Morning @YourRubyMaker, I’ve been thinking about you and your son. It’s good he got a little sleep. How is he in himself? Is he chatty and able to watch things on a phone etc.
I’ve been with my DS in hospital for something different, yet v serious. Luckily he was given a side room, as the ward was hellish, due to kids crying etc. It can be so hard for them to rest.
I agree with @Wilfrida1, I know how hard it is, but try to focus on only what you know one step at a time. Make sure you take active notes of what the doctors tell you, as it can be very hard to take in when you haven’t slept and are so stressed. So, it’s easy to forget unfamiliar terminology. By taking a note, it’s easier to think of questions at the time. Bear in mind, doctors will often warn you of the worse case scenario initially, as they don’t want to mislead people. In my DS’s case, the doctors kept disagreeing with each other, which didn’t help but was good in some ways as there were different opinions. Never be shy of asking for a second opinion.
Also, I know it’s so horrible to say (as everyone’s in need) but you have to be pretty forthright in hospital to get your child (and yourself) as comfortable as possible. They’re often so overrun they don’t offer things up. Or things don’t always occur to them. So, if he’ll be there for a few nights, be proactive in asking for things, e.g. let them know it’s his birthday tomorrow and ask if there’s any chance they may be able to move him to a side room for the day or so, so he can enjoy his day as much as possible.
Ask for meal vouchers for yourself and to be referred to patient services for help, e.g. with overnight accommodation for your DP and little one if the hospital is a long way from home. At times like this, you’re entitled to ask for us much help as possible. Try to get as much sleep as you can via naps etc. There’s so much waiting around for scans, doctors to come etc. In our case, I’d hang on for the doctors for hours, without washing or eating, then it was always when I’d popped to the bathroom or canteen that they’d come. So just grab naps when you can.
Sending you strength ❤️❤️