get it out! thread 3

[littlemaemae]

I have moved this to child health board as I don't think aibu is appropriate anymore.
What began as a quick question has become 2 now 3
The support on these threads has highlighted the best qualities of mumsnet and I am so grateful to every lovely person who has supported me so far!

Parker, I have one friend with a DS the same age, they came to visit on Thursday and it was lovely.
When I had DD(6) a lot of friends had babies at the same time, then went back to work and didn't have more. I decided to be SAHM and didn't pick back up with other mums when I had little DD so we are pretty isolated. I am an introvert and find small talk excruciating so it's hard me me to break the barriers and make friends with other mums

Still thinking of you, Little Mae. I'm glad DD seemed a bit brighter today. I'll be crossing my fingers for you tomorrow- I just hope that they come up with a clear plan and that they can answer your questions about the best treatment for her.

Good luck tomorrow will be thinking of you!

Good luck tomorrow!

Good luck for tomorrow op and Littlemae!!

As an aside, tomorrow is primary school offer day - does that affect Littlemae this year? I ask as a fellow owner of a 3yo (nearly 4 tbf).

Good luck for tomorrow Mae and little DD.

I know from experience that this is a marathon not a sprint. Please hold on to the knowledge that you are doing everything you can for your little DD.

I've said it before, but I'm repeating it, you're a superstar mum.

Have followed your threads from the start OP but have had nothing helpful to say but delurking now to say you have done amazingly well for your daughter and to wish you both luck for tomorrow.

Thinking of you and your little dd, good luck for tomorrow. X

Good luck for tomorrow x x

Still thinking of you all and wishing you well xx

Oh maemae. I've just found this thread. I posted a lot on your earlier threads, but for some reason the second one must have fallen off my Active Conversations and so I haven't been keeping up.

I can't believe they think it's Hirschsprung's because I can't believe no one thought of it earlier. But there's no point looking back right now - I really hope Leicester give you a good, solid plan for DD's treatment and she starts getting this godforsaken backlog shifted

more (((((((((((((Hugs)))))))))))) littlemaemae

Hope today goes well!

Coming to whoop whoop, hand hold and hoping you all at once for today.

You are slipping back into putting yourself down.

Remember - if you hadn't fought for your DD today may be not be happening and answers may not be almost available.

You are amazing - take that amazing mum to Leiscester.

Good morning Littlemae.
Today's the day !
Stay strong! Kick Ass (as they say) Don't get fobbed off with anymore 'let's try this'. Your DD needs you to get this raised to another level. She's been through a lot , this needs sorted NOW.
Lots of love and good wishes .

LittleMae good morning, just checking in to send you positive vibes for a good day today. I hope you got some rest last night.

All our best wishes (mine and DH's) for today. I hope DD and you get some good news soon.

Good luck today hope you get some support and a plan in place

Thinking of you today x

How is she this morning? And how are you? Here's hoping you're on the way to the other hospital now.

Hope it goes well today, thinking of you.

Good luck today, hope you get a plan and some answers

Morning, we are on our way very soon.
Not sure what will happen but glad to be getting things moving, so to speak.
The doctors there say they haven't seen a child not respond to klean prep before and she shouldn't be on it for any longer.

She can't get out of bed today, has no energy and had a breakdown when dp got here. She's had enough. Need her home

you will get her home. soon.
a properly bouncy mad 3year old :)

but now she needs to get better, hopefully very soon this awful time is in the past.