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Original poster

Can i have an urgent opinion please?? **Trigger Warning - Graphic Images**

173 replies

Ouchmyheadhurts · 30/08/2019 19:19

My dc is under paed care (I have another thread about auto immune) basically he’s had explosive diarrhoea, mucousy stools and stomach ache since January. He’s had two lot of stool samples and all fine? Had bloods and all ok apart from Ana abnormal and low ferritin. He had those bloods re done last week to check. Paed said primal food intolerance, said 4 weeks dairy free, 4 weeks wheat free (currently half way through) and 4 weeks low fructose and ‘see you in a year’ Hmm

Anyway about 2 weeks ago he starts having blood in his poo/the water. GP not concerned and said probably piles. Today he’s told me he’s being feeling something ‘there’ in his backside, been feeling it a while, didn’t want me to look so I said probably piles don’t worry and if he would feel happy me checking then to let me know. He’s just called me and said it’s happening and let me look. It doesn’t look like piles, I’m petrified it’s some sort of prolapse? He said it happens when he wees, poos and sometimes randomly. I could see whatever it is sort of come out his back side as he was on all fours...... he said when it happened is when the mucous comes out. This is all new to me and I’m really worried. Do I need to take him to gp tonight?? What does a prolapse look like? Could it really be just piles? He isn’t itchy ...

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Original poster
Ouchmyheadhurts · 31/08/2019 07:36

Rang 111 at 6, they said he should be soon by a doctor, they said I could go to a particular hospital a&e and ‘present ourselves’ or wait for gp apt at out of hours so I’ve taken out of hours apt as that will be better for him. I haven’t had a call back though with appointment so going to call them when Iv sortied dc breakfast.

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Orchidflower1 · 31/08/2019 07:39

Morning op- glad they are able to help you. The appointment sounds better for your ds. Hope he gets some help to ease the discomfort today.

Toomboom · 31/08/2019 07:54

I would take him to A&E. It could be piles, but it sounds as though it does need sorting.
You say he has had infection check with the cal protectin test {stool sample ], did they also check for inflammation? This is important and needs to be ruled out. High inflammation is an indicator for crohns or colitis

Original poster
Ouchmyheadhurts · 31/08/2019 08:00

Yes inflammation marker was 5 I believe, I’ll have to have a look as I wrote it down. Paed isn’t remotely interested. He said due to results there is no sign of chrons, colitis, IBD etc and I should be greatful that’s the case Hmm of course I’m greatful he doesn’t have any of those but somethings wrong with him!!

111 don’t deem it necessary to go to actual a&e unless I want to, which I don’t as he will get so stressed in that environment and make the situation worse, I’d rather sit the wait at home where he’s calm and see a doctor in our town. If we have to go to hospital then we will go with a doctors letter hopefully and not have to sit for 3-4 hours in waiting room.

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hazeyjane · 31/08/2019 08:01

Hope you get some help soon.

As well as looking at the possible prolapse, I would want a referral to a paediatric gastroenterologist for the on going digestive/bowel problems.

Original poster
Ouchmyheadhurts · 31/08/2019 08:03

haze we are already under the paed gastro at the hospital.

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BarbaraStrozzi · 31/08/2019 08:12

Re. Giardia, having had this and having had a false negative from the first stool sample they took, can I ask if your DS has had repeated stool samples tested for infection? It's a parasitic infection and in order to pick up signs in the stool samples you have to catch the parasite at the right point in its life cycle. If giardia is suspected, three samples at daily intervals are tested. The problem is that it's often thought of as a tropical disease or at least disease of hotter climates than ours, so often medics don't think to test if you haven't been out of the country. In fact there's several thousand UK-contracted cases every year (I caught it on Dartmoor!)

I had the runs for two months, and we were starting to wonder about IBS etc but fortunately my GP said "we'll do a second test for infection just in case" and it was picked up then.

Not saying your son does have it, just suggesting "tests came back clear" isn't a guarantee as this particular condition does throw up a lot of false negatives.

Original poster
Ouchmyheadhurts · 31/08/2019 08:38

He’s had two stool samples done and both were fine. The last one was a few months ago now.

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Original poster
Ouchmyheadhurts · 31/08/2019 09:01

Feel sick with anxiety. He doesn’t like hospitals. Are they likely to do anything today to him? Obviously a prolapse isn’t good, but is there a chance they might send him to paediatric hospital? I had a call to say our out of hours is closed and I have to drive to out of hours at a hospital half hour or so away but there is no emergency paediatric care there. So if they were going to do anything to him I will probably have to drive to the paediatric hospital which is about 40 mins from the out of hours hospital.... should I pack a bag in case or am I being over dramatic? I can’t tell him what’s going on as I have no idea!

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MissSmiley · 31/08/2019 09:02

Coeliac disease can present with a false negative for antibodies, it's very common to be lactose intolerant when diagnosed, I was diagnosed as an adult and gave up lactose when I went gluten free, I also had problems with piles and blood in stools from the constant diarrhoea

I hope you get some answers for your son

FrancisCrawford · 31/08/2019 09:09

This reply has been deleted

Message withdrawn at poster's request.

hazeyjane · 31/08/2019 09:15

Ah, sorry ouch, I assumed it was a standard paed who was focusing on the intolerances.

Ds (9) had years of constipation/ diarrhoea and digestive issues before we were referred to a paediatric gastroenterologist, who did an endoscopy, colonoscopy and ph probe.

Hope you can sort something out. Ds also has complex needs, and I always put a packed bag in the car just in case of admission when we have been to A+E....but I don't let ds know. I just focus on the things I can be clear on, even if that isn't much!

Good luck.

Fretfulparent · 31/08/2019 09:30

First you need a dr to look at his bottom today. If the prolapse is hanging out it will need to be pushed back in and if that can't be done gently and easily by the OoH GP then the Gp will probably refer him to the on call surgeons at your local hospital to be seen today.

If the prolapse is not evident today then it's not an emergency. Eventually he may need to be seen by a colorectal surgeon who specialises in rectal disorders. This can via a referral from your own GP for an outpatient appointment or via the emergency surgeons if he's admitted.

Whatever the outcome he must not strain to have a poo so will probably be given softening laxatives.

Original poster
Ouchmyheadhurts · 31/08/2019 09:31

I have other dc too but haven’t said too much. But he’s worrying. Iv packed a bag, at least I can do at least one thing pro active!

Does anyone know if they are likely to try to fix it today? The more research I do the more im sure it’s a prolapse.

He’s going to hate someone picking around in his backside. He hasn’t let anyone check up there. The paed had a ‘look’ but didn’t check inside. Understandably probably one of the worse areas to be worrying about for him. Iv told him they’ve seen much worse and even told him Iv been in more embarrassing situations having had natural births including pooing in the birth pool which he found highly amusing.

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Original poster
Ouchmyheadhurts · 31/08/2019 09:33

Sorry cross post. It isn’t hanging out right now, it comes out when he’s on the toilet, or weeing (standing) and happens randomly. But not all the time. He showed me when he was on all fours. They can’t give him laxatives as he has diarrhoea?! That would be carnage.

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sameshitnewday999 · 31/08/2019 09:46

Sorry I know this is a long shot but has he been tested for milk allergy? My DD who is much much younger than your DS has almost exactly the same symptoms. Within days of her changing diet she was like a new person.

Worth a try? Or maybe get him tested? Also for coeliacs x

Original poster
Ouchmyheadhurts · 31/08/2019 09:49

We’ve tried that. Had 4 weeks of dairy free currently half way of 4 weeks of wheat free but he’s still eating gluten in oats, barley and malt as that what it says on the diet sheet.

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Youngatheart00 · 31/08/2019 09:53

Has he been tested for crohns and/or ulcerative colitis?

The urge to go and going persistently may well have caused the weakness in the muscle wall which has caused the prolapse / severe piles?

Really hope you get a diagnosis soon for him. And that you can plan a treat of some sort for when he’s home - I agree being examined will be traumatic for him but it’s all part of them helping him to feel better. Keep us posted and sending you very best wishes.

Original poster
Ouchmyheadhurts · 31/08/2019 09:55

Thank you young. Paediatrician is adamant there is nothing wrong with him as all bloods, stool samples were fine and no signs of inflammation. The only problem that has arisen is his ANA bloods were abnormal and he has low ferritin and smaller red blood cells than normal.

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Youngatheart00 · 31/08/2019 10:00

I see - these things are so frustrating before a diagnosis has been given. But keep the faith they’ll find it soon and that seeing a doc today is a step in the right direction. Flowers

celebrityskin · 31/08/2019 10:04

Here are some photos...
1: prolapse rectum
2: prolapse haemorrhoid
3: haemorrhoid

jobbymcginty · 31/08/2019 10:13

That's definitely a prolapse , it take him to a&e he needs medical attention, try not to worry but it's not life threatening but needs looked at why a bit of that age has a prolapse, hopefully they'll get to bottom of the poor boys health issues x

Original poster
Ouchmyheadhurts · 31/08/2019 10:14

It looked most similar to number 1 but darker in colour and a slightly different shape. Whatever it is it seemed to move in and out completely if it’s own accord, almost like someone was pushing it down with a stick. Hard to explain. Iv had piles/ seen Piles but never ever seen anything like I saw on him.

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jobbymcginty · 31/08/2019 10:22

I'm a nurse a prolapse will move in and out usually with pressure like standing up or having a bowel movement

Original poster
Ouchmyheadhurts · 31/08/2019 10:27

Thank you for replying, that sounds like what he is describing. Presuming they can’t leave it to fix itself? I think he’s been like this a little while now. What are they likely to do today do you think or what can I expect? I’m so fed up of to date care from paeds that I want to make sure they now take this seriously but at same time don’t want to blow my top at a random GP we’ve never met....

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