I might as well take it and see if it helps with the pain, it’s only a vitamin it can’t hurt. It’s going to be a long dark, cold, damp winter and I get SAD too

Last blood my folic acid was like 3 which can’t help either. I was bed bound for years not once anyone recommend VitD only few years later a neuro ordered bloods and surprise surprise practically zero.

Group sounds interesting what’s the protocol?

Akire - improving health with Magnesium, Vitamin D and Vitamins that work in teams.

So start by taking a good quality magnesium supplement, then add VitD to increase your levels to optimum (in the UK an acceptable level is 50 when it should be over 80), then add in VitK2. It takes it slow adding one supplement at a time. I’m also vegan and potentially B12 deficient too. There quite a few people been wrongly diagnosed with fibromyalgia and it’s actually been vitD or B12 deficiency and the way I look at it is it’s not going to hurt to try to eat well and take optimum amounts of vitamins. As long as I’m not taking crazy OD amounts or anything.

3 separate people today told me I looked tired, grey, pale or washed out. do you think the pain starts to show on your face after a few years? The pain and lack of decent restful sleep?

I need to get on board with the magnesium. I already take vitamin D and the VitB compound prescribed by the neurologist as my diabetes medication is known to stop vitb absorption.

Feeling very very stressed today as littlest tested positive on LFT yesterday. She was out with friends last weekend and one of them tested positive afterwards so we have been doing daily LFTs. PCR due to arrive today. She is very tired. Has constant headache and very tearful. No cough though? She is very scared and I wish I could just scoop her up and cuddle her better.

@cricketmum84 oh no! I hope she's OK

Oh no poor little cricket, hope it’s short lived and she escapes the cough and temp just has virus affect being younger. They did say radio they double jabbed have 1/4 catching in house with infected person. Guess less if doing proper masks and distance etc

Thanks guys, she seems a little brighter this morning. Just been for her PCR test and he said with it being before 12 we might get results by the end of the day.

Oh no! DS1 has tested positive for covid now. We thought he'd escaped but he started with a cough yesterday so did a LFT and it's positive. So got PCR test on the way to confirm.

@HerRoyalWitchyness

Oh no! DS1 has tested positive for covid now. We thought he'd escaped but he started with a cough yesterday so did a LFT and it's positive. So got PCR test on the way to confirm.

Oh no not another one!!

Don't make the same mistake as me.... ordered PCR home test and then got Royal Mail thing saying it had been delivered but there was no blue box?? When I did mine last year it was a little blue box! Cursed royal Mail, asked around neighbours etc.

Anyhoo DH took her to the mobile testing place and had it done there.

Got home and I says oh littlecricket there's another parcel here for you (big a4 grey bag) What you been buying on amazon this time??

It was the bloody PCR test!!

@cricketmum84 typical! Hopefully the tests should be here tomorrow but his cough is awful. Sounds like a 40 a day smoker

Shit. Ambulance on its way for DS1. His chest is hurting and his oxygen has dropped to 92%
So they're sending an ambulance so they can assess and see if he needs to go in.

@HerRoyalWitchyness

Shit. Ambulance on its way for DS1. His chest is hurting and his oxygen has dropped to 92% So they're sending an ambulance so they can assess and see if he needs to go in.

Oh love, you must be so worried!

Fingers crossed for a speedy recovery! X

Oh no but best place so can keep eye on his SATS. Sending hand hold. Hear if need chat x

Thanks. We're in hospital now as they're not happy about the pain in his chest. Hopefully its just a precaution.