Chronic Pain- Daily chat drop in thread #2 All welcome

[Akire]

Hi all well we filled up the last one and now we have our newish chronic pain boards.

This thread is for anyone who has days , weeks, months at time when get chronic pain flair or lives in pain constantly. There are so many conditions that have pain and often limited understand of how it feels to be living through it. All welcome jump in and feel supported

8 steps unaided today!! Managing ok on reduced codeine but my mum is sending me some more x

@cricketmum84 that's amazing! Well done!

Sat in fracture clinic waiting for my appointment to make sure my shoulder is healing as it should.

Not much going on here jaw still agony pain shoots right up my head now and I’m constantly exhausted.

Hi been away back now. Still in back pain though now more one side hip. Only about a 5 on the scale but pain making me feel really sick all the time. Luckily not actually been sick but coke on need start feeling better soem point!

Hope you had a nice time @Akire We had a long weekend up North looking at possible areas to retire as DH is planning to retire after Christmas and we want to be nearer the coast and nearer our adult children, three of them are settled in the North West.

We were both absolutely shattered when we got back on Sunday, I hadn’t slept well at the cottage we booked and my pain and stiffness was really bad with sitting in the car although I only drove part of the way home.

It seems a huge task to move as the area we are looking at is over 4 hours away, but actually the children are all over 3.5 hours away, and I know if we leave it, it will be hard to make that journey and hard for them if we become unable to travel.

12 hours work yesterday, 13.5 hours work today. I feel like the walking dead. Been awake since 2.30am this morning and DH is being a grumpy old sod.

On the bright side my lovely new assistant dug out some codeine and drove to my house after work to hand them over. I was very touched and praying I may sleep tonight. Eyes are already trying to close.

Hope everyone can sleep. I’m so fed up with lots things hurting tonight. Roll on the morning. Good luck everyone

Hope you have a good sleep @cricketmum84 💐

I had a shocking night last night with pain in my hip.

Hope everyone managed to get some sleep last night.
I'm still exhausted despite going to bed at half 9. It's the tossing and turning trying to find a comfortable position that does it

Better night for me thanks, I woke up with pain but managed to shift my position and do some yoga breathing and get back to sleep without taking any painkillers.

@Evenstar

Hope you have a good sleep *@cricketmum84* 💐

I had a shocking night last night with pain in my hip.

Me too! Up from 3-6 trying toss turn stretch and move. Starting worry it never get better! Luckily managed a few hours sleep after so not totally waking dead today.

I’m just toddling along with my hydrocodeine taking the edge off the TMJD pain. Constantly shattered as usual, not seen any effects of the EOD B12 injections yet but they’ve said it can take years to reverse the effects of B12 deficiency.

cant sleep tonight so messing about on the internet to distract me fromt he fact im not asleep yet. just having a mug of hot chocolate to see if that makes me feel like sleeping. pain is intense tonight, not that it isnt always but it seems to have a sharper edge tonight :(

Hope you managed to drop off, not doing to bad here. I mean still doing very little so that helps can’t push things to far.

Sorry I've been a bit quiet last few days. Work is killing me. My back hurts like hell from sitting in the same position for 13 hours a day! And just in case my nerve pain wasn't bad enough my sciatica has started playing up again. I have two bulging discs in my lower spine that have been nice and quiet for a while now but they decided to make themselves known again.

Still practising some unaided steps but it seems much harder without decent painkillers.

What does everyone have planned for this weekend?

Sorry we all have curse of back pain at the moment. I’m not planning much! I could be doing loads sorting and decluttering but everything requires bending it sitting funny position so I would do myself no favours.

Anyone here heard about 3rd jab? I had mine late so not due till start Dec but hoping change rules and make it 5m by time it rolls around.

Nothing yet. I think I should be due a booster as I'm diabetic and had 2nd jab in May so that would make it due in November.

I keep getting called for flu jab too but every time the clinics are when DH is working and I can't get there myself.

I'm all alone this weekend! DH working both days, eldest DD is with GF until Monday and youngest DD going to her BFF soon for meal out and sleepover.

Need to try decide what to do with my few hours to myself. Scrap that I'll probably work 😂😂

I'm due my booster in November.

Had my flu jab yesterday so feeling quite rough today. Just want to sleep, but with three kids, one with covid it's just not possible!

My wrists are playing silly beggars too they keep popping out.

Hello everyone.

Sorry I've been quiet, life is very busy at the minute. Lots going on with my son, I work with online retailers so work busy!

I managed to come off coedine again as I was up to 6 tablets a day and the brain fog was crazt.

Remember I mentioned the infusion of ketamine and lidocaine. I'm having another one next week. The goal is to try and get my pain receptors to switch off.

I'm doing more gradiated exercise, trying to gently move into the painful movements to train my back to chill out. It's such a effort but I need to.

I've had pain every single day from being 28 to now nearly 32. I'm really sick of it.

ive had my booster already about three weeks ago and ive had my flu jab as well. waiting to get the pneumonia jab now

Hope everyone is getting through Sunday ok. Not been out last 5 days so much Tv but with back don’t want push it as around here going out in wheelchair like going down roller coaster in Tesco trolley.

Did manage do some basic tidying that I could bend to do. So slow and steady. Back still sore trying not
Lose hope it’s not stuck like this.

@Akire

I am having a easy day in terms of doing nothing but not so well pain wise.

The nerve pain is bad in my legs and the pain in my chest is back again. I am having an ultrasound scan in a couple of weeks about my chest pain. But the hospital have looked into my chest pain before and it just goes away after a week or so. It is where my gall bladder was but they took that out years ago.

So I have learnt to ignore this pain but when I was struggling in pain to get on the GP's table, she wanted to have it looked into again. But when they look into things they find more things wrong and I can't bear it.

Just praying the scan comes back clear.

My GP upped by Gabapentin and Amitriptyline recently but I had to take a couple of Zapain just now to cope with my pain

My last routine blood test last week triggered another couple of further blood tests in the lab apparently. The GP receptionist who called to tell me , said the doctor would ring me next week when the second set of results come in. So I am awaiting that doctors call and dreading that too.

I am so worried about this blood result I really can't have anything wrong with me.

It’s hard isn’t it, I’ve been sitting here this afternoon worrying about back and not really just the back it’s the “just another” annoying thing I really can’t deal with. No wonder it makes us stressed out.

Sorry you having rough day over there, it’s good they are keeping eye on your bloods. Fingers crossed nothing serious

I've been busy baking with the DC today. But now I'm paying for it as my shoulder is killing me. plus my wrist came out last night which was fun

Anyway, we made sponge cake... which they over decorated with sprinkles, brownies and banana bread. All gluten free for DS2 as he's coeliac.