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Does anyone remember my little Blue-eyed Joseph? Bad news and I could use some support, please.

800 replies

Trazzletoes · 27/06/2016 19:51

My 6 year old, Joseph, was diagnosed with stage 4 high risk neuroblastoma cancer when he was 3. He had 14 months off treatment and then had no evidence of disease for 2.5 years. We were starting to imagine a future for us all and make plans.

We found out a fortnight ago that he has relapsed. 5 year survival rates from here are less than 5%. Possibly even less than 1%, I can't remember. Chemo starts tomorrow, I am struggling to understand how this has happened to us again (because there is no reason) and how on earth we are going to make it through this. I know it's by taking a minute at a time, but it feels so huge right now.

OP posts:
Shopper99 · 07/08/2016 21:36

I've been thinking about the Trazzles too. Hope they are ok. In fact hoping that a mumsnet absence means things are good and trazzletoes doesn't need us at the mo for that reason.

StealthPolarBear · 09/08/2016 13:39

Still thinking about Trazzles

bobkate · 11/08/2016 23:58

Still in my thoughts too Trazzles.... Xxx

ExtraHotLatteToGo · 12/08/2016 00:22

Trazzles I've name changed since your other threads, but I'm an 'old friend'. I missed this thread when you started it, sorry X.

How are you all holding up?

Just a little while ago you posted on a thread re illness at school and I was so thrilled to see J was at school and life was ticking a long.

I can't believe you are going through this now - it's so bloody unfair xx

ExtraHotLatteToGo · 12/08/2016 00:23

Stealth. I'm glad you've been bumping, I'd totally missed the thread. Thank you.

StealthPolarBear · 12/08/2016 23:35
Flowers
barefootcook · 13/08/2016 00:25

Is everything okay Trazzles?

fanniboz · 13/08/2016 00:34

So sorry you and your lovely boy are going through this hell. Sending lots of love FlowersFlowers

StealthPolarBear · 14/08/2016 22:15

We all have our gingers crossed. I really am a ginger so mine are more powerful :)

Shopper99 · 15/08/2016 09:06

Still thinking of you and joe here too....

CelticPromise · 15/08/2016 09:27

I remember you and your boy. So sorry this is happening to you. Wishing you strength. I am a blood donor and will be thinking of Joseph when i give.

Lunar1 · 16/08/2016 04:34

Hope you are all doing ok.

Archduke · 16/08/2016 06:21

Oh Trazzle how awful, I am so sorry you and your family are having to go through this terrible time. I remember your previous threads about Joseph.

Sending you love and strength, it's an absolute fucker of the highest order. I am so very sorry.

StealthPolarBear · 17/08/2016 16:01

We are still here Trazzles x

ForeverYazoonique · 17/08/2016 16:04

Oh Trazzles I was on the Children with Cancer thread (Twunk).

I'm so sorry you and Joseph are going through this. I can see you're not posting at the moment. Big hugs to you Flowers

Wearegoingtobedlehem · 17/08/2016 16:11

Trazzles, I remember you and Joseph too. Just wanted to send you the warmest wishes and much love x X X

StealthPolarBear · 19/08/2016 15:19

I really am starting to wonder if I should keep bumping. If Trazzles is lurking or even posting elsewhere on the boards is this helping or nagging? :)

Smellysaurus · 19/08/2016 16:03

I think she'll appreciate that we are thinking of her and Joseph. And that she'll come back if/when she needs us.

StealthPolarBear · 22/08/2016 17:45

Flowers and gingers xx

Smellysaurus · 27/08/2016 07:08

Trazzles, hope you're alright.

StealthPolarBear · 28/08/2016 21:40

Still here Trazzles x

Nocakeformeplease · 28/08/2016 22:27

Oh Trazzles. I know we haven't spoken for a while but I think of you and your gorgeous boy often. I absolutely heart broken to hear that Joseph has relapsed.

I wish I was nearer, I wish there was something I could do or say but please know that we are with you every step of the way.

Things must be impossibly difficult but your strength shines through. When I'm having a particularly bad day I try to remind myself that none of us have any guarantees. All we can do is take a day at a time and make that day as fill of love and happiness as possible. So much love to you all xxx

Jetcatisback · 29/08/2016 22:02

Another who remembers and cares Flowers

LittleMissWagtail · 29/08/2016 22:14

........ and another one who remembers and cares too. xxx

GColdtimer · 29/08/2016 22:30

I was thinking of you only today. I am so sorry to heR this. Flowers