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If i type out DS's EEG report, would you care to express an opinion?

54 replies

JustKeepSwimming · 02/05/2009 19:13

(hope this is the right place to put this)

History:
DS2 (15mo) had 2 'convulsive' seizures (Tues & Wed)
He has also been having absence seizures since Wed (poss earlier but we have only noticed them since then)
Had EEG Friday

EEG report (just the conclusion) as follows:

'The EEG is markedly abnormal. There are frequent high amplitude spikes and sharp wave abnormalities that are ill localised/multifocal and sometimes more generalised consistent with a seizure disorder. Abnormalities at present are not hypsarrhythmic. Further classification is not possible.
You may want to look for potential underlying causes such as structural cerebral pathology as well as metabolic aetiologies.'

Right, imagine i know nothing. what does this tell you?
Could you compare it to your own/your DC's report?
Any help, support, advice & hugs welcome.

(we understand that he has epilepsy, he is due to have an MRI soon for more info, then we will be transferred to GOSH and to discuss meds. All new territory for us and need some knowledgeable support, tia.)

OP posts:
JustKeepSwimming · 15/05/2009 21:27

Ah, that's the thing, they don't know.

Hopefully GOSH will be able to tell us more.

OP posts:
labyrinthine · 15/05/2009 23:12

well wishing for a good report on that for you

JustKeepSwimming · 16/05/2009 21:38

Thanks, fingers crossed we find out more.

OP posts:
JustKeepSwimming · 19/05/2009 20:30

Well, appointment today at GOSH. not sure i can summarise it properly but here goes:

PLAN:
increase to 3/4 dose today (instead of waiting till fri), then full dose next week.
then 2 or 3 weeks later the fits should have stopped.
IF they haven't then Epilim is the wrong drug and we can try Keppra (think she is keener on K than E anyway from her tone).
so within a few months we really should be on top of the fits.
she wants us to go back in a couple of months to discuss.
and another MRI in about 8 months to see if they can get a clearer picture of abnormal bit.
it is NOT a tumour, it is an 'area' (about the size of a slice of a medium size tomato) that did not develop in the womb (for no particular reason) and will not grow/change/develop from now.
the brain should learn to work around it so his development should NOT be affected. though he may have learning issues later on (but then i'm expecting dyslexia anyway cos of DH)...

if the drugs aren't working & another MRI shows a better pic, then they may suggest surgery.
but...she is a specialist in the ketogenic diet and was happy with my preference to try that before brain surgery (or at least to fully research the surgery before just blindly agreeing to it).

mostly positive, some sadness, he is unlikely to 'grow out of it' but it should not affect things like driving, swimming, school, etc.
fingers crossed.

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