From eye test to oncology and MRI?!?!

[Bonkerz]

Feeling confused. Avoiding doctor google. Don't know what to think!

Dd age 12 had her eyes tested at local opticians in half term. She left not needing glasses. Optician rang me 3 days later and said she had failed the peripheral vision test 4 times and as a precaution the optometrist wanted to refer to local small hospital for further eye tests.
A week later I had a call from county hospital (not small local) to attend an appointment yesterday (4 days notice).
Took dd yesterday for what we thought was eye tests but after an hour of dd being examined and being asked questions the doctor said she was from oncology and that she needed to speak to her consultant.
After 2 hours we were told dd needed an MRI scan and the word cancer was dropped a couple of times.
Even more scary doctor gave us a list of symptoms to watch for (tbh dd has had headaches and dizziness for months now but I put it down to weather and puberty!) and told if she got worse to go straight to A&E with her case open on oncology.
Got home and got call to take her tomorrow for MRI.

I'm really confused. Don't know how we got here. Are they being over cautious? Could the optician have seen something worrying?
TIA

So today we had hospital.
Dd was seen by 7 consultants. It was quite scary when they were all in the room talking about a plan.
Basically they are treating her for atypical migraine. She is starting on 80mg propanalol for this.
She also had bloods done today and I made sure they are doing b12. She has to have another MRI scan too and then she will be seen in December to see how things are going.

I am glad she has been seen. Will the school accept her in now?

Possibly Wednesday as she's got to take her first dose tomorrow. Got to have a meeting to sort a health plan for her first

So things are not good here.
Propanalol hasn't worked. Dd I'm just as much pain as before. So much so she's now started to cut her arms. She says her head hurts all the time and cutting helps with the stress.
Doc changed her propanalol to pizotifin tonight. We don't see hospital consultants till Dec 10th and in mean time I don't know how to help dd.

I've just caught up on this thread OP. So sorry your DD's still suffering.
Did you manage to get blood tests done? Did anything show up on them?

Hospital did blood tests and MRI. Don't have the results yet.

I don't know how you would feel about this. But I suffered from horrendous migraines I couldn't see would be sick it was awful. I had my daith pierced 6 weeks ago. I've gone from 5+ migraines a week to only having had 2 in the last 6 weeks. There is no guarantee it would work for her but I got to the point of anything is worth a go. I just thought I would let you know my experience so maybe it's something you might like to look into

My daughter has migraines & can't tolerate any of the drugs, they make symptoms worse. Though we later realised this was related to a B12 deficiency

Really good results with Feverfew herbal though. Taken everyday as a preventative it's cut down her migraines a lot. No real bad headaches, just milder aura when she does get one

How is everything going I hope things have improved since we last heard from you. X

Not great here. Dd self harming. She says pain in her head is getting her down.
Hospital today. Bloods clear and fact that propanalol hasn't worked for her means it can't be migraine apparently. Opthomology now referring her to pain clinic. In mean time we've been referred to Cahms crisis.

She hasn't had the vaccine yet. She's been seen by Cahms tonight who are referring her for autism tests. (My eldest is autistic)