Chronic Pain- Daily chat drop in thread #2 All welcome

[Akire]

Hi all well we filled up the last one and now we have our newish chronic pain boards.

This thread is for anyone who has days , weeks, months at time when get chronic pain flair or lives in pain constantly. There are so many conditions that have pain and often limited understand of how it feels to be living through it. All welcome jump in and feel supported

I ended up on the park despite the pain I'm in. Didn't stay too long as the cold exacerbates my pain levels. But the kids are happy and have burnt off some energy.

@Akire

I find catch myself saying “oh I treat myself to some meds” when you been agony all day because you have keep strong ones for when you are desperate and avoid the druggy seeking behaviour.

Glad you have a black market supply I take codeine for month sometimes the only withdrawal I get is headache for day or two that passes. They do help
Pain but make you feel sick and constipated dry mouth might as well just get drug less side effects.

I don't mind the constipation side effect!

I have to take metformin for my diabetes and it has the (ahem) opposite effect. So they balance each other out 😂😂

Welcome done Cricketmum84 on the 20 steps times two. Absolutely great news

I am waiting for the increase in Amitriptyline to start working but evenings are getting too hard recently.

I just asked very patient husband to go and get some Zapain from my meds which was left over from my unexplained stomach pain last month.

Hoping it will take the edge of my nerve pain in my legs. It is both roasting pain and lightening strikes all over my legs. Plus red hot pokers in my toes.

Not pleasant at all

I don't want to increase my Gabapentin (assuming the GP would even do it) if l can avoid it but I don't think I can get through another three weeks feeling like this.

Any suggestion to help with permanent nerve pain would be gratefully received.

So far today I've hurt my back, dislocated my wrist and dislocated my shoulder. All by stretching

Just taken my painkillers and done my B12 injection, anxiety through the roof as we are going on an overnight and I hate being away from home. Had a rubbish nights sleep which just adds to the feeling rotten doesn’t it? Everyone else is so happy, my stomach in knots and I feel like crying so so much.

for anyone else hurting today

[quote sweetkitty]@Akire thank you
I can’t even have wine anymore it gives me migraines. Last time I met up with a friend had a few cocktails I spent the next 2 days in bed unable to eat, drink, speak and was a wreck basically. Lost 5lbs in 2 days through dehydration (sipping water just for it to come back up again), it’s just not worth the risk anymore. So I turned to my other vice chocolate but now I can’t eat that properly but I have a tactic, post a bit into my mouth and wait until it melts [/quote]
Oh this is me! I loved wine and it just makes me so ill now. I'm gutted.

I haven't dare tried to drink, in the last 18 months due to all the medication I am on and I worry that it might make the pain worse!

I've spent the day in hospital waiting to have my shoulder reset. They gave me gas and air while they did it but otherwise left me without pain relief

@HerRoyalRisesAgain hope it is more comfortable today. Hope everyone is doing OK.

I cleaned the fridge yesterday and I am really stiff today, though don’t know if it was that or the flu jab I had on Sunday. I did save myself a lot of effort though by running all the shelves and door pockets through the dishwasher on a 45° quick wash, I don’t know why I had never thought of doing it before.

I need to do a job upstairs, but I am expecting a parcel and don’t want to be upstairs when it comes as it will take me too long to get down, also I would have to do the stairs twice instead of once and am not sure I feel up to it today, hoping it might improve as the day goes on ☹️

@Worrysaboutalot my nerve pain is exactly the same.

Right now my right foot is burning hot, my left is icy cold, the tiny borrowers are drilling into my ankle bones again and my feet are being stung by a million angry bees.

All this while I'm trying to balance a very awkward and annoying pensions report!

@HerRoyalRisesAgain really hope you are feeling better today. That sounds absolutely awful!

@cricketmum84 Yes, that sounds like my pain too. Strange sensations! Did you find anything that helps yet?

Shoulder feels much better today. Got my arm in a sling ti stop me moving it too much.

@HerRoyalRisesAgain Seems rough of them not to give you other pain relief to reset your shoulder! Hope you are feeling better today.

[quote Worrysaboutalot]@cricketmum84 Yes, that sounds like my pain too. Strange sensations! Did you find anything that helps yet?[/quote]
Codeine... until the bastards took it away from me!!

Warm water helps, I tried a foot spa which increased pain but in the bath or the hot tub (sadly packed away until next spring) the pain is lessened.

Magnesium spray seems to help if I put it on before bed.

I need to try ibuprofen gel as a few people have said that helps.

There is a Facebook support group for neuropathy pain if you use fb at all. I find it quite helpful. I can send you the link if you want?

@Evenstar I highly recommended a stair lift. I was upset when we first got ours but I was falling on the stairs, so needed it for safety.

It means I don't have to restrict drinking water (hence toilet visits) and van go up and down stairs several times in a day!
Just 48 seconds top to bottom.

Also a Ring doorbell is invaluable. It means I can talk to the person at the door and tell them to wait for me to come downstairs (on my stair lift) or just leave the parcel outside for me to collect later.

Technology can really help at times.

@Worrysaboutalot I have thought about a stair lift, particularly as I had a really bad flare in February which led to me being referred and getting the fibromyalgia diagnosis.

The thing is we are hoping to move in the spring, and I don’t want to go to the expense now, if we don’t get a bungalow, I am thinking a stair lift will be a good idea, even if just for bad days. I will definitely consider a Ring doorbell then too, it does sound useful, luckily we have a downstairs loo so that’s something.

Yes, a downstairs loo would be brilliant! Wish we had one.

so they want to reduce my painkillers. they say ill build up an addiction ot oxycodone if they donrt rreduce them, its was the doctors surgery pharmactist i spoke to and hes rining me back next week after he looks into other options for me. he said its the fact that they are opiates they are so concerned by and ive been ont hem ten years now. ugh, i can barely function as it is so i hope they have soem other options for me.

arm is still super sore from my third covid jab, can barely move it so feel useless. at least the feeling like a truck hit me feeling has passed now

love to all and gentle hugs if you can tolerate them

The bastards one why di they always take us off pain killers? They took me off diclofenac and put me back onto naproxen even though diclo was working better for me than naproxen did. I'm now on celebrex instead.

Sorry hear so many having meds mess around problems. They must accept in some instances removing ends does more harm than good on long term quality of life and related Heath problems like high blood pressure pain and anxiety. They don’t do body any good either. Think most of us would accept risk of long term meds and have few years off life expectancy than live 5y longer and be in unbearable pain every day.

Waited 10 months for an urgent neuro appointment to be told that I have anxiety by a dr who arrived 2 hrs late, not read my notes or asked about a single symptom.

Great.

The only anxiety I have is having to deal with useless doctors in the nhs.

@Daimyum how frustrating

@Daimyum

Waited 10 months for an urgent neuro appointment to be told that I have anxiety by a dr who arrived 2 hrs late, not read my notes or asked about a single symptom.

Great.

The only anxiety I have is having to deal with useless doctors in the nhs.

That’s awful, did you ask of it was anxiety why he thought your GP who sees you al the time referee you to neurology? I’ve says found neurologist think they are God

Thank You

I shut him up, said I know it isn't because I'm a nurse, that I have had anxiety in past due to abuse and questioned him about why he thought my symptoms were anxiety. The symptons he didn't know about as didn't do an assessment.

I then said I needed mri. Which he booked, saying it will prove its anxiety. I said I'd changed my job and then been told I'd never work again, so I need a diagnosis as it might be treatable. Even refused to read a letter from rheumatology tgat I had in my hand, which said I definitely had fibro and maybe ms.

He was also sat there readjusting his parts. During the 'consult'.

I already have a complaint going on about my 'care'.

Feel completely let down. Its bad enough being ill.

How very typical way to treat a woman of a certain age well most women really! Wonder how many men get told it’s anxiety soon as go in the door.

Glad you were assertive enough it’s stressful enough without having fight your corner to, so well done