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Does anyone remember my little Blue-eyed Joseph? Bad news and I could use some support, please.

800 replies

Trazzletoes · 27/06/2016 19:51

My 6 year old, Joseph, was diagnosed with stage 4 high risk neuroblastoma cancer when he was 3. He had 14 months off treatment and then had no evidence of disease for 2.5 years. We were starting to imagine a future for us all and make plans.

We found out a fortnight ago that he has relapsed. 5 year survival rates from here are less than 5%. Possibly even less than 1%, I can't remember. Chemo starts tomorrow, I am struggling to understand how this has happened to us again (because there is no reason) and how on earth we are going to make it through this. I know it's by taking a minute at a time, but it feels so huge right now.

OP posts:
Fueledwithfairydustandgin · 27/06/2016 21:00

There are no words but just wanted to add my love and best wishes Flowers

Coconutty · 27/06/2016 21:00

This reply has been deleted

Message withdrawn at poster's request.

LemonEmmaP · 27/06/2016 21:06

I've thought of you and Joseph over the years, wondering how you were getting on. I'm so sorry you're facing this again and send strength, love and best wishes to you and Joseph.

AnchorDownDeepBreath · 27/06/2016 21:09

I am so sorry. I read your threads, I don't think I ever felt wise enough to comment. I'm wishing you all the best.

FancyPuffin · 27/06/2016 21:09

Oh God, my stomach literally dropped when I read that Sad

I remember Joesph well.

I'm so so very sorry Flowers

Hassled · 27/06/2016 21:09

I've thought of you so often over the years and wondered how you and Joseph are - but thought that no news was good news. I'm absolutely gutted for you now - just so, so sorry. As if you haven't suffered enough already.

naturalbaby · 27/06/2016 21:11

I remember you too, I also have a 6yr old. How heart breaking.

dementedma · 27/06/2016 21:12

I have a blue eyed Joseph here too. Sending thoughts and prayers.

Freesia2013 · 27/06/2016 21:13

Sorry to hear this, positive thoughts to your boy Joseph, and thinking of you and your family x

ShowOfHands · 27/06/2016 21:13

Oh my love. I think many of us remember. I'm so sorry. We're here. I know it's not much but we're here and we care.

Trazzletoes · 27/06/2016 21:15

Thanks all xxx. SPB, chemo is 5 days on a 28 day cycle, x 6. Scans after every 2 cycles.

OP posts:
Trazzletoes · 27/06/2016 21:16

It's really nice to see he is so well-remembered :)

OP posts:
PausingFlatly · 27/06/2016 21:19

Will be thinking of you all.

MrsPigling · 27/06/2016 21:20

so very sorry :( will be thinking of you x

60sname · 27/06/2016 21:20

So sorry Flowers

BluePitchFork · 27/06/2016 21:20

so sorry to hear that. was hoping (in a good way) never to read about your beautiful ds again!
whishing you all the best. may he be the 1% who makes it.

StealthPolarBear · 27/06/2016 21:21

Of course he is x
so you have this till about Christmas? Will be thinking of you all xx

PotteringAlong · 27/06/2016 21:21

I remember your threads too. Sending you all much love

sunnydayinmay · 27/06/2016 21:22

I often think of you too. Flowers

PoppyAmex · 27/06/2016 21:22

I remember Joseph and have often thought of him and your family.

I'm very sorry to hear such devastating news - you are in our prayers, wishing you all the best.

SarahJinx · 27/06/2016 21:23

I remember too, so well. You posted a picture of him just after he was diagnosed and I remember his beautiful eyes. Dreadful news Trazzle, I thought of you guys all the time and also hoped that no news was good. My heart goes out to you and your family love x

Tidypidy · 27/06/2016 21:26

Sending thoughts and prayers to you and your family. Try to stay strong.

Ihavesomethingtosaytoday · 27/06/2016 21:27

Sending lots of love to you and that wonderful boy of yours. It's not fair. I remember you guys particularly because my DS is a Joseph too, and my DH was diagnosed with cancer at around the same time (I used to post as tunnocksteacake)

leccybill · 27/06/2016 21:27

Sending love and prayers to you and your wee Joseph.
And f*ck you, cancer.

froubylou · 27/06/2016 21:29

You have my prayers and thoughts my love. Be kind to each other xx