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Does anyone remember my little Blue-eyed Joseph? Bad news and I could use some support, please.

800 replies

Trazzletoes · 27/06/2016 19:51

My 6 year old, Joseph, was diagnosed with stage 4 high risk neuroblastoma cancer when he was 3. He had 14 months off treatment and then had no evidence of disease for 2.5 years. We were starting to imagine a future for us all and make plans.

We found out a fortnight ago that he has relapsed. 5 year survival rates from here are less than 5%. Possibly even less than 1%, I can't remember. Chemo starts tomorrow, I am struggling to understand how this has happened to us again (because there is no reason) and how on earth we are going to make it through this. I know it's by taking a minute at a time, but it feels so huge right now.

OP posts:
jellymum1704 · 26/07/2016 21:12

BrewCake

Lunar1 · 28/07/2016 08:04

Thinking of you all, I hope he's having a better week Flowers

StealthPolarBear · 28/07/2016 16:53

How are you all Trazzle?

Ragusa · 29/07/2016 20:37

I haven't posted on this thread yet but of course I remember Joseph and you from your old threads.

Am so sorry to hear about the relapse. It is desperately unfair and nature is horribly cruel.

Hope little J is faring OK. And you too.

nothruroad · 29/07/2016 23:49

Just sending you and Joseph my best wishes and hoping that treatment is going as well as can be expected.

Ihopeyouhadthetimeofyourlife · 03/08/2016 23:05

Hi Trazzles, thinking about you and Joseph

StealthPolarBear · 04/08/2016 07:50

I hope things are well x

Poptart27 · 04/08/2016 07:56

Thinking of you all Trazzles. Flowers

feelingmiffed · 04/08/2016 08:08

Thinking of you trazzle and blue eyed Joseph

I'm taking my 7 year old in for his chemo today

TheBakeryQueen · 04/08/2016 08:12

Praying for Joseph xxx

StealthPolarBear · 04/08/2016 08:37

Thinking of you miffed

yummycake123 · 04/08/2016 08:59

So sorry to hear this Flowers Sending you strength, you're in my thoughts

StealthPolarBear · 04/08/2016 17:55

Anyone else getting worried? :( I hope j hasn't picked up a bug, there are some nasty ones doing the rounds.

2kids2dogsnosense · 04/08/2016 19:10

I'm so very sorry - I can't even begin to imagine how distraught you must feel.

Holding you, and Joseph, and all who love him in my prayers.

Goingtobeawesome · 04/08/2016 19:14

Nothing wise to say but I'm thinking of you and Joseph.

rainbowstardrops · 04/08/2016 21:34

I've only just seen this thread but just wanted to send all the luck in the world to you.
Hope your little boy is doing as well as can be expected FlowersCake

couldntlovethebearmore · 04/08/2016 21:43

So so sorry. Heartbreaking. I wish we could eradicate this shit of a disease

Whatslovegottodo · 04/08/2016 21:45

Thinking of you and your family, wish I had better words to say Flowers

RainbowInACloud · 05/08/2016 06:48

Yes stealth I am worried too. Thinking of Joseph every day and wishing you all strength.
Please don't feel any pressure to update trazzle. I can't imagine what you must be going through. Flowers

QOD · 05/08/2016 06:52
Flowers
StealthPolarBear · 05/08/2016 07:24

Yes definitely. It's really difficult to draw the line between support and "bumping for an update". This is your thread to update or not, for you to use for support in whatever way works for you.

ChishandFips33 · 05/08/2016 08:04

Sending strength and crossing gingers

Some 💐 🍰🍷for you x

Lapinlapin · 06/08/2016 14:18

Still thinking of you here too Flowers

StealthPolarBear · 06/08/2016 22:19
Flowers
StealthPolarBear · 07/08/2016 21:27

Should I stop bumping do people think? Don't want to cross the line into stalker territory!