Does anyone remember my little Blue-eyed Joseph? Bad news and I could use some support, please.

[Trazzletoes]

My 6 year old, Joseph, was diagnosed with stage 4 high risk neuroblastoma cancer when he was 3. He had 14 months off treatment and then had no evidence of disease for 2.5 years. We were starting to imagine a future for us all and make plans.

We found out a fortnight ago that he has relapsed. 5 year survival rates from here are less than 5%. Possibly even less than 1%, I can't remember. Chemo starts tomorrow, I am struggling to understand how this has happened to us again (because there is no reason) and how on earth we are going to make it through this. I know it's by taking a minute at a time, but it feels so huge right now.

Oh god, Trazzles, I'm so sorry

Will keep you and your brave Joseph in my thoughts xxx

Oh, Trazzletoes. I've been reading your threads for so long and often thought of Joseph. My very best wishes to you all.

This is desperately sad. I am so very sorry.

I was looking in children's health for DS and wasn't expecting to see this thread. I remember your original thread. There are no words. Thinking of your DS Joseph and your family, hoping and wishing for the best. Thinking if you and sending positive thoughts.

Thinking of you today, Trazzle.

Since you say you took him to hospital for the day I am assuming he is at home?

My limited experiences of watching a palliative care team at work are that they are very good. I hope they are able to keep him comfortable.

Is there anything he is able to enjoy at the moment?

So sorry to read this update Trazzle, sending much love your way x

Thinking of you all and sending lots of love your way

Sending love and strength. ❤️

Trazzle- I'm another that has been there from the start. I am so, so sorry that this has happened to gorgeous Joe. What an amazing child he is. My thoughts and prayers are with you all.

I'm so so sorry to read this Trazzles. I followed your threads the first time and was so sorry to read your update.

I'm so sorry.

I'm so sorry. ☹️

I am so sorry to read this Trazzle. I will keep you and your blue-eyed boy in my prayers, and I hope he is comfortable. Sending love to you

Proud to say that dd gave blood for the first time in May, I can't anymore.

Thinking of you

I'm so sorry to hear this, I had been willing you and your brave brave boy on.

Signed up to give blood next week. I will think of Joseph when I do it, and every time after that too.

I am so sorry

I am so sorry

So sorry to read this. Such a brace boy. So very difficult for you and your family. Sending love.

This is so sad Sending my very best wishes

I so wish I could give blood but I have a blood condition which means I can't.

Hello, I posted all the way back when Joseph was first diagnosed and treated, I had had some experience of oncology/childhood cancer with my son who is just a year or so older than J. I think of you often. I am so so so very sorry for your most recent news. How completely devastating for you. This is the time to put yourself and future memories of this time as a priority. I'm sending you a huge amount of love and all of my thoughts. There's nothing much anyone can say to help but I wish there was.

Another one who has followed from the start. Sending my love and thoughts to you all

so sorry to read this op

Also followed and often thought of you. Devastating news, I am so sorry, there are no words xx

So terribly sad to hear this terrible news about your precious little Joseph

I'm so sorry Trazzle, thinking of you and your gorgeous little man x

I am so sorry to see your latest update, I too remember when you first posted about your little Joseph. You will be in my thoughts 💐